Preferences in a Group of Patients with Cancer: A Grounded Theory

References

• Street RL Jr, Elwyn G, Epstein RM. Patient preferences and healthcare outcomes: an cological perspective. Expert Rev Pharmacoecon Outcomes Res. 2012;12(2):167–180. doi:10.1586/erp.12.3
   PubMed Web of Science ®Google Scholar
• Beauchamp TL, Childress JF. Principles of Biomedical Ethics. Vol. 6. New York: Oxford University Press; 2009.
   Google Scholar
• Guyatt GH, Haynes RB, Jaeschke RZ, et al. Users’ guides to the medical literature: XXV. Evidence-based medicine: principles for applying the users’ guides to patient care. Evidence-Based Medicine Working Group. JAMA. 2000;284(10):1290–1296. doi:10.1001/jama.284.10.1290
   PubMed Web of Science ®Google Scholar
• Mykhalovskiy E, Weir L. The problem of evidence-based medicine: directions for social science. Soc Sci Med. 2004;59(5):1059–1069.
   PubMed Web of Science ®Google Scholar
• FDA. Patient Preference Information – Voluntary Submission, Review in Premarket Approval Applications, Humanitarian Device Exemption Applications, and De Novo Requests, and Inclusion in Decision Summaries and Device Labeling: Guidance for Industry, Food and Drug Administration Staff, and Other Stakeholders. U.S. Department of Health and Human Services, Food and Drug Administration, Center for Devices and Radiological Health and Center for Biologics Evaluation and Research; 2016. Available from: https://www.fda.gov/media/92593/download. Accessed October 6, 2021.
   Google Scholar
• Berwick D, Fox DM. Evaluating the quality of medical care”: Donabedian’s classic article 50 years later. Milbank Q. 2016;94(2):237–241. doi:10.1111/1468-0009.12189
   PubMed Web of Science ®Google Scholar
• Basch E, Barbera L, Kerrigan CL, Velikova G. Implementation of patient-reported outcomes in routine medical care. Am Soc Clin Oncol Educ Book. 2018;38:122–134. doi:10.1200/EDBK_200383
   PubMedGoogle Scholar
• Pieterse AH, Stiggelbout AM. What are values, utilities, and preferences? A clarification in the context of decision making in health care, and an exploration of measurement issues. In: Diefenbach MA, Miller-Halegoua S, Bowen DJ, editors. Handbook of Health Decision Science. New York: Springer; 2016:377.
   Google Scholar
• Brennan PF, Strombom I. Improving healthcare by understanding patient preferences: the role of computer technology. J Am Med Inform Assoc. 1998;5(3):257–262.
   PubMed Web of Science ®Google Scholar
• Florek AG, Wang CJ, Armstrong AW. Treatment preferences and treatment satisfaction among psoriasis patients: a systematic review. Arch Dermatol Res. 2018;310(4):271–319. doi:10.1007/s00403-018-1808-x
   PubMed Web of Science ®Google Scholar
• Mah HC, Muthupalaniappen L, Chong WW. Perceived involvement and preferences in shared decision-making among patients with hypertension. Fam Pract. 2016;33(3):296–301. doi:10.1093/fampra/cmw012
   PubMed Web of Science ®Google Scholar
• Gebhardt C, Gorba C, Oechsle K, Vehling S, Koch U, Mehnert A. Breaking bad news to cancer patients: content, communication preferences and psychological distress. Psychother Psychosom Med Psychol. 2017;67(7):312–321. doi:10.1055/s-0043-113628
   Web of Science ®Google Scholar
• Swift JK, Callahan JL. The impact of client treatment preferences on outcome: a meta-analysis. J Clin Psychol. 2009;65(4):368.
   PubMed Web of Science ®Google Scholar
• Street RL Jr, Voigt B. Patient participation in deciding breast cancer treatment and subsequent quality of life. Med Decis Making. 1997;17(3):298–306.
   PubMed Web of Science ®Google Scholar
• Moffett JK, Torgerson D, Bell-Syer S, et al. Randomised controlled trial of exercise for low back pain: clinical outcomes, costs, and preferences. BMJ. 1999;319(7205):279–283.
   PubMed Web of Science ®Google Scholar
• Epstein RM, Peters E. Beyond information: exploring patients’ preferences. JAMA. 2009;302(2):195–197.
   PubMed Web of Science ®Google Scholar
• Fraenkel L, McGraw S. Participation in medical decision-making: the patients’ perspective. Med Decis Making. 2007;27(5):533–538.
   Web of Science ®Google Scholar
• Frankford D. Scientism and economics in the regulation of health care. J Health Polit Policy Law. 1994;19(4):773–799.
   PubMed Web of Science ®Google Scholar
• Gandjour A. Patient preferences: a Trojan horse for evidence-based medicine? Eur J Health Econ. 2018;19(1):167–172. doi:10.1007/s10198-017-0916-4
   Web of Science ®Google Scholar
• Epstein RM, Street RL Jr. Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering. Bethesda, MD: National Cancer Institute, NIH Publication No. 07-6225; 2007.
