1,363
Views
9
CrossRef citations to date
0
Altmetric
Articles

Towards a tinkering participatory research method in mental health

&
Pages 7-17 | Received 08 Sep 2015, Accepted 02 Jul 2016, Published online: 28 Aug 2016

References

  • Barnes, M. 1999. “Users as Citizens: Collective Action and the Local Governance of Welfare.” Social Policy & Administration 33 (1): 73–90. doi: 10.1111/1467-9515.00132
  • Bentall, R. 2009. “Roll Over Kraepelin.” In Mental Health Still Matters, edited by J. Reynolds, R. Muston, S. Heller, J. Leach, M. McCormick, J. Wallcraft, and M. Walsh, 16–23. Basingstoke: Palgrave Macmillan.
  • Beresford, P. 2002. “User Involvement in Research and Evaluation: Liberation or Regulation?” Social Policy and Society 1 (02): 95–105. doi:10.1017/S1474746402000222.
  • Beresford, P. 2012. “The Theory and Philosophy Behind User Involvement.” In Social Care, Service Users and User Involvement, edited by P. Beresford and S. Carr, 21–36. London: Jessica Kingsley.
  • Beresford, P., and K. Boxal. 2013. “Where Do Service Users’ Knowledges sit in Relation to Professional and Academic Understandings of Knowledge?” In Mental Health Service Users in Research: Critical Sociological Perspectives, edited by K. Boxal and P. Staddon, 69–86. Bristol: Policy Press.
  • Borg, M., and K. Kristiansen. 2004. “Recovery-Oriented Professionals: Helping Relationships in Mental Health Services.” Journal of Mental Health 13 (5): 493–505. doi:10.1080/09638230400006809 x.
  • Campbell, F. K. 2009. Contours of Ableism: The Production of Disability and Abledness. Basingstoke: Palgrave Macmillan.
  • Cowden, S., and G. Singh. 2007. “The ‘User’: Friend, foe or Fetish? A Critical Exploration of User Involvement in Health and Social Care.” Critical Social Policy 27 (1): 5–23. doi:10.1177/0261018307072205.
  • Crossley, M. L., and N. Crossley. 2001. “‘Patient’ Voices, Social Movements and the Habitus; How Psychiatric Survivors ‘speak out.’” Social Science & Medicine 52 (10): 1477–1489. doi:10.1016/S0277-9536(00)00257-4.
  • Dahlberg, K., L. Todres, and K. Galvin. 2009. “Lifeworld-led Healthcare Is More Than Patient-led Care: An Existential View of Well-Being.” Medicine, Health Care and Philosophy 12 (3): 265–271. doi:10.1007/s11019-008-9174-7.
  • Davidson, L. 2003. Living Outside Mental Illness: Qualitative Studies of Recovery in Schizophrenia. New York: New York University Press.
  • Davidson, D., P. Ridgway, T. Schmutte, and M. O’Connell. 2009. “Purposes and Goals of Service User Involvement in Mental Health Research.” In Handbook of Service User Involvement in Mental Health Research, edited by J. Wallcraft, M. Amering, and B. Schrank, 87–98. Chichester: Wiley.
  • Dehue, T. 2010. Changing the Rules: Psychology in the Netherlands, 1900–1985. Cambridge: Cambridge University Press.
  • El Enany, N., G. Currie, and A. Lockett. 2013. A Paradox in Healthcare Service Development: Professionalization of Service Users. Social Science & Medicine 80: 24–30. doi:10.1016/j.socscimed.2013.01.004
  • Finlay, L. 2002. “Negotiating the Swamp: The Opportunity and Challenge of Reflexivity in Research Practice.” Qualitative Research 2 (2): 209–230. doi: 10.1177/146879410200200205
  • Finlay, L. 2009. Debating Phenomenological Research Methods. Phenomenology and Practice 3 (1): 6–25.
  • Fricker, M. 2007. Epistemic Injustice: Power & the Ethics of Knowing. Oxford: Oxford University Press.
  • Gadamer, H. G. 1996. The Enigma of Health: The Art of Healing in a Scientific Age. Stanford, CA: Stanford University Press.
