784
Views
9
CrossRef citations to date
0
Altmetric
Article

A gift from experience: co-production and co-design in stroke and self-management

ORCID Icon, , , &
Pages 98-118 | Received 11 May 2018, Accepted 12 Dec 2018, Published online: 16 Apr 2019

References

  • Amiri, T., A. Wagenfeld, and L. Reynolds. 2017. “User Wellbeing: An Entry Point for Collaboration between Occupational Therapy and Design.” Design for Health 1 (2): 187–193. doi:10.1080/24735132.2017.1386367.
  • Archer, B. 1995. “The Nature of Research.” Co-Design, January 1995, 6–13.
  • Bjögvinsson, E., P. Ehn, and P.-A. Hillgren. 2012. “Design Things and Design Thinking: Contemporary Participatory Design Challenges.” Design Issues 28 (3): 101–116. doi:10.1162/DESI_a_00165.
  • Cadilhac, D. A., M. F. Kilkenny, V. Srikanth, R. I. Lindley, E. Lalor, R. H. Osborne, and M. Batterbsy. 2016. “Do Cognitive, Language, or Physical Impairments Affect Participation in a Trial of Self-Management Programs for Stroke?” International Journal of Stroke 11 (1): 77–84. doi:10.1177/1747493015607522.
  • Cross, N. 2001. “Designerly Ways of Knowing: Design Discipline versus Design Science.” Design Issues 17 (3): 49–55. doi:10.1162/074793601750357196.
  • Duysburgh, P., and K. Slegers. 2015. “Reciprocity in Rapid Ethnography: Giving Back by Making the Small Things Count.” In: Abascal, J., Barbosa S., Fetter M., Gross T., Palanque P., Winckler M. (eds). Paper presented at Human–Computer Interaction – INTERACT 2015, 292–299. Lecture Notes in Computer Science, vol 9297. Springer, Cham.
  • Engelter, S. T., M. Gostynski, S. Papa, M. Frei, C. Born, V. Ajdacic-Gross, F. Gutzwiller, and P. A. Lyrer. 2006. “Epidemiology of Aphasia Attributable to First Ischemic Stroke.” Stroke 37 (6): 1379–1384. doi:10.1161/01.STR.0000221815.64093.8c.
  • Farr, M. 2018. “Power Dynamics and Collaborative Mechanisms in Co-Production and Co-Design Processes.” Critical Social Policy 38 (4): 623–644. doi:10.1177/0261018317747444.
  • Flesch, R. 1949. The Art of Readable Writing. New York: Harper & Row.
  • Forster, A., L. Brown, J. Smith, A. House, P. Knapp, J. J. Wright, and J. Young. 2012. “Information Provision for Stroke Patients and Their Caregivers.” Cochrane Database of Systematic Reviews 11: CD001919. doi:10.1002/14651858.CD001919.pub3.
  • Fricker, M. 2007. Epistemic Injustice: Power and the Ethics of Knowing. Oxford: Oxford University Press.
  • Holmlid, S. 2009. “Participative, Co-Operative, Emancipatory: From Participatory Design to Service Design. DeThinking Service – ReThinking Design.” Paper presented at the 1st Nordic Conference on Service Design and Service Innovation, Oslo, November 24–26.
  • Intercollegiate Stroke Working Party (ISWP). 2015. SSNAP Post-Acute Organisational Audit 2015: Phase 2 – Organisational Audit of Post-Acute Stroke Services Providers. London: Royal College of Physicians.
  • Intercollegiate Stroke Working Party (ISWP). 2016. National Clinical Guideline for Stroke. 5th ed. London: Royal College of Physicians.
  • Intercollegiate Stroke Working Party (ISWP). 2017. Sentinel Stroke National Audit Programme (SSNAP): Clinical Audit April 2017–July 2017. London: Royal College of Physicians.
  • INVOLVE 2013. Exploring the Impact of Public Involvement on the Quality of Research: Examples. Eastleigh: INVOLVE.
  • Jones, F., H. Pöstges, and L. Brimicombe. 2016. “Building Bridges between Healthcare Professionals, Patients and Families: A Coproduced and Integrated Approach to Self-Management Support in Stroke.” NeuroRehabilitation 39 (4): 471–480. doi:10.3233/NRE-161379.
  • Jones, F., A. Riazi, and M. Norris. 2013. “Self-Management after Stroke: Time for Some More Questions?” Disability and Rehabilitation 35 (3): 257–264. doi:10.3109/09638288.2012.691938.
  • Jones, F. 2006. “Strategies to Enhance Chronic Disease Self-Management: How Can We Apply This to Stroke?” Disability and Rehabilitation 28 (13–14): 841–847. doi:10.1080/09638280500534952.
  • Jones, F. 2004. “An Individual Approach to Stroke Recovery.” Physiotherapy Research International 9 (3): 147–148. doi:10.1002/pri.316.
  • Kelley, D., and T. Kelley. 2013. Creative Confidence. Unleashing the Creative Potential Within Us all. New York: Crown Business.
