The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy

References

• Oskoui M, Coutinho F, Dykeman J, et al. An update on the prevalence of cerebral palsy: a systematic review and meta-analysis. Dev Med Child Neurol. 2013;55(6):509–519.
   PubMed Web of Science ®Google Scholar
• Shevell M, Dagenais L, Oskoui M. The epidemiology of cerebral palsy: new perspectives from a Canadian registry. Semin Pediatr Neurol. 2013;20(2):60–64.
   PubMed Web of Science ®Google Scholar
• Donald KA, Samia P, Kakooza-Mwesige A, et al. Pediatric cerebral palsy in Africa: a systematic review. Semin Pediatr Neurol. 2014;21(1):30–35.
   PubMed Web of Science ®Google Scholar
• Gladstone M. A review of the incidence and prevalence, types and aetiology of childhood cerebral palsy in resource-poor settings. Ann Trop Paediatr. 2010;30(3):181–196.
   PubMed Web of Science ®Google Scholar
• 2020; [cited 2020 May 27]. Available from: https://countrymeters.info/en/kenya#population_2019
   Google Scholar
• Himmelmann K, Beckung E, Hagberg G, et al. Bilateral spastic cerebral palsy-prevalence through four decades, motor function and growth. Eur J Paediatr Neurol. 2007;11(4):215–222.
   PubMed Web of Science ®Google Scholar
• Pope P. Severe and complex neurological disability: management of the physical condition. Oxford (UK): Elsevier Butterworth-Heinemann; 2007.
   Google Scholar
• Cook AM, Polgar JM, Hussey SM. Cook & Hussey's assistive technologies: principles and practice. 3rd ed. St. Louis (MO): Mosby/Elsevier; 2008.
   Google Scholar
• Angsupaisal M, Maathuis CGB, Hadders-Algra M. Adaptive seating systems in children with severe cerebral palsy across International Classification of Functioning, Disability and Health for Children and Youth version domains: a systematic review. Dev Med Child Neurol. 2015;57(10):919–930.
   PubMed Web of Science ®Google Scholar
• Audu O, Daly C. Standing activity intervention and motor function in a young child with cerebral palsy: a case report. Physiother Theory Pract. 2017;33(2):162–172.
   PubMed Web of Science ®Google Scholar
• Capati V, Covert SY, Paleg G. Stander use for an adolescent with cerebral palsy at GMFCS level V with hip and knee contractures. Assist Technol. 2019;1–7. DOI:10.1080/10400435.2019.1579268
   Google Scholar
• Goodwin J, Colver A, Basu A, et al. Understanding frames: a UK survey of parents and professionals regarding the use of standing frames for children with cerebral palsy. Child Care Health Dev. 2018;44(2):195–202.
   PubMed Web of Science ®Google Scholar
• Ostensjø S, Carlberg EB, Vøllestad NK. The use and impact of assistive devices and other environmental modifications on everyday activities and care in young children with cerebral palsy. Disabil Rehabil. 2005;27(14):849–861.
   PubMed Web of Science ®Google Scholar
• Paleg GS, Smith BA, Glickman LB. Systematic review and evidence-based clinical recommendations for dosing of pediatric supported standing programs. Pediatr Phys Ther. 2013;25(3):232–247.
   PubMed Web of Science ®Google Scholar
• Sahinoglu D, Coskun G, Bek N. Effects of different seating equipment on postural control and upper extremity function in children with CP. Prosthet Orthot Int. 2017;41(1):85–94.
   PubMed Web of Science ®Google Scholar
• Uddenfeldt Wort U, Nordmark E, et al. Fractures in children with cerebral palsy: a total population study. Dev Med Child Neurol. 2013;55(9):821–826.
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl. 2007;109:8–14.
   PubMedGoogle Scholar
• Borg J, Lindström A, Larsson S. Assistive technology in developing countries: a review from the perspective of the convention on the rights of persons with disabilities. Prosthet Orthot Int. 2011;35(1):20–29.
   PubMed Web of Science ®Google Scholar
• Matter R, Harniss M, Oderud T, et al. Assistive technology in resource-limited environments: a scoping review. Disabil Rehabil Assist Technol. 2017;12(2):105–114.
   PubMed Web of Science ®Google Scholar
• Visagie S, Eide AH, Mannan H. A description of assistive technology sources, services and outcomes of use in a number of African settings. Disabil Rehabil Assist Technol. 2017;12(7):705–712.
