Advanced search
Publication Cover
Journal of Intellectual & Developmental Disability Volume 25, 2000 - Issue 4
Submit an article Journal homepage
214
Views
47
CrossRef citations to date
0
Altmetric
Research Article

Exploring the relationships between costs and quality of services for adults with severe intellectual disabilities and the most severe challenging behaviours in Wales: A multivariate regression analysis

David Felce University of Wales College of MedicineCorrespondence[email protected]
,
Kathy Lowe University of Wales College of Medicine
,
Jennifer Beecham University of Kent
&
Angela Hallam University of Kent
Pages 307-326 | Published online: 10 Jul 2009

  • Aman, M. G., & Singh, N. N. (1986). The Aberrant Behavior Checklist. New York: Slosson Educational Publications.
  • Beecham, J., & Knapp, M.R.J. (1992). Costing psychiatric interventions. In G.J. Thornicroft, C.R. Brewin and J.K. Wing (eds) Measuring Mental Health Needs London: Gaskell.
  • Bersani, H.A., & Heifetz, L.A. (1987). Perceived stress and satisfaction of direct care staff members incommunity residences for mentally retarded adults. American Journal of Mental Deficiency, 90, 289-295.
  • Borthwick-Duffy, S.A. (1994). Prevalence of destructive behaviours: A study of aggression, self-injury and property destruction. In T. Thompson & D. B. Gray (eds) Destructivebehavior in developmental disabilities: Diagnosis and treatment. Thousand Oaks CA: Sage.
  • Cambridge, P., Hayes, L. & Knapp, M. (1994). Care in the community: Five years on. Aldershot: Ashgate Publishing Co.
  • Davies, L. (1987). Quality, costs and ‘An Ordinary Life’. London: King’s Fund Centre.
  • Department of Health and Social Security (DHSS) (1971). Better Services for the Mentally Handicapped. London: HMSO.
  • Department of Health and Social Security (DHSS) (1972). Census of mentally handicapped patients in hospital in England and Wales at the end of 1970. London: HMSO.
  • Emerson, E., Alborz, A., Reeves, D., Mason, H., Swarbrick, R., Kiernan, C., & Mason, L. (1997). The prevalence of challenging behaviour. Manchester: University of Manchester, Hester Adrian Research Centre.
  • Emerson, E., & Hatton, C. (1996). Deinstitutionalization in the UK and Ireland: Outcomes for service users. Journal of Intellectual and Developmental Disability, 21, 17-37.
  • Emerson, E, Reeves, D., & Felce, D. (2000). Palm-top computer technologies for behavioral observation research. In T. Thompson, D. Felce, & F. Symons, (Eds.) Computer-assisted behavioral observation in developmental disabilities. Baltimore: Paul Brookes Publishing.
  • Emerson, E., Robertson, J., Hatton, C., Gregory, N., Kessissoglou, S., Hallam, A., Knapp, M., Järbrink, K., Netten, A., Walsh, P., Lineham, C., Hillery, J., & Durkan. J. (1999). Quality and costs of residential supports for people with learning disabilities: Predicting variation in quality and costs. Manchester: University of Manchester, Hester Adrian Research Centre.
  • Felce, D. (1986). Accommodating adults with severe and profound mental handicaps : Comparative revenue costs. Mental Handicap, 14, 104-107.
  • Felce, D. (1989). Staffed housing for adults with severe and profound mental handicaps: the Andover Project. Kidderminster: BIMH Publications.
  • Felce, D. (1997). Defining and applying the concept of quality of life. Journal of Intellectual Disability Research, 41, 126-143.
  • Felce, D., Lowe, K., Perry, J., Baxter, H., Jones, E., Hallam, A. & Beecham, J. (1998). Service support to people with severe intellectual disabilities and the most severe challenging behaviours in Wales: processes, outcomes and costs. Journal of Intellectual Disability Research, 42, 390-408.
