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Research Article

An Evaluation of the Use of the Child and Adolescent Scale of Participation (CASP) to Measure Social Participation After Pediatric ABI in a Specialist Service in East Anglia

ORCID Icon, , , , , & show all
Pages 419-428 | Received 04 Dec 2022, Accepted 28 Dec 2023, Published online: 10 Jan 2024

References

  • Galvin J, Froude EH, McAleer J. Children’s participation in home, school and community life after acquired brain injury. Aust Occup Ther J. 2010;57(2):118–126. doi:10.1111/j.1440-1630.2009.00822.x.
  • World Health Organization. World Health Organization: international classification of functioning, disability, and health. ICF. Geneva: World Health Organization; 2001.
  • Bedell GM, Lash M. Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation. NRE. 2004;19(3):191–205. doi:10.3233/NRE-2004-19303.
  • Fletcher JM, Ewing-Cobbs L, Miner ME, Levin HS, Eisenberg HM. Behavioral changes after closed head injury in children. J Consult Clin Psych. 1990;58(1):93–98. doi:10.1037/0022-006X.58.1.93.
  • Ross KA, Dorris L, Mcmillan T. A systematic review of psychological interventions to alleviate cognitive and psychosocial problems in children with acquired brain injury. Dev Med Child Neurol. 2011;53(8):692–701. doi:10.1111/j.1469-8749.2011.03976.x.
  • Greenham M, Botchway E, Knight S, Bonyhady B, Tavender E, Scheinberg A, Anderson V, Muscara F. Predictors of participation and quality of life following major traumatic injuries in childhood: a systematic review. Disabil Rehabil. 2022;44(12):2591–607. doi:10.1080/09638288.2020.1849425.
  • Watson S, Gracey F. Assessment in paediatric acquired brain injury, in psychological therapy for paediatric acquired brain injury: innovations for children, young people and families. In J. Jim and E. Cole. Editors. Abingdon, UK: Routledge; 2020pp. 43–69 pp.
  • World Health Organization. International classification of functioning, disability, and health: children & youth version: iCF-CY. Geneva: World Health Organization; 2007.
  • De Kloet AJ, Berger MAM, Bedell GM, Catsman-Berrevoets CE, van Markus-Doornbosch F, Vliet Vlieland TPM. Psychometric evaluation of the Dutch language version of the child and family follow-up survey. Dev Neurorehabil. 2015;18(6):357–64. doi:10.3109/17518423.2013.850749.
  • Liebel M, Saadi I. Cultural variations in constructions of children’s participation. In: Children’s rights from below. Studies in childhood and youth. London: Palgrave Macmillan; 2012.
  • Law M, King G, Petrenchik T, Kertoy M, Anaby D. The Assessment of Preschool Children’s Participation: internal consistency and construct validity. Physical & Occupational Therapy In Pediatrics. 2012;32(3):272–287. doi:10.3109/01942638.2012.662584.
  • Van Tol E, Gorter JW, Dematteo C, Meester-Delver A. Participation outcomes for children with acquired brain injury: a narrative review. Brain Inj. 2011;25(13–14):1279–1287. doi:10.3109/02699052.2011.613089.
  • Thompson M, Elliott C, Willis C, Ward R, Falkmer M, Falkmer T, Gubbay A, Girdler S. Can, want and try: parents’ viewpoints regarding the participation of their child with an acquired brain injury. PloS ONE. 2016;11(7):e0157951. doi:10.1371/journal.pone.0157951.
  • Dunn DS, Ehde DM, Wegener ST. The functional principles as psychological lodestars: theoretical inspiration and empirical direction in rehabilitation psychology. Rehabil Psychol. 2016;61(1):1–6. doi:10.1037/rep0000082.
  • Resch C, Van Kruijsbergen M, Ketelaar M, Hurks P, Adair B, Imms C, De Kloet A, Piskur B, Van Heugten C. Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties. Develop Med Child Neuro. 2020;62(4):434–44. doi:10.1111/dmcn.14465.
  • Byard K, Gosling S. Reflections on outcome measures in child neuropsychological rehabilitation: a child-centred approach, in psychological therapy for paediatric acquired brain injury: innovations for children, young people and families. In J. Jim and E. Cole. Editors. Abgindon, UK: Routledge; 2020pp. 207–25 pp.
  • McCauley SR, Wilde EA, Anderson VA, Bedell G, Beers SR, Campbell TF, Chapman SB, Ewing-Cobbs L, Gerring JP, Gioia GA. et al. Recommendations for the Use of Common Outcome measures in pediatric traumatic brain injury research. J Neurotrauma. 2012;29(4):678–705. doi:10.1089/neu.2011.1838.
  • Thompson HJ, Vavilala MS, Rivara FP. Common data elements and Federal Interagency Traumatic Brain Injury Research Informatics System for TBI Research. Annu Rev Nurs Res. 2015;33(1):1–11. doi:10.1891/0739-6686.33.1.
  • Keetley R, Westwater-Wood S, Manning JC. Exploring participation after paediatric acquired brain injury. J Child Health Care. 2020;25(1):81–92. doi:10.1177/1367493520905673.
