Gaze-based assistive technology used in daily life by children with severe physical impairments – parents’ experiences

References

• United Nations. Convention on the rights of persons with disabilities; 1998 [cited 2015 Oct 4]. Available from: http://www.un.org/en/index.html.
   Google Scholar
• United Nations. Convention on the rights of the child [Internet]; 1989 [cited 2015 Oct 4]. Available from: http://www.unicef.org/crc/.
   Google Scholar
• Reid A, Imrie H, Brouwer E, Clutton S, Evans J, Russell D, et al. “If I knew then what I know now”: parents’ reflections on raising a child with cerebral palsy. Physical & Occupational Therapy in Pediatrics 2011;31(2):169–183.
   PubMed Web of Science ®Google Scholar
• Piskur B, Beurskens AJ, Jongmans MJ, Ketelaar M, Norton M, Frings CA, et al. Parents’ actions, challenges, and needs while enabling participation of children with a physical disability: a scoping review. BMC Pediatrics 2012;12(177):1–13.
   PubMed Web of Science ®Google Scholar
• Cans C. Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Developmental Medicine & Child Neurology 2000;42(12):816–24.
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, et al. A report: the definition and classification of cerebral palsy April 2006. Developmental Medicine and Child Neurology Suppl 2007;109:8–14.
   PubMedGoogle Scholar
• Østensjø S, Carlberg EB, Vøllestad NK. The use and impact of assistive devices and other environmental modifications on everyday activities and care in young children with cerebral palsy. Disability & Rehabilitation 2005;27(14):849–861.
   PubMed Web of Science ®Google Scholar
• Kantak SS, Sullivan KJ, Burtner P. Motor learning in children with cerebral palsy: implications for rehabilitation. In Eliasson AC, Burtner P (Eds.), Improving hand function in children with cerebral palsy: theory, evidence and intervention (pp. 260–275). London: Mac Keith Press; 2008.
   Google Scholar
• Hewitt-Taylor J. Parents’ views of their children who have complex health needs. Paediatric Nursing 2008;28(8):20–23.
   Google Scholar
• Raghavendra P, Olsson C, Sampson J, Mcinerney R, Connell T. School participation and social networks of children with complex communication needs, physical disabilities, and typically developing peers. Augmentative and Alternative Communication 2012;28(1):33–43.
   PubMed Web of Science ®Google Scholar
• Majnemer A, Shevell M, Law M, Birnbaum R, Chilingaryan G, Rosenbaum P, et al. Participation and enjoyment of leisure activities in school‐aged children with cerebral palsy. Developmental Medicine & Child Neurology 2008;50(10):751–758.
   PubMed Web of Science ®Google Scholar
• Raghavendra P, Virgo R, Olsson C, Connell T, Lane AE. Activity participation of children with complex communication needs, physical disabilities and typically-developing peers. Developmental Neurorehabilitation 2011;14(3):145–155.
   PubMed Web of Science ®Google Scholar
• Lancioni GE, Singh NN. Assistive technologies for people with diverse abilities. New York: Springer; 2014.
   Google Scholar
• Chantry J, Dunford C. How do computer assistive technologies enhance participation in childhood occupations for children with multiple and complex disabilities? A review of the current literature. British Journal of Occupational Therapy 2010;73(8):351–365.
   Web of Science ®Google Scholar
• Fager S, Beukelman DR, Fried-Oken M, Jakobs T, Baker J. Access interface strategies. Assistive Technology 2012;24(1):25–33.
   Web of Science ®Google Scholar
• Majaranta P, Aoki H, Donegan M, Hansen DW, Hansen JP, Hyrskykari A, et al. Gaze interaction and applications of eye tracking: advances in assistive technologies. Hershey: Medical Information Science Reference; 2012.
   Google Scholar
• Donegan M, Morris JD, Corno F, Signorile I, Chió A, Pasian V, et al. Understanding users and their needs. Universal Access in the Information Society 2009;8(4):259–275.
   Web of Science ®Google Scholar
• Donegan M. Participatory design: the story of Jayne and other complex cases. In Majaranta P, Aoki H, Donegan M, Hansen DW, Hansen JP, Hyrskykari A, et al. (Eds.). Gaze interaction and applications of eye tracking: advances in assistive technologies (pp. 55–61). Hershey: Medical Information Science Reference; 2012.
