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Feature Articles

Occupational Patterns of Parents of Children with Autism Spectrum Disorder: Revisiting Matuska and Christiansen's Model of Lifestyle Balance

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Pages 115-130 | Published online: 19 May 2011

References

  • Abbeduto , L. , Seltzer , M. M. , Shattuck , P. , Kraus , M. W. , Orsmond , G. and Murphy , M. M. 2004 . Psychological well-being and coping in mothers of youths with autism, Down syndrome, or Fragile X syndrome . American Journal on Mental Retardation , 109 : 237 – 254 .
  • Akdemir , D. , Pehlivanturk , B. , Unal , F. and Ozusta , S. 2009 . Comparison of attachment-related social behaviors in autistic disorder and developmental disability . Turkish Journal of Psychiatry , 20 : 105 – 117 .
  • Allik , H. , Larsson , J. and Smedje , H. 2006 . Sleep patterns of school-age children with Asperger Syndrome or high-functioning autism . Journal of Autism and Developmental Disorders , 36 : 585 – 595 .
  • Altiere , M. J. , & von Kluge , S. 2009 . Searching for acceptance: Challenges encountered while raising a child with autism . Journal of Intellectual and Developmental Disability , 34 , 142 – 152 .
  • Baker , B. L. , McIntyre , L. L. , Blacher , J. , Crnic , K. , Edelbrock , C. and Low , C. 2003 . Pre-school children with and without developmental delay: Behavior problems and parenting stress over time . Journal of Intellectual Disability Research , 47 : 217 – 230 .
  • Bayat , M. 2007 . Evidence of resilience in families of children with autism . Journal of Intellectual Disability Research , 51 , 702 – 714 .
  • Bejerholm , U. and Eklund , M. 2004 . Time use and occupational performance among persons with schizophrenia . Occupational Therapy in Mental Health , 20 : 27 – 47 .
  • Benderix , Y. , Nordstrom , B. , & Sivberg , B. 2007 . Parents’ experience of having a child with autism and learning disabilities living in a group home . Autism , 10 , 629 – 641 .
  • Benson , P. R. , & Karlof , K. L. 2009 . Anger, stress proliferation, and depressed mood among parents of children with ASD: A longitudinal replication . Journal of Autism and Developmental Disorders , 39 , 350 – 362 .
  • Bishop , S. L. , Richler , J. , Cain , A. C. and Lord , C. 2007 . Predictors of perceived negative impact in mothers of children with autism spectrum disorder . American Journal on Mental Retardation , 112 : 450 – 461 .
  • Bitterman , A. , Daley , T. C. , Misra , S. , Carlson , E. , & Markowitz , J. 2008 . A national sample of preschoolers with autism spectrum disorders: Special education services and parent satisfaction . Journal of Autism and Developmental Disorders , 38 , 1509 – 1517 .
  • Blacher , J. , & McIntyre , L. L. 2006 . Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact . Journal of Intellectual Disability Research , 50 , 184 – 198 .
  • Boyd , B. A. 2002 . Examining the relationship between stress and lack of social support in mothers of children with autism . Focus on Autism and Other Developmental Disabilities , 17 : 208 – 215 .
  • Brogan , C. A. and Knussen , C. 2003 . The disclosure of a diagnosis of an autistic spectrum disorder . Autism , 7 : 31 – 46 .
  • Brummett , B. H. , Babyak , M. A. , Siegler , I. C. , Vitaliano , P. P. , Ballard , E. L. , Gwyther , L. P. , & Williams , R. B. 2006 . Associations among perceptions of social support, negative affect, and quality of sleep in caregivers and noncaregivers . Health Psychology , 25 , 220 – 225 .
  • Centers for Disease Control and Prevention . 2010 . Autism information center: Frequently asked questions – prevalence . Retrieved February 5, 2010, from http://www.cdc.gov/ncbddd/autism/faq_prevalence.htm
  • Davis , N. O. , & Carter , A. S. 2008 . Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics . Journal of Autism and Developmental Disorders , 38 , 1278 – 1291 .
  • DeGrace , B. W. 2004 . The everyday occupation of families with children with autism . American Journal of Occupational Therapy , 58 : 543 – 550 .
  • Dominick , K. C. , Davis , N. O. , Lainhart , J. , Tager-Flusberg , H. , & Folstein , S. 2007 . Atypical behaviors in children with autism and children with a history of language impairment . Research in Developmental Disabilities , 28 , 145 – 162 .
  • Doo , S. and Wing , Y. K. 2006 . Sleep problems of children with pervasive developmental disorders: Correlation with parental stress . Developmental Medicine and Child Neurology , 48 : 650 – 655 .
