Experience of Engagement in a Somatosensory Discrimination Intervention for Children with Hemiplegic Cerebral Palsy: A Qualitative Investigation

References

• Oskoui M, Coutinho F, Dykeman J, Jetté N, Pringsheim T. An update on the prevalence of cerebral palsy: a systematic review and meta‐analysis. Dev Med Neurol. 2013;55(6):509–19. doi:10.1111/dmcn.12080.
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M. A report: the definition and classification of cerebral palsy. Dev Med Neurol. 2007;49:8–14. doi:10.1111/j.1469-8749.2007.tb12610.x.
   Web of Science ®Google Scholar
• Group. A. Australian cerebral palsy register report 2013 2013 [ Available from: https://www.cerebralpalsy.org.au/wp-content/uploads/2013/04/ACPR-Report_Web_2013.pdf.
   Google Scholar
• Majnemer A, Bourbonnais D, Frak V. The role of sensation for hand function in children with cerebral palsy. In: Eliasson AC, Burtner PA, editors. Improving hand function in children with cerebral palsy: theory, evidence and intervention. London, England: Mac Keith Press; 2008. p. 134–46.
   Google Scholar
• Auld ML, Boyd RN, Moseley GL, Ware RS, Johnston LM. Impact of tactile dysfunction on upper-limb motor performance in children with unilateral cerebral palsy. Arch Phys Med Rehabil. 2012;93(4):696–702. doi:10.1016/j.apmr.2011.10.025.
   PubMed Web of Science ®Google Scholar
• Dunn W, Griffith JW, Morrison MT, Tanquary J, Sabata D, Victorson D, Carey LM, Gershon RC. Somatosensation assessment using the NIH Toolbox. Neurology. 2013;80(11_Supplement_3):S41–S4. Supplement(3). doi:10.1212/WNL.0b013e3182872c54.
   PubMedGoogle Scholar
• Sakzewski L, Gordon A, Eliasson A-C. The state of the evidence for intensive upper limb therapy approaches for children with unilateral cerebral palsy. J Child Neurol. 2014;29(8):1077–90. doi:10.1177/0883073814533150.
   PubMed Web of Science ®Google Scholar
• Kuo H-C, Gordon AM, Henrionnet A, Hautfenne S, Friel KM, Bleyenheuft Y. The effects of intensive bimanual training with and without tactile training on tactile function in children with unilateral spastic cerebral palsy: a pilot study. Res Dev Disabil. 2016;49–50:129–39. doi:10.1016/j.ridd.2015.11.024.
   PubMed Web of Science ®Google Scholar
• Smorenburg ARP, Ledebt A, Deconinck FJA, Savelsbergh GJP. Practicing a matching movement with a mirror in individuals with spastic hemiplegia. Res Dev Disabil. 2013;34(9):2507–13. doi:10.1016/j.ridd.2013.05.001.
   PubMed Web of Science ®Google Scholar
• McLean B, Taylor S, Blair E, Valentine J, Carey L, Elliott C. Somatosensory discrimination intervention improves body position sense and motor performance in children with hemiplegic cerebral palsy. Am J Occup Ther. 2017;71:1–9. doi:10.5014/ajot.2016.024968.
   Web of Science ®Google Scholar
• Carey L, Macdonell R, Matyas TA. SENSe: study of the Effectiveness of neurorehabilitation on sensation: a randomized controlled trial. Neurorehabil Neural Repair. 2011;25(4):304–13. doi:10.1177/1545968310397705.
   PubMed Web of Science ®Google Scholar
• Carey LM, Matyas TA, Oke LE. Sensory loss in stroke patients: effective training of tactile and proprioceptive discrimination. Arch Phys Med Rehabil. 1993;74:602–11.
   PubMed Web of Science ®Google Scholar
• Carey LM, Matyas TA. Training of somatosensory discrimination after stroke: facilitation of stimulus generalization. American J Phys Medicine Rehabil. 2005;84(6):428–42. doi:10.1097/01.PHM.0000159971.12096.7F.
   PubMed Web of Science ®Google Scholar
• Mastos M, Carey L Occupation-based outcomes associated with sensory retraining post-stroke. 21st Annual Scientific Meeting of the Stroke Society of Australasia; Melbourne (Australia): International Journal of Stroke; 2010. p. 1–45.
   Google Scholar
• O’Cathain A, Thomas KJ, Drabble SJ, Rudolph A, Hewison J. What can qualitative research do for randomised controlled trials? A systematic mapping review. BMJ Open. 2013;3(6):e002889.doi:10.1136/bmjopen-2013-002889.
   Web of Science ®Google Scholar
• Sandelowski M. Focus on qualitative methods: using qualitative methods in intervention studies. Res Nurs Health. 1996;19(4):359. doi:10.1002/(SICI)1098-240X(199608)19:4<359::AID-NUR9>3.0.CO;2-H.
   PubMed Web of Science ®Google Scholar
• Ziviani J, Poulsen AA, Cuskelly M. The art and science of motivation: a therapist’s guide to working with children. London, England: Jessica Kingsley Publishers; 2013.
   Google Scholar
• Poulsen AA, Ziviani J, Cuskelly M. Understanding motivation in the context of engaging children in therapy. In: Ziviani J, Poulsen AA, Cuskelly M, editors. The art and science of motivation: a therapist’s guide to working with children. London (UK): Jessica Kingsley Publishers; 2013. p. 23–58.
