“I miss work:” employment experiences and attitudes of adults with acquired disabilities who use assistive technologies

References

• McNaughton D, Light J, Groszyk L. “Don’t give up”: employment experiences of individuals with amyotrophic lateral sclerosis who use augmentative and alternative communication. AAC Augment Altern Commun. 2001;17(3):179–195.
   Google Scholar
• McCabe MP, Roberts C, Firth L. Work and recreational changes among people with neurological illness and their caregivers. Disabil Rehabil. 2008;30(8):600–610.
   PubMed Web of Science ®Google Scholar
• Johnston P, Jongbloed L, Stainton T, et al. Can assistive technology help people with disabilities obtain employment? An examination of overcoming barriers to participation in British Columbia, Canada. Int J Disabil Community Rehabil. 2014;13(1).
   Google Scholar
• McNaughton D, Arnold A. Supporting positive employment outcomes for individuals who use AAC. Perspect Augment Altern Commun. 2010;19(2):51–59.
   Google Scholar
• Trembath D, Balandin S, Stancliffe RJ, et al. “Communication is everything:” the experiences of volunteers who use AAC. Augment Altern Commun. 2010;26(2):75–86.
   PubMed Web of Science ®Google Scholar
• McNaughton D, Light J, Arnold K. ‘Getting your wheel in the door’: successful full-time employment experiences of individuals with cerebral palsy who use augmentative and alternative communication. Augment Altern Commun. 2002;18(2):59–76.
   Google Scholar
• Jette AM, Spicer CM, Flaubert JL, eds. The promise of assistive technology to enhance activity and work participation [Internet]. Washington (DC): The National Academies Press; 2017. Available from: https://www.nap.edu/catalog/24740/the-promise-of-assistive-technology-to-enhance-activity-and-work-participation
   Google Scholar
• Yeager P, Kaye HS, Reed M, et al. Assistive technology and employment: experiences of Californians with disabilities. Work Read Mass. 2006;27(4):333–344.
   PubMedGoogle Scholar
• Dingel JI, Neiman B. How many jobs can be done at home? Journal of Public Economics. 2020;189:104235–104235. https://doi.org/10.1016/j.jpubeco.2020.104235
   PubMed Web of Science ®Google Scholar
• How Coronavirus Has Changed the Way Americans Work. Pew Research Center’s Social & Demographic Trends Project. 2020. [cited 2022 Feb 23]. Available from: https://www.pewresearch.org/social-trends/2020/12/09/how-the-coronavirus-outbreak-has-and-hasnt-changed-the-way-americans-work/
   Google Scholar
• Thakkar D, Kumar N, Sambasivan N. Beyond the portal: reimagining the post-pandemic future of work. interactions. 2020;27(6):80–83.
   Google Scholar
• Linden M, Milchus K. Teleworkers with disabilities: characteristics and accommodation use. Work. 2014;47(4):473–483.
   PubMedGoogle Scholar
• McNaughton D, Rackensperger T, Dorn D, et al. “Home is at work and work is at home”: telework and individuals who use augmentative and alternative communication. Work. 2014;48(1):117–126.
   PubMedGoogle Scholar
• Shahidi FV, Jetha A, Kristman V, et al. The employment quality of persons with disabilities: findings from a national survey. J Occup Rehabil. 2023. https://doi.org/10.1007/s10926-023-10113-7
   Web of Science ®Google Scholar
• Brabham DC. Crowdsourcing as a model for problem solving: an introduction and cases. Convergence. 2008;14(1):75–90.
   Google Scholar
• Howe J. The rise of crowdsourcing. Wired Magazine. 2006;14:5.
