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Miscellany

Understanding and Responding to HIV/AIDS Stigma and Disclosure: An International Challenge for Mental Health Nurses

, PhD, RN, FAAN & , PhD, RN
Pages 394-402 | Published online: 07 May 2010

REFERENCES

  • Abell, N., Rutledge, S. E., McCann, T. J., & Padmore, J. (2007). Examining HIV/AIDS provider stigma: Assessing regional concerns in the islands of the eastern Caribbean. AIDS Care, 19, 242–247.
  • Adebajo, S. B., Bamgbala, A. O., & Oyediran, M. A. (2003). Attitudes of health care providers to persons living with HIV/AIDS in Lagos State, Nigeria. African Journal of Reproductive Health, 7, 103–112.
  • Adeneye, A. K., Brieger, W. R., Mafe, M. A., Adeneye, A. A., Salami, K. K., Titiloye, M. A., (2006). Willingness to seek HIV testing and counseling among pregnant women attending antenatal clinics in Ogun State, Nigeria. International Quarterly of Health Education, 26, 337–353.
  • Akani, C. I., & Erhabor, O. (2006). Rate, pattern and barriers of HIV serostatus disclosure in a resource-limited setting in the Niger delta of Nigeria. Tropical Doctor, 36, 87–89.
  • Babakian, G. (2005). Positively abandoned: Stigma and discrimination against HIV positive mothers and their children in Russia. Retrieved September 24, 2009, from http://www.hrw.org/en/node/11632/
  • Bairan, A., Taylor, G. A., Blake, B. J., Akers, T., Sowell, R. L., & Mendiola, R. Jr. (2007). A model of HIV disclosure: Disclosure and types of social relationships. Journal of the American Academy of Nurse Practitioners, 19, 242–250.
  • Balabanova, Y., Coker, R., Atun, R. A., & Drobniewski, F. (2006). Stigma and HIV infection in Russia. AIDS Care, 18, 846–852.
  • Bean, J., Keller, L., Newburg, C., & Brown, M. (1989). Methods for the reduction of AIDS social anxiety and social stigma. AIDS Education and Prevention, 1, 194–221.
  • Blake, B. J., Jones Taylor, G. A., Reid, P., & Kosowski, M. (2008). Experiences of women in obtaining human immunodeficiency virus testing and healthcare services. Journal of the American Academy of Nurse Practitioners, 20, 40–46.
  • Bogart, L. M., Cowgill, B. O., Kennedy, D., Ryan, G., Murphy, D. A., Elijah, J., (2008). HIV-related stigma among people with HIV and their families: A qualitative analysis. AIDS and Behavior, 12, 244–254.
  • Botnick, M. R. (2000). Part 1: HIV as 'the line in the sand'. Journal of Homosexuality, 38, 39–76.
  • Boykin, K. (2005). Beyond the down low: Sex, lies, and denial in black America. New York: Carroll & Graf.
  • Brown, L., Macintyre, K., & Trujillo, L. (2003). Interventions to reduce HIV/AIDS stigma: What have we learned? AIDS Education and Prevention, 15, 49–69.
  • Burns, J. F. (1996, September 22). A wretched new class of infected untouchables. New York Times, p. 4.
  • Busza, J. R. (2001). Promoting the positive: Responses to stigma and discrimination in Southeast Asia. AIDS Care, 13, 441–456.
  • Campbell, C., Foulis, C. A., Maimane, S., & Sibiya, Z. (2005). The impact of social environments on the effectiveness of youth HIV prevention: A South African case study. AIDS Care, 17, 471–478.
  • Cao, X., Sullivan, S. G., Xu, J., Wu, Z., & The China CIPRA Project 2 Team. (2006). Understanding HIV-related stigma and discrimination in a “blameless’ population. AIDS Education and Prevention, 18, 518–528.
  • Centers for Disease Control. (1981a). Kaposi's sarcoma and pneumocystis pneumonia among homosexual men—New York City and California. Morbidity and Mortality Weekly Report, 30, 305–308.
  • Centers for Disease Control. (1981b). Pneumocystis pneumonia—Los Angeles. Morbidity and Mortality Weekly Report, 30, 250–252.
  • Centers for Disease Control. (2007). Prevention with positives—Strategy 3: Prevent new infections by working with people diagnosed with HIV and their partners. Retrieved September 21, 2009, from http://www.cdc.gov/hiv/topics/prev_prog/ahp/AHP-Strategy3.htm
  • Chandra, P. S., Deepthivarma, S., & Manjula, V. (2003). Disclosure of HIV infection in south India: Patterns, reasons and reactions. AIDS Care, 15, 207–215.
