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Original

Deinstitutionalisation and community living: Progress, problems and priorities

Pages 65-76 | Published online: 10 Jul 2009

References

  • Allard M. A. Supported living policies and programmes in the USA. Deinstitutionalization and community living: Intellectual disability services in Britain, Scandinavia and the USA, Mansell J, Ericsson K. Chapman & Hall, London 1996; 97–116
  • Beadle‐Brown J., Mansell J., Whelton B., Hutchinson A., Skidmore C. Too far to go? People with learning disabilities placed out‐of‐area. Tizard Centre, Canterbury 2005
  • Braddock D., Emerson E., Felce D., Stancliffe R. J. Living circumstances of children and adults with mental retardation or developmental disabilities in the United States, Canada, England and Wales, and Australia. Mental Retardation and Developmental Disabilities Research Reviews 2001; 7: 115–121
  • Braddock D., Hemp R., Bachelder L., Fujiura G. The state of the States in developmental disabilities 4. American Association on Mental Retardation, Washington, DC 1995
  • Braddock D., Hemp R., Rizzolo M. C. State of the States in developmental disabilities: 2004. Mental Retardation 2004; 42: 356–370
  • Bradshaw J., McGill P., Stretton R., Kelly‐Pike A., Moore J., Macdonald S., et al. Implementation and evaluation of active support. Journal of Applied Research in Intellectual Disabilities 2004; 17: 139–148
  • Brown H., Toogood A., Brown V. Participation in everyday activities. Pavilion, Brighton 1987
  • Bruininks R. H., Kudla M. J., Hauber F. A., Hill B. K., Wieck C. A. Recent growth and status of community residential alternatives. Deinstitutionalization and community adjustment of mentally retarded people, Bruininks R. H, Meyers C. E, Sigford B. B, Lakin K. C. American Association on Mental Deficiency, Washington, DC 1981; 14–27
  • Cambridge P., Carpenter J., Beecham J., Hallam A., Knapp M., Forrester‐Jones R., et al. Twelve years on: The outcomes and costs of community care for people with learning disabilities and mental health problems. Tizard Centre, Canterbury 2001
  • Cambridge P., Hayes L., Knapp M., Gould E., Fenyo A. Care in the community: Five years on. Ashgate Publishing Ltd, Aldershot 1994
  • Campaign for the Mentally Handicapped. Even better services for the mentally handicapped. CMH, London 1972
  • Care Principles. Care principles – our proposals for Brigstock Camp. Care Principles, Newmarket, Suffolk 2004
  • Carnaby S. Learning disability today: Key issues for providers, managers, practitioners and users. Pavilion, Brighton 2003
  • Department of Health. Valuing people: A new strategy for learning disability for the 21st century. The Stationery Office, London 2001, (No. Cm 5086)
  • Department of Health. Health and personal social services statistics for England. The Stationery Office, London 2004
  • Department of Work and Pensions. 2004. Evidence for policy choice: Department for Work and Pensions Objective II: Promoting work as the best form of welfare for people of working age, whilst protecting the position of those in greatest need. Retrieved 1 October 2004, from http://www.addingitup.gov.uk/epc/dwp/dwp_o2t5.cfm
  • Emerson E., Hatton C. Moving out: Relocation from hospital to community. Her Majesty's Stationery Office, London 1994
  • Emerson E., Robertson J., Gregory N., Hatton C., Kessissoglou S., Hallam A., et al. Quality and costs of supported living residences and group homes in the United Kingdom. American Journal of Mental Retardation 2001; 106: 401–415
  • Emerson E., Robertson J., Gregory N., Kessissoglou S., Hatton C., Hallam A., et al. Quality and costs of residential supports for people with learning disabilities: An observational study of supports provided to people with severe and complex learning disabilities in residential campuses and dispersed housing schemes. Hester Adrian Research Centre, Manchester 1999
  • Ericsson K. Housing for the person with intellectual handicap. Deinstitutionalization and community living: Intellectual disability services in Britain, Scandinavia and the USA, Mansell J, Ericsson K. Chapman & Hall, London 1996; 81–95
