The relationship between social support and the health of HIV-positive caregivers of children: A review of the empirical literature

References

• Ahrons , C. 1979 . The binuclear family: Two households, one family . Alternative Lifestyles , 2 : 499 – 515 .
   Google Scholar
• Akintola , O. 2008 . Defying all odds: Coping with the challenges of volunteer caregiving for patients with AIDS in South Africa . Journal of Advanced Nursing , 63 ( 4 ) : 357 – 365 .
   Google Scholar
• Antonucci , T. 1985 . “ Personal characteristics, social support and social behavior ” . In Handbook of ageing and the social sciences , 2nd , Edited by: Binstock , R. and Shanas , E. 94 – 128 . New York : Reinhold .
   Google Scholar
• Barbee , A. , Derlega , V. , Sherburne , S. and Grimshaw , A. 1998 . “ Helpful and unhelpful forms of social support for HIV-positive individuals ” . In HIV and social interaction , Edited by: Derlega , V. and Barbee , A. 83 – 105 . Thousand Oaks , CA : Sage .
   Google Scholar
• Barnett , T. and Whiteside , A. 2006 . AIDS in the 21st century: Disease and globalisation , London : Palgrave-MacMillian .
   Google Scholar
• Barrera , M. 1981 . “ Social support in the adjustment of pregnant adolescents: Assessment issues ” . In Social networks and social support , Edited by: Gottlieb , B. 69 – 96 . Newbury Park , CA : Sage .
   Google Scholar
• Bauman , L. 1997 . The multidimensional social support inventory , Unpublished manuscript .
   Google Scholar
• Bauman , L. and Weiss , E. 1995 . Multidimensional social support inventory: Revised , Bronx , NY : Albert Einstein College of Medicine .
   Google Scholar
• Beck , A. , Ward , C. , Mendelson , M. , Mock , J. and Erbaugh , J. 1961 . An inventory for measuring depression . Archives of General Psychiatry , 4 : 561 – 571 .
   Google Scholar
• Beck , A. , Weissman , A. , Lester , D. and Trexler , L. 1974 . The measurement of pessimism: The hopelessness scale . Journal of Consulting and Clinical Psychology , 42 ( 6 ) : 861 – 865 .
   Google Scholar
• Belle , D. 1982 . “ Social ties and social support ” . In Lives in stress: Women and depression , Edited by: Belle , D. 133 – 144 . Thousand Oaks , CA : Sage .
   Google Scholar
• Belsey , M. 2005 . AIDS and the family: Policy options for a crisis in family capital , New York : United Nations .
   Google Scholar
• Belue , R. , Schreiner , A. , Taylor-Richardson , K. , Murray-Kolb , L. and Beard , J. 2008 . What matters most: An investigation of predictors of perceived stress among mothers in Khayelitsha . Health Care for Women International , 29 ( 6 ) : 638 – 648 .
   Google Scholar
• Brehaut , J. , Kohen , D. , Garner , R. , Miller , A. , Lack , L. , Klassen , A. and Rosenbaum , P. 2009 . Health among caregivers of children with health problems: Findings from a Canadian population-based study . American Journal of Public Health , 99 ( 7 ) : 1254 – 1262 .
   Google Scholar
• Brown , B. 2007 . Children's special health care needs, mothers’ coping and social support, and maternal mental health . Dissertation Abstracts International Section A: Humanities and Social Sciences , 68 ( 6-A ) : 2675
   Google Scholar
• Burns , M. , Feaster , D. , Mitrani , V. , Ow , C. and Szapocznik , J. 2008 . Stress processes in HIV-positive African American mothers: Moderating effects of drug abuse history . Anxiety, Stress, & Coping , 21 ( 1 ) : 95 – 116 .
   Google Scholar
• Carver , C. 1997 . You want to measure coping but your protocol's too long: Consider the brief COPE . International Journal of Behavioral Medicine , 4 ( 1 ) : 92 – 100 .
