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Original Research

Pilot testing the SUCCESS peer mentoring program for students with concussion: the role of personas in mobile technology development

ORCID Icon, ORCID Icon, ORCID Icon, & ORCID Icon
Received 30 Nov 2022, Accepted 14 Jul 2023, Published online: 31 Jul 2023

References

  • Taylor CA, Bell JM, Breiding MJ, et al. Traumatic brain injury-related emergency department visits, hospitalizations, and deaths—United States, 2007 and 2013. MMWR Surveill Summ. 2017;66(9):1–16. doi: 10.15585/mmwr.ss6609a1.
  • Krause M, Richards S. Prevalence of traumatic brain injury and access to services in an undergraduate population: a pilot study. Brain Inj. 2014;28(10):1301–1310. doi: 10.3109/02699052.2014.916416.
  • Hux K, Brown J, Lambert M. Latent class analysis of brain injury symptomatology among college students. Curr Res Concussion. 2017;4(1):e14–e22. doi: 10.1055/s-0037-1606578.
  • Zemek RL, Farion KJ, Sampson M, et al. Prognosticators of persistent symptoms following pediatric concussion: a systematic review. JAMA Pediatr. 2013;167(3):259–265. doi: 10.1001/2013.jamapediatrics.216.
  • Breck J, Bohr A, Poddar S, et al. Characteristics and incidence of concussion among a US collegiate undergraduate population. JAMA Netw Open. 2019;2(12):e1917626. doi: 10.1001/jamanetworkopen.2019.17626.
  • Martinez S, Davalos D. Investigating metacognition, cognition, and behavioral deficits of college students with acute traumatic brain injuries. J Am Coll Health. 2016;64(5):390–396. doi: 10.1080/07448481.2016.1167057.
  • Silverberg ND, Panenka WJ, Iverson GL. Work productivity loss after mild traumatic brain injury. Arch Phys Med Rehabil. 2018;99(2):250–256. doi: 10.1016/j.apmr.2017.07.006.
  • Home. Living concussion guidelines; 2023 [Internet] [cited 2023 Apr 29]. Available from: https://concussionsontario.org/
  • Kemp AM, O'Brien KH. Critical elements of return to learn for students with concussion: a scoping review. J Head Trauma Rehabil. 2022;37(2):E113–E128. doi: 10.1097/HTR.0000000000000695.
  • Anderson MN, Lempke LB, Johnson RS, et al. Concussion characteristics and early postinjury outcomes between college students and intercollegiate athletes. Arch Phys Med Rehabil. 2022;103(2):323–330. doi: 10.1016/j.apmr.2021.09.013.
  • Master CL, Curry AE, Pfeiffer MR, et al. Characteristics of concussion in elementary school-aged children: implications for clinical management. J Pediatr. 2020;223:128–135. doi: 10.1016/j.jpeds.2020.04.001.
  • Meeuwisse WH, Schneider KJ, Dvořák J, et al. Consensus statement on concussion in sport—the 5th international conference on concussion in sport held in Berlin, October 2016. Br J Sports Med. 2017;51(11):873–876. doi: 10.1136/bjsports-2017-097569.
  • Lumba-Brown A, Yeates KO, Sarmiento K, et al. Diagnosis and management of mild traumatic brain injury in children: a systematic review. JAMA Pediatr. 2018;172(11):e182847. doi: 10.1001/jamapediatrics.2018.2847.
  • Marshall S, Bayley M, McCullagh S, et al. Updated clinical practice guidelines for concussion/mild traumatic brain injury and persistent symptoms. Brain Inj. 2015;29(6):688–700. doi: 10.3109/02699052.2015.1004755.
  • Polinder S, Cnossen MC, Real RGL, et al. A multidimensional approach to post-concussion symptoms in mild traumatic brain injury. Front Neurol. 2018;9:1113. doi: 10.3389/fneur.2018.01113.
  • Yeates KO. Mild traumatic brain injury and postconcussive symptoms in children and adolescents. J Int Neuropsychol Soc. 2010;16(6):953–960. doi: 10.1017/S1355617710000986.
  • United States. Americans with Disabilities Act of 1990. Public Law No. 101-336. US Statut Large. 1990;104:327–378.