  • Ericsson K. From institutional to community participation: Ideas and realities concerning support to persons with intellectual disability. Uppsala Universitet, Uppsala 2002
  • Esping‐Andersen G. The three worlds of welfare capitalism. Polity, Cambridge 1990
  • European Intellectual Disability Research Network. Intellectual disability in Europe: Working papers. Tizard Centre, Canterbury 2003
  • Felce D. Quality of support for ordinary living. Deinstitutionalization and community living: Intellectual disability services in Britain, Scandinavia and the USA, Mansell J, Ericsson K. Chapman & Hall, London 1996; 117–133
  • Felce D. The determinants of staff and resident activity in residential services for people with severe intellectual disability: Moving beyond size, building design, location and number of staff. Journal of Intellectual & Developmental Disability 1998; 23: 103–119
  • Felce D., de Kock U., Repp A. C. An eco‐behavioural comparison of small community‐based houses and traditional large hospitals for severely and profoundly mentally handicapped adults. Applied Research in Mental Retardation 1986; 7: 393–408
  • Felce D., Emerson E. Living with support in a home in the community: Predictors of behavioral development and household and community activity. Mental Retardation and Developmental Disabilities Research Reviews 2001; 7: 75–83
  • Felce D., Jones E., Lowe K. Active support: Planning daily activities and support for people with severe mental retardation. Person‐centered planning: Research, practice, and future directions, Holburn S, Vietze P. Paul H. Brookes, Baltimore 2002
  • Felce D., Lowe K., Beecham J., Hallam A. Exploring the relationships between costs and quality of services for adults with severe intellectual disabilities and the most severe challenging behaviours in Wales: A multivariate regression analysis. Journal of Intellectual & Developmental Disability 2000; 25: 307–326
  • Felce D., Repp A. C., Thomas M., Ager A., Blunden R. The relationship of staff: client ratios, interactions and residential placement. Research in Developmental Disabilities 1991; 12: 315–331
  • Felce D., Toogood S. Close to home. British Institute of Mental Handicap, Kidderminster 1988
  • Grunewald K. Close the institutions for the intellectually disabled. Everyone can live in the open society. Author, Saltsjo‐Duvnas 2003
  • Hatton C., Emerson E., Robertson J., Henderson D., Cooper J. Factors associated with staff support and resident lifestyle in services for people with multiple disabilities: A path analytic approach. Journal of Intellectual Disability Research 1996; 40: 466–477
  • Horner R. H., Close D. W., Fredericks H. D. B., O'Neill R. E., Albin R. W., Sprague J. R., . Supported living for people with profound disabilities and severe problem behaviors. Persons with disabilities who challenge the system, Lehr D. H, Brown F, et al. Paul H. Brookes, Baltimore 1996
  • Howe J., Horner R. H., Newton J. S. Comparison of supported living and traditional residential services in the state of Oregon. Mental Retardation 1998; 36: 1–11
  • Intagliata J., Willer B. Reinstitutionalization of mentally retarded persons successfully placed into family‐care and group homes. American Journal of Mental Deficiency 1982; 87: 34–39
  • Jones E., Felce D., Lowe K., Bowley C., Pagler J., Gallagher B., et al. Evaluation of the dissemination of active support training in staffed community residences. American Journal of Mental Retardation 2001; 106: 344–358
  • Jones E., Felce D., Lowe K., Bowley C., Pagler J., Strong G., et al. Evaluation of the dissemination of active support training and training trainers. Journal of Applied Research in Intellectual Disabilities 2001; 14: 79–99
  • Jones E., Perry J., Lowe K., Allen D., Toogood S., Felce D. Active support: A handbook for planning daily activities and support arrangements for people with learning disabilities. Booklet 1: Overview. Welsh Centre for Learning Disabilities Applied Research Unit, Cardiff 1996
