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Empirical Studies

Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis

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Article: 1659540 | Accepted 19 Aug 2019, Published online: 24 Sep 2019

References

  • Aadal, L., Pallesen, H., Arntzen, C., & Moe, S. (2018). Municipal cross-disciplinary rehabilitation following stroke in Denmark and Norway: A qualitative study. Rehabilitation Research and Practice, 2018, 1–12.
  • Arntzen, C., Borg, T., & Hamran, T. (2015). Long-term recovery trajectory after stroke: An ongoing negotiation between body, participation and self. Disability and Rehabilitation, 37(18), 1626–14.
  • Arntzen, C., Hamran, T., & Borg, T. (2015). Body, participation and self transformations during and after in-patient stroke rehabilitation. Scandinavian Journal of Disability Research, 17(4), 300–320.
  • Arntzen, C., Moe, S., Aadal, L., & Pallesen, H. (2019). Facilitating learning and change in the daily lives of stroke survivors and their families: A comparative analysis of municipal stroke rehabilitation services in Norway and Denmark. Cogent Medicine, 6:1. doi:10.1080/23310205X.2019.1608080
  • Ayis, S., Wellwood, I., Rudd, A. G., McKevitt, C., Parkin, D., Wolfe, C. D. A., … Moltchanov, V. (2015). Variations in health-related quality of life (HRQoL) and survival 1 year after stroke: Five European population-based registers. BMJ Open, 5(6), e007101.
  • Brannigan, C., Galvin, R., Walsh, M. E., Loughnane, C., Morrissey, E.-J., Macey, C., … Horgan, N. F. (2017). Barriers and facilitators associated with return to work after stroke: A qualitative meta-synthesis. Disability and Rehabilitation, 39(3), 211–222.
  • Carod-Artal, F. J., & Egido, J. A. (2009). Quality of life after stroke: The importance of a good recovery. Cerebrovascular Diseases, 27(1), 204–214.
  • Carod-Artal, J., Egido, J. A., González, J. L., & Seijas, E. V. D. (2000). Quality of life among stroke survivors evaluated 1 year after stroke. Stroke, 31(12), 2995–3000.
  • Clarke, P., & Black, S. E. (2005). Quality of life following stroke: Negotiating disability, identity, and resources. Journal of Applied Gerontology, 24(4), 319–336.
  • Damasio, D. R. (1994). Descartes error. Emotion, reason and the human brain. New York: Avon Books.
  • Deegan, P. E. (2002). Recovery as a self-directed process of healing and transformation. Occupational Therapy in Mental Health, 17(3–4), 5–21.
  • Dijkers, M. (1999). Measuring quality of life: Methodological issues. American Journal of Physical Medicine & Rehabilitation, 78(3), 286–300.
  • Farquhar, M. (1995). Definitions of quality of life: A taxonomy. Journal of Advanced Nursing, 22(3), 502–508.
  • Gadamer, H.-G. (2004). Truth and method. London: Continuum.
  • Gallagher, S. (2011). The oxford handbook of the self. Oxford: Oxford University Press.
  • Green, T. L., & King, K. M. (2009). Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: A descriptive qualitative study. International Journal of Nursing Studies, 46(9), 1194–1200.
  • Greenwood, N., Mackenzie, A., Cloud, G. C., & Wilson, N. (2009). Informal primary carers of stroke survivors living at home–challenges, satisfactions and coping: A systematic review of qualitative studies. Disability and Rehabilitation, 31(5), 337–351.
  • Gunaydin, R., Karatepe, A. G., Kaya, T., & Ulutas, O. (2011). Determinants of quality of life (QoL) in elderly stroke patients: A short-term follow-up study. Archives of Gerontology and Geriatrics, 53(1), 19–23.
  • Hill, S., Harries, U., & Popay, J. (1996). Is the short form 36 (SF-36) suitable for routine health outcomes assessment in health care for older people? Evidence from preliminary work in community based health services in England. Journal of Epidemiology & Community Health, 50(1), 94–98.
  • Hitch, D., Pépin, G., & Stagnitti, K. (2014a). In the footsteps of Wilcock, part one: The evolution of doing, being, becoming, and belonging. Occupational Therapy In Health Care, 28(3), 231–246.
