2,060
Views
2
CrossRef citations to date
0
Altmetric
Cognitive Functioning, Awareness, and Care

Joining forces to improve psychosocial care for people with cognitive deficits across diagnoses: social health as a common framework

ORCID Icon, &
Pages 1275-1281 | Received 19 Oct 2017, Accepted 05 Jul 2018, Published online: 18 Nov 2018

References

  • A-Tjak, J. G. L., Davis, M. L., Morina, N., Powers, M. B., Smits, J. A., & Emmelkamp, P. M. 2015. A meta-analysis of the efficacy of acceptance and commitment therapy for clinically relevant mental and physical health problems. Psychotherapy and Psychosomatics, 84(1), 30–36.
  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders. 5th ed. Washington, DC: APA.
  • Andersson, G., Cuijpers, P., Carlbring, P., Riper, H., & Hedman, E. (2014). Guided Internet-based vs. face-to-face cognitive behavior therapy for psychiatric and somatic disorders: A systematic review and meta-analysis. World Psychiatry, 13(3), 288–295.
  • Anthony, W. A. (1993). Recovery from mental illness: The guiding vision of the mental health service system in the 1990s. Psychosocial Rehabilitation Journal, 16(4), 11–23.
  • Bach, P., & Hayes, S. C. (2002). The use of acceptance and commitment therapy to prevent the rehospitalization of psychotic patients: A randomized controlled trial. Journal of Consulting and Clinical Psychology, 70(5), 1129–1139.
  • Boots, L. M. M., de Vugt, M. E., Kempen, G. I. J. M., & Verhey, F. R. J. (2016). Effectiveness of the blended care self-management program ‘Partner in Balance’ for early-stage dementia caregivers: study protocol for a randomized controlled trial. Trials, 17(1), 231.
  • Bunn, F., Goodman, C., Sworn, K., Rait, G., Brayne, C., Robinson, L., … Iliffe, S. (2012). Psychosocial Factors That Shape Patient and Carer Experiences of Dementia Diagnosis and Treatment: A Systematic Review of Qualitative Studies. PLoS Medicine, 9(10), e1001331.
  • Camak, D. J. (2015). Addressing the burden of stroke caregivers: a literature review. Journal of Clinical Nursing, 24(17–18), 2376–2382.
  • Clark, D. A. (2009). Cognitive behavioral therapy for anxiety and depression: Possibilities and limitations of a transdiagnostic perspective. Cognitive Behaviour Therapy, 38(sup1), 29–34.
  • Cook, J. A., Copeland, M. E., Jonikas, J. A., Hamilton, M. M., Razzano, L. A., Grey, D. D., … Boyd, S. (2012). Results of a randomized controlled trial of mental illness self-management using wellness recovery action planning. Schizophrenia Bulletin, 38(4), 881–891.
  • Cox, V. (2016). CARE4Carer: Personalized caregiver support in rehabilitation for patients with acquired brain injury. Nederlands Trial Register, Registration Number NTR6197. Retrieved from http://www.trialregister.nl/trialreg/admin/rctview.asp?TC =6197
  • Cumming, T. B., Marshall, R. S., & Lazar, R. M. (2013). Stroke, cognitive deficits, and rehabilitation: Still an incomplete picture. International Journal of Stroke, 8(1), 38–45.
  • Dröes, J., & Plooy, A. (2010). Herstelondersteunende zorg in Nederland: Vergelijking met Engelstalige literatuur. Tijdschrift Voor Rehabilitatie, 19(2), 6–16.
  • Dröes, R.-M., van der Roest, H. G., van Mierlo, L., & Meiland, F. J. M. (2011). Memory problems in dementia: Adaptation and coping strategies and psychosocial treatments. Expert Review of Neurotherapeutics, 11(12), 1769–1782.
  • Dröes, R. M., Chattat, R., Diaz, A., Gove, D., Graff, M., Murphy, K., … Charras, K. (2017). Social health and dementia: A European consensus on the operationalization of the concept and directions for research and practice. Aging & Mental Health, 7863(December), 21(1), 4–14.
