Do caregiving burden and satisfaction predict loneliness in older care recipients?

References

• Andrén, S., & Elmstahl, S. (2005). Family caregivers' subjective experiences of satisfaction in dementia care: Aspects of burden, subjective health and sense of coherence. Scandinavian Journal of Caring, 19, 157–168. doi:10.1111/j.1471-6712.2005.00328.x
   PubMed Web of Science ®Google Scholar
• Baronet, A. (2003). The impact of family relations on caregivers' positive and negative appraisal of their caretaking activities. Family Relations, 52, 137–142. doi:10.1111/j.1741-3729.2003.00137.x
   Web of Science ®Google Scholar
• Bedard, M., Molloy, D.W., Squire, L., Dubois, S., Lever, J.A., & O'Donnell, M. (2001). The Zarit burden interview: A new short version and screening version. The Gerontologist, 41, 652–657. doi:10.1093/geront/41.5.652
   PubMed Web of Science ®Google Scholar
• Bergstrom, A.L., Eriksson, G., von Koch, L., & Tham, K. (2011). Combined life satisfaction of persons with stroke and their caregivers: Associations with caregiver burden and the impact of stroke. Health & Quality of Life Outcomes, 9, 1. doi:10.1186/1477-7525-9-1.
   PubMed Web of Science ®Google Scholar
• Boerner, K., Shultz, R., & Horowitz, A.M. (2004). Positive aspects of caregiving and adaptation to bereavement. Psychology & Aging, 19, 668–675. doi:10.1037/0882-7974.19.4.668
   PubMed Web of Science ®Google Scholar
• Burgener, S., & Twigg, P. (2002). Relationships among relationship caregiver factors and quality of life in care recipients with irreversible dementia. Alzheimer Disease and Associated Disorders, 16, 88–102.
   PubMed Web of Science ®Google Scholar
• Cacioppo, T.J., Hughes, M.E., Waite, L.J., Hawkey, L.C. & Thisted, R.A. (2006). Loneliness as a specific factor of depressive symptoms: Cross sectional and longitudinal study. Journal of Psychology and Aging, 21, 140–151. doi: 10.1037/0882-7974.21.1.140
   PubMed Web of Science ®Google Scholar
• Cohen-Mansfield, J., & Parpura-Gill, A. (2007). Loneliness in older persons a theoretical model and empirical findings. Journal of International Psychogeriatrics, 19(2), 279–294. doi: 10.1017/S1041610206004200
   PubMed Web of Science ®Google Scholar
• Cuijpers, P. (1999). The effects of family interventions on relatives' burden: A meta-analysis. Journal of Mental Health, 8, 275–285. doi:10.1080/09638239917436
   Google Scholar
• De Jong Gierveld, J. (1995). Research into relationship research designs: Personal relationships under the microscope. Journal of Social and Personal Relationships, 12, 583–588. doi:10.1177/0265407595124014
   Web of Science ®Google Scholar
• De Jong Gierveld, J., & van Tilburg, T.G. (1999). Manual of the loneliness scale. Amsterdam: Department of Social Research Methodology, Vrije Universiteit.
   Google Scholar
• Dykstra, P.A., van Tilburg, T.G., & de Jong Gierveld, J. (2005). Changes in older adult loneliness. Research on Aging, 27, 725–747. doi:10.1177/0164027505279712
   Web of Science ®Google Scholar
• Ekwall, A.K., & Hallberg, I.R. (2007). The association between caregiving satisfaction, difficulties and coping among older family caregivers. Journal of Clinical Nursing, 16, 832–844. doi:10.1111/j.1365-2702.2006.01382.x
   PubMed Web of Science ®Google Scholar
• Ekwall, A.K., Sivberg, B., & Hallberg, I.R. (2005) Loneliness as a predictor of quality of life among older caregivers. Journal of Advanced Nursing, 49, 23–32. doi:10.1111/j.1365-2648.2004.03260.x
   PubMed Web of Science ®Google Scholar
• Farran, C.J., Miller, B.H., Kaufman, J.E., & Davis, L. (1997). Race, finding meaning, and caregiver distress. Journal of Aging and Health, 9, 316–333. doi:10.1177/089826439700900303
   PubMed Web of Science ®Google Scholar
• Fillenbaum, G.G. (1985). Screening the elderly: A brief instrumental activities of daily living measure. Journal of the American Geriatrics Society (JAGS), 33, 689–706.
   Web of Science ®Google Scholar
• Folstein, M.F., Folstein, S.E., & McHugh, P.R. (1975). Mini mental state: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198.
