Aided language modelling, responsive communication and eye-gaze technology as communication intervention for adults with Rett syndrome: three experimental single case studies

References

• Brady NC, Bruce S, Goldman A, et al. Communication services and supports for individuals with severe disabilities: guidance for assessment and intervention. Am J Intellect Dev Disabil. 2016;121(2):121–138.
   PubMedGoogle Scholar
• Townend GS, Bartolotta TE, Urbanowicz A, et al. Development of consensus-based guidelines for managing communication of individuals with Rett syndrome. Augment Altern Commun. 2020;36(2):71–81.
   PubMed Web of Science ®Google Scholar
• Sennott S, Light JC, McNaughton D. AAC modeling intervention research review. Res Pract Persons Severe Disabil. 2016;41(2):101–115.
   Web of Science ®Google Scholar
• Allen AA, Schlosser RW, Brock KL, et al. The effectiveness of aided augmented input techniques for persons with developmental disabilities: a systematic review. Augment Altern Commun. 2017;33(3):149–159.
   PubMed Web of Science ®Google Scholar
• Binger C, Berens J, Kent-Walsh J, et al. The effects of aided AAC interventions on AAC use, speech, and symbolic gestures. Semin Speech Lang. 2008;29(2):101–111.
   PubMedGoogle Scholar
• Dada S, Alant E. The effect of aided language stimulation on vocabulary acquisition in children with little or no functional speech. Am J Speech Lang Pathol. 2009;18(1):50–64.
   PubMed Web of Science ®Google Scholar
• Bruno J, Trembath D. Use of aided language stimulation to improve syntactic performance during a weeklong intervention program. Augment Altern Commun. 2006;22(4):300–313.
   PubMed Web of Science ®Google Scholar
• Kent-Walsh J, Binger C, Buchanan C. Teaching children who use augmentative and alternative communication to ask inverted yes/no questions using aided modeling. Am J Speech Lang Pathol. 2015;24(2):222–236.
   PubMed Web of Science ®Google Scholar
• Flores JL. Examining aided input intervention in a classroom setting for children labeled with significant disabilities [electronic theses and dissertations]. University of Northern Iowa; 2016.
   Google Scholar
• Biggs EE, Carter EW, Gilson CB. Systematic review of interventions involving aided AAC modeling for children with complex communication needs. Am J Intellect Dev Disabil. 2018;123(5):443–473.
   PubMedGoogle Scholar
• Haebig E, McDuffie A, Ellis Weismer S. Brief report: parent verbal responsiveness and language development in toddlers on the autism spectrum. J Autism Dev Disord. 2013;43(9):2218–2227.
   PubMed Web of Science ®Google Scholar
• Karaaslan O, Mahoney G. Mediational analyses of the effects of responsive teaching on the developmental functioning of preschool children with disabilities. J Early Interv. 2015;37(4):286–299.
   Web of Science ®Google Scholar
• Madigan S, Wade M, Plamondon A, et al. Birth weight variability and language development: risk, resilience, and responsive parenting. J Pediatr Psychol. 2015;40(9):869–877.
   PubMed Web of Science ®Google Scholar
• Warren SF, Brady NC. The role of maternal responsivity in the development of children with intellectual disabilities. Ment Retard Dev Disabil Res Rev. 2007;13(4):330–338.
   PubMedGoogle Scholar
• Broberg M, Ferm U, Thunberg G. Measuring responsive style in parents who use AAC with their children: development and evaluation of a new instrument. Augment Altern Commun. 2012;28(4):243–253.
   PubMed Web of Science ®Google Scholar
• Medeiros KF, Cress CJ. Differences in maternal responsive and directive behavior during free play with and without aided AAC. Augment Altern Commun. 2016;32(2):151–161.
   PubMed Web of Science ®Google Scholar
• Cleave PL, Becker SD, Curran MK, et al. The efficacy of recasts in language intervention: a systematic review and meta-analysis. Am J Speech Lang Pathol. 2015;24(2):237–255.
