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Original Articles

Measurement of health-related quality of life in Rheumatology: Current concepts and controversies

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Pages 105-110 | Published online: 10 Mar 2014

References

  • Addington-Hall J, Kalra L (2001). Who should measure quality of life? BMJ, 322, 1417–1420.
  • Asbring P (2001). Chronic illness—a disruption in life: identity-transformation among women with chronic fatigue syndrome and fibromyalgia. J. Adv. Nurs., 34, 312–319.
  • Bellamy N, Buchanan WW, Goldsmith CH, Campbell J, Stitt LW (1988). Validation study of WOMAC: a health status instrument for measuring clinically important patient relevant outcomes to antirheumatic drug therapy in patients with osteoarthritis of the hip or knee. Journal of Rheumatology, 15, 1833–1840.
  • Bullinger M, Anderson R, Cella D, Aaronson N (1993). Developing and evaluating cross-cultural instruments from minimum requirements to optimal models. Qual. Life Res., 2, 451–459.
  • Jenkinson C, Layle R, Wright L, Coulter A (1996). The UK SF-36: an analysis and interpretation manual, p. 131. University of Oxford: Dept. of Public Health and Primary Care.
  • Calman KC (1984). Quality of life in cancer patients—an hypothesis. J. Med. Ethics, 10, 124–127.
  • Carr AJ (1996). Margaret Holroyd Prize Essay. A patient-centred approach to evaluation and treatment in rheumatoid arthritis: the development of a clinical tool to measure patient-perceived handicap. Br. J. Rheumatol., 35, 921–932.
  • Carr AJ (1999). Beyond disability: measuring the social and personal consequences of osteoarthritis. Osteoarthritis Cartilage, 7, 230–238.
  • Carr AJ, Higginson IJ (2001). Are quality of life measures patient centred? BMJ, 322, 1357–1360.
  • Cohen S, Hurd E, Cush J, Schiff M, Weinblatt ME, Moreland LW, Kremer J, Bear MB, Rich WJ, Mccabe D (2002). Treatment of rheumatoid arthritis with anakinra, a recombinant human interleukin-1 receptor antagonist, in combination with methotrexate: results of a twenty-four-week, multicenter, randomized, double-blind, placebo-controlled trial. Arthritis Rheum., 46, 614–624.
  • Dazord A, Leizorovicz A, Gerin P, Boissel JP (1994). Quality of life of patients during treatment of type I diabetes. Importance of a questionnaire focused on the subjective quality of life. Diabete. Metab., 20, 465–472.
  • Essink-Bot ML, Krabbe PF, Bonsel GJ, Aaronson NK (1997). An empirical comparison of four generic health status measures. The Nottingham Health Profile, the Medical Outcomes Study 36-Item Short-Form Health Survey, the COOP/WONCA charts, and the EuroQol instrument. Med. Care, 35, 522–537.
  • EQ-SD User Guide (1996). A measure of health-related quality of life developed by the EuroQol Group. Rotterdam: EuroQol Business Management (Erasmus University).
  • Fries JF, Spitz P, Kraines RG, Holman HR (1980). Measurement of patient outcome in arthritis. Arthritis Rheum., 23, 137–145.
  • Graham B (1999). Generic health instruments, visual analog scales, and the measurement of clinical phenomena. J. Rheumatol., 26, 1022–1023.
  • Guillemin F (2000). Functional disability and quality-of-life assessment in clinical practice. Rheumatology (Oxford), 39, Suppl. 1, 17–23.
  • Heft MW, Parker SR (1984). An experimental basis for revising the graphic rating scale for pain. Pain, 19, 153–161.
  • Higginson IJ, Carr AJ (2001). Measuring quality of life: Using quality of life measures in the clinical setting. BMJ, 322, 1297–1300.
  • Jenkinson C, Fitzpatrick R, Argyle M (1988). The Nottingham Health Profile: an analysis of its sensitivity in differentiating illness groups. Soc. Sci. Med., 27, 1411–1414.
  • Kazis LE, Callahan LF, Meenan RF, Pincus T (1990). Health status reports in the care of patients with rheumatoid arthritis. J. Clin. Epidemiol., 43, 1243–1253.
  • Macduff C (2000). Respondent-generated quality of life measures: useful tools for nursing or more fool's gold? J. Adv. Nurs., 32, 375–382.
  • Macduff C, Russell E (1998). The problem of measuring change in individual health-related quality of life by postal questionnaire: use of the patient-generated index in a disabled population. Qual. Life Res., 7, 761–769.