  • Jones E., Perry J., Lowe K., Felce D., Toogood S., Dunstan F., et al. Opportunity and the promotion of activity among adults with severe intellectual disability living in community residences: The impact of training staff in active support. Journal of Intellectual Disability Research 1999; 43: 164–178
  • Kim S., Larson S. A., Lakin K. C. Behavioural outcomes of deinstitutionalisation for people with intellectual disability: A review of US studies conducted between 1980 and 1999. Journal of Intellectual & Developmental Disability 2001; 26: 35–50
  • Kinsella P. Supported living: A new paradigm. National Development Team, Manchester 1993
  • Kugel R. B., Wolfensberger W. Changing patterns in residential services for the mentally retarded. President's Committee on Mental Retardation, Washington, DC 1969
  • Kushlick A. Wessex, England. Changing patterns in residential services for the mentally retarded (2nd ed.), Kugel R. B, Shearer A. President's Committee on Mental Retardation, Washington, DC 1976
  • Ladyman S. 2003, Speech by Stephen Ladyman MP, Parliamentary Under‐Secretary of State for Community, to the Conference on “Learning Disability Today”, 26 November 2003: Department of Health
  • Lewis O. Mental disability law in central and eastern Europe: Paper, practice, promise. Journal of Mental Health Law 2002; 8: 293–303
  • Lowe K., de Paiva S. NIMROD: An overview. A summary report of a 5‐year research study of community‐based service provision for people with learning difficulties. Her Majesty's Stationery Office, London 1991
  • Mansell J. Specialized group homes for persons with severe or profound mental retardation and serious problem behaviour in England. Research in Developmental Disabilities 1994; 15: 371–388
  • Mansell J. Staffing and staff performance in services for people with severe or profound learning disability and serious challenging behaviour. Journal of Intellectual Disability Research 1995; 39: 3–14
  • Mansell J. Issues in community services in Britain. Deinstitutionalization and community living: Intellectual disability services in Britain, Scandinavia and the USA, Mansell J, Ericsson K. Chapman & Hall, London 1996; 49–63
  • Mansell J. “Better services” 25 years on. Tizard Learning Disability Review 1997; 2: 45–46
  • Mansell J., Beadle‐Brown J. Grouping people with learning disabilities and challenging behaviour in residential care. Tizard Learning Disability Review 2004; 9: 4–10
  • Mansell J., Beadle‐Brown J., Ashman B., Ockendon J. Person‐centred active support: A multi‐media training resource for staff to enable participation, inclusion and choice for people with learning disabilities. Pavilion, Brighton 2005
  • Mansell J., Beadle‐Brown J., Clegg S. The situation of large residential institutions in Europe. Included in society: Results and recommendations of the European research initiative on community‐based residential alternatives for disabled people, Freyhoff G, Parker C, M Coué, Greig N. Inclusion Europe, Brussels 2004; 28–56
  • Mansell J., Beadle‐Brown J., Macdonald S., Ashman B. Functional grouping in residential homes for people with intellectual disabilities. Research in Developmental Disabilities 2003a; 24: 170–182
  • Mansell J., Beadle‐Brown J., Macdonald S., Ashman B. Resident involvement in activity in small community homes for people with learning disabilities. Journal of Applied Research in Intellectual Disabilities 2003b; 16: 63–74
  • Mansell J., Elliott T. Staff members' prediction of consequences for their work in residential settings. American Journal on Mental Retardation 2001; 106: 424–447
  • Mansell J., Elliott T., Beadle‐Brown J., Ashman B., Macdonald S. Engagement in meaningful activity and “active support” of people with intellectual disabilities in residential care. Research in Developmental Disabilities 2002; 23: 342–352
  • Mansell J., Ericsson K. Conclusion: Integrating diverse experience. Deinstitutionalization and community living: Intellectual disability services in Britain, Scandinavia and the USA, Mansell J, Ericsson K. Chapman & Hall, London 1996a; 241–253