   PubMed Web of Science ®Google Scholar
• Gericke T. Postural management for children with cerebral palsy: consensus statement. Dev Med Child Neurol. 2006;48(4):244.
   PubMed Web of Science ®Google Scholar
• Mugglestone MA, Eunson P, Murphy MS. GUIDELINES: spasticity in children and young people with non-progressive brain disorders: summary of NICE guidance. BMJ. 2012;345(2):e4845.
   PubMedGoogle Scholar
• World Health Organisation. Improving access to assistive technology: report by the secretariat. Geneva, Switzerland: World Health Organisation; 2016.
   Google Scholar
• Mukherjee G, Samanta A. Wheelchair charity: a useless benevolence in community-based rehabilitation. Disabil Rehabil. 2005;27(10):591–596.
   PubMed Web of Science ®Google Scholar
• Pearlman J, Cooper RA, Krizack M, et al. Lower-limb prostheses and wheelchairs in low-income countries: an overview. IEEE Eng Med Biol Mag. 2008;27(2):12–22.
   PubMedGoogle Scholar
• Westmacott J. Assistive cardboard equipment using appropriate paper-based technology. Galashiels: Meigle Colour Printers Limited; 2015.
   Google Scholar
• Borg J, Larsson S, Ostergren P-O, et al. Assistive technology use and human rights enjoyment: a cross-sectional study in Bangladesh. BMC Int Health Hum Rights. 2012;12(1):18.
   PubMedGoogle Scholar
• Kuper H, Monteath-van Dok A, Wing K, et al. The impact of disability on the lives of children; cross-sectional data including 8,900 children with disabilities and 898,834 children without disabilities across 30 countries. PLoS One. 2014;9(9):e107300.
   PubMed Web of Science ®Google Scholar
• Trani J, Loeb M. Poverty and disability: a vicious circle? Evidence from Afghanistan and Zambia. J Int Dev. 2012;24:S19–S52.
   Web of Science ®Google Scholar
• World Health Organisation. World report on disability. Geneva, Switzerland: World Bank; 2011.
   Google Scholar
• Packer B. Appropriate paper-based technology (APT): a manual. 2nd ed. London: Intermediate Technology Publications Ltd; 1995.
   Google Scholar
• 2020; [cited 2020 May 27]. Available from: https://www.cerebralpalsyafrica.eu
   Google Scholar
• Lindoewood R, Bracegirdle C, Samia P. Thinking outside the cardboard box: insights from a course to train rural Kenyans to make postural support devices from appropriate paper-based technology (APT) for children with cerebral palsy. Disabil Rehabil Assist Technol. 2019;1:1–7.
   Google Scholar
• Valvano J, Forme-Fiss Al L. Neuromuscular system: the plan of care. In: Effgen SK, editor. Meeting the physical therapy needs of children. 2nd ed. Philadelphia: FA Davis; 2013. p. 347–388.
   Google Scholar
• Palisano RJ, Avery L, Gorter JW, et al. Stability of the Gross Motor Function Classification System, manual ability classification system, and communication function classification system. Dev Med Child Neurol. 2018;60(10):1026–1032.
   PubMed Web of Science ®Google Scholar
• Palisano RJ, Rosenbaum P, Bartlett D, et al. Content validity of the expanded and revised Gross Motor Function Classification System. Dev Med Child Neurol. 2008;50(10):744–750.
   PubMed Web of Science ®Google Scholar
• Palisano R, Rosenbaum P, Walter S, et al. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997;39(4):214–223.
   PubMed Web of Science ®Google Scholar
• Palisano R, Rosenbaum P, Bartlett D. The Gross Motor Function Classification System – expanded and revised. CanChild Centre for Childhood Disability Research; 2007. Available from: http://www.canchild.ca/en/measures/gmfcs_expanded_revised.asp
   Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.
   Google Scholar
• Ryan S, Campbell KA, Rigby P, et al. Development of the new Family Impact of Assistive Technology Scale. Int J Rehabil Res. 2006;29(3):195–200.
   PubMed Web of Science ®Google Scholar
• Ryan SE, Campbell KA, Rigby PJ, et al. Reliability of the family impact of assistive technology scale for families of young children with cerebral palsy. Arch Phys Med Rehabil. 2007;88(11):1436–1440.
