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Articles

How Do Street-Level Research Workers Think About the Ethics of Doing Research “On the Ground” With Marginalized Target Populations?

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REFERENCES

  • Anderson, E. E., S. Solomon, E. Heitman, et al. 2012. Research ethics education for community-engaged research: A review and research agenda. Journal of Empirical Research on Human Research Ethics 7(2): 3–19.
  • Andrews, J. O., G. Felton, M. E. Wewers, and J. Heath. 2004. Use of community health workers in research with ethnic minority women. Journal of Nursing Scholarship 36(4): 358–365.
  • Berg, B. L., F. Sañudo, M. Hovell, C. Sipan, N. Kelley, and E. Blumberg. 2004. The use of indigenous interviewers in a study of Latino men who have sex with men: A research note. Sexuality and Culture 8(1): 87–103.
  • Chen, D. T., L. Jones, and L. Gelberg. 2006. Ethics of clinical research within a community-academic partnered participatory framework. Ethnicity and Disease 16(suppl. 1): S1-118–S1-135.
  • Cunningham, C. O., J. P. Sanchez, D. I. Heller, and N. L. Sohler. 2007. Assessment of a medical outreach program to improve access to HIV care among marginalized individuals. American Journal of Public Health 97(12): 1758–1761.
  • Cunningham-Williams, R. M., L. B. Cottler, W. M. Compton, et al. 1999. Reaching and enrolling drug users for HIV prevention: a multi-site analysis. Drug and Alcohol Dependence 54(1): 1–10.
  • Department of Health and Human Services. 2005. 42 CFR Parts 50 and 93: Public health service policies on research misconduct. Federal Register 70(94): 28370–28400.
  • Fisher, C. B., M. Oransky, M. Mahadevan, M. Singer, G. Mirhej, and D. Hodge. 2008. Marginalized populations and drug addiction research: Realism, mistrust, and misconception. IRB: Ethics and Human Research 30(3): 1–9.
  • Fisher, C. B., G. True, L. B. Alexander, and A. L. Fried. 2013. Moral stress, moral practice, and ethical climate in community-based drug-use research: Views from the front line. AJOB Primary Research 4(3): 27–38.
  • Fisher, J. A., and C. A. Kalbaugh. 2012. Altruism in clinical research: coordinators’ orientation to their professional roles. Nursing Outlook 60(3): 143–148.
  • Heimer, C. A. 2013. ‘Wicked’ ethics: Compliance work and the practice of ethics in HIV research. Social Science and Medicine 98: 371–378.
  • Heimer, C. A., and J. Petty. 2010. Bureaucratic ethics: IRBs and the legal regulation of human subjects research. Annual Review of Law and Social Science 6(1): 601–626.
  • Hill, M. N., L. R. Bone, and A. M. Butz. 1996. Enhancing the role of community-health workers in research. Journal of Nursing Scholarship 28(3): 221–226.
  • Horsburgh, D. 2003. Evaluation of qualitative research. Journal of Clinical Nursing 12(2): 307–312.
  • Hsieh, H. F., and S. E. Shannon. 2005. Three approaches to qualitative content analysis. Qualitative Health Research 15(9): 1277–1288.
  • Jameton, A. 1984. Nursing practice: The ethical issues. Englewood Cliffs, NJ: Prentice Hall.
  • Kingori, P. 2013. Experiencing everyday ethics in context: Frontline data collectors’ perspectives and practices of bioethics. Social Science and Medicine 98(100): 361–370.
  • Merritt M. W., A. B. Labrique, J. Katz, M. Rashid, K. P. West, Jr., and J. Petit. 2010. A field training guide for human subjects research ethics. PLoS Medicine 7(10): e1000349.
  • Molyneux, S., D. Kamuya, P. A. Madiega, T. Chantler, V. Angwenyi, and P. Geissler. 2013. Field workers at the interface. Developing World Bioethics 13(1): ii–iv.
  • Mosavel, M., R. Ahmed, D. Daniels, and C. Simon. 2011. Community researchers conducting health disparities research: Ethical and other insights from fieldwork journaling. Social Science and Medicine 73(1): 145–152.
  • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. 1979. The Belmont Report. Available at: fhttp://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html (accessed March 17, 2011).
  • Oransky, M., C. B. Fisher, M. Mahadevan, and M. Singer. 2009. Barriers and opportunities for recruitment for non-intervention studies on HIV risk: perspectives of street drug users. Substance Use and Abuse 44(11): 1642–1659.
  • Richman, K. A., L. B. Alexander, and G. True. 2012. Proximity, ethical dilemmas, and community research workers. AJOB Primary Research 3(4): 19–29.
  • Roche, B., A. Guta, and S. Flicker. 2010. Peer research in action I: Models of practice. The Wellesley Institute. Available at: http://www.wellesleyinstitute.com /wp-content /uploads /2011 /02 /Models_of_Practice_WEB.pdf
  • Sieber, J. E., and M. B. Tolich. 2012. Planning ethically responsible research (2nd ed.). Thousand Oaks, CA: Sage.
  • Terpstra, J., K. J. Coleman, G. Simon, and C. Nebeker. 2011. The role of community health workers (CHWs) in health promotion research: Ethical challenges and practical solutions. Health Promotion Practice 12(1): 86–93.
  • True, G., L. B. Alexander, and C. B. Fisher. 2012. Addressing ethical challenges in urban drug addiction research: Lessons from community research workers. Paper presented at the Quest for Research Excellence Conference, Washington, DC, March 15.
  • True, G., L. B. Alexander, and K. A. Richman. 2011. Misbehaviors of front-line research personnel and the integrity of community-based research. Journal of Empirical Research in Human Research Ethics 6(2): 3–12.
  • Ulrich, C. M., A. B. Hamric, and C. Grady. 2010. Moral distress: A growing problem in the health professions? Hastings Center Report 40(1): 20–22.

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