A survey of clinicians' practice in the symptomatic treatment of ALS

References

• Miller R, Rosenberg J, Gelinas D et al. Practice parameter: The care of the patient with amyotrophic lateral sclerosis (an evidence-based review). Neurology 1999; 52: 1311–1323.
   Google Scholar
• Borasio G, Oliver D. The control of other symptoms. In: Oliver D, Borasio G, Walsh D (eds.) Palliative Care in Amyotrophic Lateral Sclerosis. Oxford: Oxford University Press; 2000. p. 72–81.
   Google Scholar
• Norris F, Gasteiger E, Chatfield P. An electromyographic study of induced and spontaneous muscle cramps. Electroencephalo- graphy and clinical Neurophysiology 1957; 9: 139–147.
   PubMed Web of Science ®Google Scholar
• Layzer R, Rowland L. Cramps. New England Journal of Medicine 1971; 285: 31–40.
   PubMedGoogle Scholar
• Miller R, Moore D, Young L et al. Placebo-controlled trial of gabapentin in patients with amyotrophic lateral sclerosis. Neurology 1996; 47: 1383–1388.
   Google Scholar
• Connolly P, Shirley E, Wasson J, Nierenberg D. Treatment of nocturnal leg cramps. A crossover trial of quinine vs vitamin E. Archives of Internal Medicine 1992; 152: 1877–1880.
   PubMedGoogle Scholar
• Fung M, Holbrook J. Placebo-controlled trial of quinine therapy for nocturnal leg cramps. Western Journal of Medicine 1989; 15: 42–44.
   Google Scholar
• Man-Son-Hing M, Wells G. Meta-analysis of efficacy of quinine for treatment of nocturnal leg cramps in elderly people. British Medical Journal 1995; 310: 13–17.
   PubMed Web of Science ®Google Scholar
• Andersen P, Gronberg H, Franzen L, Funegard U. External radiation of the parotid glands significantly reduces drooling in patients with motor neurone disease with bulbar paresis. Journal of the Neurological Sciences 2001; 191: 111–114.
   PubMed Web of Science ®Google Scholar
• Bradley W, Anderson F, Bromberg M et al. Current management of ALS: comparison of the ALS CARE Database and the AAN Practice Parameter. Neurology 2001; 57: 500–504.
   Google Scholar
• Balasco P, Stansbury J. Glycopyrrolate treatment of chronic drooling. Archives of Pedriatric Adolescence Medicine 1996; 150: 932–935.
   Google Scholar
• Dworkin J, Nadal J. Nonsurgical treatment of drooling in a patient with closed head injury and severe dysarthria. Dysphagia 1991; 6: 40–49.
   Google Scholar
• Giess R, Naumann M, Werner E et al. Injections of botulinum toxin A into the salivary glands improve sialorrhoea in amyotrophic lateral sclerosis. Journal of Neurology, Neuro- surgery and Psychiatry 2000; 69: 121–123.
   Google Scholar
• Winterholler M. Botulinum toxin for the treatment of sialorrhoea in ALS: serious side effects of a transductal approach. Journal of Neurology, Neurosurgery and Psychiatry 2001; 70: 405–406.
   Google Scholar
• Tan E, Lo Y, Seah A, Auchus A. Recurrent jaw dislocation after botulinum toxin treatment for sialorrhoea in amyotrophic lateral sclerosis. Journal of the Neurological Sciences 2001; 190: 95–97.
   PubMed Web of Science ®Google Scholar
• Talmi Y, Finkelstein Y, Zohar Y. Reduction of salivary flow in amyotrophic lateral sclerosis with scopoderm TTS. Head Neck 1989; 11: 565.
   PubMed Web of Science ®Google Scholar
• Harriman M, Morrison M, Hay et al. Use of radiotherapy for control of sialorrhea in patients with amyotrophic lateral sclerosis. Journal of Otolaryngology 2001; 30: 242–245.
   Google Scholar
• Moulding M, Koroluk L. An intraoral prosthesis to control drooling in a patient with amyotrophic lateral sclerosis. Special Care Dentist 1991; 11: 200–2002.
   Google Scholar
• Newall A, Orser R, Hunt M. The control of oral secretions in bulbar ALS/MND. Journal of the Neurological Sciences 1996; 139 (suppl): 43–44.
   Google Scholar
• Houpt J, Gould B, Norris F. Psychological characteristics of patients with amyotrophic lateral sclerosis (ALS). Psychosomatic Medicine 1977; 39: 299–303.
   PubMed Web of Science ®Google Scholar
• Moore M, Moore P, Shaw P. Mood disturbances in motor neurone disease. Journal of the Neurological Sciences 1998; 160 (suppl): S53–S56.
   Google Scholar
• Rabkin J, Wagner G, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosomatic Medicine 2000; 62: 271–279.