   PubMed Web of Science ®Google Scholar
• Fox, K., Hinton, W.L., & Levkoff, S. (1999). Take up the caregiver's burden: Stories of care for urban African American elders with dementia. Culture, Medicine and Psychiatry, 23, 501–529. doi:10.1023/A:1005520105518
   PubMed Web of Science ®Google Scholar
• Fredman, L., Daly, M.P., & Lazur, A.M. (1995). Burden among white and black caregivers to elderly adult. Journal of Gerontology Series B, Psychological Sciences and Social Sciences, 50, 110–118. doi:10.1093/geronb/50B.2.S110
   Web of Science ®Google Scholar
• Harwood, D.G., Barker, W.W., Ownby, R.L., Bravo, M., Aguero, H., & Duara, R. (2000). Predictors of positive and negative appraisal among Cuban American caregivers of Alzheimer's disease patients. International Journal of Geriatric Psychiatry, 15, 481–487. doi:10.1002/1099-1166(200006)15:63.0.CO;2-J
   PubMed Web of Science ®Google Scholar
• Hawkley, L.C., Masi, C.M., Berry, J.D., & Cacioppo, J.T. (2006). Loneliness is a unique predictor of age-related differences in systolic blood pressure. Psychology and Aging, 21, 152–164. doi:10.1037/a0017805
   PubMed Web of Science ®Google Scholar
• Hunt, C.K. (2003). Concepts in caregiver research. Journal of Nursing Scholarship, 35, 27–32. doi:10.1111/j.1547-5069.2003.00027.x
   PubMed Web of Science ®Google Scholar
• Katz, S., Downs, T.D., Cash, H.R., & Grotz, R.C. (1970). Index of activities of daily living. The Gerontologist, 1, 20–301. doi:10.1093/geront/10.1_Part_1.20
   Google Scholar
• Kim, H., Chang, M., Rose, K. & Kim, S. (2012) Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68, 846–855. doi:10.1111/j.1365-2648.2011.05787.x
   PubMed Web of Science ®Google Scholar
• Knight, B., Silverstein, M., McCullum, T., & Fox, L. (2000). A sociocultural stress and coping model for mental health outcomes among African American caregivers in Southern Carolina. Journal of Gerontology: Psychological Sciences, 55B, 142–P150. doi:10.1093/geronb/55.3.P142
   Google Scholar
• Kramer, B.J. (1997). Gain in the caregiving experience: Where are we? What next? The Gerontologist, 37, 218–232. doi:10.1093/geront/37.2.218
   PubMed Web of Science ®Google Scholar
• Kuzuya, M., Enoki, H., Hasegawa, J., Izawa, S., Hirakawa, Y., Shimokata, H., & Akihisa, I. (2011). Impact of caregiver burden on adverse health outcomes in community-dwelling dependent older care recipients. American Journal of Geriatric Psychiatry, 19, 382–391. doi:10.1097/JGP.0b013e3181e9b98d
   PubMed Web of Science ®Google Scholar
• Lawton, M.P., Moss, M., Fulcomer, M., & Kleban, M.H. (1982). A research and service-oriented multilevel assessment instrument. Journal of Gerontology, 37, 91–99. doi:10.1093/geronj/37.1.91
   PubMedGoogle Scholar
• Lawton, M.P., Moss, M., Kleban, M.H., Glicksman, A., & Rovine, M. (1991). The two-factor model of caregiving appraisal and psychological well-being. Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 46, 181–189. doi:10.1093/geronj/46.4.P181
   Google Scholar
• Lawton, M.P., Rajagopal, D., Brody, E., & Kleban, M.H. (1992). The dynamics of caregiving for a demented elder among Black and White families. Journal of Gerontology: Social Sciences, 47, S156–S164. doi:10.1093/geronj/47.4.S156
   Web of Science ®Google Scholar
• Lin, I.F., Fee, H.R., & Wu, H.S. (2012). Negative and positive caregiving experiences: A closer look at the intersection of gender and relationship. Family Relations, 61, 343–358. doi:10.1111/j.1741-3729.2011.00692.x
   PubMed Web of Science ®Google Scholar
• Manskow, U.S., Sigurdardottir, S., Røe, C., Andelic, N., Skandsen, T., Damsgård, E., Elmståhl, S., & Anke, A. (2014). Factors affecting caregiver burden 1 year after severe traumatic brain injury: A prospective nationwide multicenter study. The Journal of Head Trauma Rehabilitation. Advance online publication. doi:10.1097/HTR.0000000000000085
   Web of Science ®Google Scholar
• Miller, B. (1989). Adult children's perceptions of caregiver stress and satisfaction. Journal of Applied Gerontology, 8, 275–293. doi:10.1177/073346488900800301
   Google Scholar
• Miyamoto, Y., Ito, H., Otsuka, T., & Kurita, H. (2002). Caregiver burden in mobile and non-mobile demented patents: A comparative study. International Journal of Geriatric Psychiatry, 17, 765–773. doi:10.1002/gps.694
   PubMed Web of Science ®Google Scholar
• Modan, B., Modan, B., Fuchs, Z., Blumstien, T., Chetrit, A., Lusky, A., … Walter-Ginzburg, A. (2002). Aging in Israel: Baseline data from the cross-sectional and longitudinal aging study (CALAS). Tel Hashomer: The Department of Clinical Epidemiology, Chaim Sheba Medical Center.