  • Childers C, Hux K. Invisible injuries: the experiences of college students with histories of mild traumatic brain injury. J Postsecond Educ Disabil. 2016;29:389–405.
  • Seabury SA, Gaudette É, Goldman DP, et al. Assessment of follow-up care after emergency department presentation for mild traumatic brain injury and concussion: results from the TRACK-TBI study. JAMA Netw Open. 2018;1(1):e180210. doi: 10.1001/jamanetworkopen.2018.0210.
  • Magasi S, Papadimitriou C. Peer support interventions in physical medicine and rehabilitation: a framework to advance the field. Arch Phys Med Rehabil. 2022;103(7S):S222–S229. doi: 10.1016/j.apmr.2020.09.400.
  • Gassaway J, Jones ML, Sweatman WM, et al. Peer-led, transformative learning approaches increase classroom engagement in care self-management classes during inpatient rehabilitation of individuals with spinal cord injury. J Spinal Cord Med. 2019;42(3):338–346. doi: 10.1080/10790268.2017.1385992.
  • Kneavel ME, Ernst W, McCarthy KS. Randomized controlled trial of a novel peer concussion-education program for collegiate athletes. J Athl Train. 2020;55(5):456–468. doi: 10.4085/1062-6050-0182.19.
  • Hickling A, Mallory KD, Wilson KE, et al. The youth concussion awareness network (You-CAN) – a school-based peer-led intervention to improve concussion reporting and social support: the protocol for a cluster randomized trial. BMC Public Health. 2020;20(1):186. doi: 10.1186/s12889-020-8244-5.
  • Morris RP, Fletcher-Smith JC, Radford KA. A systematic review of peer mentoring interventions for people with traumatic brain injury. Clin Rehabil. 2017;31(8):1030–1038. doi: 10.1177/0269215516676303.
  • Griffin MM, Wendel KF, Day TL, et al. Developing peer supports for college students with intellectual and developmental disabilities. J Postsecond Educ Disabil. 2016;29:263–269.
  • Lawson DL, Gould SA, Conley ML. McDaniel step ahead: a summer transitional program for first year college students with disabilities. J Postsecond Educ Disabil. 2016;29(3):299–302.
  • Ness BM, Middleton MJ, Hildebrandt MJ. Examining the effects of self-reported posttraumatic stress disorder symptoms and positive relations with others on self-regulated learning for student service members/veterans. J Am Coll Health. 2015;63(7):448–458. doi: 10.1080/07448481.2014.975719.
  • Wobma R, Nijland RHM, Ket JCF, et al. Evidence for peer support in rehabilitation for individuals with acquired brain injury: a systematic review. J Rehabil Med. 2016;48(10):837–840. doi: 10.2340/16501977-2160.
  • Kita H, Mallory KD, Hickling A, et al. Social support during youth concussion recovery. Brain Inj. 2020;34(6):782–790. doi: 10.1080/02699052.2020.1753243.
  • Arnett JJ. Emerging adulthood: what is it, and what is it good for? Child Dev Perspect. 2007;1(2):68–73. doi: 10.1111/j.1750-8606.2007.00016.x.
  • PCORI Engagement Rubric [Internet]. PCORI Patient-Centered Outcomes Res. Inst. 2014 [cited 2022 Oct 17]. Available from: http://www.pcori.org/sites/ default/files/Engagement-Rubric.pdf.
  • Sheridan MA, Peverill M, Finn AS, et al. Dimensions of childhood adversity have distinct associations with neural systems underlying executive functioning. Dev Psychopathol. 2017;29(5):1777–1794. doi: 10.1017/S0954579417001390.
  • O'Brien KH, Wallace T, Kemp A. Student perspectives on the role of peer support following concussion: development of the SUCCESS Peer Mentoring Program. Am J Speech Lang Pathol. 2021;30(2S):933–948. doi: 10.1044/2020_AJSLP-20-00076.
  • Kemp A, Gartell R, O'Brien K, et al. Infographic development for the Success in College after Concussion with Effective Student Supports (SUCCESS) peer mentoring program. Arch Phys Med Rehabil. 2021;102(10):e55. doi: 10.1016/j.apmr.2021.07.629.