   Google Scholar
• Casale , M. 2011 . ‘I am living a peaceful life with my grandchildren. Nothing else.’ Stories of adversity and ‘resilience’ of older women caring for children in the context of HIV/AIDS and other stressors . Ageing and Society , doi: 10.1017/S0144686X10001303
   Google Scholar
• Centers for Disease Control and Prevention. (1992). 1993 Revised classification system for HIV infection and expanded surveillance case definition for AIDS among adolescents and adults. http://www.cdc.gov/mmwr/preview/mmwrhtml/00018871.htm (http://www.cdc.gov/mmwr/preview/mmwrhtml/00018871.htm) (Accessed: 2 October 2011 ).
   Google Scholar
• Chimwaza , A. and Watkins , S. 2004 . Giving care to people with symptoms of AIDS in rural sub-Saharan Africa . AIDS Care , 16 ( 7 ) : 795 – 807 .
   Google Scholar
• Cook , K. 1997 . Psychological distress and mediating variables in HIV-positive mothers of young children (Doctoral thesis, California School of Professional Psychology, CA, USA)
   Google Scholar
• Cutrona , C. and Russell , D. 1987 . “ The provisions of social relationships and adaptation to stress ” . In Advances in personal relationships , Edited by: Jones , W. and Perlman , D. 36 – 67 . Greenwich , , CT : JAI Press .
   Google Scholar
• Derogatis , L. 1993 . Brief Symptom Inventory: Administration, scoring, and procedures manual , Minneapolis , MN : National Computer Systems .
   Google Scholar
• Derogatis , L. and Spencer , P. 1982 . The Brief Symptom Inventory (BSI) administration, scoring & procedures manual – I , Towson , MD : Clinical Psychometric Research .
   Google Scholar
• Dohrenwend , B. , Shrout , P. , Egri , G. and Mendelsohn , F. 1980 . Nonspecific psychological distress and other dimensions of psychopathology: Measures for use in the general population . Archives of General Psychiatry , 37 : 1229 – 1236 .
   Google Scholar
• Freeman , M. and Nkomo , N. 2006 . Guardianship of orphans and vulnerable children. A survey of current and perspective South African caregivers . AIDS Care , 18 ( 4 ) : 302 – 310 .
   Google Scholar
• Gay , C. 1995 . Psychological distress among mothers infected with HIV: A risk and resistance model (Doctoral degree, University of Miami, Miami, FL, USA)
   Google Scholar
• Gerard , J. , Landry-Meyer , L. and Guzell Roe , J. 2006 . Grandparents raising grandchildren: The role of social support in coping with caregiving challenges . International Journal of Aging and Human Development , 62 ( 4 ) : 359 – 383 .
   Google Scholar
• Hamilton , M. 1960 . A rating scale for depression . Journal of Neurology, Neurosurgery and Psychiatry , 23 : 56 – 62 .
   Google Scholar
• Heaney , C. and Israel , B. 1997 . “ Social networks and social support ” . In Health behaviour and health education , Edited by: Glanz , K. , Lewis , F. and Rimer , B. 179 – 205 . San Francisco , CA : Jossey-Bass .
   Google Scholar
• Hein , K. , Dell , R. , Futterman , D. and Shaffer , N. 1995 . Comparison of HIV+ and HIV− adolescents: Risk factors and psychosocial determinants . Pediatrics , 95 : 96 – 104 .
   Google Scholar
• Herman , A. , Stein , D. , Seedat , S. , Heeringa , S. , Moomal , H. and Williams , D. 2009 . The South African Stress and Health (SASH) study: 12-Month and lifetime prevalence of common mental disorders . South African Medical Journal , 99 ( 5 ) : 339 – 344 .
   Google Scholar
• Hobfoll , S. , Dunahoo , C. , Ben-Porath , Y. and Monnier , J. 1994 . Gender and coping: The dual-axis model of coping . American Journal of Community Psychology , 22 ( 1 ) : 49 – 82 .
   Google Scholar
• Hough , E. , Brumitt , G. , Templin , T. , Saltz , E. and Mood , D. 2003 . A model of mother–child coping and adjustment to HIV . Social Science & Medicine , 56 : 643 – 655 .
   Google Scholar
• House , J. 1987 . Social support and social structure . Sociological Forum , 2 ( 1 ) : 135 – 146 .