   PubMed Web of Science ®Google Scholar
• Chiarello LA, Palisano RJ, McCoy SW, et al. Child Engagement in Daily Life: a measure of participation for young children with cerebral palsy. Disabil Rehabil. 2014;36(21):1804–1816.
   PubMed Web of Science ®Google Scholar
• Andresen EM. Criteria for assessing the tools of disability outcomes research. Arch Phys Med Rehabil. 2000;81(12 Suppl. 2):S15–S20.
   PubMed Web of Science ®Google Scholar
• Palisano RJ, Chiarello LA, McCoy SW, et al. Use of the Child Engagement in Daily Life and ease of caregiving for children to evaluate change in young children with cerebral palsy. Phys Occup Ther Paediatr. 2015;35(3):280–295.
   Web of Science ®Google Scholar
• O'Donoghue P. Statistics for sport and exercise studies: an introduction. London (UK): Routledge Publishing; 2012.
   Google Scholar
• Ryan SE, Campbell KA. Evaluation of a parent-report diary of the home use of assistive devices by young children with cerebral palsy. Disabil Rehabil Assist Technol. 2009;4(3):189–197.
   PubMedGoogle Scholar
• Kurne SA, Gupta AD. Impact of long-term use of adaptive seating device among children with cerebral palsy and their families in Mumbai, India: a feasibility study. Disabil CBR Inclusive Dev. 2016;27(3):118–131.
   Google Scholar
• Kurne S, Jayavant S. Optimising adaptive seating solution in case of severely disabled cerebral palsy child. Int J Sci Res. 2017;6(7):318–319.
   Google Scholar
• Bolas J, Boyle P. Parental views regarding seating and participation for young children with cerebral palsy. J Occup Ther Schools Early Interv. 2017;10(3):254–265.
   Web of Science ®Google Scholar
• Rigby PJ, Ryan SE, Campbell KA. Effect of adaptive seating devices on the activity performance of children with cerebral palsy. Arch Phys Med Rehabil. 2009;90(8):1389–1395.
   PubMed Web of Science ®Google Scholar
• Stier CD, Chieu IB, Howell L, et al. Exploring the functional impact of adaptive seating on the lives of individual children and their families: a collective case study. Disabil Rehabil Assist Technol. 2017;12(5):450–456.
   PubMed Web of Science ®Google Scholar
• Zhang H, Huo H, Hao Z, et al. Effect of appropriate assistive device on rehabilitation of children with cerebral palsy under ICF framework. Int J Clin Exp Med. 2018;11(11):12259–12263.
   Web of Science ®Google Scholar
• Dambi JM, Jelsma J, Mlambo T. Caring for a child with cerebral palsy: the experience of Zimbabwean mothers. Afr J Disabil. 2015;4:1–10.
   Web of Science ®Google Scholar
• Raina P, Donnell MO, Rosenbaum P. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115(6):e626–e636.
   PubMed Web of Science ®Google Scholar
• Korpela R, Seppänen RL, Koivikko M. Technical aids for daily activities: a regional survey of 204 disabled children. Dev Med Child Neurol. 1992;34(11):985–998.
   PubMed Web of Science ®Google Scholar
• Rigby P, Reid D, Schoger S, et al. Effects of a wheelchair-mounted rigid pelvic stabilizer on caregiver assistance for children with cerebral palsy. Assist Technol. 2001;13(1):2–11.
   PubMed Web of Science ®Google Scholar
• Fuhrer MJ, Jutai JW, Scherer MJ, et al. A framework for the conceptual modelling of assistive technology device outcomes. Disabil Rehabil. 2003;25(22):1243–1251.
   PubMed Web of Science ®Google Scholar
• Ryan SE, Sawatzky B, Campbell KA, et al. Functional outcomes associated with adaptive seating interventions in children and youth with wheeled mobility needs. Arch Phys Med Rehabil. 2014;95(5):825–831.
   PubMed Web of Science ®Google Scholar
• Law M, King G, Petrenchik T, et al. The assessment of preschool children's participation: internal consistency and construct validity. Phys Occup Ther Pediatr. 2012;32(3):272–287.
   PubMed Web of Science ®Google Scholar
• World Health Organisation. Global Cooperation on Assistive Health Technology (GATE). Geneva: Switzerland; 2014. Available from: http://www.who.int/phi/implementation/assistive_technology/phi_gate/en/
   Google Scholar