   Google Scholar
• Kittur A, Chi EH, Suh B. Crowdsourcing user studies with mechanical turk. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI ’08). New York, NY, USA: ACM; 2008. p. 453–456. Available from: 10.1145/1357054.1357127
   Google Scholar
• Kuek SC, Paradi-Guilford CM Fayomi T, Imaizumi S, et al. The global opportunity in online outsourcing [Internet]. The World Bank; 2015. (Report No.: ACS14228). p. 1–74. [cited 2020 May 5] Available from: http://documents.worldbank.org/curated/en/138371468000900555/The-global-opportunity-in-online-outsourcing
   Google Scholar
• Pew Research Center, Suite 800Washington, Inquiries D 20036USA202 419 4300 | M 857 8562 | F 419 4372 | M. 2. The size of the Mechanical Turk marketplace [Internet]. Pew Research Center: Internet, Science & Tech. 2016 [cited 2020 May 5]. Available from: https://www.pewresearch.org/internet/2016/07/11/the-size-of-the-mechanical-turk-marketplace/.
   Google Scholar
• Creswell JW, Poth CN. Qualitative inquiry and research design: choosing among five approaches. 4th ed. Thousand Oaks (CA): SAGE; 2018.
   Google Scholar
• Patton MQ. Qualitative research and evaluation methods: integrating theory and practice. 4th ed. Thousand Oaks, California: SAGE Publications, Inc; 2015.
   Google Scholar
• Bryant A, Charmaz K. The SAGE handbook of grounded theory. London: SAGE Publications; 2007.
   Google Scholar
• Charmaz K. Constructing grounded theory. 2nd ed. London ; Thousand Oaks, Calif: SAGE Publications Ltd; 2014. p. 416.
   Google Scholar
• Zooniverse [Internet]. [cited 2023 May 5]. Available from: https://www.zooniverse.org/.
   Google Scholar
• Writing Jobs - Remote Work From Home & Online | FlexJobs [Internet]. [cited 2023 May 5]. Available from: https://www.flexjobs.com/remote-jobs/writing-editing-journalism.
   Google Scholar
• VolunteerMatch – Where Volunteering Begins [Internet]. [cited 2023 May 5]. Available from: https://www.volunteermatch.org/
   Google Scholar
• Problogger-Jobs [Internet]. ProBlogger Jobs. [cited 2023 May 5]. Available from: https://problogger.com/jobs/
   Google Scholar
• CrowdSurf. Get Started on Work Market-CrowdSurf [Internet]. CrowdSurf Work. [cited 2023 May 5]. Available from: https://crowdsurfwork.com/get-started-on-work-market/
   Google Scholar
• Appen: FAQ [Internet]. [cited 2023 May 5]. Available from: https://connect.appen.com/qrp/public/faq;jsessionid=37CF286663444D3DF408976DD0A47AD4%205
   Google Scholar
• Turk AM. [Internet]. [cited 2023 May 5]. Available from: https://www.mturk.com/worker/help
   Google Scholar
• TranscribeMe! [Internet]. TranscribeMe. [cited 2023 May 5]. Available from: https://www.transcribeme.com/jobs/
   Google Scholar
• How Does Upwork Work for Freelancers | Upwork [Internet]. [cited 2023 May 5]. Available from: https://www.upwork.com/i/how-it-works/freelancer/
   Google Scholar
• Heath H, Cowley S. Developing a grounded theory approach: a comparison of glaser and strauss. Int J Nurs Stud. 2004;41(2):141–150.
   PubMed Web of Science ®Google Scholar
• Kenny M, Fourie R. Contrasting classic, straussian, and constructivist grounded theory: methodological and philosophical conflicts. Qual Rep. 2015;20(8):1270–1289.
   Web of Science ®Google Scholar
• Olson JS, Kellogg W. Ways of knowing in HCI. New York (NY) : Springer; 2014.
   Google Scholar
• Tan J. Grounded theory in practice: issues and discussion for new qualitative researchers. J Doc. 2010;66(1):93–112.
   Web of Science ®Google Scholar
• Glaser BG, Strauss AL. The discovery of grounded theory: strategies for qualitative research. New Brunswick (NJ): Aldine Transaction; 2006.