   Google Scholar
• Howard , B. , Phillips , C. , Matinhure , N. , Goodman , K. , McCurdy , S. and Johnson , C. 2006 . Barriers and incentives to orphan care in a time of AIDS and economic crisis: A cross-sectional survey of caregivers in rural Zimbabwe . BMC Public Health 2006 , 6 ( 27 ) doi: 10.1186/1471–2458–1186–1127
   Google Scholar
• Ilfeld , F. 1976 . Further validation of a Psychiatric Symptom Index in a normal population . Psychological Reports , 39 : 1215 – 1228 .
   Google Scholar
• Jessop , D. , Riessman , C. and Stein , R. 1988 . Chronic childhood illness and maternal mental health . Journal of Developmental and Behavioral Pediatrics , 9 ( 3 ) : 147 – 156 .
   Google Scholar
• Kimuna , S. and Makiwane , M. 2007 . Older people as resources in South Africa: Mpumalanga households . Journal of Aging & Social Policy , 19 ( 1 ) : 97 – 114 .
   Google Scholar
• Klein , K. , Armistead , L. , Devine , D. , Kotchick , B. , Forehand , R. , Morse , E. and Clark , L. 2000 . Socioemotional support in African American families coping with maternal HIV: An examination of mothers’ and children's psychosocial adjustment . Behavior Therapy , 31 : 1 – 26 . …
   Google Scholar
• Kuo , C. and Operario , D. 2009 . Caring for AIDS-orphaned children: A systematic review of studies on caregivers . Vulnerable Children and Youth Studies , 4 : 1 – 12 .
   Google Scholar
• Kuster , P. and Merkle , C. 2004 . Caregiving stress, immune function, and health: Implications for research with parents of medically fragile children . Issues in Comprehensive Pediatric Nursing , 27 ( 4 ) : 257 – 276 .
   Google Scholar
• Lakey , B. and Cohen , S. 2000 . “ Social support theory and measurement ” . In Social support measurement and intervention: A guide for health and social scientists , Edited by: Cohen , S. , Underwood , L. and Gottlieb , B. 29 – 52 . New York , NY : Oxford University Press .
   Google Scholar
• Lakey , B. and Cronin , A. 2008 . “ Low social support and major depression: Research, theory and methodological issues ” . In Risk factors for depression , Edited by: Dobson , K. and Dozois , D. 385 – 408 . San Diego , CA : Academic Press .
   Google Scholar
• Lara , M. , Leader , J. , Klein , D. and Kendler , K. 1998 . What is social support? . Harvard Mental Health Letter , 14 ( 12 ) : 6 – 7 .
   Google Scholar
• Leder , S. , Grinstead , L. and Torres , E. 2007 . Stressors, social support and health outcomes . Journal of Family Nursing , 13 ( 3 ) : 333 – 352 .
   Google Scholar
• Leslie , M. , Stein , J. and Rotheram-Borus , M. 2002 . The impact of coping strategies, personal relationships, and emotional distress on health-related outcomes of parents living with HIV or AIDS . Journal of Social and Personal Relationships , 19 ( 45 ) doi: 10.1177/0265407502191003
   Google Scholar
• Li , L. , Seltzer , M. and Greenberg , J. 1997 . Social support and depressive symptoms: Differential patterns in wife and daughter caregivers . Journals of Gerontology Series B, Psychological Sciences and Social Sciences , 52 ( 4 ) : S200 – S211 .
   Google Scholar
• Martinez , A. , Israelski , D. , Walker , C. and Koopman , C. 2003 . Post-traumatic stress disorder in women attending human immunodeficiency virus outpatient clinics . AIDS Patient Care and STDs , 16 ( 6 ) : 283 – 291 .
   Google Scholar
• McDowell , T. and Serovich , J. 2007 . The effect of perceived and actual social support on the mental health of HIV-positive persons . AIDS Care , 19 ( 10 ) : 1223 – 1229 .
   Google Scholar
• McNair , D. and Lorr , M. 1964 . An analysis of mood in neurotics . Journal of Abnormal Social Psychology , 69 : 620 – 627 .