   Google Scholar
• Pulgarín-Vergara D, Castro-Arroyave DM. Doctor-patient relationship in healthcare institutions of Medellin, Colombia. Rev salud pública. 2019;21(4):1–6.
   Google Scholar
• Ministerio de Salud y Protección Social, Colombia. Encuesta Nacional de Evaluación de los Servicios de las EPS. Informe final. Bogotá: Proyectamos Colombia SAS; 2017 [National Survey of Evaluation of EPS Services. Final report. Bogotá: We project Colombia SAS; 2017]. Cited May 30, 2021. Available from: https://bit.ly/3gfd8N8. Accessed October 6, 2021. Spanish.
   Google Scholar
• CENDEX Centro de Estudios para el Desarrollo. Estudio de disponibilidad y distribución de la oferta de médicos especialistas, en servicios de alta y mediana complejidad en Colombia; 2013 [Study of availability and distribution of the supply of specialist doctors in high and medium complexity services in Colombia; 2013]. Cited May 30, 2021. Available from: https://www.minsalud.gov.co/salud/Documents/Observatorio%20Talento%20Humano%20en%20Salud/DisponibilidadDistribuci%C3%B3nMdEspecialistasCendex.pdf. Accessed October 6, 2021. Spanish.
   Google Scholar
• Dorsey ER, Ritzer G. The McDonaldization of medicine. JAMA Neurol. 2016;73:15–16.
   Web of Science ®Google Scholar
• Sackett DL, Rosenberg WM, Gray JA, Haynes RB, Richardson WS. Evidence based medicine: what it is and what it isn’t. BMJ. 1996;312(7023):71–72. doi:10.1136/bmj.312.7023.71
   PubMed Web of Science ®Google Scholar
• Haynes RB, Devereaux PJ, Guyatt GH. Clinical expertise in the era of evidence-based medicine and patient choice. ACP J Club. 2002;136(2):A11–A14.
   PubMedGoogle Scholar
• Djulbegovic B, Guyatt GH. Progress in evidence-based medicine: a quarter century on. Lancet. 2017;390(10092):415–423. doi:10.1016/S0140-6736(16)31592-6
   PubMed Web of Science ®Google Scholar
• Bastemeijer CM, Voogt L, van Ewijk JP, Hazelzet JA. What do patient values and preferences mean? A taxonomy based on a systematic review of qualitative papers. Patient Educ Couns. 2017;100(5):871–881. doi:10.1016/j.pec.2016.12.019
   PubMed Web of Science ®Google Scholar
• Mangin D, Stephen G, Bismah V, Risdon C. Making patient values visible in healthcare: a systematic review of tools to assess patient treatment priorities and preferences in the context of multimorbidity. BMJ Open. 2016;6(6):e010903. doi:10.1136/bmjopen-2015-010903
   PubMed Web of Science ®Google Scholar
• Kelly MP, Heath I, Howick J, Greenhalgh T. The importance of values in evidence-based medicine. BMC Med Ethics. 2015;16(1):69. doi:10.1186/s12910-015-0063-3
   PubMed Web of Science ®Google Scholar
• Strauss A, Corbin J. Bases de investigación cualitativa. Técnicas y procedimientos para desarrollar la teoría fundamentada [Basics of qualitative research. Techniques and procedures for developing grounded theory]. 2nd ed. Medellín: Universidad de Antioquia; 2012. Spanish.
   Google Scholar
• Pope C, Mays N, eds. Qualitative Research in Health Care. 4th ed. Wiley Blackwell; 2020.
   Google Scholar
• Castillo E, Vásquez ML. El rigor metodológico en la investigación cualitativa [Methodological rigor in qualitative research]. Colombia Médica. 2003;34(3):164–167. Spanish.
   Google Scholar
• Shiell A, Hawe P, Seymour J. Values and preferences are not necessarily the same. Health Econ. 1997;6(5):515–518. doi:10.1002/(sici)1099-1050(199709)6:5<515::aid-hec292>3.0.co;2-n
   Web of Science ®Google Scholar
• Warren C, McGraw AP, Van Boven L. Values and preferences: defining preference construction. Wiley Interdiscip Rev Cogn Sci. 2011;2(2):193–205. doi:10.1002/wcs.98
   PubMed Web of Science ®Google Scholar
• Collins R. Four Sociological Traditions. New York: Oxford University Press; 1994.
   Google Scholar
• Lupton D. Medicine as Culture: Illness, Disease and the Body in Western Societies. London: Thousand Oaks, New Delhi: SAGE Publications; 1994.
   Google Scholar
• Grisales-Naranjo LV, Arias-Valencia MM. Humanized care; the case of patients subjected to chemotherapy. Invest Educ Enferm. 2013;31(3):364–376.
   Google Scholar
• McIlfatrick S, Sullivan K, McKenna H, Parahoo K. Patients’ experiences of having chemotherapy in a day hospital setting. J Adv Nurs. 2007;59(3):264–273. doi:10.1111/j.1365-2648.2007.04324.x
   PubMed Web of Science ®Google Scholar
• Scheper-Hughes N, Lock MM. The mindful body: a prolegomenon to future work in medical anthropology. Med Anthropol Q. 1987;1(1):6–41.