  • Druss, B. G., Zhao, L., von Esenwein, S. A., Bona, J. R., Fricks, L., Jenkins-Tucker, S., … Lorig, K. (2010). The Health and Recovery Peer (HARP) Program: A peer-led intervention to improve medical self-management for persons with serious mental illness. Schizophrenia Research, 118(1–3), 264–270.
  • Farkas, M., & Anthony, W. A. (2010). Psychiatric rehabilitation interventions: A review. International Review of Psychiatry (Abingdon, England), 22(2), 114–129.
  • Fryer, C. E., Luker, J. A., McDonnell, M. N., & Hillier, S. L. (2015). Self-management programs for quality of life in people with stroke. International Journal of Stroke, 10, CD010442.
  • Gaudiano, B. A., & Herbert, J. D. (2006). Acute treatment of inpatients with psychotic symptoms using Acceptance and Commitment Therapy: Pilot results. Behaviour Research and Therapy, 44(3), 415–437.
  • Graham, C. D., Gouick, J., Krahé, C., & Gillanders, D. (2016). A systematic review of the use of Acceptance and Commitment Therapy (ACT) in chronic disease and long-term conditions. Clinical Psychology Review, 46, 46–58.
  • Hare, R., Rogers, H., Lester, H., McManus, R., & Mant, J. (2006). What do stroke patients and their carers want from community services?. Family Practice, 23(1), 131–136.
  • Hayes, S., Strosahl, K., & Wilson, K. (1999). Acceptance and commitment therapy: An experiential approach to behavior change. New York: Guilford Press.
  • Holman, H., & Lorig, K. (2004). Patient self-management: A key to effectiveness and efficiency in care of chronic disease in care to effectiveness of chronic disease. Public Health Reports (Washington, DC: 1974), 119, 239–243.
  • Huber, M., Knottnerus, J. A., Green, L., van der Horst, H., Jadad, A. R., Kromhout, D., …, Smid, H. (2011). How should we define health? The British Medical Journal (BMJ), 343, d4163.
  • Jackson, D., Roberts, G., Wu, M. L., Ford, R., & Doyle, C. (2016). A systematic review of the effect of telephone, internet or combined support for carers of people living with Alzheimer’s, vascular or mixed dementia in the community. Archives of Gerontology and Geriatrics, 66, 218–236.
  • Kangas, M., & McDonald, S. (2011). Is it time to act? The potential of acceptance and commitment therapy for psychological problems following acquired brain injury. Neuropsychological Rehabilitation, 21(2), 250–276.
  • Kinney, A. (2001). Cognitive therapy and brain-injury: Theoretical and clinical issues. Journal of Contemporary Psychotherapy, 31(2), 89–102.
  • Kuipers, E. (2010). Time for a separate psychosis caregiver service? Journal of Mental Health (Abingdon, England), 19(5), 401–404.
  • Lafosse, C. (2016). Psycho-educatie bij hersenletsel. Neuropraxis, 20(5), 147–155.
  • Langhorne, P., Bernhardt, J., & Kwakkel, G. (2011). Stroke rehabilitation. Lancet (London, England)), 377(9778), 1693–1702.
  • Laver, K., Dyer, S., Whitehead, C., Clemson, L., & Crotty, M. (2016). Interventions to delay functional decline in people with dementia: A systematic review of systematic reviews. BMJ Open, 6(4), e010767.
  • Leamy, M., Bird, V., Boutillier, C. L., Williams, J., & Slade, M. (2011). Conceptual framework for personal recovery in mental health: Systematic review and narrative synthesis. British Journal of Psychiatry, 199(06), 445–452.
  • Lorig, K., Ritter, P. L., Pifer, C., & Werner, P. (2014). Effectiveness of the chronic disease self-management program for persons with a serious mental illness: A translation study. Community Mental Health Journal, 50(1), 96–103.
  • Lorig, K., & Holman, H. R. (2003). Self-management education: History, definition, outcomes, and mechanisms. Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine, 26(1), 1–7.
