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Review Articles

Exploring the barriers to using assistive technology for individuals with chronic conditions: a meta-synthesis review

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Pages 390-408 | Received 18 Apr 2020, Accepted 23 Jun 2020, Published online: 14 Jul 2020

References

  • Kyu HH, Abate D, Abate KH, et al. Global, regional, and national disability-adjusted life-years (DALYs) for 359 diseases and injuries and healthy life expectancy (HALE) for 195 countries and territories, 1990–2017: a systematic analysis for the Global Burden of Disease Study 2017. Lancet. 2018;392(10159):1859–1922.
  • World Health Organisation and World Bank. World Report on disability. Geneva, Switzerland; 2011.
  • Foreman KJ, Marquez N, Dolgert A, et al. Forecasting life expectancy, years of life lost, and all-cause and cause-specific mortality for 250 causes of death: reference and alternative scenarios for 2016–40 for 195 countries and territories. Lancet. 2018;392(10159):2052–2090.
  • Dieleman JL, Sadat N, Chang AY, et al. Trends in future health financing and coverage: future health spending and universal health coverage in 188 countries, 2016–40. Lancet. 2018;391(10132):1783–1798.
  • Department of Health. Long term conditions compendium of information, 3rd ed. In: Health Do, editor; 2012.
  • Keller VF, Carroll JG. A new model for physician-patient communication. Patient Educ Couns. 1994;23(2):131–140.
  • Mead J, Fisher Z, Lowri W, et al. Rethinking wellbeing: toward a more ethical science of wellbeing that considers current and future generations. Authorea; 2019.DOI:https://doi.org/10.22541/au.156649190.08734276
  • Anderson RM. Patient empowerment and the traditional medical model. A case of irreconcilable differences? Diabetes Care. 1995;18(3):412–415.
  • Grumbach K. Chronic illness, comorbidities, and the need for medical generalism. Ann Fam Med. 2003;1(1):4–7.
  • Ekman I, Swedberg K, Taft C, et al. Person-centered care-ready for prime time. Eur J Cardiovasc Nurs. 2011;10(4):248–251.
  • Barlow J, Wright C, Sheasby J, et al. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002;48(2):177–187.
  • Jordan JE, Briggs AM, Brand CA, et al. Enhancing patient engagement in chronic disease self‐management support initiatives in Australia: the need for an integrated approach. Med J Aust. 2008;189:S10.
  • Dineen-Griffin S, Garcia-Cardenas V, Williams K, et al. Helping patients help themselves: a systematic review of self-management support strategies in primary health care practice. PLoS One. 2019;14(8):e0220116.
  • Kemp A, Arias JA, Fisher Z. Social ties, health and wellbeing: a literature review and model. In: Ibáñez A., Sedeño L., A. G, editors. Neuroscience and social science: the missing link. New York: Springer; 2017.
  • World Health Organisation. International classification of functioning, disability and health (ICF). Geneva: World Health Organisaiton; 2001.
  • Alford VM, Ewen S, Webb GR, et al. The use of the International Classification of Functioning, Disability and Health to understand the health and functioning experiences of people with chronic conditions from the person perspective: a systematic review. Disabil Rehabil. 2015;37(8):655–666.
  • Khasnabis C, Mirza Z, Maclachlan M. Opening the GATE to inclusion for people with disabilities. Lancet. 2015;386(10010):2229–2230.
  • McNicholl A, Casey H, Desmond D, et al. The impact of assistive technology use for students with disabilities in higher education: a systematic review. Disabil Rehabil Assist Technol. 2019;23:1–14.
  • Abrilahij A, Boll T. A qualitative metasynthesis of reasons for the use or nonuse of assistive technologies in the aging population. GeroPsych. 2019;32(2):79–92.
  • Mechling LC. Assistive technology as a self-management tool for prompting students with intellectual disabilities to initiate and complete daily tasks: a literature review. Educ Training Dev Disabil. 2007;42(3):252–269.
  • Whitehead L, Seaton P. The effectiveness of self-management mobile phone and Tablet Apps in long-term condition management: a systematic review. J Med Internet Res. 2016;18(5):e97.
  • van Ommeren AL, Smulders LC, Prange-Lasonder GB, et al. Assistive technology for the upper extremities after stroke: systematic review of users' needs. JMIR Rehabil Assist Technol. 2018;5(2):e10510.
