The resilience of parents who have children with autism spectrum disorder in China: a social culture perspective

References

• Al-Farsi, O. A., Al-Farsi, Y. M., Al-Sharbati, M. M. and Al-Adawi, S. 2016. Stress, anxiety, and depression among parents of children with autism spectrum disorder in Oman: a case-control study. Neuropsychiatric disease and treatment, 12, 1943–1951.
   Google Scholar
• Baio, J., Wiggins, L., Christensen, D. L., et al. 2014. Prevalence of autism spectrum disorder among children aged 8 years. Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014. MMWR Surveill, 67, 1–23. (No. doi: https://doi.org/10.15585/mmwr.ss6706a1External
   Google Scholar
• Bayat, M. 2007. Evidence of resilience in families of children with ASD. Journal of Intellectual Disability Research, 51, 702–714.
   PubMed Web of Science ®Google Scholar
• Becvar, D. 2012. Handbook of family resilience. New York, NY: Springer.
   Google Scholar
• Berliner, B. A. and Benard, B. 1995. More than a message of hope: A district-level policymaker’s guide to understanding resiliency. Portland: Western Regional Center for Drug-Free Schools and Communities. ERIC Document ED 387 946.
   Google Scholar
• Bitsika, V., Sharpley, C. F. and Bell, R. 2013. The buffering effect of resilience upon stress, anxiety and depression in parents of a child with an autism spectrum disorder. Journal of Developmental and Physical Disabilities, 25, 533–543.
   Web of Science ®Google Scholar
• Boon, H. J., Cottrell, A., King, D., Stevenson, R. B. and Millar, J. 2012. Bronfenbrenner’s bioecological theory for modelling community resilience to natural disasters. Natural Hazards, 60, 381–408.
   Web of Science ®Google Scholar
• Brandtstädter, J. 1999b. Sources of resilience in the aging self. In: F. Blanchard-Fields and T. Hess, eds. Social cognition and aging. New York: Academic Press. pp. 123–141.
   Google Scholar
• Bronfenbrenner, U. 1986. Recent advances in research on the ecology of human development. Development as action in context. In: R. Silbereisen, K. Eyferth and G. Rudinger, eds., Development as action in context: Problem solving behavior and normal youth development. New York, NY: Springer, 287–308.
   Google Scholar
• Bronfenbrenner, U. and Ceci, S. J. 1994. Natureuture reconceptualized in developmental perspective: A bioecological model. Psychological Review, 101, 568–586.
   PubMed Web of Science ®Google Scholar
• Chasson, G. S., Harris, G. E. and Neely, W. J. 2007. Cost comparison of early intensive behavioral intervention and special education for children with autism. Journal of Child and Family Studies, 16, 401–413.
   Google Scholar
• Chen, Y. 2007. Research on resilience and related factors of parents with autism. Master’s thesis. Nanjing: Nanjing Normal University.
   Google Scholar
• Chen, Y., Pei, T. and Zhang, N. 2015. Resilience and mental health of parents with autism spectrum disorder. Chinese Journal Special Education, 22, 53–58.
   Google Scholar
• China Bureau of Statistics 2017. Report of 2017 national Economics and social development [online]. China Bureau of Statistics. Available from: http://www.stats.gov.cn/tjsj/zxfb/201802/t20180228_1585631.html
   Google Scholar
• Clark, E., Zhou, Z. and Du, L. 2019. Autism in China: Progress and challenges in addressing the needs of children and families. International Journal of School & Educational Psychology, 7, 135–146.
   Google Scholar
• Connor, K. M. and Davidson, J. R. T. 2003. Development of a new resilience scale: The Connor-Davidson resilience scale (cd-risc). Depression and Anxiety, 18, 76–82.
   PubMed Web of Science ®Google Scholar
• Daley, T. C., Singhal, N. and Krishnamurthy, V. 2013. Ethical considerations in conducting research on autism spectrum disorders in low and middle income countries. Journal of Autism and Developmental Disorders, 43, 2002–2014.
   PubMed Web of Science ®Google Scholar
• Dykens, E. M. and Lambert, W. 2013. Trajectories of diurnal cortisol in mothers of children with autism and other developmental disabilities: Relations to health and mental health. Journal of Autism and Developmental Disorders, 43, 2426–2434.
   PubMed Web of Science ®Google Scholar
• Ekas, N. V., Lickenbrock, D. M. and Whitman, T. L. 2010. Optimism, social support and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284.