   PubMed Web of Science ®Google Scholar
• Soto G, Clarke M, Nelson K, et al. Recast type, repair, and spontaneous use of linguistic targets in AAC mediated interaction. J Child Lang. 2019;47(1):250–264.
   PubMedGoogle Scholar
• Fehr S, Bebbington A, Nassar N, et al. Trends in the diagnosis of Rett syndrome in Australia. Pediatr Res. 2011;70(3):313–319.
   PubMed Web of Science ®Google Scholar
• Laurvick CL, de Klerk N, Bower C, et al. Rett syndrome in Australia: a review of the epidemiology. J Pediatr. 2006;148(3):347–352.
   PubMed Web of Science ®Google Scholar
• Neul JL, Kaufmann WE, Glaze DG, et al. Rett syndrome: revised diagnostic criteria and nomenclature. Ann Neurol. 2010;68(6):944–950.
   PubMed Web of Science ®Google Scholar
• Amir RE, Van den Veyver IB, Wan M, et al. Rett syndrome is caused by mutations in X-linked MECP2, encoding methyl-CpG-binding protein 2. Nat Genet. 1999;23(2):185–188.
   PubMed Web of Science ®Google Scholar
• Urbanowicz A, Downs J, Girdler S, et al. An exploration of the use of eye gaze and gestures in females with Rett syndrome. J Speech Lang Hear Res. 2016;59(6):1373–1383.
   PubMed Web of Science ®Google Scholar
• Didden R, Korzilius H, Smeets E, et al. Communication in individuals with Rett syndrome: an assessment of forms and functions. J Dev Phys Disabil. 2010;22(2):105–118.
   PubMed Web of Science ®Google Scholar
• Glaze D, Percy A, Skinner S, et al. Epilepsy and the natural history of Rett syndrome. Neurology. 2010;74(11):909–912.
   PubMed Web of Science ®Google Scholar
• Bartolotta TE, Zipp GP, Simpkins SD, et al. Communication skills in girls with Rett syndrome. Focus Autism Other Dev Disabl. 2011;26(1):15–24.
   Web of Science ®Google Scholar
• Rose SA, Djukic A, Jankowski JJ, et al. Rett syndrome: an eye-tracking study of attention and recognition memory. Dev Med Child Neurol. 2013;55(4):364–371.
   PubMed Web of Science ®Google Scholar
• Tetzchner S, Jacobsen KH, Smith L, et al. Vision, cognition and developmental characteristics of girls and women with Rett syndrome. Dev Med Child Neurol. 1996;38(3):212–225.
   PubMed Web of Science ®Google Scholar
• Fabio RA, Antonietti A, Castelli I, et al. Attention and communication in Rett syndrome. Res Autism Spectr Disord. 2009;3(2):329–335.
   Web of Science ®Google Scholar
• Rose SA, Djukic A, Jankowski JJ, et al. Aspects of attention in Rett syndrome. Pediatr Neurol. 2016;57:22–28.
   PubMed Web of Science ®Google Scholar
• Chen SHK, O'Leary M. Eye gaze 101: what speech-language pathologists should know about selecting eye gaze augmentative and alternative communication systems. Perspect ASHA Sigs. 2018;3(12):24–32.
   Google Scholar
• Ahonniska-Assa J, Polack O, Saraf E, et al. Assessing cognitive functioning in females with Rett syndrome by eye-tracking methodology. Eur J Paediatr Neurol. 2017;22(1):29–35.
   Web of Science ®Google Scholar
• Clarkson T, LeBlanc J, DeGregorio G, et al. Adapting the mullen scales of early learning for a standardized measure of development in children with Rett syndrome. Intellect Dev Disabil. 2017;55(6):419–431.
   PubMed Web of Science ®Google Scholar
• Townend GS, Marschik PB, Smeets E, et al. Eye gaze technology as a form of augmentative and alternative communication for individuals with Rett syndrome: experiences of families in The Netherlands. J Dev Phys Disabil. 2016;28(1):101–112.