  • Galvin, K., and L. Todres. 2011. “Research Based Empathic Knowledge for Nursing: A Translational Strategy for Disseminating Phenomenological Research Findings to Provide Evidence for Caring Practice.” International Journal of Nursing Studies 48 (4): 522–530. doi: 10.1016/j.ijnurstu.2010.08.009
  • Gendlin, E. 2003. Focusing. London: Rider.
  • Gigerenzer, G. 1987. “Probabilistic Thinking and the Fight Against Subjectivity.” In The Probabilistic Revolution. Volume 2: Ideas in Science, edited by J. Krüger, G. Gigerenzer, and M. S. Morgan, 11–33. Cambridge, MA: The MIT Press.
  • Giorgi, A. 1985. “Towards a Phenomenologically Based Unified Paradigm for Psychology.” In The Changing Reality of Modern Man: Essays in Honour of Jan Hendrik van den Berg, edited by D. Kruger, 20–34. Pittsburg, PA: Duquesne University Press.
  • Giorgi, A. 2009. The Descriptive Phenomenological Method in Psychology: A Modified Husserlian Approach. Pittsburgh, PA: Duquesne University Press.
  • Gustavsson, A. 2004. “The Role of Theory in Disability Research – Springboard or Strait-Jacket?” Scandinavian Journal of Disability Research 6 (1): 55–70. doi: 10.1080/15017410409512639
  • Keat, R., N. Abercrombie, and N. Whiteley. 1994. The Authority of the Consumer. London: Routledge.
  • Kitcher, P. 2001. Science, Truth, and Democracy. Oxford: Oxford University Press.
  • Levant, R. F., N. T. Hasan, M. C. Roberts, and J. E. Barnett. 2008. “Evidence-Based Practice in Psychology.” Professional Psychology: Research and Practice 39 (6): 658–662. doi:10.1037/0735-7028.39.6.658.
  • Mauss, M. 2002. The Gift: The Form and Reason for Exchange in Archaic Societies. London: Routledge.
  • May, R., E. Angel, and H. F. Ellenberger, eds. 1958. Existence: A New Dimension in Psychiatry and Psychology. New York: Basic Books.
  • McLaughlin, H. 2009. “What’s in a Name: ‘Client’, ‘Patient’, ‘Customer’, ‘Consumer’, ‘Expert by Experience’, ‘Service User’ – What’s Next?” British Journal of Social Work 39 (6): 1101–1117. doi:10.1093/bjsw/bcm155.
  • McWade, B., D. Milton, and P. Beresford. 2015. “Mad Studies and Neurodiversity: A Dialogue.” Disability & Society 30 (2): 305–309. doi:10.1080/09687599.2014.1000512.
  • Mol, A. 2008. The Logic of Care: Health and the Problem of Patient Choice. London: Routledge.
  • Oliver, M. 1986. “Social Policy and Disability: Some Theoretical Issues.” Disability, Handicap & Society 1 (1): 5–17. doi:10.1080/02674648666780021.
  • Oliver, M. 1992. “Changing the Social Relations of Research Production?” Disability, Handicap & Society 7 (2): 101–114. doi:10.1080/02674649266780141.
  • Oliver, M. 1997. “Emancipatory Research: Realistic Goal or Impossible Dream?” In Doing Disability Research, edited by C. Barnes and G. Mercer, 15–31. Leeds: The Disability Press.
  • Oliver, S., L. Clarke-Jones, R. Rees, R. Milne, P. Buchanan, J. Gabbay, G. Gyte, A. Oakley, and K. Stein. 2004. “Involving Consumers in Research and Development Agenda Setting for the NSH: Developing an Evidence-Based Approach.” Health Technology Assessment 8 (15): 1–148. doi: 10.1017/S026646230400073X
  • Oliver, M., and B. Sapey. 2006. Social Work with Disabled People. 3rd ed. Basingstoke: Palgrave Macmillan.
  • Pethick, S. 2015. Affectivity and Philosophy after Spinoza and Nietzsche: Making Knowledge the Most Powerful Affect. London: Palgrave Macmillan.
  • Plumb, A. 2011. “Distress or Disability: A Discussion Document.” In Distress or Disability? Proceedings of A Symposium Held at Lancaster University, 15–16 November 2011, edited by J. Anderson, B. Sapey, and H. Spandler, 3–12. Lancaster: Centre for Disability Research.