   PubMed Web of Science ®Google Scholar
• Ekas, N.V., Timmons, L., Pruitt, M., Christine, G. and Michael, A. 2015. The power of positivity: Predictors of relationship satisfaction for parents of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 1997–2007.
   PubMed Web of Science ®Google Scholar
• Fairthorne, J., de Klerk, N. and Leonard, H. 2015. Health of mothers of children with intellectual disability or autism spectrum disorder: A review of the literature. Medical Research Archives, 3, 1–21.
   Google Scholar
• Fei, X. 2013. Rural China. Beijing: Zhonghua Bookstore.
   Google Scholar
• Freeth, M., Milne, E., Sheppard, E. and Ramachandran, R. 2014. Autism across cultures: Perspectives from non-western cultures and implications for research. In: F. R. Volkmar, R. Paul, S. J. Rogers, and K. A. Pelphrey, eds. Handbook of Autism and Pervasive Developmental Disorders, Fourth Edition. New Jersey: John Wiley and Sons, Inc.
   Google Scholar
• Giallo, R., Wood, C. E., Jellett, R. and Porter, R. 2013. Fatigue, wellbeing and parental self-efficacy in mothers of children with an autism spectrum disorder. Autism, 17, 465–480.
   PubMed Web of Science ®Google Scholar
• Gray, D. E. 2002. Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual & Developmental Disability, 27, 215–222.
   Web of Science ®Google Scholar
• Hall, H. R. and Graff, J. C. 2011. The relationships among adaptive behaviors of children with autism, family support, parenting stress and coping. Issues in Comprehensive Pediatric Nursing, 34, 4–25.
   PubMedGoogle Scholar
• Halstead, E. J., Griffith, G. M. and Hastings, R. P. 2018. Social support, coping and positive perceptions as potential protective factors for the well-being of mothers of children with intellectual and developmental disabilities. International Journal of Developmental Disabilities, 64, 288–289.
   Web of Science ®Google Scholar
• Hartley, S. L., Barker, E. T., Seltzer, M. M., Greenberg, J. S. and Floyd, F. J. 2011. Marital satisfaction and parenting experiences of mothers and fathers of adolescents and adults with autism. American Journal on Intellectual and Developmental Disabilities, 116, 81–95.
   PubMedGoogle Scholar
• Hastings, R. P. and Taunt, H. M. 2002. Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107, 116–127.
   PubMedGoogle Scholar
• Hayes, S. A. and Watson, S. L. 2013. The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642.
   PubMed Web of Science ®Google Scholar
• Hu, Y. 2014. Towards the real community: the thought research of Marx community (unpublished master’s thesis). Heilongjiang University.
   Google Scholar
• Iadarola, S., Pérez-Ramos, J., Smith, T. and Dozier, A. 2019. Understanding stress in parents of children with autism spectrum disorder: a focus on under-represented families. International Journal of Developmental Disabilities, 65, 20–11.
   PubMed Web of Science ®Google Scholar
• Kartini, I., Kim, C., Kummar, A. S., Sang-Ah, P. M. and Golden, K. J. 2018. Parenting stress and resilience in parents of children with autism spectrum disorder (ASD) in southeast Asia: a systematic review. Frontiers in Psychology, 9, 280–288.
   PubMed Web of Science ®Google Scholar
• King, G., Baxter, D., Rosenbaum, P., Zwaigenbaum, L. and Bates, A. 2009. Belief systems of families of children with autism spectrum disorders or down syndrome. Focus on Autism and Other Developmental Disabilities, 24, 50–64.
   Web of Science ®Google Scholar
• Lecavalier, L., Leone, S. and Wiltz, J. 2006. The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.
   PubMed Web of Science ®Google Scholar
• Lee, J. K. and Chiang, H. M. 2018. Parenting stress in South Korean mothers of adolescent children with autism spectrum disorder. International Journal of Developmental Disabilities, 64, 120–128.
   Web of Science ®Google Scholar
• Li, J., Wang, W. and Shi, J. 2003. Positive psychology: a new research direction. Journal of Progress in Psychological Science, 11, 321–327.
   Google Scholar
• Lincoln, Y. S. and Guba, E. G. 1985. The only generalization is: there is no generalization. In: Y. S. Lincoln and E. G. Guba, eds., Naturalistic inquiry. London: Sage, 110–128.
   Google Scholar
• Liu, J. and Meng, H. 2009. On Brownfen Brenner’s ecosystem theory of developmental psychology. Chinese Journal of Health Psychology, 17, 250–252.