  • Dunlea , A. 1996 . “ An opportunity for co-adaptation: The experience of mothers and their infants who are blind ” . In Occupational science: The evolving discipline , Edited by: Zemke , R. and Clark , F. 227 – 241 . Philadelphia : F. A. Davis .
  • Dunn , M. E. , Burbine , T. , Bowers , C. A. and Tantleff-Dunn , S. 2001 . Moderators of stress in parents of children with autism . Community Mental Health Journal , 37 : 39 – 52 .
  • Eisenhower , A. S. , Baker , B. L. , & Blacher , J. 2005 . Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being . Journal of Intellectual Disability Research , 49 , 657 – 671 .
  • Ekas , N. V. , Whitman , T. L. , & Shivers , C. 2009 . Religiosity, spirituality, and socioemotional functioning in mothers of children with autism spectrum disorder . Journal of Autism and Developmental Disorders , 39 , 706 – 719 .
  • Estes , A. , Munson , J. , Dawson , G. , Koehler , E. , Zhou , X. , & Abbott , R. 2009 . Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay . Autism , 13 , 375 – 387 .
  • Fraits-Hunt , D. and Zemke , R. 1996 . “ Games mothers play with their full-term and pre-term infants ” . In Occupational science: The evolving discipline , Edited by: Zemke , R. and Clark , F. 217 – 226 . Philadelphia : F. A. Davis .
  • Freudenheim , M. 2004 , December 21 . Battling insurers over autism treatment . New York Times . Retrieved November 5, 2009, from http://www.nytimes.com/2004/12/21/business/21autism.html
  • Gallagher , S. , Phillips , A. C. , Oliver , C. and Carroll , D. 2008 . Predictors of psychological morbidity in parents of children with intellectual disabilities . Journal of Pediatric Psychology , 33 : 1129 – 1136 .
  • Gray , D. E. 1997 . High functioning autistic children and the construction of “normal family life” . Social Science and Medicine , 44 : 1097 – 1106 .
  • Gray , D. E. 2002a . ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism . Sociology of Health & Illness , 24 : 734 – 749 .
  • Gray , D. E. 2002b . Ten years on: A longitudinal study of families of children with autism . Journal of Intellectual and Developmental Disability , 27 , 215 – 222 .
  • Gray , D. E. 2003 . Gender and coping: The parents of children with high functioning autism . Social Science and Medicine , 56 : 631 – 642 .
  • Greenberg , J. S. , Seltzer , M. M. , Krauss , M. W. , Chou , R. J. , & Hong , J. 2004 . The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: The mediating role of optimism . American Journal of Orthopsychiatry , 74 , 14 – 25 .
  • Hakansson , C. , Dahlin-Ivanoff , S. and Sonn , U. 2006 . Achieving balance in everyday life . Journal of Occupational Science , 13 : 74 – 82 .
  • Hamlyn-Wright , S. , Draghi-Lorenz , R. , & Ellis , J. 2007 . Locus of control fails to mediate between stress and anxiety and depression in parents of children with a developmental disorder . Autism , 11 , 489 – 501 .
  • Hanigsberg , J. E. and Ruddick , S. 1999 . Mother troubles: Rethinking contemporary maternal dilemmas , Massachusetts : Beacon Press .
  • Hassall , R. , Rose , J. , & McDonald , J. 2005 . Parenting stress in mothers of children with an intellectual disability: The effects of parental cognitions in relation to child characteristics and family support . Journal of Intellectual Disability Research , 49 , 405 – 418 .
  • Hastings , R. P. , Kovshoff , H. , Brown , T. , Ward , N. J. , Espinosa , F. D. and Remington , B. 2005 . Coping strategies in mothers and fathers of preschool and school-age children with autism . Autism , 9 : 377 – 391 .
  • Hastings , R. P. , Kovshoff , H. , Ward , N. J. , Espinosa , F. D. , Brown , T. , & Remington , B. 2005 . System analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism . Journal of Autism and Developmental Disorders , 35 , 635 – 644 .
  • Herring , S. , Gray , K. , Taffe , J. , Tonge , B. , Sweeney , D. , & Einfeld , S. 2006 . Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning . Journal of Intellectual Disability Research , 50 , 874 – 882 .
  • Hutton , A. M. and Caron , S. L. 2005 . Experiences of families with children with autism in rural New England . Focus on Autism and Other Developmental Disabilities , 20 : 180 – 189 .
  • Jones , J. and Passey , J. 2004 . Family adaptation, coping and resources: Parents of children with developmental disabilities and behaviour problems . Journal on Developmental Disabilities , 11 : 31 – 46 .