   Google Scholar
• Mullins, L.C., Smith, R., Colquitt, R., & Mushel, M. (1996). An examination of the effects of self-rated and objective indicators of health condition and economic condition on the loneliness of older people. The Journal of Applied Gerontology, 15, 23–37. doi:10.1177/073346489601500102
   Web of Science ®Google Scholar
• Murphy, F. (2006). Loneliness: A challenge for nurses caring for older people. Nursing Older People, 18(5), 22–25.
   PubMedGoogle Scholar
• Pearlin, L., Mullan, J., Semple, S., & Skaff, M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583–594. doi:10.1093/geront/30.5.583
   PubMed Web of Science ®Google Scholar
• Penninx, B.W.J.H., Van-Tilburg, T., Kriegsman, D.M.W., & Boeke, A.J.P. (1999). Social network, social support, and loneliness in older persons with different chronic diseases, Journal of Aging and Health, 11, 151–168. doi:10.1177/089826439901100202
   PubMed Web of Science ®Google Scholar
• Perissinotto, C.M., Stijacic Cenzer, I., & Covinsky, K.E. (2012). Loneliness in older persons: A predictor of functional decline and death. Archives of Internal Medicine, 172, 1078–1084. doi:10.1001/archinternmed
   PubMed Web of Science ®Google Scholar
• Pinquart, M., & Sörensen, S. (2001). Influences on loneliness in older adults: A meta-analysis. Basic and Applied Social Psychology, 23, 245–266. doi:10.1207/S15324834BASP2304_2
   Web of Science ®Google Scholar
• Pinquart, M., & Sörenson, S. (2003). Differences between caregivers and noncaregivers psychological health and physical health: A meta-analysis. Psychology and Aging, 18, 250–267. doi: 10.1037/0882-7974.18.2.250
   PubMed Web of Science ®Google Scholar
• Pinquart, M., & Sörensen, S. (2005). Ethnic differences in stressors, and psychological outcome of family caregiving: A meta-analysis. The Gerontologist, 45, 90–106. doi:10.1093/geront/45.1.90
   PubMed Web of Science ®Google Scholar
• Quinn, C., Clare, L., & Woods, B. (2009). The impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: A systematic review. Aging & Mental Health, 13, 143–154. doi:10.1080/13607860802459799
   PubMed Web of Science ®Google Scholar
• Rand, S.E. (2012). A review of the factors that affect the quality of life of carer-care recipient dyads. Retrieved from http://www.qoru.ac.uk/wp-content/uploads/2013/07/A05-A-Review-of-the-Factors-that-affect-the-Quality-of-Life-of-Carer-Care-Recipient-Dyads-FINAL-DP2838.pdf
   Google Scholar
• Raschick, M., & Ingersoll-Dayton, B. (2004). Costs and rewards of caregiving among aging spouses and children. Family Relations, 53, 317–325. doi:10.1111/j.0022-2445.2004.0008.x
   Web of Science ®Google Scholar
• Riedel, S.E., Fredman, L., & Landenberg, P. (1998). Associations among caregiving difficulties, burden, and rewards in caregivers to older post rehabilitation patients. Journals of Gerontology: Series B Psychological and Social Sciences, 53B, P165–P174.