  • O'Neill B, Gillespie A. Assistive Technology for Cognition: a handbook for clinicians and developers. London: Taylor & Francis; 2014.
  • Mitzner TL, Boron JB, Fausset CB, et al. Older adults talk technology: technology usage and attitudes. Comput Hum Behav. 2010;26(6):1710–1721.
  • Madara Marasinghe K. Assistive technologies in reducing caregiver burden among informal caregivers of older adults: a systematic review. Disabil Rehabil Assist Technol. 2016;11(5):353–360.
  • Lansley P, McCreadie C, Tinker A. Can adapting the homes of older people and providing assistive technology pay its way? Age Ageing. 2004;33(6):571–576.
  • World Health Organisation. Assistive Technology: World Health Organisation; 2018. [cited 2019 Nov 3]. Available from: https://www.who.int/news-room/fact-sheets/detail/assistive-technology.
  • Scherer MJ. From people-centered to person-centered services, and back again. Disabil Rehabil Assist Technol. 2014;9(1):1–2.
  • Phillips B, Zhao H. Predictors of assistive technology abandonment. Assist Technol. 1993;5(1):36–45.
  • Martin JK, Martin LG, Stumbo NJ, et al. The impact of consumer involvement on satisfaction with and use of assistive technology. Disabil Rehabil Assist Technol. 2011;6(3):225–242.
  • Sugawara AT, Ramos VD, Alfieri FM, et al. Abandonment of assistive products: assessing abandonment levels and factors that impact on it. Disabil Rehabil Assist Technol. 2018;13(7):716–723.
  • Scherer M. Living in the state of stuck: how assistive technology impacts the lives of people with disabilities. Cambridge, MA: Brookline Books; 2005.
  • Robinson L, Gibson G, Kingston A, et al. Assistive technologies in caring for the oldest old: a review of current practice and future directions. Aging Health. 2013;9(4):365–375.
  • Orejuela-Zapata JF, Rodriguez S, Ramirez GL. Self-help devices for quadriplegic population: a systematic literature review. IEEE Trans Neural Syst Rehabil Eng. 2019;27(4):692–701.
  • Alqahtani S, Joseph J, Dicianno B, et al. Stakeholder perspectives on research and development priorities for mobility assistive-technology: a literature review. Disabil Rehabil Assist Technol. 2019;10:1–15.
  • Abdi S, Spann A, Borilovic J, et al. Understanding the care and support needs of older people: a scoping review and categorisation using the WHO international classification of functioning, disability and health framework (ICF). BMC Geriatrics. 2019;19(1):195.
  • Newton L, Dickinson C, Gibson G, et al. Exploring the views of GPs, people with dementia and their carers on assistive technology: a qualitative study. BMJ Open. 2016;6(5):e011132.
  • Boot FH, Owuor J, Dinsmore J, et al. Access to assistive technology for people with intellectual disabilities: a systematic review to identify barriers and facilitators. J Intellect Disabil Res. 2018;62(10):900–921.
  • Dawe M. Desperately seeking simplicity. Proceedings of the SIGCHI conference on Human Factors in computing systems – CHI '06; 2006.
  • Kaye HS, Yeager P, Reed M. Disparities in usage of assistive technology among people with disabilities. Assist Technol. 2008;20(4):194–203.
  • Thordardottir B, Malmgren Fange A, Lethin C, et al. Acceptance and use of innovative assistive technologies among people with cognitive impairment and their caregivers: a systematic review. Biomed Res Int. 2019;2019:9196729.
  • Klimova B, Valis M, Kuca K. Exploring assistive technology as a potential beneficial intervention tool for people with Alzheimer's disease – a systematic review. Neuropsychiatr Dis Treat. 2018;14:3151–3158.
  • Gutner CA, Galovski T, Bovin MJ, et al. Emergence of transdiagnostic treatments for PTSD and posttraumatic distress. Curr Psychiatry Rep. 2016;18(10):95–95.
  • Larsson Ranada A, Lidstrom H. Satisfaction with assistive technology device in relation to the service delivery process – a systematic review. Assist Technol. 2019;31(2):82–97.
  • Lachal J, Revah-Levy A, Orri M, et al. Metasynthesis: an original method to synthesize qualitative literature in psychiatry. Front Psychiatry. 2017;8:269.
