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Research Article

‘From my world to yours…’: exploring the availability of social networks among parents from culturally diverse backgrounds caring for children with developmental disabilities in Australia

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Pages 386-397 | Received 06 Jul 2022, Accepted 20 Jun 2023, Published online: 25 Jun 2023

References

  • Alsharaydeh, E. A., Alqudah, M., Lee, R. L. T., & Chan, S. W. C. (2019). Challenges, coping, and resilience among immigrant parents caring for a child with a disability: An integrative review. Journal of Nursing Scholarship, 51(6), 670–679. https://doi.org/10.1111/jnu.12522
  • Arfa, S., Solvang, P. K., Berg, B., & Jahnsen, R. (2020). Disabled and immigrant, a double minority challenge: A qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway. BMC Health Services Research, 20(1), 1–16. https://doi.org/10.1186/s12913-020-5004-2
  • Arfa, S., Solvang, P. K., Berg, B., & Jahnsen, R. (2022). Participation in a rehabilitation program based on adapted physical activities in Norway: A qualitative study of experiences of immigrant parents and their children with disabilities. Disability and Rehabilitation, 44(9), 1642–1649. https://doi.org/10.1080/09638288.2021.1907454
  • Australia Bureau Statistics. (2022). Cultural diversity of Australia: Information on country of birth, year of arrival, ancestry, language and religion. https://www.Abs.gov.au/articles/cultural-diversity-australia.
  • Australian Human Rights Commission. (2018). Anti-Racism in 2018 and Beyond: A Report on the Activities of the National Anti-racism Strategy (2015–18). Available at: https://www.humanrights.gov.au/sites/default/
  • Bešić, E., & Hochgatterer, L. (2020, June). Refugee families with children with disabilities: Exploring their social network and support needs. A good practice example. Frontiers in Education, 5(61), 1–18. https://doi.org/10.3389/feduc.2020.00061
  • Boyle, C. A., Boulet, S., Schieve, L. A., Cohen, R. A., Blumberg, S. J., Yeargin-Allsopp, M., Visser, S., & Kogan, M. D. (2011). Trends in the prevalence of developmental disabilities in US children, 1997–2008. Pediatrics, 127(6), 1034–1042. https://doi.org/10.1542/peds.2010-2989
  • Brassart, E., Prévost, C., Bétrisey, C., Lemieux, M., & Desmarais, C. (2017). Strategies developed by service providers to enhance treatment engagement by immigrant parents raising a child with a disability. Journal of Child and Family Studies, 26(4), 1230–1244. https://doi.org/10.1007/s10826-016-0646-8
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Braun, V., & Clarke, V. (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328–352. https://doi.org/10.1080/14780887.2020.1769238
  • Cummings, K. P., & Hardin, B. J. (2017). Navigating disability and related services: Stories of immigrant families. Early Child Development and Care, 187(1), 115–127. https://doi.org/10.1080/03004430.2016.1152962
  • Dandy, J., & Pe-Pua, R. (2010). Attitudes to multiculturalism, immigration and cultural diversity: Comparison of dominant and non-dominant groups in three Australian states. International Journal of Intercultural Relations, 34(1), 34–46. https://doi.org/10.1016/j.ijintrel.2009.10.003
  • Department of the Prime Minister and Cabinet. (2018). Review of Integration, Employment and Settlement Outcomes for Refugees Launched. Available at: https://www.pmc.gov.au/news-centre/government/review-integration-employment-and-settlement-outcomes-refugees-launched
  • Dew, A., Bulkeley, K., Veitch, C., Bundy, A., Gallego, G., Lincoln, M., Brentnall, J., & Griffiths, S. (2013). Addressing the barriers to accessing therapy services in rural and remote areas. Disability and Rehabilitation, 35(18), 1564–1570. https://doi.org/10.3109/09638288.2012.720346
  • Fellin, M., King, G., Esses, V., Lindsay, S., & Klassen, A. (2013). Barriers and facilitators to health and social service access and utilization for immigrant parents raising a child with a physical disability. International Journal of Migration, Health and Social Care, 9(3), 135–145. https://doi.org/10.1108/IJMHSC-07-2013-0024
  • Gaad, E. (2011). Inclusive education in the Middle East. Routledge. https://doi.org/10.4324/9780203845219
  • Gauthier-Boudreault, C., Gallagher, F., & Couture, M. (2017). Specific needs of families of young adults with profound intellectual disability during and after transition to adulthood: What are we missing? Research in Developmental Disabilities, 66, 16–26. https://doi.org/10.1016/j.ridd.2017.05.001
  • Gavidia-Payne, S. (2020). Implementation of Australia’s National Disability Insurance Scheme: Experiences of families of young children with disabilities. Infants & Young Children, 33(3), 184–194. https://doi.org/10.1097/IYC.0000000000000169
  • Heer, K., Larkin, M., & Rose, J. (2015). The experiences of British South Asian carers caring for a child with developmental disabilities in the UK. Tizard Learning Disability Review, 20(4), 228–238. https://doi.org/10.1108/TLDR-12-2014-0044
  • Hussain, R., & Tait, K. (2015). Parental perceptions of information needs and service provision for children with developmental disabilities in rural Australia. Disability and Rehabilitation, 37(18), 1609–1616. https://doi.org/10.3109/09638288.2014.972586