  • Mathias SD, Colwell HH, Miller DP, Moreland LW, Buatti M, Wanke L (2000). Health-related quality of life and functional status of patients with rheumatoid arthritis randomly assigned to receive etanercept or placebo. Clin. Ther., 22, 128–139.
  • Mcgee HM, O'boyle CA, Hickey A, O'malley K, Joyce CR (1991). Assessing the quality of life of the individual: the SEIQoL with a healthy and a gastroenterology unit population. Psychol. Med., 21, 749–759.
  • Meenan RF, Mason JH, Anderson JJ, Guccione AA, Kazis LE (1992). AIMS2. The content and properties of a revised and expanded Arthritis Impact Measurement Scales Health Status Questionnaire. Arthritis Rheum., 35, 1–10.
  • Muldoon MF, Barger SD, Flory JD, Manuck SB (1998). What are quality of life measurements measuring? BMJ, 316, 542–545.
  • Bellamy N (1993). Musculoskeletal Clinical Metrology. Netherlands: Kluwer Academic Publishers.
  • Ruta DA, Hurst NP, Kind P, Hunter M, Stubbings A (1998). Measuring health status in British patients with rheumatoid arthritis: reliability, validity and responsiveness of the short form 36-item health survey (SF-36). Br. J. Rheumatol., 37, 425–436.
  • Sanders C, Egger M, Donovan J, Tallon D, Frankel S (1998). Reporting on quality of life in randomised controlled trials: bibliographic study. BMJ, 317, 1191–1194.
  • Schwartz CE, Sprangers MA (1999). Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Soc. Sci. Med., 48, 1531–1548.
  • Scott DL, Garrood T (2000). Quality of life measures: use and abuse. Baillieres Best Pract. Res. Clin. Rheumatol., 14, 663–687.
  • Scribner-Bantam English Dictionary (1979). New York: Bantam Books.
  • Sharpe L, Sensky T, Brewin CR, Allard S (2001). Characteristics of handicap for patients with recent onset rheumatoid arthritis: the validity of the Disease Repercussion Profile. Rheumatology (Oxford), 40, 1169–1174.
  • Strombeck B, Ekdahl C, Manthorpe R, Wikstrom I, Jacobsson L (2000). Health-related quality of life in primary Sjogren's syndrome, rheumatoid arthritis and fibromyalgia compared to normal population data using SF-36. Scand. J. Rheumatol., 29, 20–28.
  • Suurmeijer TP, Waltz M, Moum T, Guillemin F, van sonderen FL, Briancon S, Sanderman R, van den heuvel WJ (2001). Quality of life profiles in the first years of rheumatoid arthritis: results from the EURIDISS longitudinal study. Arthritis Rheum., 45, 111–121.
  • Tugwell P, Wells G, Strand V, Maetzel A, Bombardier C, Crawford B, Dorrier C, Thompson A (2000). Clinical improvement as reflected in measures of function and health-related quality of life following treatment with leflunomide compared with methotrexate in patients with rheumatoid arthritis: sensitivity and relative efficiency to detect a treatment effect in a twelvemonth, placebo-controlled trial. Leflunomide Rheumatoid Arthritis Investigators Group. Arthritis Rheum., 43, 506–514.
  • Vincent KA, Carr AJ, Rose ML (2001). The development and validation of an individualized quality of life questionnaire for adult neuromuscular disease. Journal of the Neurological Sciences, 187(S1), S385.
  • Weinberger M, Samsa GP, Hanlon JT, Schmader K, Doyle ME, Cowper PA, Uttech KM, Cohen HJ, Feussner JR (1991). An evaluation of a brief health status measure in elderly veterans. J. Am. Geriatr. Soc., 39, 691–694.
  • Wells G, Boers M, Shea B, Tugwell P Westhovens R, Saurez-Almazor M, Buchbinder R (1999). Sensitivity to change of generic quality of life instruments in patients with rheumatoid arthritis: preliminary findings in the generic health OMERACT study. OMERACT/ILAR Task Force on Generic Quality of Life. Life Outcome Measures in Rheumatology. International League of Associations for Rheumatology. J. Rheumatol., 26, 217–221.
  • Wolfe F, Hawley DJ (1997). Measurement of the quality of life in rheumatic disorders using the EuroQol. Br. J. Rheumatol, 36, 786–793.
  • Wolfe F, Pincus T (1999). Listening to the patient: a practical guide to self-report questionnaires in clinical care. Arthritis Rheum., 42, 1797–1808.
  • World Health Organisation Quality of Life Assessment (WHOQoL): position paper from the World Health Organisation (1995). Soc. Sci. Med., 41, 1403–1409.

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