  • Losada, A., Márquez-González, M., Romero-Moreno, R., Mausbach, B. T., López, J., Fernández-Fernández, V., & Nogales-González, C. (2015). Cognitive-Behavioral Therapy (CBT) versus Acceptance and Commitment Therapy (ACT) for dementia family caregivers with significant depressive symptoms: results of a randomized clinical trial. Journal of Consulting and Clinical Psychology, 83(4), 760–772.
  • Lyman, D. R., Braude, L., George, P., Dougherty, R. H., Daniels, A. S., Ghose, S. S., & Delphin-Rittmon, M. E. (2014). Consumer and family psychoeducation: Assessing the evidence. Psychiatric Services, 65(4), 416–428.
  • Malloy, P., McLaughlin, N. C. R., Epstein-Lubow, G., Doughty, A., Marino, L., & Milner, M. (2010). The Severe Impairment Battery predicts functional abilities in an inpatient geriatric population. Applied Neuropsychology, 17(3), 172–176.
  • Martin-Carrasco, M., Ballesteros-Rodríguez, J., Domínguez-Panchón, A. I., Muñoz-Hermoso, P., & González-Fraile, E. (2014). Interventions for caregivers of patients with dementia. Actas Españolas De Psiquiatría, 42(6), 300–314.
  • Martin, F., Turner, A., Wallace, L. M., Stanley, D., Jesuthasan, J., & Bradbury, N. (2015). Qualitative evaluation of a self-management intervention for people in the early stage of dementia. Dementia (London, England)), 14(4), 418–435.
  • Meehan, T. J., King, R. J., Beavis, P. H., & Robinson, J. D. (2008). Recovery-based practice: Do we know what we mean or mean what we know? The Australian and New Zealand Journal of Psychiatry, 42(3), 177–182.
  • Millan, M. J., Agid, Y., Brüne, M., Bullmore, E. T., Carter, C. S., Clayton, N. S., … Young, L. J. (2012). Cognitive dysfunction in psychiatric disorders: Characteristics, causes and the quest for improved therapy. Nature Reviews Drug Discovery, 11(2), 141–168.
  • Murray, J., Ashworth, R., Forster, A., & Young, J. (2003). Developing a primary care-based stroke service: A review of the qualitative literature. British Journal of General Practice, 53(487), 137–142.
  • Murray, J., Young, J., & Forster, A. (2007). Review of longer-term problems after a disabling stroke. Reviews in Clinical Gerontology, 17(04), 277–365.
  • Nehen, H. G., & Hermann, D. M. (2015). Supporting dementia patients and their caregivers in daily life challenges: Review of physical, cognitive and psychosocial intervention studies. European Journal of Neurology, 22(2), 246–252.
  • Nordén, T., Malm, U., & Norlander, T. (2012). Resource Group Assertive Community Treatment (RACT) as a tool of empowerment for clients with severe mental illness: A meta-analysis. Clinical Practice & Epidemiology in Mental Health, 8, 144–151.
  • Olazaran, J., Reisberg, B., Clare, L., Cruz, I., Peña-Casanova, J., Del Ser, T., … Muñiz, R. (2010). Nonpharmacological therapies in alzheimer’s disease: A systematic review of efficacy. Dementia and Geriatric Cognitive Disorders, 30(2), 161–178.
  • Öst, L. G. (2014). The efficacy of acceptance and commitment therapy: An updated systematic review and meta-analysis. Behaviour Research and Therapy, 61, 105–121.
  • Petkus, A. J., & Wetherell, J. L. (2013). Acceptance and commitment therapy with older adults: Rationale and considerations. Cognitive and Behavioral Practice, 20(1), 47–56.
  • Pincus, H. A., Spaeth-Rublee, B., Sara, G., Goldner, E. M., Prince, P. N., Ramanuj, P., … Patton, L. (2016). A review of mental health recovery programs in selected industrialized countries. International Journal of Mental Health Systems, 10(1), 1–9.
  • Powers, M. B., Zum Vörde Sive Vörding, M. B., & Emmelkamp, P. M. G. (2009). Acceptance and commitment therapy: A meta-analytic review. Psychotherapy and Psychosomatics, 78(2), 73–80.