  • Deinstitutionalization and community living: Intellectual disability services in Britain, Scandinavia and the USA, Mansell J, Ericsson K. Chapman & Hall, London 1996b
  • Mansell J., Felce D., Jenkins J., de Kock U., Toogood A. Developing staffed housing for people with mental handicaps. Costello, Tunbridge Wells 1987a
  • Mansell J., Felce D., Jenkins J., de Kock U., Toogood A. Enabling individual participation. Developing staffed housing for people with mental handicaps. Costello, Tunbridge Wells 1987b; 197–231
  • Mansell J., Jenkins J., Felce D., de Kock U. Measuring the activity of severely and profoundly mentally handicapped adults in ordinary housing. Behaviour Research and Therapy 1984; 22: 23–29
  • Mansell J., McGill P., Emerson E. Conceptualising service provision. Severe learning disabilities and challenging behaviour: Designing high‐quality services, Emerson E, McGill P, Mansell J. Chapman & Hall, London 1994
  • McGill P., Mansell J. Community placements for people with severe and profound learning disabilities and serious challenging behaviour: Individual illustrations of issues and problems. Journal of Mental Health 1995; 4: 183–198
  • Mental Disability Advocacy Center. Cage beds: Inhuman and degrading treatment in four EU accession countries. Mental Disability Advocacy Center, Budapest 2003
  • O'Brien P., Thesing A., Tuck B., Capie A. Perceptions of change, advantage and quality of life for people with intellectual disability who left a long stay institution to live in the community. Journal of Intellectual & Developmental Disability 2001; 26: 67–82
  • PMLD Network. Valuing people with profound and multiple learning disabilities. Royal Mencap and Foundation for People with Learning Disabilities, London 2001
  • Robertson J., Emerson E., Pinkney L., Caesar E., Felce D., Meek A., et al. Quality and costs of community‐based residential supports for people with mental retardation and challenging behavior. American Journal of Mental Retardation 2004; 109: 332–344
  • Rotegard L. L., Bruininks R. H., Krantz G. C. State‐operated residential facilities for people with mental retardation July 1, 1978 – June 30, 1982. Mental Retardation 1984; 22: 69–74
  • Sandvin J. The transition to community services in Norway. Deinstitutionalization and community living: Intellectual disability services in Britain, Scandinavia and the USA, Mansell J, Ericsson K. Chapman & Hall, London 1996; 185–196
  • Stevens A. Closer to home: A critique of British government policy towards accommodating learning disabled people in their own homes. Critical Social Policy 2004; 24: 233–254
  • St Luke's Hospital Group. 21st Century Asylums? Essays about low secure hospitals in the field of learning disabilities. Premium Publishing, London 2004
  • Tizard J. Residential care of mentally handicapped children. British Medical Journal 1960; 1041–1046
  • Tøssebro J. Policy evaluation and national surveys of the living conditions of people with intellectual disabilities in Norway. [Abstract.]. Journal of Intellectual Disability Research 2004; 48: 486
  • Intellectual disabilities in the Nordic welfare states: Policies and everyday life, J Tøssebro, Gustavsson A, Dyrendahl G. HoyskoleForlaget ‐ Norwegian Academic Press, Kristiansand SNorway 1996
  • Ward F. Modernising the social care workforce – the first national training strategy for England: Supplementary report on learning disability. Training Organisation for the Personal Social Services, Leeds 1999
  • Ware J. Ascertaining the views of people with profound and multiple learning disabilities. British Journal of Learning Disabilities 2004; 32: 175–179
  • Wing L. Hospital closure and the resettlement of residents. Avebury, Aldershot 1989
  • Wistow G., Knapp M., Hardy B., Allen C. From providing to enabling: Local authorities and the mixed economy of social care. Public Administration 1992; 70: 25–45
  • Young L., Sigafoos J., Suttie J., Ashman A., Grevell P. Deinstitutionalisation of persons with intellectual disabilities: A review of Australian studies. Journal of Intellectual & Developmental Disability 1998; 23: 155–170

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