   PubMed Web of Science ®Google Scholar
• Wandin H, Lindberg P, Sonnander K. Communication intervention in Rett syndrome: a survey of speech language pathologists in swedish health services. Disabil Rehabil. 2015;37(15):1324–1333.
   PubMed Web of Science ®Google Scholar
• Vessoyan K, Steckle G, Easton B, et al. Using eye-tracking technology for communication in Rett syndrome: perceptions of impact. Augment Altern Commun. 2018;34(3):230–241.
   PubMed Web of Science ®Google Scholar
• Kiresuk T, Smith A, Cardillo J. Goal attainment scaling: applications, theory, and measurement. Hillsdale (NJ): Lawrence Erlbaum Associates; 1994.
   Google Scholar
• Ferguson JL, Cihon JH, Leaf JB, et al. Assessment of social validity trends in the journal of applied behavior analysis. Eur J Behav Anal. 2019;20(1):146–157.
   Google Scholar
• Tate RL, Perdices M, Rosenkoetter U, et al. Reprint of “the Single-Case reporting guideline in BEhavioural interventions (SCRIBE) 2016: explanation and elaboration. Pratiques Psychol. 2019;25(2):119–151.
   Web of Science ®Google Scholar
• Vogel LC, Mendoza MM, C SJ, et al. Ambulation in children and youth with spinal cord injuries. J Spinal Cord Med. 2007;30(Suppl 1):S158–S164.
   PubMedGoogle Scholar
• Downs J, Bebbington A, Jacoby P, et al. Level of purposeful hand function as a marker of clinical severity in Rett syndrome. Dev Med Child Neurol. 2010;52(9):817–823.
   PubMed Web of Science ®Google Scholar
• Rowland C, Fried-Oken M. Communication matrix: a clinical and research assessment tool targeting children with severe communication disorders. J Pediatr Rehabil Med. 2010;3(4):319–329.
   PubMedGoogle Scholar
• Rowland C. Communication matrix. rev. ed. Oregon: Design to Learn Projects; 2004. (University OHS, editor.).
   Google Scholar
• Wandin H, Lindberg P, Sonnander K. Development of a tool to assess visual attention in Rett syndrome: a pilot study. Augment Altern Commun. 2020;36(2):118–127.
   PubMed Web of Science ®Google Scholar
• Lane JD, Gast D. Visual analysis in single case experimental design studies: brief review and guidelines. Neuropsychol Rehabil. 2014;24(3–4):445–463.
   PubMed Web of Science ®Google Scholar
• Parker RI, Vannest KJ, Davis JL, et al. Combining nonoverlap and trend for single-case research: Tau-U. Behav Ther. 2011;42(2):284–299.
   PubMed Web of Science ®Google Scholar
• Vannest KJ, Ninci J. Evaluating intervention effects in single‐case research designs. J Couns Dev. 2015;93(4):403–411.
   Web of Science ®Google Scholar
• Koo TK, Li MY. A guideline of selecting and reporting intraclass correlation coefficients for reliability research. J Chiropr Med. 2016;15(2):155–163.
   PubMed Web of Science ®Google Scholar
• Wandin H, Lindberg P, Sonnander K. An exploratory case study of a trained communication partner’s use of responsive and scaffolding partner strategies in aided communication with adults with Rett syndrome. [work in progress].
   Google Scholar
• Binger C, Kent-Walsh J, Berens J, et al. Teaching latino parents to support the multi-symbol message productions of their children who require AAC. Augment Altern Commun. 2008;24(4):323–338.
   PubMed Web of Science ®Google Scholar
• Borgestig M, Sandqvist J, Parsons R, et al. Eye gaze performance for children with severe physical impairments using gaze-based assistive technology-A longitudinal study. Assist Technol. 2016;28(2):93–102.
   PubMed Web of Science ®Google Scholar
• Karlsson P, Allsop A, Dee-Price B-J, et al. Eye-gaze control technology for children, adolescents and adults with cerebral palsy with significant physical disability: findings from a systematic review. Dev Neurorehabil. 2018;21(8):497–505.
   PubMed Web of Science ®Google Scholar