  • LeRouge C, Ma J, Sneha S, et al. User profiles and personas in the design and development of consumer health technologies. Int J Med Inform. 2013;82(11):e251–e268. doi: 10.1016/j.ijmedinf.2011.03.006.
  • Luna D, Quispe M, Gonzalez Z, et al. User-centered design to develop clinical applications. Literature review. Stud Health Technol Inform. 2015;216:967.
  • International Organization for Standardization. Ergonomics of human-system interaction—part 210: human-centered design for interactive systems; 2019 [Internet] [cited 2022 Jul 25]. Available from: https://www.iso.org/cms/render/live/en/sites/isoorg/contents/data/standard/07/75/77520.html
  • Schneidewind L, Hörold S, Mayas C, et al. How personas support requirements engineering. 2012 First International Workshop on Usability and Accessibility Focused Requirements Engineering (UsARE); 2012. p. 1–5.
  • Wärnestål P, Svedberg P, Lindberg S, et al. Effects of using child personas in the development of a digital peer support service for childhood cancer survivors. J Med Internet Res. 2017;19(5):e7175. doi: 10.2196/jmir.7175.
  • Baylor C, Burns MI, Struijk J, et al. Assessing the believability of standardized patients trained to portray communication disorders. Am J Speech Lang Pathol. 2017;26(3):791–805. doi: 10.1044/2017_AJSLP-16-0068.
  • Howley LD. Standardized patients. In Levine AI, DeMaria Jr S, Schwartz AD, et al. editors. The comprehensive textbook of healthcare simulation. New York: Springer; 2013. p. 173–190.
  • Watanabe I, Ades AM, Nishisaki A. Tele-simulation for healthcare team and system improvement. In Deutsch ES, Perry SJ, Gurnaney HG, editors. Comprehensive healthcare simulation: improving healthcare systems. New York: Springer;2021. p. 91–96.
  • Hurworth R. Qualitative methodology: common questions about running focus groups during evaluations. Eval News Comment. 1996;5:48–52.
  • Plummer-D’Amato P. Focus group methodology. Part 1: considerations for design. Int J Ther Rehabil. 2008;15:69–73.
  • Kemp AM, O'Brien KH, Wallace T. Reconceptualizing recovery after concussion: a phenomenological exploration of college student experiences. Am J Speech Lang Pathol. 2023;32(2S):867–882. doi: 10.1044/2022_AJSLP-22-00076.
  • O’Brien KH, Pei Y, Kemp AM. The SUCCESS peer mentoring program for college students with concussion: preliminary results of a mobile technology delivered intervention. Int J Environ Res Public Health. 2023;20:5438. doi: 10.3390/ijerph20085438.
  • Creswell JW, Clark VLP. Designing and conducting mixed methods research. Thousand Oaks, CA: Sage Publications; 2017.
  • Lovell MR, Iverson GL, Collins MW, et al. Measurement of symptoms following sports-related concussion: reliability and normative data for the Post-Concussion Scale. Appl Neuropsychol. 2006;13(3):166–174. doi: 10.1207/s15324826an1303_4.
  • Hong I, Velozo CA, Li C-Y, et al. Assessment of the psychometrics of a PROMIS item bank: self-efficacy for managing daily activities. Qual Life Res. 2016;25(9):2221–2232. doi: 10.1007/s11136-016-1270-1.
  • Lovibond PF, Lovibond SH. The structure of negative emotional states: comparison of the Depression Anxiety Stress Scales (DASS) with the Beck Depression and Anxiety Inventories. Behav Res Ther. 1995;33(3):335–343. doi: 10.1016/0005-7967(94)00075-u.
  • Wilkinson S. Focus group methodology: a review. Int J Soc Res Methodol. 1998;1(3):181–203. doi: 10.1080/13645579.1998.10846874.
  • Murdock KK. Texting while stressed: implications for students’ burnout, sleep, and well-being. Psychol Pop Media Cult. 2013;2(4):207–221. doi: 10.1037/ppm0000012.
  • Harari GM, Müller SR, Stachl C, et al. Sensing sociability: individual differences in young adults’ conversation, calling, texting, and app use behaviors in daily life. J Pers Soc Psychol. 2020;119(1):204–228. doi: 10.1037/pspp0000245.