  • Felce, D., & Perry, J. (1995). The extent of support for ordinary living provided in staffed housing: the relationship between staffing levels, resident dependency, staff:resident interactions and resident activity patterns. Social Science and Medicine, 40, 799-810.
  • George, M., & Baumeister, A. (1981). Employee withdrawal and job satisfaction in community residential facilities. American Journal of Mental Deficiency, 85, 639-647.
  • Harris, P., & Russell, O. (1989). The prevalence of aggressive behaviour among people with learning difficulties (mental handicap) in a single health district : Interim report. Bristol : University of Bristol, Norah Fry Research Centre.
  • Hatton, C., Emerson, E., Robertson, J., Henderson, D., & Cooper, J. (1995). An evaluation of the quality and costs of services for adults with severe learning disabilities and sensory impairments. Manchester: University of Manchester, Hester Adrian Research Centre.
  • H.M. Treasury (1989). Discount rates in the public sector. Press Office circular 32/89, 5 April.
  • Holmes, N., Shah, A., & Wing, L. (1982). The Disability Assessment Schedule : A brief screening device for use with the mentally retarded. Psychological Medicine, 2, 879-890.
  • Jones, E., Perry, J., Lowe, K., Felce, D., Toogood, S., Dunstan, F., Allen, D., & Pagler, J. (1999). Opportunity and the promotion of activity among adults with severe mental retardation living in community residences: the impact of training staff in Active Support. Journal of Intellectual Disability Research, 43, 164-178.
  • Kiernan, C., & Kiernan, D. (1994). Challenging behaviour in schools for pupils with severe learning difficulties. Mental Handicap Research, 7, 177-201.
  • Kiernan, C., & Qureshi, H. (1993). Challenging behaviour. In C. Kiernan (ed). Research to practice?; Implications of research on the challenging behaviour of people with learning disability. Kidderminster: BILD Publications.
  • Knapp, M.R.J. (1995). The economic perspective: framework and principles. In M.R.J. Knapp (ed) The Economic Evaluation of Mental Health Care. Aldershot: Arena, Ashgate Publishing Ltd.
  • Knapp, M.R.J., Beecham, J., & Allen, C. (1989). The methodology for costing community and hospital services used by clients of the care in the community demonstration programme, Discussion Paper 647. Canterbury: University of Kent at Canterbury, Personal Social Services Research Unit.
  • Knapp, M., Cambridge, P., Thomason, C., Beecham, J., Allen, C., & Darton, R. (1992). Care in the community: Challenge and demonstration. Aldershot: Ashgate.
  • Kushlick, A., Blunden, R., & Cox, G. (1973). A method of rating behaviour characteristicsfor use in large scale surveys of mental handicap. Psychological Medicine, 3, 466-478.
  • Kushlick, A., & Cox, G. (1973). The epidemiology of mental handicap. Developmental Medicine and Child Neurology, 15, 748-759.
  • Kim, S., Larson, S. A., & Lakin, K, C., (in press) Behavioral outcomes of deinstitutionalization for people with intellectual disabilities: A review of studies conducted between 1980 and 1999. Journal of Intellectual & Developmental Disability.
  • Lowe, K., & de Paiva, S. (1991). NIMROD : An Overview. London: HMSO.
  • Lowe, K., de Paiva, S., & Felce, D. (1993). Effects of a community-based service on adaptive and maladaptive behaviour: A longitudinal study. Journal of Intellectual Disability Research, 37, 3-22.
  • Lowe, K., & Felce, D. (1995). How do carers assess the severity of challenging behaviour?: A total population study. Journal of Intellectual Disability Research, 39, 117-127
  • Lowe, K., Felce, D., & Blackman, D. (1995). People with learning disabilities and challenging behaviour: the characteristics of those referred and not referred to specialist teams. Psychological Medicine, 25, 595-603.
  • Lowe, K., Felce, D., Perry, J., Baxter, H., & Jones, E. (1998). The characteristicsand residential situations of people with severe intellectual disabilities and the most severe challenging behaviour in Wales. Journal of Intellectual Disability Research, 42, 375-389.