   PubMed Web of Science ®Google Scholar
• Neudert C, Oliver D, Wasner M, Borasio G. The course of the terminal phase in patients with amyotrophic lateral sclerosis. Journal of Neurology 2001; 248: 612–616.
   PubMed Web of Science ®Google Scholar
• Mandler R, Anderson F, Miller R et al. The ALS Patient and Database: insights into end-of-life care in ALS. ALS 2001; 2: 203–208.
   Google Scholar
• Lance J. Pyramidal and extrapyramidal disorders. In: Shahani D (ed.) Electromyography in CNS Disorders: Central EMG. Boston: Butterworth; 1984. p. 1–19.
   Google Scholar
• Raynor E, Shefner J. Recurrent inhibition is decreased in patients with amyotrophic lateral sclerosis. Neurology 1994; 44: 2148–2153.
   PubMed Web of Science ®Google Scholar
• Norris F, U K, Sachais B, Carey M. Trial of bacolfen in amyotrophic lateral sclerosis. Archives of Neurology 1979; 36: 715–716.
   Google Scholar
• Marquardt G, Lorenz R. Intrathecal baclofen for intractable spasticity in amyotrophic lateral sclerosis. Journal of Neurology 1999; 246: 619–620.
   PubMedGoogle Scholar
• de Carvalho M. Gabapentin for the treatment of spasticity in patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis 2001; 2: 47–48.
   Google Scholar
• Miller R, Moore D, Gelinas D et al. Phase III randomized trial of gabapentin in patients with amyotrophic lateral sclerosis. Neurology 2001; 56: 843–848.
   Google Scholar
• McCullagh S, Moore M, Gawel M, Feinstein A. Pathological laughing and crying in amyotrophic lateral sclerosis: an association with prefrontal cognitive dysfunction. Journal of the Neurological Sciences 1999; 169: 43–48.
   PubMed Web of Science ®Google Scholar
• Williams D. The yawning reflex: an upper motor neuron sign in amyotrophic lateral sclerosis. Neurology 2000; 55: 1592–1593.
   Google Scholar
• Moore S, Gresham L, Bromberg et al. A self report measure of affective lability. Journal of Neurology, Neurosurgery and Psychiatry 1997; 63: 89–93.
   PubMed Web of Science ®Google Scholar
• Appel S, Berg J, Bradley W et al. AVP-923 treatment of pseudobulbar effect in amyotrophic lateral sclerosis: results of a double-blind, controlled, multicenter study. Amyotrophic Lateral Sclerosis 2002; 3 (suppl 2): 15–16.
   Google Scholar
• Iannaccone S, Ferini-Strambi L. Pharmacologic treatment of emotional lability. Clinical Neuropharmacology 1996; 19: 532–535.
   PubMed Web of Science ®Google Scholar
• Schiffer R, Herndon R, Rudick R. Treatment of pathologic laughing and weeping with amitriptyline. New England Journal of Medicine 1985; 312: 1480–1482.
   PubMed Web of Science ®Google Scholar
• Jackson C, Bryan W. Amyotrophic lateral sclerosis. Seminars in Neurology 1998; 18: 27–39.
   PubMed Web of Science ®Google Scholar
• Hattori T. Negative symptoms and signs of amyotrophic lateral sclerosis: disturbance of micturation. Clinical Neurology 1984; 24: 1254–1256.
   Google Scholar
• Shaker R, Dodds W, Ren J et al. Esophagoglottal closure reflex: a mechanism of airway protection. Gastroenterology 1992; 102: 857–861.
   Google Scholar
• Bortolotti M. Laryngospasm and reflex central apnoea caused by aspiration of reflexed gastric content in adults. Gut 1989; 30: 233–238.
   PubMedGoogle Scholar
• Kent-Braun J, Miller R. Central fatigue during isometric exercise in amyotrophic lateral sclerosis. Muscle and Nerve 2000; 23: 909–914.
   PubMed Web of Science ®Google Scholar
• Norris F, Tan Y, Fallat R, Elias L. Trial of oral physostigmine in amyotrophic lateral sclerosis. Clinical Pharmacology Therapy 1993; 54: 680–682.
   PubMed Web of Science ®Google Scholar
• Borasio G, Voltz R. Palliative care in amyotrophic lateral sclerosis. Journal of Neurology 1997; 244 (suppl 4): S11–S17.
   Google Scholar
• de Carvalho M, Swash M. Fasciculation potentials: a study of amyotrophic lateral sclerosis and other neurogenic disorders. Muscle and Nerve 1998; 21: 336–344.
   PubMed Web of Science ®Google Scholar
• Gelinas D, Miller R. A treatable disease: a guide to the management of amyotrophic lateral sclerosis. In: Brown R, Meininger V, Swash M, (eds.) Amyotrophic Lateral Sclerosis. London: Martin Dunitz; 2000. p. 405–421.
   Google Scholar