   Google Scholar
• Liu, J. J. W., Reed, M. and Girard, T. A. 2017. Advancing resilience: An integrative, multi-system model of resilience. Personality and Individual Differences, 111, 111–118.
   Web of Science ®Google Scholar
• Liu, W. 2012. Continuation and change of feedback model. Shanghai: Shanghai Academy of Social Sciences Press.
   Google Scholar
• Lord, C. and Bishop, S. L. 2010. Autism spectrum disorders: Diagnosis, prevalence and services for children and families. Social Policy Report, Vol. 24, No. 2. Society for Research in Child Development, 24, 3–25.
   Google Scholar
• Lovell, B., Moss, M. and Wetherell, M. A. 2012. With a little help from my friends: Psychological, endocrine and health corollaries of social support in parental caregivers of children with autism or ADHD. Research in Developmental Disabilities, 33, 682–687.
   PubMed Web of Science ®Google Scholar
• Luo, M., Huang, X. and Su, D. 2010. Influence of Confucian culture on current mental health service practice in China. Journal of Progress in Psychological Science, 18, 1481–1488.
   Google Scholar
• Luong, J., Yoder, M. K. and Canham, D. 2009. Southeast Asian parents raising a child with autism: A qualitative investigation of coping styles. The Journal of School Nursing, 25, 222–229.
   PubMed Web of Science ®Google Scholar
• Macdonald, E. E., Hastings, R. P. and Fitzsimons, E. 2010. Psychological acceptance mediates the impact of the behavior problems of children with intellectual disability on fathers’ psychological adjustment. Journal of Applied Research in Intellectual Disabilities, 23, 27–37.
   Web of Science ®Google Scholar
• Masten, A. S. and Ann, S. 2001. Ordinary magic: resilience processes in development. American Psychologist, 56, 227–238.
   PubMed Web of Science ®Google Scholar
• Masten, A. S. and Obradovic, J. 2008. Disaster preparation and recovery: lessons from research on resilience in human development. Ecology and Society, 13, 1–9.
   Web of Science ®Google Scholar
• McConachie, H. and Diggle, T. 2007. Parent implemented early intervention for young children with ASD spectrum disorder: a systematic review. Journal of Evaluation in Clinical Practice, 13, 120–129.
   PubMed Web of Science ®Google Scholar
• McCubbin, L. and McCubbin, H. 2005. Culture and ethnic identity in family resilience: dynamic processes in trauma and transformation of indigenous people. In: M. Unger, ed., Handbook for working with children and youth: pathways to resilience across cultures and contexts. Thousand Oaks, CA: Sage, 27–44.
   Google Scholar
• McGrath, J., Johnson, K., O'Hanlon, E., Garavan, H., Gallagher, L. and Leemans, A. 2013. White matter and visuospatial processing in autism: a constrained spherical deconvolution tractography study. Autism Research, 6, 307–319.
   PubMed Web of Science ®Google Scholar
• Miles, M. and Huberman, A. 1994. Focusing and bounding the collection of data. In: M. B. Miles and A. M. Huberman, eds, Qualitative data analysis: An expanded sourcebook. (2nd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Nelson, N. 2015. Parent to parent support for parents of children with ASD spectrum disorders: Perspectives of parents and program staff (Order No. 10126925). Available from ProQuest Dissertations and Theses Global A&I: The Humanities and Social Sciences Collection. (1809107279). Available from: http://search.proquest.com/docview/1809107279?accountid=8554
   Google Scholar
• Omar, A. F., Yahya, A. F., Marwan, A. S. and Samir, A. A. 2016. Stress, anxiety and depression among parents of children with autism spectrum disorder in Oman: a caseility on fathers. Neuropsychiatric Disease and Treatment, 12, 1943–1951.
   PubMed Web of Science ®Google Scholar
• Ooi, K. L., Ong, Y. S., Jacob, S. A. and Khan, T. M. 2016. A meta-synthesis on parenting a child with autism. Neuropsychiatric Disease and Treatment, 12, 745–762.
   PubMed Web of Science ®Google Scholar
• Osborne, L. A., McHugh, L., Saunders, J. and Reed, P. 2008. The effect of parenting behaviors on subsequent child behavior problems in autistic spectrum conditions. Research in Autism Spectrum Disorders, 2, 249–263.
   Web of Science ®Google Scholar
• Pastor-Cerezuela, G., Fernández-Andrés, M. I., Tárraga-Mínguez, R. and Navarro-Peña, J. M. 2016. Parental stress and ASD: Relationship with autism symptom severity, IQ and resilience. Focus on Autism and Other Developmental Disabilities, 31, 300–311.