  • Iacono, T., Humphreys, J., Davis, R., & Chandler, N. (2004). Health care service provision for country people with developmental disability: An Australian perspective. Research in Developmental Disabilities, 25(3), 265–284. https://doi.org/10.1016/j.ridd.2003.09.001
  • John, A., Bower, K., & McCullough, S. (2016). Indian immigrant parents of children with developmental disabilities: Stressors and support systems. Early Child Development and Care, 186(10), 1594–1603. https://doi.org/10.1080/03004430.2015.1116297
  • Khanlou, N., Haque, N., Sheehan, S., & Jones, G. (2015). “It is an issue of not knowing where to go”: Service providers’ perspectives on challenges in accessing social support and services by immigrant mothers of children with disabilities. Journal of Immigrant & Minority Health, 17(6), 1840–1847. https://doi.org/10.1007/s10903-014-0122-8
  • King, G., Desmarais, C., Lindsay, S., Piérart, G., & Tétreault, S. (2015). The roles of effective communication and client engagement in delivering culturally sensitive care to immigrant parents of children with disabilities. Disability and Rehabilitation, 37(15), 1372–1381. https://doi.org/10.3109/09638288.2014.972580
  • Lindblad, B. M., Holritz‐Rasmussen, B., & Sandman, P. O. (2007). A life enriching togetherness–meanings of informal support when being a parent of a child with disability. Scandinavian Journal of Caring Sciences, 21(2), 238–246. https://doi.org/10.1111/j.1471-6712.2007.00462.x
  • Lindsay, S., King, G., Klassen, A. F., Esses, V., & Stachel, M. (2012). Working with immigrant families raising a child with a disability: Challenges and recommendations for healthcare and community service providers. Disability and Rehabilitation, 34(23), 2007–2017. https://doi.org/10.3109/09638288.2012.667192
  • Moore, T. (2007). The nature and role of relationships in early childhood intervention services. (paper presented at 2nd International Conference of the International Society on Early Intervention, Zagreb, Croatia, 14-16th June). https://www.researchgate.net/publication/228658105_The_nature_and_role_of_relationships_in_early_childhood_intervention_services
  • Procter, N. G. (2004). Moving forward: An international comparison of successful strategies to improve access and equity for people from ethnic minorities. Report Commissioned by MDAA: NSW.
  • Psychiatric Association, A., & American Psychiatric Association (APA). (2013). DSM V DIagnostic and statistical manual of mental disorders. 5th. American Psychiatric Association; https://doi.org/10.1176/appi.books.9780890425596
  • Runyan, A. S. (2018). What is intersectionality and why is it important? Academe, 104(6), 10–14.
  • Shank, G., & Villella, O. (2004). Building on new foundations: Core principles and new directions for qualitative research. The Journal of Educational Research, 98(1), 46–55. https://doi.org/10.3200/JOER.98.1.46-55
  • Sim, S. S., Bourke-Taylor, H., Fossey, E., & Yu, M. L. (2021). Being more than a mother: A qualitative study of Asian immigrant mothers in Australia who have children with disabilities. Research in Developmental Disabilities, 117, 104060. https://doi.org/10.1016/j.ridd.2021.104060
  • Skinner, D., Bailey, D. B., Jr., Correa, V., & Rodriguez, P. (1999). Narrating self and disability: Latino mothers’ construction of identities vis-à-vis their child with special needs. Exceptional Children, 65(4), 481–498. https://doi.org/10.1177/001440299906500404
  • Stienstra, D. (2012). Race/Ethnicity and disability studies: Towards an explicityly intersectional approach. In N. Watson, A. Roulstone, & C. Thomas (Eds.), Routledge handbook of disability studies (1st ed., pp. 453–466). Ser. Routledge handbooks. Routledge.
  • Tait, K., & Hussain, R. (2017). Using quality of family life factors to explore parents’ experience of educational provision for children with developmental disabilities in rural Australia. International Journal of Disability, Development and Education, 64(3), 328–344. https://doi.org/10.1080/1034912X.2016.1223280
  • United Nations. (2007) . Convention on the rights of persons with disabilities. Author.
  • Van Riper, C. (2010). Position of the American Dietetic Association: Providing nutrition services for people with developmental disabilities and special health care needs. Journal of the American Dietetic Association, 110(2), 296–307. https://doi.org/10.1016/j.jada.2009.12.003
  • Woolfenden, S., Posada, N., Krchnakova, R., Crawford, J., Gilbert, J., Jursik, B., Sarkozy, V., Perkins, D., & Kemp, L. (2015). Equitable access to developmental surveillance and early intervention – understanding the barriers for children from culturally and linguistically diverse (CALD) backgrounds. Health Expectations, 18(6), 3286–3301. https://doi.org/10.1111/HEX.12318
  • World Health Organization. (2011). World disability report. Author.
  • Zablotsky, B., Black, L. I., Maenner, M. J., Schieve, L. A., Danielson, M. L., Bitsko, R. H., Blumberg, S. J., Kogan, M. D., & Boyle, C. A. (2019). Prevalence and trends of developmental disabilities among children in the United States: 2009–2017. Pediatrics, 144(4). https://doi.org/10.1542/peds.2019-0811

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