   Google Scholar
• Markham C, Dean T. Parents’ and professionals’ perceptions of quality of life in children with speech and language difficulty. Int J Lang Commun Disord. 2006;41(2):189–212.
   PubMed Web of Science ®Google Scholar
• Birt L, Scott S, Cavers D, et al. Member checking: a tool to enhance trustworthiness or merely a nod to validation? Qual Health Res. 2016;26(13):1802–1811.
   PubMed Web of Science ®Google Scholar
• Cooper L, Balandin S, Trembath D. The loneliness experiences of young adults with cerebral palsy who use alternative and augmentative communication. Augment Altern Commun. 2009;25(3):154–164.
   PubMed Web of Science ®Google Scholar
• Papadimitriou C. Becoming en‐wheeled: the situated accomplishment of re‐embodiment as a wheelchair user after spinal cord injury. Disabil Soc. 2008;23(7):691–704.
   Web of Science ®Google Scholar
• Forber-Pratt AJ, Zape MP. Disability identity development model: voices from the ADA-generation. Disabil Health J. 2017;10(2):350–355.
   PubMed Web of Science ®Google Scholar
• Ekins P, Max-Neef MA. Real-life economics: understanding wealth creation. London (NY): Routledge; 1992.
   Google Scholar
• Cruz I, Stahel A, Max-Neef M. Towards a systemic development approach: building on the human-scale development paradigm. Ecol Econ. 2009;68(7):2021–2030.
   Web of Science ®Google Scholar
• Charmaz K. The body, identity, and self: adapting to impairment. Sociol Q. 1995;36(4):657–680.
   Web of Science ®Google Scholar
• Reynolds F. Reclaiming a positive identity in chronic illness through artistic occupation. OTJR Occup Particip Health. 2003;23(3):118–127. Summer
   Web of Science ®Google Scholar
• Reynolds F, Prior S. “Sticking jewels in your life”: exploring women’s strategies for negotiating an acceptable quality of life with multiple sclerosis. Qual Health Res. 2003;13(9):1225–1251.
   PubMed Web of Science ®Google Scholar
• Eschler J, Bhattacharya A, Pratt W. Designing a reclamation of body and health: cancer survivor tattoos as coping ritual. In: Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI ’18). New York, NY, USA: ACM; 2018. p. 510:1–510:12. Available from: 10.1145/3173574.3174084.
   Google Scholar
• Hunt L, Nikopoulou-Smyrni P, Reynolds F. “It gave me something big in my life to wonder and think about which took over the space … and not MS”: managing well-being in multiple sclerosis through art-making. Disabil Rehabil. 2014;36(14):1139–1147.
   PubMed Web of Science ®Google Scholar
• Max-Neef M. Development and human needs. In: Development ethics. London: Routledge; 2010.
   Google Scholar
• Creek J. Creative leisure opportunities. NeuroRehabilitation. 2008;23(4):299–304.
   PubMed Web of Science ®Google Scholar
• Dattilo J, Estrella G, Estrella LJ, et al. “I have chosen to live life abundantly”: perceptions of leisure by adults who use augmentative and alternative communication. Augment Altern Commun. 2008;24(1):16–28.
   PubMed Web of Science ®Google Scholar
• Magee WL, Bowen C. Using music in leisure to enhance social relationships with patients with complex disabilities. NRE. 2008;23(4):305–311.
   Google Scholar
• (Tamar) Weiss PL, Bialik P, Kizony R. Virtual reality provides leisure time opportunities for young adults with physical and intellectual disabilities. Cyberpsychol Behav. 2003;6(3):335–342.
   PubMedGoogle Scholar
• Bache J, Derwent G. Access to computer-based leisure for individuals with profound disabilities. NeuroRehabilitation. 2008;23(4):343–350.
   PubMed Web of Science ®Google Scholar