Current understanding of the factors influencing the functional independence of people with cerebral palsy: a review of the literature

References

• Andersson, C. and Mattsson, E. 2001. Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion, Dev. Med. Child Neurol., 43, 76–82.10.1017/S0012162201
   PubMed Web of Science ®Google Scholar
• Andrén, E. and Grimby, G. 2000. Dependence and perceived difficulty in activities of daily living in adults with cerebral palsy and spina bifida, Disabil. Rehabil., 22, 99–307.
   Web of Science ®Google Scholar
• Andrén, E. and Grimby, G. (2004a). Activity limitations in personal, domestic and vocational tasks: a study of adults with inborn and early acquired mobility disorders, Disabil. Rehabil., 26, 262–271.
   PubMed Web of Science ®Google Scholar
• Andrén, E. and Grimby, G. 2004b. Dependence in daily activities and life satisfaction in adult subjects with cerebral palsy or spina bifida: a follow-up study, Disabil. Rehabil., 26, 528–536.
   PubMed Web of Science ®Google Scholar
• Barlett, D. J. and Palisano, R. J. 2000. A multivariate model of determinants of motor change for children with cerebral palsy, Phys. Ther., 80, 598–614.
   PubMed Web of Science ®Google Scholar
• Bent, N., Jones, A., Molloy, I., Chamberlain, M. A. and Tennant, A. 2001. Factors determining participation in young adults with a physical disability: a pilot study, Clin. Rehabil., 15, 552–561.10.1191/026921501680425270
   PubMed Web of Science ®Google Scholar
• Bottos, M., Feliciangeli, A., Sciuto, L., Gericke, C. and Vianello, A. 2001. Functional status of adults with cerebral palsy and implications for treatment of children, Dev. Med. Child Neurol., 43, 516–528.10.1017/S0012162201000950
   PubMed Web of Science ®Google Scholar
• Cavallo, S., Feldman, D. E., Swaine, B. and Meshefedjian, G. 2009. Is parental coping associated with the level of function in children with physical disabilities? Child Care, Health Dev., 35, 33–40.10.1111/cch.2008.35.issue-1
   PubMed Web of Science ®Google Scholar
• Chiarello, L. A., Palisano, R. J., Maggs, J. M., Orlin, M. N., Almasri, N., Kang, L. J. and Chang, H. J. 2010. Family priorities for activity and participation of children and youth with cerebral palsy, Phys. Ther., 90, 1254–1264.10.2522/ptj.20090388
   PubMed Web of Science ®Google Scholar
• Depczyńska, B., Jóźwiak, M. and Dudziński, W. 2009. Mental impairment and functional status of children with cerebral palsy, Pol. J. Physiother., 9, 122–132.
   Google Scholar
• Donkervoort, M., Roebroeck, M., Wiegerink, D., van der Heijden-Maessen, H. and Stam, H. 2007. Determinants of functioning of adolescents and young adults with cerebral palsy, Disabil. Rehabil., 29, 453–463.
   PubMed Web of Science ®Google Scholar
• van der Dussen, L., Nieuwstraten, W., Roebroeck, M. and Stam, H. J. 2001. Functional level of young adults with cerebral palsy, Clin. Rehabil., 15, 84–91.10.1191/026921501670159475
   PubMed Web of Science ®Google Scholar
• Evans, P. M., Evans, S. J. W. and Alberman, E. 1990. Cerebral palsy: why we must plan for survival, Arch. Dis. Child., 65, 1329–1333.10.1136/adc.65.12.1329
   PubMed Web of Science ®Google Scholar
• Gonzalez - Heydrich, J., Dodds, A., Whitney, J., MacMillan, C., Waber, D., Faraone, S. V., Boyer, K., Mrakotsky, C., DeMaso, D., Bourgeous, B. and Biederman, J. 2007. Psychiatric disorders and behavioral characteristics of pediatric patients with both epilepsy and attention-deficit hyperactivity disorder, Epilepsy Behav., 10, 384–388.
   PubMed Web of Science ®Google Scholar
• Gooden-Ledbetter, M. J., Cole, M. T., Maher, J. K. and Condeluci, A. 2007. Self-efficacy and interdependence as predictors of life satisfaction for people with disabilities: Implications for independent living programs, J. Vocat. Rehabil., 27, 153–161.
   Google Scholar
• Gut, R. and Jabłoński, M. 2011. Issues in disability among adults with cerebral palsy, Pol. J. Public Health, 121, 242–247.
   Google Scholar
• Hammal, D., Jarvis, S. N. and Colver, A. F. 2004. Participation of children with cerebral palsy is influenced by where they live, Dev. Med. Child Neurol., 46, 292–298.