  • Coursen-Neff, Z. (2004). Future forsaken: Abuses against children affected by HIV/AIDS in India. Retrieved September 21, 2009, from http://hrw.org/reports/2004/india0704
  • Demarco, R., Lynch, M. M., & Board, R. (2002). Mothers who silence themselves: A concept with clinical implications for women living with HIV/AIDS and their children. Journal of Pediatric Nursing, 17, 89–95.
  • Dlamini, P. S., Kohi, T. W., Uys, L. R., Phetlhu, R. D., Chirwa, M. L., Naidoo, J. R., (2007). Verbal and physical abuse and neglect as manifestations of HIV/AIDS stigma in five African countries. Public Health Nursing, 24, 389–399.
  • Dorozynski, A. (1996). French bishops ease ban on condoms. British Medical Journal, 312, 462.
  • Elliott, R., & Gold, J. (2005). Protection against discrimination based on HIV/AIDS status in Canada: The legal framework. HIV/AIDS Policy & Law Review, 10, 20–31.
  • Feller, L., & Lemmer, J. (2007). Aspects of immunopathogenic mechanisms of HIV infection. Journal of the South African Dental Association, 62, 432–434, 436.
  • Foster, G., Makufa, C., Drew, R., Mashumba, S., & Kambeu, S. (1997). Perceptions of children and community members concerning the circumstances of orphans in rural Zimbabwe. AIDS Care, 9, 391–405.
  • Funck-Brentano, I., Dalban, C., Veber, F., Quartier, P., Hefez, S., Costagliola, D., (2005). Evaluation of a peer support group therapy for HIV-infected adolescents. AIDS, 19, 1501–1508.
  • Galanti, G. A. (2003). The Hispanic family and male-female relationships: An overview. Journal of Transcultural Nursing, 14, 180–185.
  • Galletly, C. L., & Pinkerton, S. D. (2004). Toward rational criminal HIV exposure laws. Journal of Law Medicine & Ethics, 32, 191–192, 327–337.
  • Gilmore, N., & Somerville, M. A. (1994). Stigmatization, scapegoating and discrimination in sexually transmitted diseases: Overcoming ‘them’ and ‘us’. Social Science and Medicine, 39, 1339–1358.
  • Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice-Hall.
  • Herek, G. M. (1999). AIDS and stigma. American Behavioral Scientist, 42, 1102–1112.
  • Herek, G. M., Capitanio, J. P., & Widaman, K. F. (2002). HIV-related stigma and knowledge in the United States: Prevalence and trends, 1991–1999. American Journal of Public Health, 92, 371–377.
  • Herek, G. M., Gillis, J. R., Glunt, E. K., Lewis, J., Welton, D., & Capitanio, J. D. (1998). Culturally sensitive AIDS educational videos for African American audiences: Effects of source, message, receiver, and context. American Journal of Community Psychology, 26, 705–743.
  • Hess, R. F., & McKinney, D. (2007). Fatalism and HIV/AIDS beliefs in rural Mali, West Africa. Journal of Nursing Scholarship, 39, 113–118.
  • Holzemer, W. L., & Uys, L. R. (2004). Managing AIDS stigma. Journal of Social Aspects of HIV/AIDS Research Alliance, 1, 165–174.
  • Human Rights Watch. (2005). The less they know, the better: Abstinence-only HIV/AIDS programs in Uganda. Human Rights Watch, 17 (4A). Retrieved September 24, 2009, from http://www.hrw.org/reports/2005/uganda0305/uganda0305.pdf
  • Hutchinson, P. L., Mahlalela, X., & Yukich, J. (2007). Mass media, stigma, and disclosure of HIV test results: Multilevel analysis in the Eastern Cape, South Africa. AIDS Education and Prevention, 19, 489–510.
  • Huy, T. Q., Johansson, A., & Long, N. H. (2007). Reasons for not reporting deaths: A qualitative study in rural Vietnam. World Health and Population, 9, 14–23.
  • Jones, E. E., Farina, A., Hastorf, A. H., Markus, H., Miller, D. T., Scott, R. A., (1984). Social stigma: The psychology of marked relationships. New York: W. H. Freeman.
  • Kalb, C., & Murr, A. (2006, May 15). Battling a black epidemic. Newsweek, 42–48.
  • Kaldjian, L. C., Jekel, J. F., & Friedland, G. (1998). End-of-life decisions in HIV-positive patients: The role of spiritual beliefs. AIDS, 12, 103–107.
  • Kohi, T. W., Makoae, L., Chirwa, M., Holzemer, W. L., Phetlhu, D. R., Uys, L., (2006). HIV and AIDS stigma violates human rights in five African countries. Nursing Ethics, 13, 404–415.
  • Kopelman, L. M. (2002). If HIV/AIDS is punishment, who is bad? Journal of Medicine and Philosophy, 27, 231–243.