   Google Scholar
• Canguilhem G. Writings on Medicine. New York: Fordham University Press; 2012.
   Google Scholar
• Ackerknecht E. Medicine at the Paris Hospital 1774-1848. Baltimore: Johns Hopkins; 1967.
   Google Scholar
• Rose N. Políticas de la vida: Biomedicina, poder y subjetividad en el siglo XXI [The politics of life itself: biomedicine, power, and subjectivity in the twenty-first century]. La Plata: UNIPE Editorial Universitaria; 2012. Spanish.
   Google Scholar
• Foucault M. The Birth of the Clinic: An Archaeology of Medical Perception. London: Tavistock; 1973.
   Google Scholar
• Matthews R. La introducción de los métodos estadísticos en la medicina de los siglos XIX y XX Ars Médica [The Introduction of Statistical Methods into Nineteenth and Twentieth Century Medicine]. Revista De Humanidades. 2004;4:185–203. Spanish.
   Google Scholar
• Engelhard T. The birth of the medical humanities and the rebirth of the Philosophy of Medicine: the vision of Edmund Pellegrino. J Med Philos. 1990;15(3):237–241.
   Web of Science ®Google Scholar
• Ramsey P, Farley MA, Jonsen AR, Wood MR, May WF. The Patient as Person: Explorations in Medical Ethics. 2nd ed. New Haven: Yale University Press; 2002.
   Google Scholar
• McCullough L. The professional medical ethics model of decision making under conditions of clinical uncertainty. Med Care Res Rev. 2013;70(1):141S–158S. doi:10.1177/1077558712461952
   Web of Science ®Google Scholar
• Palmer kelly E, Meara A, Hyer M, Payne N, Pawlik TM. Characterizing perceptions around the patient-oncologist relationship: a qualitative focus group analysis. J Cancer Educ. 2020;35(3):447–453. doi:10.1007/s13187-019-1481-6
   Web of Science ®Google Scholar
• Ishikawa H, Hashimoto H, Kiuchi T. The evolving concept of “patient-centeredness” in patient-physician communication research. Soc Sci Med. 2013;96:147–153. doi:10.1016/j.socscimed.2013.07.026
   PubMed Web of Science ®Google Scholar
• Stewart M, Brown JB, Weston WW, McWhinney IR, McWilliam CL, Freeman TR. Patient-Centered Medicine: Transforming the Clinical Method. 2nd ed. Oxford, UK: Radcliffe Medical Press; 2003.
   Google Scholar
• Platón. Diálogos: Leyes [Dialogues: laws] Madrid: Editorial Gredos; 1999.
   Google Scholar
• Azoulay E, Pochard F, Chevret S. Half the family members of intensive care unit patients do not want to share in the decisión-making process: a study in 78 French intensive care units. Crit Care Med. 2004;32:1832–1838.
   PubMed Web of Science ®Google Scholar
• Canguilhem G. Lo normal y lo patológico [The normal and the pathological]. México: Siglo XXI Editores; 2001. Spanish.
   Google Scholar
• Elwyin G, Tilburt J, Montori V. The ethical imperative for shared decision-making. Eur J Person Centered Healthc. 2013;129(1):131. doi:10.5750/ejpch.v1i1.645
   Google Scholar
• Cassell E. La persona como sujeto de la medicina [The person as the subject of medicine]. Cuadernos de la Fundación Victor Grifols i Lucas: Barcelona; 2009. Spanish.
   Google Scholar
• Tengland P. Empowerment: a goal or a means for health promotion?. Med Healthc Philosophy. 2006;19(2):197–207.
   Google Scholar
• Telfer C. Patient perspectives: exploring patient values and preferences. Can Fam Physician. 2018;64(1):10–11.
   Web of Science ®Google Scholar
• Epstein RM, Street RL Jr. Shared mind: communication, decision making, and autonomy in serious illness. Ann Fam Med. 2011;9(5):454–461. doi:10.1370/afm.1301
   PubMed Web of Science ®Google Scholar
• Timmermans S, Almeling R. Objectification, standardization, and commodification in health care: a conceptual readjustment. Soc Sci Med. 2009;69:21–27.
   PubMed Web of Science ®Google Scholar
• Shrestha A, Martin C, Burton M, Walters S, Collins K, Wyld L. Quality of life versus length of life considerations in cancer patients: a systematic literature review. Psychooncology. 2019;28(7):1367–1380. doi:10.1002/pon.5054
   PubMed Web of Science ®Google Scholar
• Hatamipour K, Rassouli M, Yaghmaie F, Zendedel K, Majd HA. Spiritual needs of cancer patients: a qualitative study. Indian J Palliat Care. 2015;21(1):61–67. doi:10.4103/0973-1075.150190
   PubMed Web of Science ®Google Scholar
• MacIntyre A. Tras la virtud [After virtue]. Barcelona: Crítica; 1984. Spanish.
   Google Scholar