  • Lowe, K., Felce, D., & Orlowska, D. (1993). Evaluating services for people with challenging behaviour. In I. Fleming and B. Stenfert-Kroese (Eds) People with severe learning difficulties who also display challenging behaviour in the UK. Manchester: Manchester University Press.
  • Mannion, R., Smith, K., Ferguson, S., Hennessy, S., Emerson, E., Kiernan, C., & Alborz, A. (1997). The costs of packages of care for people with learning disabilities and challenging behaviour. In A. Netten & J. Dennett (Eds). Unit Costs of Health and Social Care. Canterbury: University of Kent at Canterbury, Personal Social Services Research Unit.
  • Newman, I., & Emerson, E. (1991). Specialised treatment units for people with challenging behaviours. Mental Handicap, 19, 113-119.
  • Nihira, K., Leland, H., & Lambert, N. (1993). AAMR Adaptive Behaviour Scale - Residential and Community (Second edition). Austin, Texas: Pro-Ed.
  • Oliver, C., Murphy, G.H., & Corbett, J.A. (1987). Self-injurious behaviour in people with mental handicap : a total population study. Journal of Mental Deficiency Research, 31, 147-162.
  • Perry, J., & Felce, D. (1994). Outcomes of ordinary housing services in Wales: Objective indicators. Mental Handicap Research, 7, 286-311.
  • Quine, L., & Pahl, J. (1985). Examining the causes of stress in families with mentally handicapped children. British Journal of Social Work, 15, 501-517.
  • Qureshi, H., & Alborz, A. (1992). Epidemiology of challenging behaviour. Mental Handicap Research, 5, 130-145.
  • Raynes, N., Wright, K., Shiell, A., & Pettipher, C. (1994). The cost and quality of community residential care. London: David Fulton Publishers.
  • Rojahn, J. (1994). Epidemiology and topographic taxonomy of self-injurious behavior. In T. Thompson & D. B. Gray (eds) Destructive behavior in developmental disabilities: Diagnosis and treatment. Thousand Oaks CA: Sage.
  • Royal College of Psychiatrists (1986). Psychiatric services for mentally handicapped adults and young people. Bulletin of the Royal College of Psychiatrists, 10, 321-322.
  • Stancliffe, R. (1997). Community living-unit size, staff presence, and residents’ choice-making. Mental Retardation, 35, 1-9.
  • Stancliffe, R., Hayden, M., & Lakin, C. (1999). Interventions for challenging behavior in residential settings. American Journal on Mental Retardation, 104, 364-375.
  • Stancliffe, R., & Keane, S. (1999). Outcomes and costs of community living: Semi-independent living and group homes. Sydney: University of Sydney, Centre for Developmental Disability Studies.
  • Stancliffe, R., & Lakin, K. C. (1998). Analysis of expenditures and outcomes of residential alternatives for persons with developmental disabilities. American Journal on Mental Retardation, 102, 552-568.
  • Tossebro, J. (1995). Impact of size revisited: Relation of number of residents to self-determination and deprivation. American Journal on Mental Retardation, 100, 59-67.
  • Welsh Health Planning Forum (1992). Protocol for investment in health gain: Mental handicap (learning disabilities). Cardiff: Welsh Office.
  • Welsh Office (1983). All Wales Strategy for the development of services for mentally handicapped people. Cardiff: Welsh Office.
  • Wing, L., & Gould, J. (1978). Systematic recording of behaviors and skills of retarded and psychotic children. Journal of Autism and Childhood Schizophrenia, 8, 79-97.
  • Wright, K., & Haycox, A. (1985). Costs of alternative forms of NHS care for mentally handicapped persons. York: University of York, Centre for Health Economics.
  • Young, L., Sigafoos, J., Suttie, J., Ashman, A., & Grevell, P. (1998). Deinstitutionalisation of persons with developmental disabilities:A review of Australian studies. Journal of Intellectual and Developmental Disability, 23, 155-170.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.