  • Polkinghorne, D. P. 2006. “An Agenda for the Second Generation of Qualitative Studies.” International Journal of Qualitative Studies on Health and Well-Being 1 (2): 68–77. doi: 10.1080/17482620500539248
  • Pollard, K. C., and D. Evans. 2013. “Theorising Service User Involvement from a Researcher Perspective.” In Mental Health Service Users in Research: Critical Sociological Perspectives, edited by P. Staddon, 39–51. Bristol: Policy Press.
  • Reeve, D. 2015. “Psycho-emotional Disablism in the Lives of People Experiencing Mental Distress.” In Madness, Distress and the Politics of Disablement, edited by H. Spandler, J. Anderson, and B. Sapey, 99–112. Bristol: Policy Press.
  • Rissmiller, D. J., and J. H. Rissmiller. 2006. “Evolution of the Antipsychiatry Movement into Mental Health Consumerism.” Psychiatric Services 57 (6): 863–866. doi: 10.1176/ps.2006.57.6.863
  • Shildrick, M. 2012. “Critical Disability Studies: Rethinking the Conventions for the Age of Postmodernity.” In Routledge Handbook of Disability Studies, edited by N. Watson, A. Roulstone, and C. Thomas, 30–41. London: Routledge.
  • Smith, A. 2001. An Inquiry into the Nature and Causes of the Wealth of Nations. London: Electric Book.
  • Spring, B. 2007. “Evidence-Based Practice in Clinical Psychology: What It Is, Why It Matters; What You Need to Know.” Journal of Clinical Psychology 63 (7): 611–631. doi:10.1002/jclp.20373.
  • Staddon, P. 2013. Mental Health Service Users in Research: Critical Sociological Perspectives. Bristol: The Policy Press.
  • Staley, K., T. Kabir, and G. Szmukler. 2013. “Service Users as Collaborators in Mental Health Research: Less Stick, More Carrot.” Psychological Medicine 43 (6): 1121–1125. doi:10.1017/S0033291712001663.
  • Stone, E., and M. Priestley. 1996. “Parasites, Pawns and Partners: Disability Research and the Role of Non-Disabled Researchers.” The British Journal of Sociology 47 (4): 699–716. doi:10.2307/591081.
  • Svenaeus, F. 2000. The Hermeneutics of Medicine and the Phenomenology of Health: Steps Towards a Philosophy of Medical Practice (vol. 5). Dordrecht: Kluwer.
  • Sweeney, A. 2009. This Is Survivor Research. Ross-on-Wye: PCCS Books.
  • Szmukler, G. 2009. “Service Users in Research and a ‘well ordered science.’” Journal of Mental Health 18 (2): 87–90. doi: 10.1080/09638230902835028
  • Taleb, N. N. 2013. Antifragile: Things that Gain from Disorder. London: Penguin.
  • Tangvald-Pedersen, O., and R. Bongaardt. 2011. “Tid og tilhørighet: Opplevelsen av god psykisk helse og dens implikasjoner for godt psykisk helsearbeid. [Time and Belonging: The Experience of Good Mental Health and its Implications for Good Mental Health Work].” Tidsskrift for psykisk helsearbeid 8 (2): 100–108.
  • Todres, L. 2007. Embodied Enquiry: Phenomenological Touchstones for Research, Psychotherapy and Spirituality. Basingstoke: Palgrave Macmillan.
  • Todres, L., K. Galvin, and K. Dahlberg. 2007. “Lifeworld-led Healthcare: Revisiting a Humanising Philosophy that Integrates Emerging Trends.” Medicine, Health Care and Philosophy 10 (1): 53–63. doi:10.1007/s11019-006-9012-8.
  • Todres, L., and I. Holloway. 2004. “Descriptive Phenomenology: Life-World as Evidence.” In New Qualitative Methodologies in Health and Social Care Research, edited by F. Rapport, 79–96. London: Routledge.
  • Wallcraft, J., M. Amering, and B. Schrank, eds. 2009. Handbook of Service User Involvement in Mental Health Research. Chichester: Wiley.
  • Wilson, A., and P. Beresford, eds. 2002. Madness, Distress and Postmodernity: Putting the Record Straight. London: Continuum.