   Google Scholar
• Dosher BA, Han S, Lu Z-L. Perceptual learning and attention: reduction of object attention limitations with practice. Vision Res. 2010;50(4):402–15. doi:10.1016/j.visres.2009.09.010.
   PubMed Web of Science ®Google Scholar
• Deci EL, Ryan RM. Self-determination theory: a macrotheory of human motivation, development, and health. Can Psychol. 2008;49(3):182–85. doi:10.1037/a0012801.
   Web of Science ®Google Scholar
• Organization WH. International classification of functioning, disability and health: children & youth version. Geneva, Switzerland: World Health Organization; 2007.
   Google Scholar
• Shenton AK. Strategies for ensuring trustworthiness in qualitative research projects. Educ Inf. 2004;22(2):63–75. doi:10.3233/EFI-2004-22201.
   Google Scholar
• Guba EG, Lincoln YS. Fourth generation evaluation. Ys L, editor. Newbury Park (Calif.): Sage Publications; 1989.
   Google Scholar
• Denscombe M. The good research guide: for small-scale social research projects. Maidenhead, England: Open University Press/McGraw Hill Education; 2014.
   Google Scholar
• Lincoln YS, Guba EG. Naturalistic enquiry. Newbury Park (CA): Sage Publications; 1985.
   Google Scholar
• Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277. doi:10.1177/1049732305276687.
   PubMed Web of Science ®Google Scholar
• Eliasson AC, Krumlinde‐Sundholm L, Rösblad B, Beckung E, Arner M, Öhrvall AM, Rosenbaum P. The manual ability classification system (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Neurol. 2006;48(7):549–54. doi:10.1017/S0012162206001162.
   PubMed Web of Science ®Google Scholar
• Locke EA, Latham GP. Building a practically useful theory of goal setting and task motivation. Am Psychol. 2002;57:705–17.
   PubMed Web of Science ®Google Scholar
• Ziviani J, Ziviani J. Goal setting and motivation in therapy engaging children and parents. Gilmore R, Poulsen A, ed. London, England: Jessica Kingsley Publishers; 2015.
   Google Scholar
• Novak I, McIntyre S, Morgan C, Campbell L, Dark L, Morton N, Stumbles E, Wilson SA, Goldsmith S. A systematic review of interventions for children with cerebral palsy: state of the evidence. Dev Med Neurol. 2013;55(10):885–910. doi:10.1111/dmcn.12246.
   PubMed Web of Science ®Google Scholar
• Walmsley C, Taylor S, Parkins T, Carey L, Girdler S, Elliott C. What is the current practice of therapists in the measurement of somatosensation in children with cerebral palsy and other neurological disorders?. Australian Occupational Therapy Journal, 2018;65:89–97. 2017.doi:10.1111/1440-1630.12431.
   Google Scholar
• McLean B, Taylor S, Valentine J, Carey L, Elliott C. Somatosensory discrimination capacity of children with hemiplegic cerebral palsy. In: Preparation. 2017.
   Google Scholar
• Law M, Rosenbaum P, King G, King S, Burke-Gaffney J, Moning-Szkut T, Kertoy M, Pollock N, Viscardis L, Teplicky R. Family centred service sheet #1. In: Research CanChild Centre for Childhood Disability Research (CCfCD), Ontario, Canada, editor. McMaster University; 2003.
   Google Scholar
• Novak I. Parent experience of implementing effective home programs. Phys Occup Ther Pediatr. 2011;31(2):198–213. doi:10.3109/01942638.2010.533746.
   PubMed Web of Science ®Google Scholar
• Novak I, Cusick A, Lannin N, Novak I, Cusick A, Lannin N. Occupational therapy home programs for cerebral palsy: double-blind, randomized, controlled trial. Pediatrics. 2009;124(4):e606. doi:10.1542/peds.2009-0288.
   PubMed Web of Science ®Google Scholar
• Darrah J, Wiart L, Magill-Evans J, Ray L, Andersen J. Are family-centred principles, functional goal setting and transition planning evident in therapy services for children with cerebral palsy? Child Care, Health Dev. 2012;38(1):41. doi:10.1111/j.1365-2214.2010.01160.x.
   PubMed Web of Science ®Google Scholar
• Taylor S, McLean B, Falkmer T, Carey L, Girdler S, Elliott C, Blair E. Does somatosensation change with age in children and adolescents? A systematic review. Child Care Health Dev. 2016. doi:10.1111/cch.12375.
   Web of Science ®Google Scholar
• Novak I, Berry J. Home program intervention effectiveness evidence. Phys Occup Ther Pediatr. 2014;34(4):384–89. doi:10.3109/01942638.2014.964020.
   PubMed Web of Science ®Google Scholar
• Novak I, Morgan C, Adde L, Blackman J, Boyd RN, Brunstrom- Hernandez J, Cioni G, Damiano D, Darrah J, Eliasson AC, et al. Early, accurate diagnosis and early intervention in cerebral palsy: advances in diagnosis and treatment. JAMA Pediatr. 2017;171(9):897–907. doi:10.1001/jamapediatrics.2017.1689.
   PubMed Web of Science ®Google Scholar
• Gibson E,J, Pick A,D. An ecological approach to perceptual learning and development. New York (New York): Oxford University Press; 2000.
   Google Scholar
• Kopec JA, Esdaile JM. Bias in case-control studies. A review. J Epidemiol Community Health. 1990;44:179–86.
   PubMed Web of Science ®Google Scholar