  • Lambda Legal. (2007). Lambda Legal releases report on state of U.S. HIV stigma. AIDS Policy Law, 22, 5.
  • Lambda Legal. (2008). State criminal statutes on HIV transmission. Retrieved September 21, 2009, from http://www.lambdalegal.org/our-work/publications/general/state-criminal-statutes-hiv.html
  • Laryea, M., & Gien, L. (1993). The impact of HIV-positive diagnosis on the individual, Part 1: Stigma, rejection, and loneliness. Clinical Nursing Research, 2, 245–263.
  • Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
  • Li, L., Lin, C., Wu, Z., Wu, S., Rotheram-Borus, M. J., Detels, R., (2007). Stigmatization and shame: Consequences of caring for HIV/AIDS patients in China. AIDS Care, 19, 258–263.
  • Liski, E. A. (1998). Legal implications of study results showing continued failure to disclose HIV status to sexual partners. Retrieved September 21, 2009, from http://www.law.uh.edu/healthlaw/perspectives/HIVAIDS/980213LegalImp-lications.html
  • Mann, J., Tarantola, D. J. M., & Netter, T. W. (1992). AIDS in the world. Cambridge, MA: Harvard University Press.
  • Marino, P., Simoni, J. M., & Silverstein, L. B. (2007). Peer support to promote medication adherence among people living with HIV/AIDS: The benefits to peers. Social Work in Health Care, 45, 67–80.
  • McGovern, T. M. (2006). Models of resistance: “Victims” lead. Health and Human Rights, 9, 234–255.
  • McNeil, D. G., Jr. (1998, December 28). Neighbors kill an HIV-positive AIDS activist in South Africa. New York Times, Section A, p. 5
  • McNeil, D. G., Jr. (2007, August 1). Sex slaves returning home raises AIDS risks, study says. GlobalMD: AIDS Epidemic. Retrieved September 24, 2009, from http://www.globalmd.org/c/portal/layout?p_l_id=PUB.1.118
  • Mendenhall, E., Muzizi, L., Stephenson, R., Chomba, E., Ahmed, Y., Haworth, A. (2007). Property grabbing and will writing in Lusaka, Zambia: An examination of wills of HIV-infected cohabiting couples. AIDS Care, 19, 369–374.
  • Miramontes, H. M. (2000). The global challenges of the HIV/AIDS pandemic. Journal of the Association of Nurses in AIDS Care, 11, 11–12.
  • Moneyham, L., Hennessy, M., Sowell, R., Demi, A., Seals, B., & Mizuno, Y. (1998). The effectiveness of coping strategies used by HIV-seropositive women. Research in Nursing & Health, 21, 351–362.
  • Moneyham, L., Seals, B., Demi, A., Sowell, R., Cohen, L., & Guillory, J. (1996). Perceptions of stigma in women infected with HIV. AIDS Patient Care and STDs, 10, 162–167.
  • Moreno, C. L. (2007). The relationship between culture, gender, structural factors, abuse, trauma, and HIV/AIDS for Latinas. Qualitative Health Research, 17, 340–352.
  • Moser, K. M., Sowell, R. L., & Phillips, K. D. (2001). Issues of women dually diagnosed with HIV infection and substance use problems in the Carolinas. Issues in Mental Health Nursing, 22, 23–49.
  • Muthuswamy, V. (2005). Ethical issues in HIV/AIDS research. Indian Journal of Medical Research, 121, 601–610.
  • O'Leary, A., Kennedy, M., Pappas-DeLuca, K. A., Nkete, M., Beck, V., & Gallavotti, C. (2007). Association between exposure to an HIV story line in the Bold and the Beautiful and HIV-related stigma in Botswana. AIDS Education and Prevention, 19, 209–217.
  • Odebiyi, A. I. (1992). Conception of AIDS and its prevention among students in a Nigerian university. Journal of the Royal Society of Health, 112, 59–63.
  • Oorjitham, S. (1999). A spirited response: Malaysia's AIDS activists woo Muslim clerics. Asiaweek, p. 37.
  • Parker, R., & Aggleton, P. (2003). HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action. Social Science and Medicine, 57, 13–24.
  • Petros, G., Airhihenbuwa, C. O., Simbayi, L., Ramlagan, S., & Brown, B. (2006). HIV/AIDS and ‘othering’ in South Africa: The blame goes on. Culture, Health, & Sexuality, 8, 67–77.
  • Phillips, K. D., & Butler, M. (2005). Initiation of a health care ministry in a rural South Carolina church. Unpublished manuscript. University of South Carolina, Columbia.
  • Pittam, J., & Gallois, C. (1997). Language strategies in attribution of blame for HIV and AIDS. Communication Monographs, 64, 201–208.