   PubMed Web of Science ®Google Scholar
• Harries, N., Kassirer, M., Amichai, T. and Lahat, E. 2004. Changes over years in gross motorfunction of 3-8 year old children with cerebral palsy: using the Gross Motor Function Measure (GMFM-88), Israel Med. Assoc. J., 6, 408–411.
   PubMed Web of Science ®Google Scholar
• Harrison, P. L. and Oakland, T. 2003. Adaptive behavior assessment – second edition manual (ABASII); San Antonio, TX, Harcourt Assessment.
   Google Scholar
• Hemming, K., Hutton, J. L. and Pharoah, P. O. 2006. Long-term survival for a cohort of adults with cerebral palsy, Dev. Med. Child Neurol., 48, 90–95.
   PubMed Web of Science ®Google Scholar
• Johnson, A. 2002. Prevalence and characteristics of children with cerebral palsy in Europe, Dev. Med. Child Neurol., 44, 633–640.
   PubMed Web of Science ®Google Scholar
• Kerr, C., McDowell, B. and McDonough, S. 2007. The relationship between gross motor function and participation restriction in children with cerebral palsy: an exploratory analysis, Child: Care, Health Dev., 33, 22–27.10.1111/cch.2007.33.issue-1
   PubMed Web of Science ®Google Scholar
• Kramer, J. M. and Hammel, J. 2011. ‘I do lots of things’: children with cerebral palsy’s competence for everyday activities, Int. J. Disabil., Dev. Ed., 58, 121–136.
   Web of Science ®Google Scholar
• Krigger, K. W. 2006. Cerebral palsy: an overview, Am. Fam. Physician, 73, 91–100.
   PubMed Web of Science ®Google Scholar
• Law, M., Darrah, J., Pollock, N., Rosenbaum, P., Russell, D., Walter, S. D., Petrenchik, T., Wilson, B. and Wright, V. 2007. Focus on function –a randomized controlled trial comparing two rehabilitation interventions for young children with cerebral palsy, BMC Pediatr., 7, 31.10.1186/1471-2431-7-31
   PubMedGoogle Scholar
• Lepage, C., Noreau, L. and Bernard, P. M. 1998. Association between characteristics of locomotion and accomplishment of life habits in children with cerebral palsy, Phys. Ther., 78, 458–469.
   PubMed Web of Science ®Google Scholar
• Longmuir, P. E. and Bar-Or, O. 2000. Factors influencing the physical activity levels of youths with physical and sensory disabilities, Adapt. Phys. Activ. Q., 17, 40–53.
   Web of Science ®Google Scholar
• Manikowska, F., Jóźwiak, M. and Idzior, M. 2009. Muscle spasticity and functional status of children with cerebral palsy, Child Neurol., 36, 31–35.
   Google Scholar
• Margre, A. L., Reis, M. G. and Morais, R. L. 2010. Caracterization of adults with cerebral palsy, Rev. Bras. Fisioter., 14, 417–425.
   PubMedGoogle Scholar
• Michalska, A., Boksa, E., Wendorff, I. and Wiktor, P. J. 2012. Quality of life of children and adolescents with cerebral palsy and intellectual disability, Child Neurol., 21, 35–44.
   Google Scholar
• Mihaylov, S. I., Jarvis, S. N., Colver, A. F. and Beresford, B. 2004. Identification and description of environmental factors that influence participation of children with cerebral palsy, Dev. Med. Child Neurol., 46, 299–304.
   PubMed Web of Science ®Google Scholar
• Natroshvili, I., Gabunia, M., Davituliani, K. and Tatishvili, S. 2005. Prognostic value of gross motor function measure to evaluate the severity of cerebral palsy, Georgian Med. News, 126, 45–48.
   PubMedGoogle Scholar
• Ohrvall, A. M., Eliasson, A. C., Löwing, K., Ödman, P. and Krumlinde-Sundholm, L. 2010. Self-care and mobility skills in children with cerebral palsy, related to their manual ability and gross motor function classifications, Dev. Med. Child Neurol., 52, 1048–1055.
   PubMed Web of Science ®Google Scholar
• Østensjø, S., Carlberg, E. B. and Vøllestad, N. K. 2003. Everyday functioning in young children with cerebral palsy: functioning skills, caregiver assistance and the modyfications of the environment. Dev. Med. Child Neurol., 45, 603–612.
   PubMed Web of Science ®Google Scholar
• Østensjø, S., Carlberg, E. B. and Vøllestad, N. K. 2004. Motor impairments in young children with cerebral palsy: relationship to gross motor function and everyday activities, Dev. Med. Child Neurol., 46, 580–589.