   Google Scholar
• Mellins , C. , Ehrhardt , A. , Rapkin , B. and Havens , J. 2000 . Psychosocial factors associated with adaptation in HIV-infected mothers . AIDS and Behavior , 4 ( 4 Health Module ) : 317 – 328 .
   Google Scholar
• Miles , M. , Burchinal , P. , Holditch-Davis , D. , Wasilewski , Y. and Christian , B. 1997 . Personal, family, and health-related correlates of depressive symptoms in mothers with HIV . Journal of Family Psychology , 11 ( 1 ) : 23 – 24 .
   Google Scholar
• Miles , M.S. 1995 . Psychometric properties of the Child Health Worry scale , Unpublished manuscript, University of North Carolina at Chapel Hill .
   Google Scholar
• Morse , E. , Simon , P. , Forehand , R. , Armistead , L. , Clark , L. and Stock , M. 1993 . The descriptive interview , Unpublished questionnaire .
   Google Scholar
• Murphy , D. , Marelich , W. , Dello Stritto , M. , Swendeman , D. and Witkin , A. 2002 . Mothers living with HIV/AIDS: Mental, physical, and family functioning . AIDS Care , 14 ( 5 ) : 633 – 644 .
   Google Scholar
• Murphy , D. , Steers , W. and Dello Stritto , M. 2001 . Maternal disclosure of HIV serostatus to their young children . Journal of Family Psychology , 15 : 441 – 450 .
   Google Scholar
• Musil , C. , Warner , C. , Zauszniewski , J. , Wykle , M. and Standing , T. 2009 . Grandmother caregiving, family stress and strain, and depressive symptoms . Western Journal of Nursing Research , 31 ( 3 ) : 389 – 408 .
   Google Scholar
• Namir , S. , Woolcott , D. , Fawzy , F. and Alambaugh , M. 1987 . Coping with AIDS: Psychological and health implications . Journal of Applied Social Psychology , 17 : 309 – 328 .
   Google Scholar
• Namir , S. , Woolcott , D. , Fawzy , F. and Alambaugh , M. 1990 . “ Implications of different strategies for coping with AIDS ” . In Psychosocial perspectives on AIDS: Etiology, prevention, and treatment , Edited by: Temoshok , L. and Baum , A. 173 – 190 . Hillsdale , NJ : Lawrence Erlbaum .
   Google Scholar
• Norman , R. , Bradshaw , D. , Schneider , M. and Groenewald , P. 2006 . Revised burden of disease estimates for the comparative risk factor assessment, South Africa 2000 , Cape Town : SAMR Council .
   Google Scholar
• O'Connor, D., Green, S., & Higgins, J. (2011). Chapter 5: Defining the review question and developing criteria for including studies. Cochrane handbook for systematic reviews of interventions. Version 5.1.0. http://www.cochrane-handbook.org/ (http://www.cochrane-handbook.org/)
   Google Scholar
• Orner , P. 2006 . Psychosocial impacts on caregivers of people living with AIDS . AIDS Care , 18 ( 3 ) : 236 – 240 .
   Google Scholar
• Patel , V. 2007 . Mental health in low- and middle-income countries . British Medical Bulletin , 81–82 : 81 – 96 .
   Google Scholar
• Payne , R. and Jones , G. 1987 . “ Measurement and methodological issues in social support ” . In Stress and health: Issues in research methodology , Edited by: Kasl , S. and Cooper , C. 167 – 205 . New York : John Wiley .
   Google Scholar
• Petersen , I. and Govender , K. 2009 . “ Theoretical considerations: From understanding to intervening ” . In At the heart of development. Mental health promotion and prevention for poorly resourced contexts , Edited by: Petersen , I. , Bhana , A. , Swartz , L. , Flisher , A. and Richter , L. 21 – 48 . Pretoria : HSRC Press .
   Google Scholar
• Pinquart , M. and Sorensen , S. 2007 . Correlates of physical health of informal caregivers: A meta-analysis . Journals of Gerontology, Series B, Psychological Sciences and Social Sciences , 62 ( 2 ) : 126 – 137 .