  • Hitch, D., Pépin, G., & Stagnitti, K. (2014b). In the footsteps of Wilcock, part two: The interdependent nature of doing, being, becoming, and belonging. Occupational Therapy in Health Care, 28(3), 247–263.
  • Kielhofner, G., Braveman, B., Baron, K., Fisher, G., Hammel, J., & Littleton, M. (1999). The model of human occupation: Understanding the worker who is injured or disabled. Work, 12(1), 37–45.
  • King, R. B. (1996). Quality of life after stroke. Stroke, 27(9), 1467–1472.
  • Kirkevold, M., & Wyller, T. B. (1999). How does a cerebral stroke affect quality of life? Towards an adequate theoretical account. Disability and Rehabilitation, 21(4), 152–161.
  • Kitzmüller, G., Häggström, T., & Asplund, K. (2013). Living an unfamiliar body: The significance of the long-term influence of bodily changes on the perception of self after stroke. Medicine, Health Care and Philosophy, 16(1), 19–29.
  • Kvale, S. (2007). Doing interviews. London: Sage.
  • Lamb, M., Buchanan, D., Godfrey, C. M., Harrison, M. B., & Oakley, P. (2008). The psychosocial spiritual experience of elderly individuals recovering from stroke: A systematic review. International Journal of Evidence-Based Healthcare, 6(2), 173–205.
  • Langhorne, P., Bernhardt, J., & Kwakkel, G. (2011). Stroke rehabilitation. The Lancet, 377(9778), 1693–1702.
  • Leary, M. R., Tangney, J. P., & ProQuest. (2012). Handbook of self and identity. New York: Guilford Press.
  • Lou, S., Carstensen, K., Jørgensen, C. R., & Nielsen, C. P. (2017). Stroke patients’ and informal carers’ experiences with life after stroke: An overview of qualitative systematic reviews. Disability and Rehabilitation, 39(3), 301–313.
  • Lynch, E. B., Butt, Z., Heinemann, A., Victorson, D., Nowinski, C. J., Perez, L., & Cella, D. (2008). A qualitative study of quality of life after stroke: The importance of social relationships. Journal of Rehabilitation Medicine, 40(7), 518–523.
  • Lyons, M., Orozovic, N., Davis, J., & Newman, J. (2002). Doing-being-becoming: Occupational experiences of persons with life-threatening illnesses. American Journal of Occupational Therapy, 56(3), 285–295.
  • Malterud, K. (2012). Systematic text condensation: A strategy for qualitative analysis. Scandinavian Journal of Public Health, 40(8), 795–805.
  • McGeough, E., Pollock, A., Smith, L. N., Dennis, M., Sharpe, M., Lewis, S., & Mead, G. E. (2009). Interventions for post-stroke fatigue. Cochrane Database of Systematic Reviews, (3), CD007030. doi:10.1002/14651858.CD007030.pub2
  • Meijering, L., Nanninga, C. S., & Lettinga, A. T. (2016). Home-making after stroke. A qualitative study among Dutch stroke survivors. Health & Place, 37, 35–42.
  • Merleau-Ponty, M. (1962). Phénoménologie de la perception. London: Routledge.
  • Moeller, D., & Carpenter, C. (2013). Factors affecting quality of life for people who have experienced a stroke. International Journal of Therapy and Rehabilitation, 20(4), 207–216.
  • Murray, J., Ashworth, R., Forster, A., & Young, J. (2003). Developing a primary care-based stroke service: A review of the qualitative literature. British Journal of General Practice, 53(487), 137–142.
  • Pallesen, H. (2014). Body, coping and self-identity. A qualitative 5-year follow-up study of stroke. Disability and Rehabilitation, 36(3), 232–241.
  • Pallesen, H., Aadal, L., Moe, S., & Arntzen, C. (2019). Gateway to recovery: A comparative analysis of stroke patients’ experiences of change and learning in Norway and Denmark. Rehabilitation Research and Practice, 2019, 1–14.
  • Peoples, H., Satink, T., & Steultjens, E. (2011). Stroke survivors’ experiences of rehabilitation: A systematic review of qualitative studies. Scandinavian Journal of Occupational Therapy, 18(3), 163–171.