   PubMed Web of Science ®Google Scholar
• Østensjø, S., Carlberg, E. B. and Vøllestad, N. K. 2005. The use and impact of assistive devices and other environmental modifications on everyday activities and care in young children with cerebral palsy, Disabil. Rehabil., 27, 849–861.
   PubMed Web of Science ®Google Scholar
• Parkes, J., McCullough, N. and Madden, A. 2010. To what extent do children with cerebral palsy participate in everyday life situations? Health Soc. Care Comm., 18, 304–315.
   PubMed Web of Science ®Google Scholar
• Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., Dan, B. and Jacobsson, B. A. 2007. A report: the definition and classification of cerebral palsy April 2006, Dev. Med. Child Neurol. Suppl., 109, 8–14.
   PubMedGoogle Scholar
• Shikako-Thomas, K., Lach, L., Majnemer, A., Nimigon, J., Cameron, K. and Shevell, M. 2009. Quality of life from the perspective of adolescents with cerebral palsy: “I just think I’m a normal kid, I just happen to have a disability”, Qual. Life Res., 18, 825–832.10.1007/s11136-009-9501-3
   PubMed Web of Science ®Google Scholar
• Sienkiewicz, D., Kułak, W., Buzalska, A., Okurowska-Zawada, B. and Paszko-Patej, G. 2009. The functional scales are used in children with cerebral palsy, Child Neurol., 18, 73–77.
   Google Scholar
• van der Slot, W. M. A., Roebroeck, M. E., Landkroon, A. P., Terburg, M., van den Berg- Emons, R. J. G. and Stam, H. J. 2007. Everyday physical activity and community participation of adults with hemiplegic cerebral palsy, Disabil. Rehabil., 29, 179–189.
   PubMed Web of Science ®Google Scholar
• Stevenson, C. J., Pharoah, P. O. and Stevenson, R. 1997. Cerebral palsy – the transition from youth to adulthood, Dev. Med. Child Neurol., 39, 336–342.
   PubMed Web of Science ®Google Scholar
• Strauss, D., Brooks, J., Rosenbloom, L. and Shavelle, R. 2008. Life expectancy in cerebral palsy: an update, Dev. Med. Child Neurol., 50, 487–493.10.1111/dmcn.2008.50.issue-7
   PubMed Web of Science ®Google Scholar
• Tamm, M. and Skär, L. 2000. How i play: roles and relations in the play situations of children with restricted mobility, Scand. J. Occup. Ther., 7, 174–182.
   Google Scholar
• Tarsuslu, T. and Livanelioglu, A. 2010. Relationship between quality of life and functional status of young adults and adults with cerebral palsy, Disabil. Rehabil., 32, 1658–1665.
   PubMed Web of Science ®Google Scholar
• Tieman, B., Palisano, R. J., Gracely, E. J. and Rosenbaum, P. L. 2007. Variability in mobility of children with cerebral palsy, Pediatr. Phys. Ther.: Official Pub. Sec. Pediatr. Am. Phys. Ther. Assoc., 19, 180–187.10.1097/PEP.0b013e31811ec795
   PubMedGoogle Scholar
• Van Eck, M., Dallmeijer, A. J., van Lith, I. S., Voorman, J. M. and Becher, J. 2010. Manual ability and its relationship with daily activities in adolescents with cerebral palsy, J. Rehabil. Med.: Official J. UEMS Eur. Board Phys. Rehabil. Med., 42, 493–498.10.2340/16501977-0543
   Web of Science ®Google Scholar
• Van Eck, M., Dallmeijer, A. J., Voorman, J. M. and Becher, J. 2009. Longitudinal study of motor performance and its relation to motor capacity in children with cerebral palsy, Dev. Med. Child Neurol., 51, 303–310.
   PubMed Web of Science ®Google Scholar
• Voormann, J. M., Dallemijer, A. J., van Eck, M., Schuengel, C. and Becher, J. G. 2010. Social functioning and communication in children with cerebral palsy: association with disease characteristics and personal and environmental factors, Dev. Med. Child Neurol., 52, 441–447.
   PubMed Web of Science ®Google Scholar
• Winter, S., Autry, A. and Boyle, C. 2002. Trends in the prevalence of cerebral palsy in a population-based study, Pediatrics, 110, 1220–1225.10.1542/peds.110.6.1220
   PubMed Web of Science ®Google Scholar
• Wong, V., Chung, B., Hui, S., Fong, A., Lau, C., Law, B., Lo, K., Shum, T. and Wong, R. 2004. Cerebral palsy: correlation of risk factors and functional performance using the Functional Independence Measure for Children (WeeFIM), J. Child Neurol., 19, 887–893.
   PubMed Web of Science ®Google Scholar