   Google Scholar
• Prado , G. , Feaster , D. , Schwartz , S. , Pratt , I. , Smith , L. and Szapocznik , J. 2004 . Religious involvement, coping, social support, and psychological distress in HIV-seropositive African American mothers . AIDS and Behavior , 8 ( 3 ) : 221 – 235 .
   Google Scholar
• Radloff , L. 1977 . The CES-D scale: A self-report depression scale for research in the general population . Applied Psychological Measurements , 1 ( 3 ) : 385 – 401 .
   Google Scholar
• Reading , R. 2005 . Depressive symptoms in mothers of pre-school children. Effects of deprivation, social support, stress and neighbourhood social capital . Child: Care, Health and Development , 31 ( 4 ) : 489
   Google Scholar
• Reich , W. , Lounsbury , D. , Zaid-Muhammad , S. and Rapkin , B. 2010 . Forms of social support and their relationships to mental health in HIV-positive persons . Psychology Health & Medicine , 15 ( 2 ) : 135 – 145 .
   Google Scholar
• Reynolds , W. and Kobak , K. 1995 . Hamilton Depression Inventory: A self-report version of the Hamilton Depression Rating Scale (HDRS). Professional manual , Odessa , FL : Psychological Assessment Resources .
   Google Scholar
• Robbins , M. , Szapocznik , J. , Tejeda , M. , Samuels , D. , Ironson , G. and Antoni , M. 2003 . The protective role of the family and social support network in a sample of HIV-positive African American women: Results of a pilot study . Journal of Black Psychology , 29 ( 1 ) : 17 – 37 .
   Google Scholar
• Rotherum-Borus , M.J. and Stein , J.A. 1999 . Problem behavior of adolescents whose parents are living with AIDS . American Journal of Orthopsychiatry , 69 : 228 – 239 .
   Google Scholar
• Rotheram-Borus , M. , Stein , J. , Jiraphongsa , C. , Khumtong , S. , Lee , S.-J. and Li , L. 2010 . Benefits of family and social relationships for Thai parents living with HIV . Prevention Science , 11 : 298 – 307 .
   Google Scholar
• Ryan , A. and Willits , F. 2007 . Family ties, physical health, and psychological well-being . Journal of Aging and Health , 19 ( 6 ) : 907 – 920 .
   Google Scholar
• Sarason , I. , Sarason , B. , Shearin , E. and Pierce , G. 1987 . A brief measure of social support: Practical and theoretical implications . Journal of Social Personal Relationships , 4 : 497 – 510 .
   Google Scholar
• Sharts-Hopko , N. , Regan-Kubinski , M. , Lincoln , P. and Heverly , M. 1996 . Problem-focused coping in HIV-infected mothers in relation to self-efficacy, uncertainty, social support, and psychological distress . Journal of Nursing Scholarship , 28 ( 2 ) : 107 – 111 .
   Google Scholar
• Sherbourne , C. and Stewart , A. 1991 . The MOS Social Support Survey . Social Science & Medicine , 32 ( 6 ) : 705 – 714 .
   Google Scholar
• Silver , E. , Bauman , L. , Camacho , S. and Hudis , J. 2003 . Factors associated with psychological distress in urban mothers with late-stage HIV/AIDS . AIDS and Behavior , 7 ( 4 ) : 421 – 431 .
   Google Scholar
• Smith Fawzi , M. , Eustache , E. , Oswald , C. , Surkan , P. , Louis , E. , Scanlan , F. … and Mukherjee , J. 2010 . Psychosocial functioning among HIV-affected youth and their caregivers in Haiti: Implications for family-focused service provision in high HIV burden settings . AIDS Patient Care STDS , 24 ( 3 ) : 147 – 158 .
   Google Scholar
• Spielberger , C. , Gorsuch , R. , Lushene , R. and Jacobs , G. 1983 . State-trait anxiety inventory for adults: Sampler set, manual, test, scoring key , Palo Alto , CA : Mind Garden .
   Google Scholar
• Spitzer , R. , Williams , J. , Gibbon , M. and First , M. 1990 . Structured clinical interviews for DSM-IIIR. Nonpatient edition (SCID NP, version 1.0) , Washington , DC : American Psychiatric Press .