   Google Scholar
• Hornof AJ, Cavender A. EyeDraw: enabling children with severe motor impairments to draw with their eyes. Conference on Human Factors in Computing Systems 2005; New York: ACM; 2005 (pp. 161–170).
   Google Scholar
• Lariviere JA. Eye tracking: eye-gaze technology. In Soderback I (Ed.). International handbook of occupational therapy interventions (pp. 339–362). New York: Springer; 2014.
   Google Scholar
• van Niekerk K, Tönsing K. Eye gaze technology: a south African perspective. Disability and Rehabilitation: Assistive Technology 2015;10(4):340–346.
   PubMed Web of Science ®Google Scholar
• Clarke M, Price K. Augmentative and alternative communication for children with cerebral palsy. Paediatrics and Child Health 2012;22(9):367–371.
   Google Scholar
• Himmelmann K, Lindh K, Hidecker MJC. Communication ability in cerebral palsy: a study from the CP register of western Sweden. European Journal of Paediatric Neurology 2013;17(6):568–574.
   PubMed Web of Science ®Google Scholar
• Antle B, Mills W, Steele C, Kalnins I, Rossen B. An exploratory study of parents’ approaches to health promotion in families of adolescents with physical disabilities. Child: Care, Health and Development 2008;34(2):185–193.
   PubMed Web of Science ®Google Scholar
• Borgestig M, Sandqvist J, Parsons R, Falkmer T, Hemmingsson H. Eye gaze performance for children with severe physical impairments using gaze-based assistive technology – a longitudinal study. Assistive Technology 2016;28(2):93–102. doi:10.1080/10400435.2015.1092182.
   Google Scholar
• Borgestig M, Sandqvist J, Ahlsten G, Falkmer T, Hemmingsson H. Gaze-based assistive technology in daily activities in children with severe physical impairments – an intervention study. Developmental Neurorehabilitation 2016. Advanced online publication.
   Google Scholar
• Granlund M, Bjorck-Akesson E, Wilder J, Ylven R. AAC interventions for children in a family environment: implementing evidence in practice. Augmentative and Alternative Communication 2008;24(3):207–219. doi:10.1080/08990220802387935.
   PubMed Web of Science ®Google Scholar
• Gadamer HG. Truth and method. New York: Continuum Publishing Group; 2004.
   Google Scholar
• Kielhofner G. Model of human occupation: theory and application. 4th ed. Baltimore, MD: Lippincott Williams & Wilkins; 2008.
   Google Scholar
• Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology 1997;39(4):214–223.
   PubMed Web of Science ®Google Scholar
• Eliasson AC, Krumlinde-Sundholm L, Rosblad B, Beckung E, Arner M, Ohrvall AM, et al. The manual ability classification system (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Developmental Medicine and Child Neurology 2006;48(7):549–554.
   PubMed Web of Science ®Google Scholar
• Hidecker MJC, Paneth N, Rosenbaum PL, Kent RD, Lillie J, Eulenberg JB, et al. Developing and validating the communication function classification system for individuals with cerebral palsy. Developmental Medicine & Child Neurology 2011;53(8):704–710.
   PubMed Web of Science ®Google Scholar
• Polit DF, Beck CT. Nursing research: generating and assessing evidence for nursing practice. 9th ed. Philadelphia, PA: Lippincott Williams & Wilkins; 2008.
   Google Scholar
• Patton MQ. Qualitative research & evaluation methods. 3rd ed. London: Sage; 2002.
   Google Scholar
• Mattingly C. The paradox of hope: journeys through a clinical borderland. Los Angeles, CA: University of California Press; 2010.
   Google Scholar
• Lindstrand P, Brodin J, Lind L. Parental expectations from three different perspectives: what are they based on? International Journal of Rehabilitation Research 2002;25(4):261–269.
   PubMed Web of Science ®Google Scholar
• Nicolson A, Moir L, Millsteed J. The impact of switching on family caregivers of children with cerebral palsy. Disability and Rehabilitation: Assistive Technology 2013;8(2):169–275.
   PubMedGoogle Scholar
• Stempsey WE. Hope for health and health care. Medicine, Health Care and Philosophy 2015;18(1):41–49.
   PubMed Web of Science ®Google Scholar
• Karpov YV. Vygotsky for educators. New York: Cambridge University Press; 2014.
   Google Scholar