  • Moher D, Liberati A, Tetzlaff J, et al.; PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(7):e1000097.
  • Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008;8(1):45.
  • Critical Appriasal Skills Programme. CASP Qualitative checklist 2018. [cited 2019 Nov 26]. Available from: https://casp-uk.net/wp-content/uploads/2018/01/CASP-Qualitative-Checklist-2018.pdf.
  • Holthe T, Jentoft R, Arntzen C, et al. Benefits and burdens: family caregivers' experiences of assistive technology (AT) in everyday life with persons with young-onset dementia (YOD). Disabil Rehabil Assist Technol. 2018;13(8):754–762.
  • Baldwin VN, Powell T, Lorenc L. Factors influencing the uptake of memory compensations: a qualitative analysis. Neuropsychol Rehabil. 2011;21(4):484–501.
  • Cook EJ, Randhawa G, Sharp C, et al. Exploring the factors that influence the decision to adopt and engage with an integrated assistive telehealth and telecare service in Cambridgeshire, UK: a nested qualitative study of patient 'users' and 'non-users'. BMC Health Serv Res. 2016;16:137.
  • Riikonen M, Paavilainen E, Salo H. Factors supporting the use of technology in daily life of home-living people with dementia. TAD. 2013;25(4):233–243.
  • Boger J, Quraishi M, Turcotte N, et al. The identification of assistive technologies being used to support the daily occupations of community-dwelling older adults with dementia: a cross-sectional pilot study. Disabil Rehabil Assist Technol. 2014;9(1):17–30.
  • Asghar I, Cang S, Yu H. Usability evaluation of assistive technologies through qualitative research focusing on people with mild dementia. Comput Hum Behav. 2018;79:192–201.
  • Demain S, Burridge J, Ellis-Hill C, et al. Assistive technologies after stroke: self-management or fending for yourself? A focus group study. BMC Health Serv Res. 2013;13:334.
  • Gitlin LN, Luborsky MR, Schemm RL. Emerging concerns of older stroke patients about assistive device use. Gerontologist. 1998;38(2):169–180.
  • Elnady A, Mortenson WB, Menon C. Perceptions of existing wearable robotic devices for upper extremity and suggestions for their development: findings from therapists and people with stroke. JMIR Rehabil Assist Technol. 2018;5(1):e12.
  • Oyesanya T, Thompson N, Arulselvam K, et al. Technology and TBI: perspectives of persons with TBI and their family caregivers on technology solutions to address health, wellness, and safety concerns. Assist Technol: Off J RESNA. 2019:1–11.
  • Taherian S, Davies C. Multiple stakeholder perceptions of assistive technology for individuals with cerebral palsy in New Zealand. Disabil Rehabil Assist Technol. 2018;13(7):648–657.
  • Myburg M, Allan E, Nalder E, et al. Environmental control systems – the experiences of people with spinal cord injury and the implications for prescribers. Disabil Rehabil Assist Technol. 2017;12(2):128–136.
  • Seymour N, Geiger M, Scheffler E. Community-based rehabilitation workers' perspectives of wheelchair provision in Uganda: a qualitative study. Afr J Disabil. 2019;8:432.
  • Fomiatti R, Moir L, Richmond J, et al. The experience of being a motorised mobility scooter user. Disabil Rehabil Assist Technol. 2014;9(3):183–187.
  • McGrath C, Astell A. The benefits and barriers to technology acquisition: understanding the decision-making processes of older adults with age-related vision loss (ARVL). Br J Occup Ther. 2017;80(2):123–131.
  • Adolfsson P, Lindstedt H, Pettersson I, et al. Perception of the influence of environmental factors in the use of electronic planning devices in adults with cognitive disabilities. Disabil Rehabil Assist Technol. 2016;11(6):493–500.
  • Pereira J, Pena C, de Melo M, et al. Facilitators and Barriers to Using Alternative and Augmentative Communication Systems by Aphasic: Therapists Perceptions. 2019 IEEE 32nd International Symposium on Computer-Based Medical Systems (CBMS); 2019. p. 349–354.
  • Darcy S, Maxwell H, Green J. Disability citizenship and independence through mobile technology? A study exploring adoption and use of a mobile technology platform. Disabil Soc. 2016;31(4):497–519.