  • Dowdell EB, Clayton BQ. Interrupted sleep: college students sleeping with technology. J Am Coll Health. 2019;67(7):640–646. doi: 10.1080/07448481.2018.1499655.
  • Saiyed S, Nguyen A, Singh R. Physician perspective and key satisfaction indicators with rapid telehealth adoption during the coronavirus disease 2019 pandemic. Telemed J E Health. 2021;27(11):1225–1234. doi: 10.1089/tmj.2020.0492.
  • Lampickienė I, Davoody N. Healthcare professionals’ experience of performing digital care visits—a scoping review. Life. 2022;12(6):913.
  • Newman L, Bidargaddi N, Schrader G. Service providers’ experiences of using a telehealth network 12 months after digitisation of a large Australian Rural Mental Health Service. Int J Med Inform. 2016;94:8–20. doi: 10.1016/j.ijmedinf.2016.05.006.
  • Macnow T, Curran T, Tolliday C, et al. Effect of screen time on recovery from concussion: a randomized clinical trial. JAMA Pediatr. 2021;175(11):1124–1131. doi: 10.1001/jamapediatrics.2021.2782.
  • Debacker J, Ventura R, Galetta SL, et al. Neuro-ophthalmologic disorders following concussion. In Hainline B, Stern RA, editors. Handbook of clinical neurology. Cambridge, MA: Elsevier; 2018. p. 145–152.
  • Mares C, Dagher JH, Harissi-Dagher M. Narrative review of the pathophysiology of headaches and photosensitivity in mild traumatic brain injury and concussion. Can J Neurol Sci. 2019;46(1):14–22. doi: 10.1017/cjn.2018.361.
  • Ellis MJ, Boles S, Derksen V, et al. Evaluation of a pilot paediatric concussion telemedicine programme for Northern communities in Manitoba. Int J Circumpolar Health. 2019;78(1):1573163. doi: 10.1080/22423982.2019.1573163.
  • Vargas BB, Shepard M, Hentz JG, et al. Feasibility and accuracy of teleconcussion for acute evaluation of suspected concussion. Neurology. 2017;88(16):1580–1583. doi: 10.1212/WNL.0000000000003841.
  • Belanger HG, Toyinbo P, Barrett B, et al. Concussion coach for postconcussive symptoms: a randomized, controlled trial of a smartphone application with Afghanistan and Iraq war veterans. Clin Neuropsychol. 2021;36(8):1–27.
  • Chrisman SPD, Mendoza JA, Zhou C, et al. Pilot study of telehealth delivered rehabilitative exercise for youth with concussion: the Mobile Subthreshold Exercise Program (MSTEP). Front Pediatr. 2021;9:645814. doi: 10.3389/fped.2021.645814.
  • Evans V. The emoji code: how smiley faces, love hearts and thumbs up are changing the way we communicate. London: Michael O’Mara Books;2017.
  • Ganster T, Eimler SC, Krämer NC. Same same but different!? The differential influence of smilies and emoticons on person perception. Cyberpsychol Behav Soc Netw. 2012;15(4):226–230. doi: 10.1089/cyber.2011.0179.
  • Taylor ZW, Serna KL. Don’t txt me L8r, text me now: exploring community college student preferences for receiving a text message from their institution. Community Coll J Res Pract. 2018;44:1–14. doi: 10.1080/10668926.2018.1560374.
  • Guo P, Saab N, Wu L, et al. The community of inquiry perspective on students’ social presence, cognitive presence, and academic performance in online project‐based learning. J Comput Assist Learn. 2021;37(5):1479–1493. doi: 10.1111/jcal.12586.
  • Boutet I, LeBlanc M, Chamberland JA, et al. Emojis influence emotional communication, social attributions, and information processing. Comput Hum Behav. 2021;119:106722. doi: 10.1016/j.chb.2021.106722.
  • Zhang Z, Strubell E, Hovy E. Comparing span extraction methods for semantic role labeling. Proceedings of the 5th Workshop on Structured Prediction for NLP (SPNLP 2021) [Internet]. Association for Computational Linguistics; 2021 [cited 2021 Nov 1]. p. 67–77. Available from: https://aclanthology.org/2021.spnlp-1.8
  • Northcott S, Behn N, Monnelly K, et al. “For them and for me”: a qualitative exploration of peer befrienders’ experiences supporting people with aphasia in the SUPERB feasibility trial. Disabil Rehabil. 2022;44(18):5025–5037. doi: 10.1080/09638288.2021.1922520.
