Variation in communication strategies in amyotrophic lateral sclerosis during a two-year follow-up

References

• Andersen, P. M., Abrahams, S., Borasio, G. D., de Carvalho, M., Chio, A., Van Damme, P., … Weber, M. (2012). EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS)-revised report of an EFNS task force. European Journal of Neurology, 19, 360–375. doi: 10.1111/j.1468-1331.2011.03501.x
   PubMed Web of Science ®Google Scholar
• Ball, L. J., Beukelman, D. R., Anderson, E., Bilyeu, D. V., Robertson, J., & Pattee, G. L. (2007). Duration of AAC technology use by persons with ALS. Journal of Medical Speech-Language Pathology, 15, 371–381.
   Google Scholar
• Ball, L. J., Beukelman, D. R., & Bardach, L. (2007b). Amyotrophic Lateral Sclerosis. In D. R. Beukelman, K. L. Garret, & K. M. Yorkston (Eds.), Augmentative communication strategies for adults with acute or chronic medical conditions (pp. 287–316). Baltimore: Brooks Publishing.
   Google Scholar
• Baxter, S., Enderby, P., Evans, P., & Judge, S. (2012). Barriers and facilitators to the use of high-technology augmentative and alternative communications devices: A systematic review and qualitative synthesis. International Journal of Language & Communication Disorders, 47, 115–129. doi: 10.1111/j.1460-6984.2011.00090.x
   PubMed Web of Science ®Google Scholar
• Beukelman, D., Fager, S., & Nordness, A. (2011). Communication support for people with ALS. Neurology Research International. doi:10.1155/2011/714693
   PubMedGoogle Scholar
• Beukelman, D. R., Yorkston, K. M., & Garret, K. L. (2007). An introduction to AAC services for adults with chronic medical conditions: Who, what, when, where and why’. In D. R. Beukelman, K. L. Garret, & K. M. Yorkston (Eds.), Augmentative communication strategies for adults with acute or chronic medical conditions (pp. 1–16). Baltimore: Brooks Publishing.
   Google Scholar
• Brooks, B. R., Miller, R. G., Swash, M., Munsat, T. L., & World Federation of Neurology Research Group on Motor Neuron Diseases. (2000). El Escorial revisited: Revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders, 1, 293–299. doi: 10.1080/146608200300079536
   PubMed Web of Science ®Google Scholar
• Brownlee, A., & Bruening, L. M. (2012). Methods of communication at end of life for the person with amyotrophic lateral sclerosis. Topics in Language Disorders, 32, 168–185. doi: 10.1097/TLD.0b013e31825616ef
   Web of Science ®Google Scholar
• Caligari, M., Godi, M., Guglielmetti, S., Franchignoni, F., & Nardone, A. (2013). Eye tracking communication devices in amyotrophic lateral sclerosis: Impact on disability and quality of life. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 14, 546–552. doi: 10.3109/21678421.2013.803576
   PubMed Web of Science ®Google Scholar
• Creer, S., Enderby, P., Judge, S., & John, A. (2016). Prevalence of people who could benefit from augmentative and alternative communication (AAC) in the UK: Determining the need. International Journal of Language and Communication Disorders, 51, 639–653. doi: 10.1111/1460-6984.12235
   PubMed Web of Science ®Google Scholar
• Duffy, J. R. (2013). Motor speech disorders: Substrates, differential diagnosis, and management (3rd ed.). St. Louis: Elsevier.
   Google Scholar
• Felgoise, S. H., Zaccheo, V., Duff, J., & Simmons, Z. (2015). Verbal communication impacts quality of life in patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 17, 179–183. doi: 10.3109/21678421.2015.1125499
   PubMed Web of Science ®Google Scholar
• Fried-Oken, M., Mooney, A., & Peters, B. (2015). Supporting communication for patients with neurodegenerative disease. NeuroRehabilitation, 37, 69–87. doi: 10.3233/NRE-151241
   PubMed Web of Science ®Google Scholar
• Geronimo, A., Simmons, Z., & Schiff, S. J. (2016). Performance predictors of brain–computer interfaces in patients with amyotrophic lateral sclerosis. Journal of Neural Engineering. doi:10.1088/1741-2560/13/2/026002
   PubMed Web of Science ®Google Scholar
• Hanson, E., Yorkston, K., M, K., & Britton, D. (2011). Dysarthria in amyotrophic lateral sclerosis: A systematic review of characteristics, speech treatment, and augmentative and alternative communication options. Journal of Medical Speech-Language Pathology, 19, 12–30.
   Google Scholar
• Hillel, A. D., Miller, R. M., Yorkston, K., McDonald, E., Norris, F. H., & Konikow, N. (1989). Amyotrophic lateral sclerosis severity scale. Neuroepidemiology, 8, 142–150. doi: 10.1159/000110176
   PubMed Web of Science ®Google Scholar
• Kiernan, M. C., Vucic, S., Cheah, B. C., Turner, M. R., Eisen, A., Hardiman, O., … Zoing, M. C. (2011). Amyotrophic lateral sclerosis. The Lancet, 377, 942–955. doi: 10.1016/S0140-6736(10)61156-7
   PubMed Web of Science ®Google Scholar
• Körner, S., Sieniawski, M., Kollewe, K., Rath, K. J., Krampfl, K., Zapf, A., … Petri, S. (2013). Speech therapy and communication device: impact on quality of life and mood in patients with amyotrophic lateral sclerosis. Amyotrophic Lateral sclerosis & Frontotemporal Degeneration, 14, 20–25. doi: 10.3109/17482968.2012.692382
   PubMed Web of Science ®Google Scholar
• Londral, A., Pinto, A., Pinto, S., Azevedo, L., & De Carvalho, M. (2015). Quality of life in amyotrophic lateral sclerosis patients and caregivers: Impact of assistive communication from early stages. Muscle and Nerve, 52, 933–941. doi: 10.1002/mus.24659
   PubMed Web of Science ®Google Scholar
• Makkonen, T. M., Ruottinen, H., Puhto, R., Helminen, M., & Palmio, J. (2017). Speech deterioration in ALS after manifestation of bulbar symptoms. Manuscript resubmitted for publication.