  • Orellano-Colon EM, Mann WC, Rivero M, et al. Hispanic older adult's perceptions of personal, contextual and technology-related barriers for using assistive technology devices. J Racial Ethn Health Disparities. 2016;3(4):676–686.
  • Fager SK, Burnfield JM. Patients' experiences with technology during inpatient rehabilitation: opportunities to support independence and therapeutic engagement. Disabil Rehabil Assist Technol. 2014;9(2):121–127.
  • Mann WC, Tomita M. Perspectives on assistive devices among elderly persons with disabilities. TAD. 1998;9(3):119–148.
  • Gibson G, Dickinson C, Brittain K, et al. The everyday use of assistive technology by people with dementia and their family carers: a qualitative study. BMC Geriatrics. 2015;15:89.
  • Gerber E. The benefits of and barriers to computer use for individuals who are visually impaired. J Visual Impairment Blindness. 2003;97(9):536–550.
  • Jamieson M, Jack R, O'Neill B, et al. Technology to encourage meaningful activities following brain injury. Disabil Rehabil Assist Technol. 2019;15:1–14.
  • Andregard E, Magnusson L. Experiences of attitudes in Sierra Leone from the perspective of people with poliomyelitis and amputations using orthotics and prosthetics. Disabil Rehabil. 2017;39(26):2619–2625.
  • Dorjbal D, Prodinger B, Zanini C, et al. Living with spinal cord injury in Mongolia: a qualitative study on perceived environmental barriers. J Spinal Cord Med. 2019;11:1–14.
  • Lenker JA, Harris F, Taugher M, et al. Consumer perspectives on assistive technology outcomes. Disabil Rehabil Assist Technol. 2013;8(5):373–380.
  • Weerasinghe IE, Fonseka P, Dharmaratne S, et al. Barriers in using assistive devices among a group of community-dwelling persons with lower limb disabilities in Sri Lanka. DCID. 2015;26(1):79.
  • Ravneberg B. Usability and abandonment of assistive technology. J Assist Technol. 2012;6(4):259–269.
  • Smith R, Quine S, Anderson J, et al. Assistive devices: self-reported use by older people in Victoria. Aust Health Rev. 2002;25(4):169–177.
  • Gelinas-Bronsard D, Mortenson WB, Ahmed S, et al. Co-construction of an Internet-based intervention for older assistive technology users and their family caregivers: stakeholders' perceptions. Disabil Rehabil Assist Technol. 2019;14(6):602–611.
  • Boot FH, MacLachlan M, Dinsmore J. Are there differences in factors influencing access and continues use of assistive products for people with intellectual disabilities living in group homes?. Disabil Rehabil Assist Technol. 2019;15:1–10.
  • Durham J, Sychareun V, Santisouk P, et al. Users’ satisfaction with prosthetic and orthotic assistive devices in the Lao People’s Democratic Republic: a cross-sectional study. DCID. 2016;27(3):24–44.
  • Holz A, Bennett A, Freethy A, et al. Exploring the views of individuals with chronic obstructive pulmonary disease on the use of rollators: a qualitative study. J Cardiopulm Rehabil Prev. 2018;38(1):49–53.
  • Mortenson WB, Pysklywec A, Fuhrer MJ, et al. Caregivers' experiences with the selection and use of assistive technology. Disabil Rehabil Assist Technol. 2018;13(6):562–567.
  • Hedberg-Kristensson E, Ivanoff SD, Iwarsson S. Experiences among older persons using mobility devices. Disabil Rehabil Assist Technol. 2007;2(1):15–22.
  • Okonji PE, Ogwezzy DC. Awareness and barriers to adoption of assistive technologies among visually impaired people in Nigeria. Assist Technol. 2019;31(4):209–219.
  • Creemers H, Beelen A, Grupstra H, et al. The provision of assistive devices and home adaptations to patients with ALS in the Netherlands: patients' perspectives. Amyotroph Lateral Scler Frontotemporal Degener. 2014;15(5–6):420–425.
  • Van Den Heuvel E, Jowitt F, McIntyre A. Awareness, requirements and barriers to use of Assistive Technology designed to enable independence of people suffering from Dementia (ATD). TAD. 2012;24(2):139–148.