  • Jonsson , H. and Persson , D. 2006 . Towards an experiential model of occupational balance: An alternative perspective on flow theory analysis . Journal of Occupational Science , 13 : 62 – 73 .
  • King , G. A. , Zwaigenbaum , L. , King , S. , Baxter , D. , Rosenbaum , P. and Bates , A. 2006 . A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome. Child: Care . Health & Development , 32 : 353 – 369 .
  • Kralik , D. , Koch , T. , Price , K. and Howard , N. 2004 . Chronic illness self-management: Taking action to create order . Journal of Clinical Nursing , 13 : 259 – 267 .
  • Krieger , M. H. 1996 . “ A phenomenology of motherhood ” . In Occupational science: The evolving discipline , Edited by: Zemke , R. and Clark , F. 243 – 246 . Philadelphia : F. A. Davis .
  • Larson , E. 2000 . Mothering: Letting go of the past ideal and valuing the real . American Journal of Occupational Therapy , 54 : 249 – 251 .
  • Lawlor , M. C. 2004 . “ Mothering work: Negotiating health care, illness and disability, and development ” . In Mothering occupations: Challenge, agency and participation , Edited by: Esdaile , S. A. and Olson , J. A. 306 – 323 . Philadelphia : F. A. Davis .
  • Lin , C. , Tsai , Y. , & Chang , H. 2008 . Coping mechanisms of parents of children recently diagnosed with autism in Taiwan: A qualitative study . Journal of Clinical Nursing , 17 , 2733 – 2740 .
  • Lloyd , T. , & Hastings , R. P. 2009 . Parental locus of control and psychological well-being in mothers of children with intellectual disability . Journal of Intellectual and Developmental Disability , 34 , 104 – 115 .
  • Lounds , J. , Seltzer , M. M. , Greenberg , J. S and Shattuck , P. T. 2007 . Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being . American Journal on Mental Retardation , 112 : 401 – 417 .
  • Luong , J. , Yoder , M. K. , & Canham , D. 2009 . Southeast Asian parents raising a child with autism: A qualitative investigation of coping styles . Journal of School Nursing , 25 , 222 – 229 .
  • Matuska , K. M. and Christiansen , C. H. 2006 . Lifestyle balance: A review of concepts and research . Journal of Occupational Science , 13 : 49 – 61 .
  • Matuska , K. M. and Christiansen , C. H. 2008 . A proposed model of lifestyle balance . Journal of Occupational Science , 15 : 9 – 19 .
  • Matuska , K. and Christiansen , C. 2009 . Life balance: Multidisciplinary theories and research , Edited by: Matuska , K. , Christiansen , C. , Polatajko , H. and Davis , J. 149 – 164 . Bethesda, MD : AOTA Press .
  • Matuska , K. M. and Erickson , B. 2008 . Lifestyle balance: How it is described and experienced by women with multiple sclerosis . Journal of Occupational Science , 15 : 20 – 26 .
  • Mayes , S. D. and Calhoun , S. L. 1999 . Symptoms of autism in young children and correspondence with the DSM . Infants and Young Children , 12 : 90 – 97 .
  • Meltzer , L. J. 2008 . Brief report: Sleep in parents of children with autism spectrum disorders . Journal of Pediatric Psychology , 33 , 380 – 386 .
  • Meltzer , L. J. and Mindell , J. A. 2007 . Impact of a child's chronic illness on maternal sleep and daytime functioning . Archives of Internal Medicine , 166 : 1749 – 1755 .
  • Mernar , T. J. 2006 . Occupation, stress, and biomarkers: Measuring the impact of occupational injustice . American Journal of Occupational Therapy , 13 : 209 – 213 .
  • Meyer , A. 1920 . The philosophy of occupational therapy . Archives of Occupational Therapy , 1 : 1 – 57 .
  • Montes , G. , & Halterman , J. S. 2007 . Psychological functioning and coping among mothers of children with autism: A population-based study . Pediatrics , 119 , 1040 – 1046 .
  • Montes , G. , & Halterman , J. S. 2008 . Association of childhood autism spectrum disorders and loss of family income . Pediatrics , 121 , e821 – e826 .
  • Mori , K. , Ujiie , T. , Smith , A. , & Howlin , P. 2009 . Parental stress associated with caring for children with Asperger's syndrome or autism . Pediatrics International , 51 , 364 – 370 .