   Google Scholar
• Roberto, K.A., Blieszner, R., & Allen, K.R. (2006). Theorizing in family gerontology: New opportunities for research and practice. Journal of Family Relations, 55, 513–525. doi:10.1111/j.1741-3729.2006.00422.x
   Web of Science ®Google Scholar
• Robertson, S.M., Zarit, S.H., Duncan, L.G., Rovine, M.J., & Femia, E.E. (2007). Family caregivers' patterns of positive and negative affect. Family Relations, 56, 12–23. doi:10.1111/j.1741-3729.2007.00436.x
   Web of Science ®Google Scholar
• Routasalo, E.R., Savikko, N., Tilvis, S.R., Strandberg, E.T., & Pitkala, H.K. (2006). Social contacts and their relationship to loneliness among aged people – a population based study. Gerontology, 52, 181–187. doi:10.1159/000091828
   PubMed Web of Science ®Google Scholar
• Sanders, S. (2005). Is the glass half empty or half full? Reflections on strain and gain in caregivers of individuals with Alzheimer disease. Social Work in Health Care, 40(3), 57–73. doi:10.1300/J010v40n03_04
   PubMed Web of Science ®Google Scholar
• Savikko, N., Routasalo, P., Tilvis, R.S., Strandberg, T.E. & Pitkälä, K.H. (2005). Predictors and subjective causes of loneliness in an aged population. Archives of Gerontology and Geriatric, 41, 223–233. doi:10.1016/j.archger.2005.03.002
   Google Scholar
• Shiovitz-Ezra, S., & Leitsch, S.A. (2010). The role of social relationships in predicting loneliness: The national social life, health, and aging project. Social Work Research, 34, 157–167. doi:10.1093/swr/34.3.157
   Web of Science ®Google Scholar
• Schofield, H., Bloch, S., Herrman, H., Murphy, B., Nankervis, J., & Singh, B. (1998), Family caregivers. Disability, illness and ageing. St Leonards: Allen & Unwin.
   Google Scholar
• Sundstrom, G., Fransson, E., Malmberg, B., & Davey, A. (2009). Loneliness among older Europeans. European Journal of Ageing, 6, 267‐275. doi:10.1007/s10433-009-0134-8
   Google Scholar
• Tarlow, B.J., Wisniewski, S.R., Belle, S.H., Rubert, M., Ory, M.C., & Gallagher-Thompson, D. (2004). Positive aspects of caregiving: Contributions of the REACH project to the development of new measures for Alzheimer's caregiving. Research on Aging, 26, 429–453. doi:10.1177/0164027504264493
   Web of Science ®Google Scholar
• Theeke, L.A. (2007). Socidemographic and health‐related risks for loneliness and outcome differences by loneliness status in a sample of older U.S. adults (Unpublished doctoral dissertation). West Virginia University, Morgantown, WV.
   Google Scholar
• Tikkainen, P., & Heikkinen, R.-L. (2005). Associations between loneliness, depressive symptoms and perceived togetherness in older people. Aging & Mental Health, 9, 526–534. doi:10.1080/13607860500193138
   PubMed Web of Science ®Google Scholar
• Tolkacheva, N.V., Broese Van Groenou, M.I., & van Tilburg, T.G. (2010). Sibling influence on care given by children to older parents. Research on Aging, 32, 739–759. doi:10.1177/0164027510383532
   Web of Science ®Google Scholar
• Tomaka, J., Thompson, S., & Palacios, R. (2006). The relation of social isolation, loneliness, and social support to disease outcomes among the elderly. Journal of Aging and Health, 18, 359–384. doi:10.1177/0898264305280993
   PubMed Web of Science ®Google Scholar
• Van Houtven, C.H., Voils, C.I., & Weinberger, M. (2011). An organizing framework for informal caregiver interventions: Detailing caregiving activities and caregiver and care recipient outcomes to optimize evaluation efforts. BMC Geriatrics, 11, 77. Retrieved from http://www.biomedcentral.com/content/pdf/1471-2318-11-77.pdf
   PubMed Web of Science ®Google Scholar
• Victor, C., Scambler, S., Shah, S., Cook, D.G., Harris, T., Rink, E., & De Wilde, S. (2002). Has loneliness amongst older people increased? An investigation into variations between cohorts. Ageing and Society, 22, 585–597. doi:10.1017/S0144686×02008784
   Web of Science ®Google Scholar
• Walker, A.J., Acock, A.C., Bowman, S.R., & Li, F. (1996). Amount of care given and caregiving satisfaction: A latent growth curve analysis. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 51, P130–P142. doi:10.1093/geronb/51B.3.P130
   Google Scholar
• Walker, A.J., Shin, H.Y., & Bird, D.N. (1990). Perceptions of relationships change and caregiver satisfaction. Family Relations, 39, 147–152. doi:10.2307/585716
   Web of Science ®Google Scholar
• Walker, A.J., Pratt, C.C., & Eddy, L. (1995). Informal caregiving to aging family members: A critical review. Family Relations, 44, 402–411. doi:10.2307/584996
   Web of Science ®Google Scholar
• Yates, M.E., Tennstedt, S., & Chang, B. (1999). Contributors to and mediators of psychological well-being for informal caregivers. Journals of Gerontology: Psychological and Social Sciences, 54B, P12–P23. doi:10.1093/geronb/54B.1.P12
   Google Scholar
• Yildirim, Y., & Kocabiyik, S. (2010). The relationship between social support and loneliness in Turkish patients with cancer. Journal of Clinical Nursing, 19, 832–839. doi:10.1111/j.1365-2702.2009.03066.x
   PubMed Web of Science ®Google Scholar