  • Post, M. (2014). Definitions of quality of life: What has happened and how to move on. Topics in Spinal Cord Injury Rehabilitation, 20(3), 167–180.
  • Salter, K., Hellings, C., Foley, N., & Teasell, R. (2008). The experience of living with stroke: A qualitative meta-synthesis. Journal of Rehabilitation Medicine, 40(8), 595–602.
  • Samsa, G. P., & Matchar, D. B. (2004). How strong is the relationship between functional status and quality of life among persons with stroke? The Journal of Rehabilitation Research and Development, 41(3A), 279–282.
  • Sarre, S., Redlich, C., Tinker, A., Sadler, E., Bhalla, A., & McKevitt, C. (2014). A systematic review of qualitative studies on adjusting after stroke: Lessons for the study of resilience. Disability and Rehabilitation, 36(9), 716–726.
  • Sprigg, N., Gray, L. J., Bath, P. M. W., Christensen, H., De Deyn, P. P., Leys, D., … Ringelstein, E. B. (2012). Quality of life after ischemic stroke varies in Western Countries: Data from the Tinzaparin in Acute Ischaemic Stroke Trial (TAIST). Journal of Stroke and Cerebrovascular Diseases, 21(7), 587–593.
  • Suenkeler, I. H., Nowak, M., Misselwitz, B., Kugler, C., Schreiber, W., Oertel, W. H., & Back, T. (2002). Timecourse of health-related quality of life as determined 3, 6 and 12 months after stroke - Relationship to neurological deficit, disability and depression. Journal of Neurology, 249(9), 1160–1167.
  • Timothy, E. K., Graham, F. P., & Levack, W. M. M. (2016). Transitions in the embodied experience after stroke: Grounded theory study. Physical Therapy, 96(10), 1565–1575.
  • Vestling, M., Ramel, E., & Iwarsson, S. (2005). Quality of life after stroke: Well-being, life satisfaction, and subjective aspects of work. Scandinavian Journal of Occupational Therapy, 12(2), 89–95.
  • Vestling, M., Ramel, E., & Iwarsson, S. (2013). Thoughts and experiences from returning to work after stroke. Work, 45(2), 201–211.
  • Vestling, M., Tufvesson, B., & Iwarsson, S. (2003). Indicators for return to work after stroke and the importance of work for subjective well-being and life satisfaction. Journal of Rehabilitation Medicine, 35(3), 127–131.
  • Weiss, G., & Haber, H. F. (1999). Perspectives on embodiment: The intersections of nature and culture. New York: Routledge.
  • Wiklund, I. (2004). Assessment of patient-reported outcomes in clinical trials: The example of health-related quality of life. Fundamental and Clinical Pharmacology, 18(3), 351–363.
  • Wilcock, A. A. (1998). Reflections on doing, being and becoming. Canadian Journal of Occupational Therapy, 65(5), 248–256.
  • Wilcock, A. A. (1999). Reflections on doing, being and becoming. Australian Occupational Therapy Journal, 46(1), 1–11.
  • Wilcock, A. A. (2006). An occupational perspective of health (2nd ed.). Thorofare: Slack.
  • Wiles, R., Cott, C., & Gibson, B. E. (2008). Hope, expectations and recovery from illness: A narrative synthesis of qualitative research. Journal of Advanced Nursing, 64(6), 564–573.
  • Wolfe, C. D. A., Crichton, S. L., Heuschmann, P. U., McKevitt, C. J., Toschke, A. M., Grieve, A. P., & Rudd, A. G. (2011). Estimates of outcomes up to ten years after stroke: Analysis from the prospective South London stroke register. PLoS Medicine, 8(5), e1001033.
  • World Health Organization. (2018). WHOQOL: Measuring quality of life. Retrieved from http://www.who.int/healthinfo/survey/whoqol-qualityoflife/en/
  • Wu, S., Mead, G., Macleod, M., & Chalder, T. (2015). Model of understanding fatigue after stroke. Stroke, 46(3), 893–898.
  • Yoshida, K. K. (1993). Reshaping of self: A pendular reconstruction of self and identity among adults with traumatic spinal cord injury. Sociology of Health and Illness, 15(2), 217–245.