   Google Scholar
• Ssengonzi , R. 2009 . The impact of HIV/AIDS on the living arrangements and well-being of elderly caregivers in rural Uganda . AIDS Care , 21 ( 3 ) : 309 – 314 .
   Google Scholar
• Stein , A. , Ramchandani , P. and Murray , L. 2008 . “ Impact of parental psychiatric disorder and physical illness ” . In Child and adolescent psychiatry , 5th , Edited by: Rutter , M. , Bishop , D. , Pine , D. , Scott , S. , Stevenson , J. , Taylor , E. and Thapar , A. 409 – 422 . Oxford : Oxford Blackwell Publishing .
   Google Scholar
• Steinberg , M. , Johnson , S. , Schierhout , G. and Ndegwa , D. 2002 . “ Hitting home: How households cope with the impact of the HIV/AIDS epidemic ” . In A survey of households affected by HIV/AIDS in South Africa , Washington , DC : Henry J. Kaiser Family Foundation and Health Systems Trust .
   Google Scholar
• Stock , M. 2001 . The effects of received and perceived social support on the health status of HIV-positive African-American women (Doctoral thesis, Tulane University, New Orleans, LA, USA)
   Google Scholar
• Thai Department of Mental Health. (2006). Depression screening test. http://www.dmh.go.th/test/depress/asheet.asp?qid=1 (http://www.dmh.go.th/test/depress/asheet.asp?qid=1) (Accessed: 12 May 2008 ).
   Google Scholar
• Thoits , P. 1982 . Conceptual, methodological, and theoretical problems in studying social support as a buffer against life stress . Journal of Health and Social Behaviour , 23 ( 2 ) : 145 – 159 .
   Google Scholar
• Tilden , V. 1991 . The Tilden interpersonal relationship inventory (IPRI) instrument development summary , Portland , OR : Oregon Health Sciences, University School of Nursing .
   Google Scholar
• Tobin , D. , Holroyd , K. and Reynolds , R. 1984 . User's manual for the coping strategies inventory , Unpublished manuscript .
   Google Scholar
• Turner , R. 1981 . Social support as a contingency in psychological well-being . Journal of Health and Social Behavior , 22 ( 4 ) : 357 – 367 .
   Google Scholar
• UNAIDS . 2010 . Global report: UNAIDS report on the global AIDS epidemic 2010 , Geneva : Author .
   Google Scholar
• Ware , J. and Sherbourne , C. 1992 . The MOS 36-item short-form health survey (SF-36): Conceptual framework and item selection . Medical Care , 30 : 473 – 483 .
   Google Scholar
• Williams , A. , Ware , J. , Donald , C. and Donald , J. 1981 . A model of mental health, life events, and social supports applicable to general populations . Journal of Health and Social Behaviour , 22 ( 4 ) : 324 – 336 .
   Google Scholar
• Wu, A. (1999). MOS-HIV health survey manual. http://149.142.76.35/assessment/pdf/assessments/MOS-HIV%20Users%20Manual%20%20Draft.pdf (http://149.142.76.35/assessment/pdf/assessments/MOS-HIV%20Users%20Manual%20%20Draft.pdf) (Accessed: 20 April 2012 ).
   Google Scholar
• Wyatt , A. 1997 . Prediction of hopelessness among HIV positive mothers: Evidence for the social support buffering and diathesis-stress models (Doctoral thesis, Chicago Medical School, IL, USA)
   Google Scholar
• Yamano , T. , Shimarura , Y. and SSerunkuuma , D. 2006 . Living arrangements and schooling of orphaned children and adolescents in Uganda . Economic Development and Cultural Change , 54 : 833 – 856 .
   Google Scholar
• Zich , J. and Temoshok , L. 1990 . “ Perceptions of social support, distress, and hopelessness in men with AIDS and ARC: Clinical implications ” . In Psychosocial perspectives on AIDS: Etiology, prevention, and treatment , Edited by: Temoshok , L. and Baum , A. 201 – 227 . Hillsdale , NJ : Lawrence Erlbaum .
   Google Scholar