  • Projectgroep PvA ernstige psychische aandoeningen. (2014). Over de brug. Plan van aanpak voor de behandeling, begeleiding en ondersteuning bij ernstige psychische aandoeningen.
  • Quinn, C., Toms, G., Anderson, D., & Clare, L. (2016). A review of self-management interventions for people with dementia and mild cognitive impairment. Journal of Applied Gerontology : The Official Journal of the Southern Gerontological Society, 35(11), 1154–1188.
  • Rabinowitz, A. R., & Levin, H. S. (2014). Cognitive sequelae of traumatic brain injury. Psychiatric Clinics of North America, 37(1), 1–11.
  • Reed, M. C., Wood, V., Harrington, R., & Paterson, J. (2012). Developing stroke rehabilitation and community services: A meta-synthesis of qualitative literature. Disability and Rehabilitation, 34(7), 553–563.
  • Reichenberg, A., & Harvey, P. D. (2007). Neuropsychological impairments in schizophrenia: Integration of performance-based and brain imaging findings. Psychological Bulletin, 133(5), 833–858.
  • Ruiz Jiménez, F. J. (2012). Acceptance and commitment therapy versus traditional cognitive behavioral therapy: A systematic review and meta-analysis of current empirical evidence. International Journal of Psychology and Psychological Therapy, 12(3), 333–358.
  • Sashika, H., Takada, K., & Kikuchi, N. (2017). Rehabilitation needs and participation restriction in patients with cognitive disorder in the chronic phase of traumatic brain injury. Medicine, 96(4), e5968.
  • Sauer-Zavala, S., Gutner, C. A., Farchione, T. J., Boettcher, H. T., Bullis, J. R., & Barlow, D. H. (2017). Science direct current definitions of ‘Transdiagnostic’ in treatment development: A search for consensus. Behavior Therapy, 48(1), 128–138.
  • Saunders, J. C. (2003). Families living with severe mental illness: A literature review. Issues in Mental Health Nursing, 24(2), 175–198.
  • Siantz, E., & Aranda, M. P. (2014). Chronic disease self-management interventions for adults with serious mental illness: A systematic review of the literature. General Hospital Psychiatry, 36(3), 233–244. Available at: http://dx.doi.org/10.1016/j.genhosppsych.2014.01.014.
  • Soo, C., Tate, R. L., & Lane-Brown, A. (2011). A systematic review of Acceptance and Commitment Therapy (ACT) for managing anxiety: Applicability for people with acquired brain injury? Brain Impairment, 12(1), 54–70.
  • Sterk, B., Winter van Rossum, I., Muis, M., & de Haan, L. (2012). Priorities, satisfaction and treatment goals in psychosis patients: An online consumer’s survey. Pharmacopsychiatry, 46(03), 88–93.
  • Sterling, E. W., von Esenwein, S. A., Tucker, S., Fricks, L., & Druss, B. G. (2010). Integrating wellness, recovery, and self-management for mental health consumers. Community Mental Health Journal, 46(2), 130–138.
  • Stoner, C. R., Orrell, M., & Spector, A. (2015). Review of positive psychology outcome measures for chronic illness, traumatic brain injury and older adults: Adaptability in dementia?. Dementia and Geriatric Cognitive Disorders, 40(5-6), 340–357.
  • Taylor, S. J. C., Pinnock, H., Epiphaniou, E., Pearce, G., Parke, H. L., Schwappach, A., … Sheikh, A. (2014). A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS–Practical systematic RevIew of Self-Management Support for long-term conditions. Health Services and Delivery Research, 2(53), 1–580.
  • Theunissen, J. R., Kikkert, M. J., Duurkoop, W. R. A., Lommerse, N. A., de Mooij, L. D., Boesveld, N.F., Vellinga, A., & Dekker, J. J. M. (2014). Een karig en sober leven maar niet ontevreden. Vermaatschappelijking van de chronische patiënt in de stad deel II. Amsterdam: Arkin, GGZ inGeest, HVO Querido.