  • National Institute of Mental Health . 2010 . Depression . Retrieved May 28, 2010 from http://www.nimh.nih.gov/health/publications/depression/index.shtml
  • Nærde , A. , Tambs , K. and Mathiesen , K. S. 2002 . Child related strain and maternal mental health: A longitudinal study . Acta Psychiatrica Scandinavica , 105 : 301 – 309 .
  • O'Brien , V. 1996 . “ Early childhood: The social domain ” . In Occupational science: The evolving discipline , Edited by: Zemke , R. and Clark , F. 247 – 253 . Philadelphia : F. A. Davis .
  • Olsson , M. B. and Hwang , P. C. 2001 . Depression in mothers and fathers of children with intellectual disability . Journal of Intellectual Disability Research , 45 : 535 – 543 .
  • Olsson , M. B. and Hwang , P. C. 2003 . Influence of macrostructure of society on the life situation of families with a child with intellectual disability: Sweden as an example . Journal of Intellectual Disability Research , 47 : 328 – 341 .
  • Orsmond , G. I. , Seltzer , M. M. , Greenberg , J. S. and Kraus , M. W. 2006 . Mother-child relationship quality among adolescents and adults with autism . American Journal on Mental Retardation , 111 : 121 – 137 .
  • Phelps , K. W. , McCammon , S. L. , Wuensch , K. L. , & Golden , J. A. 2009 . Enrichment, stress, and growth from parenting an individual with an autism spectrum disorder . Journal of Intellectual and Developmental Disability , 34 , 133 – 141 .
  • Polimeni , M. A. , Richdale , A. L. and Francis , J. P. 2005 . A survey of sleep problems in autism, Asperger's disorder and typically developing children . Journal of Intellectual Disability Research , 49 : 260 – 268 .
  • Polimeni , M. , Richdale , A. and Francis , A. 2007 . The impact of children's sleep problems on the family and behavioural processes related to their development and maintenance . E-Journal of Applied Psychology , 3 : 76 – 85 .
  • Pottie , C. G. , Cohen , J. , & Ingram , K. M. 2009 . Parenting a child with autism: Contextual factors associated with enhanced daily parental mood . Journal of Pediatric Psychology , 34 , 419 – 429 .
  • Rogers , S. L. , Gordon , C. Y. , Schanzenbacher , K. E. and Case-Smith , J. 2001 . “ Common diagnosis in pediatric occupational therapy practice ” . In Occupational therapy for children , 4th ed. , Edited by: Case-Smith , J. 136 – 187 . St. Louis : Mosby .
  • Sanders , J. L. and Morgan , S. B. 1997 . Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention . Child and Family Behavior Therapy , 19 : 15 – 32 .
  • Schwitchtenberg , A. , & Poehlmann , J. 2007 . Applied behavior analysis: Does intervention intensity relate to family stressors and maternal well-being? Journal of Intellectual Disability Research , 51 , 598 – 605 .
  • Sen , E. and Yurtsever , S. 2007 . Difficulties experienced by families with disabled children . Journal of School Nursing , 12 : 238 – 252 .
  • Smith , T. B. , Matthew , N. I. , Oliver , M. A. and Innocenti , M. S. 2001 . Parenting stress in families of children with disabilities . American Journal of Orthopsychiatry , 71 : 257 – 261 .
  • Spiegel , K. , Leproult , R. and Van Cauter , E. 1999 . Impact of sleep debt on metabolic and endocrine function . The Lancet , 354 : 1435 – 1439 .
  • Thomas , K. C. , Ellis , A. R. , McLauren , C. , Daniels , J. and Morrissey , J. P. 2007 . Access to care for autism-related services . Journal of Autism and Other Developmental Disorders , 37 : 1902 – 1912 .
  • Tunali , B. and Power , T. G. 2002 . Coping by redefinition: Cognitive appraisals in mothers of children with autism and children without autism . Journal of Autism and Developmental Disorders , 32 : 25 – 34 .
  • Wachtel , K. , & Carter , A. S. 2008 . Reaction to diagnosis and parenting styles among mothers of young children with ASDs . Autism , 12 , 575 – 594 .
  • Westhorp , P. 2003 . Exploring balance as a concept in occupational science . Journal of Occupational Science , 10 : 99 – 106 .
  • Woodgate , R. L. , Ateah , C. , & Secco , L. 2008 . Living in a world of our own: The experience of parents who have a child with autism . Qualitative Health Research , 18 , 1075 – 1083 .
  • Yamada , A. , Suzuki , M. , Kato , M. , Suzuki , M. , Tanaka , S. , et al. . & Furukawa , T. A. 2007 . Emotional distress and its correlates among parents of children with pervasive developmental disorders . Psychiatry and Clinical Neurosciences , 61 , 651 – 657 .

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