  • Rao, K. S. (2002). Live and let live. Journal of the Indian Medical Association, 100, 712, 714, 716.
  • Romero, L., Wallerstein, N., Lucero, J., Fredine, H. G., Keefe, J., & O’Connell, J. (2006). Woman to woman: Coming together for positive change—using empowerment and popular education to prevent HIV in women. AIDS Education and Prevention, 18, 390–405.
  • Seeley, J., Grellier, R., & Barnett, T. (2004). Gender and HIV/AIDS impact mitigation in sub-Saharan Africa—recognising the constraints. Journal of Social Aspects of HIV/AIDS Research Alliance, 1, 87–98.
  • Shilts, R. (1987). And the band played on: Politics, people, and the AIDS epidemic. New York: St. Martin's Press.
  • Singer, M. (1994). The politics of AIDS. Introduction. Social Science and Medicine, 38, 1321–1324.
  • Sontag, S. (1998). AIDS and its metaphors. New York: Vintage.
  • Sowell, R. L., Holtz, C., & Velasquez, G. (2008). Bringing HIV/AIDS home to Mexico: Perspectives of migrant workers and their wives. Journal of the Association of Nurses in AIDS Care, 19, 267–282.
  • Sowell, R. L., Lowenstein, A., Moneyham, L., Demi, A., Mizuno, Y., & Seals, B. (1997). Resources, stigma, and patterns of disclosure in rural women with HIV infection. Public Health Nursing, 14, 302–312.
  • Sowell, R. L., & Phillips, K. D. (2008). Men soliciting men on the internet: New technology, old risk [Abstract]. Paper presented at the Twenty Fifth Annual Conference of the Association of Nurses in AIDS Tucson, AZ: Association of Nurses in AIDS Care.
  • Sowell, R. L., Phillips, K. D., Seals, B., Murdaugh, C., & Rush, C. (2002). Incidence and correlates of physical violence among HIV-infected women at risk for pregnancy in the southeastern United States. Journal of the Association of Nurses in AIDS Care, 13, 46–58.
  • Sowell, R. L., Seals, B., Moneyham, L., Guillory, J., Demi, A., & Cohen, L. (1996). Barriers to health-seeking behaviors for women infected with HIV. Nursing Connections, 9, 5–17.
  • Sowell, R. L., Seals, B. F., Mizuno, Y., & Moneyham, L. (1997). Experiences of violence in women infected with HIV [Abstract]. Proceedings of the Ninth International Nursing Research Congress, p. 141.
  • Sowell, R. L., Seals, B. F., Phillips, K. D., & Julious, C. H. (2003). Disclosure of HIV infection: How do women decide to tell? Health Education Research, 18, 32–44.
  • Spadacini, B. M. (2002). Overcoming AIDS stigma and media fatigue. Retrieved September 24, 2009, from http://www.globalhealth.org/reports/text.php3?id=89
  • Sukrung, K. (1999, August 3). Leading the way. Bangkok Post. We Care Weekly Series.
  • Timmons, S. M., & Sowell, R. L. (1999). Perceived HIV-related sexual risks and prevention practices of African American women in the southeastern United States. Health Care for Women International, 20, 579–591.
  • UNAIDS. (2003). UNAIDS report for 2003: Most deaths and new infections ever; some good news. AIDS Treatment News, 3.
  • UNAIDS. (2004). 2004 Report on the global AIDS epidemic (4th Global Report ed.). Geneva, Switzerland: Joint United Nations Programme on HIV/AIDS.
  • UNAIDS. (2008). Stigma and discrimination. Retrieved December 15, 2009, from http://www.unaids.org/en/PolicyAndPractice/StigmaDiscrim/default.asp
  • Ungphakorn, J., & Sittitrai, W. (1994). The Thai response to the HIV/AIDS epidemic. AIDS, 8(Suppl 2), S155–S163.
  • UNICEF. (2006). Africa's orphaned and vulnerable generations: Children affected by AIDS. New York: Author.
  • Wang, Y. G. (1997). AIDS, policy and bioethics: Ethical dilemmas facing China in HIV prevention: A report from China. Bioethics, 11, 323–327.
  • Watson, M. (1991). Harm reduction—Why do it? International Journal on Drug Policy, 2(5), 13–15.
  • Woodard, E. K., & Sowell, R. L. (2001). God in control: Women's perspectives on managing HIV infection. Clinical Nursing Research, 10, 233–250. doi: 10.1177/10547730122158905.
  • Zaccagnini, M. (2009a). HIV and AIDS in China. Retrieved September 24, 2009, from http://www.avert.org/aidschina.htm
  • Zaccagnini, M. (2009b). HIV and AIDS in Uganda. Retrieved September 24, 2009, from http://www.avert.org/aidsuganda.htm

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