  • Wallace TD, Morris JT, et al. SwapMyMood: user-centered design and development of a mobile app to support executive function. In: Miesenberger K, Manduchi R, Covarrubias Rodriguez M, editors. Computers helping people with special needs. Cham: Springer International Publishing; 2020. p. 259–265.
  • Wallace T, Morris JT, Bradshaw S, et al. BreatheWell: developing a stress management app on wearables for TBI & PTSD. J Technol Persons Disabil. 2017;5:67–82.
  • Lindblom S, Flink M, Elf M, et al. The manifestation of participation within a co‐design process involving patients, significant others and health‐care professionals. Health Expect. 2021;24(3):905–916. doi: 10.1111/hex.13233.
  • Kontos AP, Pan R, Emami K. Mental health manifestations of concussion. In: Hong E, Rao AL, editors. Mental health in the athlete. Cham: Springer International Publishing; 2020.
  • Lange RT, Iverson GL, Rose A. Depression strongly influences postconcussion symptom reporting following mild traumatic brain injury. J Head Trauma Rehabil. 2011;26(2):127–137. doi: 10.1097/HTR.0b013e3181e4622a.
  • Broshek DK, De Marco AP, Freeman JR. A review of post-concussion syndrome and psychological factors associated with concussion. Brain Inj. 2015;29(2):228–237. doi: 10.3109/02699052.2014.974674.
  • Silverberg ND, Otamendi T, Dulai A, et al. Barriers and facilitators to the management of mental health complications after mild traumatic brain injury. Concussion. 2021;6(3):CNC92. doi: 10.2217/cnc-2020-0022
  • Griffin MM, Papay CK. Supporting students with intellectual and developmental disabilities to attend college. Teach Except Child. 2017;49(6):411–419. doi: 10.1177/0040059917711695.
  • Stanish HI, Temple VA. Efficacy of a peer‐guided exercise programme for adolescents with intellectual disability. J Appl Res Intellect Disabil. 2012;25(4):319–328. doi: 10.1111/j.1468-3148.2011.00668.x.
  • Beltman S, Schaeben M. Institution-wide peer mentoring: benefits for mentors. Int J First Year High Educ. 2012;3:33–44.
  • Levy BB, Luong D, Bayley MT, et al. A pilot feasibility randomized controlled trial on the Ontario Brain Injury Association Peer Support Program. J Clin Med. 2021;10:2913. doi: 10.3390/jcm10132913.
  • Lorig KR, Ritter P, Stewart AL, et al. Chronic disease self-management program: 2-Year health status and health care utilization outcomes. Med Care. 2001;39(11):1217–1223. doi: 10.1097/00005650-200111000-00008.
  • Lorig KR, Sobel DS, Stewart AL, et al. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial. Med Care. 1999;37(1):5–14. doi: 10.1097/00005650-199901000-00003.
  • Lorig K, González V. The integration of theory with practice: a 12-year case study. Health Educ Q. 1992;19(3):355–368. doi: 10.1177/109019819201900307.
  • Jerant A, Moore M, Lorig K, et al. Perceived control moderated the self-efficacy-enhancing effects of a chronic illness self-management intervention. Chronic Illn. 2008;4(3):173–182. doi: 10.1177/1742395308089057.
  • Money N, Moore M, Brown D, et al. Best practices identified for peer support programs. Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury. Final Report. 2011. Available from: https://www.mhanational.org/sites/default/files/Best_Practices_Identified_for_Peer_Support_Programs_Jan_2011.pdf.
  • Shaw RB, McBride CB, Casemore S, et al. Transformational mentoring: leadership behaviors of spinal cord injury peer mentors. Rehabil Psychol. 2018;63(1):131–140. doi: 10.1037/rep0000176.
  • Lorig K, Stewart A, Ritter P, et al. Outcome measures for health education and other health care interventions. Thousand Oaks, CA: Sage; 1996.

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