   Web of Science ®Google Scholar
• Powers, A. B. 2005. Generating evidence through qualitative research. In: B. M. Melnyk and E. Fineout-Overholt, eds., Evidence-based practice in nursing and healthcare. Philadelphia, PA: Lippincott Williams and Wilkins, 282–-298.
   Google Scholar
• Rogers, S. J. and Vismara, L. A. 2008. Evidence-based comprehensive treatments for early autism. Journal of Clinical Child & Adolescent Psychology, 37, 8–38.
   PubMed Web of Science ®Google Scholar
• Rosa, E. M. and Tudge, J. 2013. Urie Bronfenbrenner’s theory of human development: Its evolution from ecology to bioecology. Journal of Family Theory & Review, 5, 243–258.
   Web of Science ®Google Scholar
• Shenzhen Autism Research Association 2013. Survey on the service status of Chinese persons with autistic spectrum disorders (South China). Beijing: Huaxia Publishing Press.
   Google Scholar
• Smith, J. A., Flowers, P. and Larkin, M. 2009. Interpretative phenomenological analysis: Theory, method and research.London: Sage.
   Google Scholar
• Strauss, A. and Corbin, J. 1990. Basics of qualitative research: Grounded theory procedures and techniques. Modern Language Journal, 77, 61–75.
   Google Scholar
• Sun, J. and Stewart, D. 2007. Development of population-based resilience measures in the primary school setting. Health Education, 107, 575–599.
   Google Scholar
• Sun, L. 2015. The deep structure of Chinese culture. Beijing: Citic Press.
   Google Scholar
• Tehee, E., Honan, R. and Hevey, D. 2009. Factors contributing to stress in parents of individuals with autistic spectrum disorders. Journal of Applied Research in Intellectual Disabilities, 22, 34–42.
   Web of Science ®Google Scholar
• Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A. and Berridge, D. M. 2011. A population-based investigation of behavioural and emotional problems and maternal mental health: Association with autism spectrum and intellectual disadvantage. Journal of Child Psychology and Psychiatry, 52, 91–99.
   PubMed Web of Science ®Google Scholar
• Waller, M. A. 2001. Resilience in ecosystemic context: evolution of the concept. American Journal of Orthopsychiatry, 71, 290–297.
   PubMed Web of Science ®Google Scholar
• Walsh, W. 2003. Family resilience: a framework for clinical practice. Family Process, 42, 1–18.
   PubMed Web of Science ®Google Scholar
• Weiss, J. A., Robinson, S., Fung, S., Tint, A., Chalmers, P. and Lunsky, Y. 2013. Family hardiness, social support and self-efficacy in mothers of individuals with autism spectrum disorders. Research in Autism Spectrum Disorders, 7, 1310–1317.
   Web of Science ®Google Scholar
• Weitlauf, A. S., Vehorn, A. C., Taylor, J. L. and Warren, Z. E. 2014. Relationship satisfaction, parenting stress and depression in mothers of children with autism. Autism, 18, 194–198.
   PubMed Web of Science ®Google Scholar
• Wu, X. K. and Xin, J. T. 2011. The management and analysis of qualitative data in quantitative studies: Use of N-Vivo software as an example. Taibei: Higher Education Press.
   Google Scholar
• Xu, Y. 2010. Research on mental resilience of parents of exceptional children. Master’s thesis. East China Normal University.
   Google Scholar
• Yin, R. 2003. Case study research design and methods. 3rd ed. London: Sage Publications.
   Google Scholar
• Zand, D. H., Braddock, B., Baig, W., Deasy, J. and Maxim, R. 2013. Role of pediatricians in fostering resilience in parents of children with autism spectrum disorders. The Journal of Pediatrics, 163, 1769–1771.
   PubMed Web of Science ®Google Scholar
• Zhang, H. 2012. Focus on local pension security culture. Chinese Social Security, 10, 28–29.
   Google Scholar
• Zhang, S. J. and Wang, X. L. 2017. A new perspective on the study of teacher resilience: Social ecosystem theory. Teacher Education Research, 29, 123–128.
   Google Scholar
• Zhang, X. H. and Zhang, X. M. 1998. Self-cultivation and self-cultivation. Wuhan: Hubei People’s Publishing House.
   Google Scholar
• Zhou, J. 2017. Study on family function and its influencing factors of children with autism spectrum disorder. Master’s thesis. Liaoning Normal University.
   Google Scholar