  • Kincaid, J. P., Fishburne, R. P. Jr., Rogers, R. L., and B. S. Chissom. 1975. Derivation of New Readability Formulas (Automated Readability Index, Fog Count and Flesch Reading Ease Formula) for Navy Enlisted Personnel. Millington, TN: Naval Technical Training Command Millington TN Research Branch.
  • Langley, J., D. Wolstenholme, and J. Cooke. 2018. “Collective Making’ as Knowledge Mobilisation: the Contribution of Participatory Design in the co-creation of Knowledge in Healthcare.” BMC Health Services Research 18: 585. doi:10.1186/s12913-018-3397-y.
  • Mauss, M. 2000. The Gift: The Form and Reason for Exchange in Archaic Societies. New York: W.W. Norton & Company.
  • McCleland, I., and J. Fulton Suri. 2005. “Involving People in Design.” In Evaluation of Human Work, edited by Wilson J. R. and Corlett N., 281–334. 3rd ed, Chap. 11. Boca Raton: CRC Press.
  • National Institute for Health and Care Excellence (NICE). 2013. Stroke Rehabilitation in Adults. Clinical Guideline 162. London: National Institute for Health and Care Excellence.
  • National Institute for Health Research (NIHR) Clinical Research Network (CRN) Stroke. 2014. Engaging People Who Have Aphasia. A Set of Resources for Stroke Researchers. London: National Institute for Health Research (NIHR) Clinical Research Network (CRN) Stroke.
  • Pearl, G., and M. Cruice. 2017. “Facilitating the Involvement of People with Aphasia in Stroke Research by Developing Communicatively Accessible Research Resources.” Topics in Language Disorders 37 (1): 67–84. doi:10.1097/TLD.0000000000000112.
  • Rose, T., L. E. Worrall, L. M. Hickson, and T. C. Hoffmann. 2012. “Guiding Principles for Printed Education Materials: Design Preferences of People with Aphasia.” International Journal of Speech-Language Pathology 14 (1): 11–23. doi:10.3109/17549507.2011.631583.
  • Rose, T. A., L. E. Worrall, L. M. Hickson, and T. C. Hoffmann. 2011. “Aphasia Friendly Written Health Information: Content and Design Characteristics.” International Journal of Speech-Language Pathology 13 (4): 335–347. doi:10.3109/17549507.2011.560396.
  • Sanders, L., and P. J. Stappers. 2014. “From Designing to Co-Designing to Collective Dreaming: Three Slices in Time.” Interactions 21 (6): 24–33. doi:10.1145/2670616.
  • Sanders, E. B. N., E. Brandt, and T. Binder. 2010. “A Framework for Organizing the Tools and Techniques of Participatory Design.” Paper presented at the 11th Biennial Participatory Design Conference, Sydney, November 29–December 03.
  • Social Care Institute for Excellence (SCIE). 2015. SCIE Guide 51: Co-Production in Social Care: What It Is and How To Do It. London: Social Care Institute for Excellence.
  • Star, S. L. 2010. “This Is Not a Boundary Object: Reflections on the Origin of a Concept.” Science, Technology, & Human Values 35 (5): 601–617. doi:10.1177/0162243910377624.
  • Star, S. L., and J. R. Griesemer. 1989. “Institutional Ecology, ‘Translations’ and Boundary Objects: Amateurs and Professionals in Berkeley's Museum of Vertebrate Zoology, 1907–39.” Social Studies of Science 19 (3): 387–420. doi:10.1177/030631289019003001.
  • van de Bovenkamp, H. M., and J. Dwarswaard. 2017. “The Complexity of Shaping Self-Management in Daily Practice.” Health Expectations 20 (5): 952–960. doi:10.1111/hex.12536.
  • World Health Organization (WHO). 2015. WHO Global Strategy on People-Centred and Integrated Health Services: Interim Report. Geneva: World Health Organization.
  • World Health Organization (WHO). 2013. Health Literacy. The Solid Facts. Geneva: World Health Organization.
  • Worrall, L., T. Rose, T. Howe, K. McKenna, and L. Hickson. 2007. “Developing an Evidence-Base for Accessibility for People with Aphasia.” Aphasiology 21 (1): 124–136. doi:10.1080/02687030600798352.
  • Wray, F., D. Clarke, and A. Forster. 2018. “Post-Stroke Self-Management Interventions: A Systematic Review of Effectiveness and Investigation of the Inclusion of Stroke Survivors with Aphasia.” Disability and Rehabilitation 40 (11): 1237–1251. doi:10.1080/09638288.2017.1294206.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.