  • De Bock F, Bosle C, Graef C, Oepen J, Philippi H, Urschitz MS. Measuring social participation in children with chronic health conditions: validation and reference values of the child and adolescent scale of participation (CASP) in the German context. BMC Pediatr. 2019;19(1):1–13. doi:10.1186/s12887-019-1495-6.
  • McDougall J, Bedell G, Wright V. The youth report version of the child and adolescent scale of participation (CASP): assessment of psychometric properties and comparison with parent report. Child Care Health Dev. 2013;39(4):512–522. doi:10.1111/cch.12050.
  • Allonsius F, de Kloet A, Bedell G, van Markus-Doornbosch F, Rosema S, Meesters J, Vliet Vlieland T, van der Holst M. Participation restrictions among children and young adults with acquired brain injury in a pediatric outpatient rehabilitation cohort: the patients’ and parents’ perspective. Int J Environ Res Public Health. 2021;18(4):1625. doi:10.3390/ijerph18041625.
  • Gioia GA, Isquith PK, Guy SC, Kenworthy L. BRIEF: behavior rating inventory of executive function. Psychological Assessment Resources; 2000.
  • Goodman R. The strengths and difficulties questionnaire: a research note. J Child Psychol Psychiatry. 1997;38(5):581–586. doi:10.1111/j.1469-7610.1997.tb01545.x.
  • Varni MS, Kurtin P. PedsQL ™ 4. 0 : reliability and validity of the pediatric quality of life inventory ™ version 4. 0 Generic Core Scales in healthy and patient. In: Varni ,Seid Paul. editors. Kurtin. Lippincott Williams, in Medical Care; 2001. pp. 800–12.
  • Data Protection Act. Data Protection Act 2018. 2018; Available from: https://www.gov.uk/government/collections/data-protection-act-2018.
  • Bedell G. Further validation of the child and adolescent scale of participation (CASP). developmental neurorehabilitation. Dev Neurorehabil. 2009;12(5):342–351. doi:10.3109/17518420903087277.
  • Imms C, Granlund M, Wilson PH, Steenbergen B, Rosenbaum PL, Gordon AM. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2016;59(1):16–25. doi:10.1111/dmcn.13237.
  • Weintraub N, Rot I, Shoshani N, Pe’er J, Weintraub M. Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood & Cancer. 2011;56(4):590–594. doi:10.1002/pbc.22790.
  • Goodman R. Psychometric properties of the strengths and difficulties questionnaire. Am Acad Child Adolescent Psychiatr. 2001;40(11):1337–45. doi:10.1097/00004583-200111000-00015.
  • Limond J, Adlam ALR, Cormack M. A model for pediatric neurocognitive interventions: considering the role of development and maturation in rehabilitation planning, in clinical neuropsychologist. Clin Neuropsychol. 2014;28(2):181–198. doi:10.1080/13854046.2013.873083.
  • Department of Health and Social Care. Reference guide to consent for examination or treatment. Second edition ed. 2009.
  • National Health Service. Children and Young People - Consent To Treatment. London, UK: National Halth Service; 2022. [accessed 2023 Nov 1]. https://www.nhs.uk/conditions/consent-to-treatment/children/.
  • Marques DR, Gomes AA, Clemente V, Drake CL, Roth T, Morin CM, de Azevedo MHP. Typologies of individuals vulnerable to insomnia: a two-step cluster analysis. Sleep Biol Rhythms. 2021;19(1):33–44. doi:10.1007/s41105-020-00285-7.
  • Mooi E, Sarstedt M. A concise guide to market research: the process, data, and methods using IBM SPSS statistics. Berlin: Springer; 2014.
  • Tkaczynski A. Segmentation using two-step cluster analysis. In: Dietrich T, Rundle-Thiele S Kubacki K. editors Segmentation in social marketing. Berlin: Springer; 2017. pp. 109–25.
  • Béland S, Pichette F, Jolani S. Impact on Cronbach’s alpha of simple treatment methods for missing data. The Quantitative Methods For Psychology. 2016:57–73. doi:10.20982/tqmp.12.1.p057.
  • Arifin WN. Calculating the Cronbach’s alpha coefficients for measurement scales with “not applicable” option. 2018;1–8.
  • Coster W, BEDELL G, LAW M, KHETANI MA, TEPLICKY R, LILJENQUIST K, GLEASON K, KAO Y-C. Psychometric evaluation of the participation and environment measure for children and youth. Dev Med Child Neurol. 2011;53(11):1030–37. doi:10.1111/j.1469-8749.2011.04094.x.
  • Bedell GM. The child and adolescent scale of participation scoring guidelines. 2011.
  • McCarron RH, Watson S, Gracey F. What do kids with acquired brain injury want? Mapping neuropsychological rehabilitation goals to the International Classification of Functioning, Disability and Health. J Int Neuropsychol Soc. 2019;25(4):403–412. doi:10.1017/S1355617719000213.
  • Huisman M. Imputation of missing item responses: Some simple techniques. Qual Quant. 2000;34(4):331–351. doi:10.1023/A:1004782230065.