   Google Scholar
• Mathy, P., Yorkston, K. M., & Gutmann, M. L. (2000). AAC for individuals with amyotrophic lateral sclerosis. In D. R. Beukelman, K. M. Yorkston, & J. Reichle (Eds.), Augmentative and alternative communication for adults with acquired neurologic disorders (pp. 183–231). Baltimore: Brooks Publishing.
   Google Scholar
• McNaughton, D., Light, J., & Groszyk, L. (2001). “Don’t give up”: Employment experiences of individuals with amyotrophic lateral sclerosis who use augmentative and alternative communication. AAC: Augmentative and Alternative Communication, 17, 179–195.
   Google Scholar
• Miller, R. G., Jackson, C. E., Kasarskis, E. J., England, J. D., Forshew, D., Johnston, W., … Woolley, S. C. (2009). Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review). Neurology, 73, 1227–1233. doi: 10.1212/WNL.0b013e3181bc01a4
   PubMed Web of Science ®Google Scholar
• Murphy, J. (2004). “I prefer contact this close”: Perceptions of AAC by people with motor neurone disease and their communication partners. Augmentative and Alternative Communication, 20, 259–271. doi: 10.1080/07434610400005663
   Google Scholar
• Nishio, M., & Niimi, S. (2000). Changes over time in dysarthric patients with amyotrophic lateral sclerosis (ALS): A study of changes in speaking rate and maximum repetition rate (MRR). Clinical Linguistics & Phonetics, 14, 485–497. doi: 10.1080/026992000750020323
   Web of Science ®Google Scholar
• Phukan, J., Pender, N. P., & Hardiman, O. (2007). Cognitive impairment in amyotrophic lateral sclerosis. The Lancet Neurology, 6, 994–1003. doi: 10.1016/S1474-4422(07)70265-X
   PubMed Web of Science ®Google Scholar
• Shellikeri, S., Green, J. G., Kulkarni, M., Rong, P., Martino, R., Zinman, L., & Yunusova, Y. (2016). Speech movement measures as markers of Bulbar disease in amyotrophic lateral sclerosis. Journal of Speech Language and Hearing Research, 59, 887–899. doi: 10.1044/2016_JSLHR-S-15-0238
   PubMed Web of Science ®Google Scholar
• Simmons, Z. (2005). Management strategies for patients with amyotrophic lateral sclerosis from diagnosis through death. The Neurologist, 11(5), 257–270. doi: 10.1097/01.nrl.0000178758.30374.34
   PubMed Web of Science ®Google Scholar
• Taylor, L. J., Brown, R. G., Tsermentseli, S., Al-Chalabi, A., Shaw, C. E., Ellis, C. M., … Goldstein, L. H. (2013). Is language impairment more common than executive dysfunction in amyotrophic lateral sclerosis? Journal of Neurology, Neurosurgery, and Psychiatry, 84, 494–498. doi: 10.1136/jnnp-2012-303526
   PubMed Web of Science ®Google Scholar
• Tomik, B., & Guiloff, R. J. (2010). Dysarthria in amyotrophic lateral sclerosis: A review. Amyotrophic Lateral Sclerosis, 11, 4–15. doi: 10.3109/17482960802379004
   PubMed Web of Science ®Google Scholar
• Turner, M. R., Scaber, J., Goodfellow, J. A., Lord, M. E., Marsden, R., & Talbot, K. (2010). The diagnostic pathway and prognosis in bulbar-onset amyotrophic lateral sclerosis. Journal of the Neurological Sciences, 294, 81–85. doi: 10.1016/j.jns.2010.03.028
   PubMed Web of Science ®Google Scholar
• Watts, C. R., & Vanryckeghem, M. (2001). Laryngeal dysfunction in amyotrophic lateral sclerosis: A review and case report. BMC Ear, Nose and Throat Disorders, 1, 1. doi: 10.1186/1472-6815-1-1
   PubMedGoogle Scholar
• Yorkston, K. M., Miller, R. M. & Strand, E. A. (2004). Amyotrophic Lateral Sclerosis. In Management of speech and swallowing in degenerative diseases (2nd ed., pp. 1–83). Austin, TX: Pro-Ed.
   Google Scholar
• Yorkston, K. M., Strand, E., Miller, R., Hillel, A., & Smith, K. (1993). Speech deterioration in amyotrophic lateral sclerosis: Implications for the timing of intervention. Journal of Medical Speech-Language Pathology, 1, 35–46.
   Google Scholar
• Yunusova, Y., Graham, N. L., Shellikeri, S., Phuong, K., Kulkarni, M., Rochon, E., & Green, J. R. (2016). Profiling speech and pausing in amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD). PLoS one. doi: 10.1371/journal.pone.0147573
   Web of Science ®Google Scholar