  • Berkun S. Programmers, designers, and the Brooklyn bridge. 2004. [cited 2020 Mar 1]. Available from: https://scottberkun.com/essays/30-programmers-designers-and-the-brooklyn-bridge/
  • Orpwood RD. Design methodology for aids for the disabled. J Med Eng Technol. 1990;14(1):2–10.
  • Orpwood R, Bjørneby S, Hagen I, et al. User involvement in dementia product development. Dementia: Int J Soc Res Pract. 2004;3(3):263–279.
  • Gibson G, Dickinson C, Brittain K, et al. Personalisation, customisation and bricolage: how people with dementia and their families make assistive technology work for them. Ageing Soc. 2019;39(11):2502–2519.
  • Greenhalgh T, Procter R, Wherton J, et al. What is quality in assisted living technology? The ARCHIE framework for effective telehealth and telecare services. BMC Med. 2015;13(1):91.
  • Pols J, Willems D. Innovation and evaluation: taming and unleashing telecare technology. Sociol Health Illn. 2011;33(3):484–498.
  • López Gómez D. Little arrangements that matter. Rethinking autonomy-enabling innovations for later life. Technol Forecast Soc Change. 2015; 93:91–101.
  • Greenhalgh T, Wherton J, Sugarhood P, et al. What matters to older people with assisted living needs? A phenomenological analysis of the use and non-use of telehealth and telecare. Soc Sci Med. 2013;93:86–94.
  • Büscher M, Gill S, Mogensen P, et al. Landscapes of practice: Bricolage as a method for situated design. Comput Supported Cooperative Work. 2001;10(1):1–28.
  • Hartswood M, Procter R, Rouncefield M, et al. Being there and doing IT in the workplace: a case study of a co-development approach in healthcare. Proceedings of the CPSR/IFIP WG 9.1 Participatory Design Conference; 2000. p. 96–105.
  • Parette P, Scherer M. Assistive technology use and stigma. Educ Training Dev Disabil. 2004;39(3):217–226.
  • Arboleda-Flórez J. What causes stigma? World Psychiatry. 2002;1(1):25–26.
  • Cioffi D. The looking-glass self revisited: behavior choice and self-perception in the social token. The social psychology of stigma. New York, NY: Guilford Press; 2000. p. 184–219.
  • Kwasnicka D, Dombrowski SU, White M, et al. Theoretical explanations for maintenance of behaviour change: a systematic review of behaviour theories. Health Psychol Rev. 2016;10(3):277–296.
  • Van Cappellen P, Rice EL, Catalino LI, et al. Positive affective processes underlie positive health behaviour change. Psychol Health. 2018;33(1):77–97.
  • Dourish P. What we talk about when we talk about context. Pers Ubiquit Comput. 2004;8(1):19–30.
  • Wherton J, Sugarhood P, Procter R, et al. Co-production in practice: how people with assisted living needs can help design and evolve technologies and services. Implement Sci. 2015;10(1):75.
  • Realpe A, Wallace LM. What is co-production? London: The Health Foundation. 2010.
  • Pope C. Resisting evidence: the study of evidence-based medicine as a contemporary social movement. Health (London). 2003;7(3):267–282.
  • Wieringa S, Engebretsen E, Heggen K, et al. Has evidence-based medicine ever been modern? A Latour-inspired understanding of a changing EBM. J Eval Clin Pract. 2017;23(5):964–970.
  • Ioannidis J. Why most published research findings are false. PLoS Med. 2005;2(8):e124.
  • Greenhalgh T. Why do we always end up here? Evidence-based medicine's conceptual Cul-De-Sacs and some off-road alternative routes. J Prim Health Care. 2012;4(2):92–97.
  • Greenhalgh T, Howick J, Maskrey N, Evidence Based Medicine Renaissance Group. Evidence based medicine: a movement in crisis? BMJ. 2014;348:g3725.
  • Mol A. The logic of care: health and the problem of patient choice. London: Routledge; 2008.
  • Hinder S, Greenhalgh T. "This does my head in". Ethnographic study of self-management by people with diabetes. BMC Health Serv Res. 2012;12:83.
  • Ruston A, Smith F. Chronic illness, self-management and technology: type 1 diabetes patients’ views of the use of technology to communicate with health professionals about their disease. Patient Intelligence. 2012;4:71.
  • Dougherty D. The maker movement. Innov: Technol Governance, Global. 2012;7(3):11–14.

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