  • Twamley, E. W., Jak, A. J., Delis, D. C., Bondi, M. W., & Lohr, J. B. (2014). Cognitive Symptom Management and Rehabilitation Therapy (CogSMART) for veterans with traumatic brain injury: Pilot randomized controlled trial. Journal of Rehabilitation Research and Development, 51(1), 59–70. Available at: http://www.ncbi.nlm.nih.gov/pubmed/24805894.
  • Twamley, E. W., Vella, L., Burton, C. Z., Heaton, R. K., & Jeste, D. V. (2012). Compensatory cognitive training for psychosis: Effects in a randomized controlled trial. The Journal of Clinical Psychiatry, 73(9), 1212–1219.
  • Vernooij-Dassen, M. J. F. J., & Jeon, Y.-H. (2016). Social health and dementia: The power of human capabilities. International Psychogeriatrics, 28(05), 701–703. Available at: http://www.journals.cambridge.org/abstract_S1041610216000260.
  • Vincent, C., Deaudelin, I., Robichaud, L., Rousseau, J., Viscogliosi, C., Talbot, L. R., & Desrosiers, J. (2007). Rehabilitation needs for older adults with stroke living at home: Perceptions of four populations. BMC Geriatrics, 7, 20.
  • Visser-Meily, A., Post, M., van de Port, I., van Heugten, C., & Bos, T. V D. (2008). Psychosocial functioning of spouses in the chronic phase after stroke: Improvement or deterioration between 1 and 3 years after stroke?. Patient Education and Counseling, 73(1), 153–158.
  • De Vugt, M. E., & Dröes, R. M. (2017). Social health in dementia. Towards a positive dementia discourse., 7863(January). Aging & Mental Health, 21(1), 1.
  • De Vugt, M. E., & Verhey, F. R. J. (2013). The impact of early dementia diagnosis and intervention on informal caregivers. Progress in Neurobiology, 110, 54–62.
  • Wang, J., Huang, J., Yang, X. H., Lui, S. S., Cheung, E. F., & Chan, R. C. (2015). Anhedonia in schizophrenia: Deficits in both motivation and hedonic capacity. Schizophrenia Research, 168(1–2):465–474.
  • Warner, G., Packer, T., Villeneuve, M., Audulv, A., & Versnel, J. (2015). A systematic review of the effectiveness of stroke self-management programs for improving function and participation outcomes: Self-management programs for stroke survivors. Disability and Rehabilitation, 37(23), 2141–2163.
  • White, R. G., Gumley, A. I., McTaggart, J., Rattrie, L., McConville, D., Cleare, S., … Mitchell, G. (2015). Acceptance and Commitment Therapy for depression following psychosis: An examination of clinically significant change. Journal of Contextual Behavioral Science, 4(3), 203–209.
  • Whitley, R., & Drake, R. E. (2010). Recovery: A dimensional approach. Psychiatric Services, 61(12), 1248–1250.
  • World Health Organization (WHO). (2001). The international classification of functioning, disability and health. World Health Organization, 18, 237.
  • Winstein, C. J., Stein, J., Arena, R., Bates, B., Cherney, L. R., Cramer, S. C., … Council on Clinical Cardiology, and Council on Quality of Care and Outcomes Research. (2016). Guidelines for adult stroke rehabilitation and recovery. Stroke, 47, e98–e169.
  • Wynaden, D., & Orb, A. (2005). Impact of patient confidentiality on carers of people who have a mental disorder. International Journal of Mental Health Nursing, 14(3), 166–171.
  • Yesufu-Udechuku, A., Harrison, B., Mayo-Wilson, E., Young, N., Woodhams, P., Shiers, D., … Kendall, T. (2015). Interventions to improve the experience of caring for people with severe mental illness: Systematic review and meta-analysis. British Journal of Psychiatry, 206(4), 268–274.
  • Zhao, S., Sampson, S., Xia, J., & Jayaram, M. B. (2015). Psychoeducation (brief) for people with serious mental illness. The Cochrane Database of Systematic Reviews, 4(4), CD010823.
  • Zou, H., Li, Z., Nolan, M. T., Arthur, D., Wang, H., & Hu, L. (2013). Self-management education interventions for persons with schizophrenia: A meta-analysis. International Journal of Mental Health Nursing, 22(3), 256–271.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.