“It's the Participation that Motivates Him”: Physical Activity Experiences of Youth with Cerebral Palsy and Their Parents

REFERENCES

• Allender, S., Cowburn, G., & Foster, C. (2006). Understanding participation in sport and physical activity among children and adults: A review of qualitative studies. Health Education Research, 21(6), 826–835. doi: 10.1093/her/cyl063.
   PubMed Web of Science ®Google Scholar
• Bamm, E. L., & Rosenbaum, P. (2008). Family-centred theory: Origins, development, barriers, and supports to implementation in rehabilitation medicine. Archives of Physical Medicine and Rehabilitation, 89(8), 1618–1624. doi: 10.1016/j.apmr.2007.12.034.
   PubMed Web of Science ®Google Scholar
• Bjornson, K. F., Belza, B., Kartin, D., Logsdon, R., McLaughlin, J., & Thompson, E. A. (2008). The relationship of physical activity to health status and quality of life in cerebral palsy. Pediatric Physical Therapy, 20(3), 247–253. doi: 10.1097/PEP.0b013e318181a959.
   PubMedGoogle Scholar
• Blair, E. (2010). Epidemiology of the cerebral palsies. Orthopedic Clinics of North America, 41(4), 441–455. doi: 10.1016/j.ocl.2010.06.004.
   PubMed Web of Science ®Google Scholar
• Brunton, L. K., & Bartlett, D. J. (2010). Description of exercise participation of adolescents with cerebral palsy across a 4-year period. Pediatric Physical Therapy, 22(2), 180–187. doi: 10.1097/PEP.0b013e3181db8aaa.
   PubMedGoogle Scholar
• Buffart, L. M., Westendorp, T., van den Berg-Emons, R. J., Stam, H. J., & Roebroeck, M. E. (2009). Perceived barriers to and facilitators of physical activity in young adults with childhood-onset physical disabilities. Journal of Rehabilitation Medicine, 41(11), 881–885. doi: 10.2340/16501977-0420.
   PubMed Web of Science ®Google Scholar
• Claassen, A. A., Gorter, J. W., Stewart, D., Verschuren, O., Galuppi, B. E., & Shimmell, L. J. (2011). Becoming and staying physically active in adolescents with cerebral palsy: protocol of a qualitative study of facilitators and barriers to physical activity. BMC Pediatr., 11(1). doi: 10.1186/1471-2431-11-1.
   PubMedGoogle Scholar
• Fowler, E. G., Kolobe, T. H. A., Damiano, D. L., Thorpe, D. E., Morgan, D. W., Brunstrom, J. E., (2007). Promotion of physical fitness and prevention of secondary conditions for children with cerebral palsy: Section on pediatrics research summit proceedings. Physical Therapy, 11(87), 1495–1510. doi: 10.2522/ptj.20060116.
   Google Scholar
• Gorter, J. W., Noorduyn, S. G., Obeid, J., & Timmons, B. W. (2012). Accelerometry: a feasible method to quantify physical activity in ambulatory and nonambulatory adolescents with cerebral palsy. Int J Pediatr., 2012, 329284. 6 pages, doi:10.1155/2012/329284.
   PubMedGoogle Scholar
• Gorter, J. W., Stewart, D., Woodbury Smith, M., King, G., Wright, M., Nguyen, T., (2013). Pathways toward positive psychosocial outcomes and mental health for youth with disabilities: A knowledge synthesis of information on developmental trajectories. Canadian Journal of Community Mental Health. Accepted for publication (February 2013).
   Google Scholar
• Lelieveld, O. T., Armbrust, W., Geertzen, J. H., de Graaf, I., van Leeuwen, M. A., Sauer, P. J., (2010). Promoting physical activity in children with juvenile idiopathic arthritis through an internet-based program: results of a pilot randomized controlled trial. Arthritis Care and Research (Hoboken), 62(5), 697–703. doi: 10.1002/acr.20085.
   PubMedGoogle Scholar
• Martin, A. A., Cotie, L. M., Timmons, B. W., Gorter, J. W., & MacDonald, M. J. (2012). Arterial structure and function in ambulatory adolescents with cerebral palsy are not different from healthy controls. International Journal of Pediatrics, 2012. 168209. 8 pages.
   Google Scholar
• Nieuwenhuijsen, C., van der Slot, W. M., Dallmeijer, A. J., Janssens, P. J., Stam, H. J., Roebroeck, M. E., (2011). Physical fitness, everyday physical activity, and fatigue in ambulatory adults with bilateral spastic cerebral palsy. Scandinavian Journal of Medicine and Science in Sports, 21(4), 535–542. doi: 10.1111/j.1600-0838.2009.01086.x.
   PubMed Web of Science ®Google Scholar
• Palisano, R. J., Rosenbaum, P., Bartlett, D., & Livingston, M. H. (2008). Content validity of the expanded and revised Gross Motor Function Classification System. Developmental Medicine and Child Neurology, 50(10), 744–750. doi: 10.1111/j.1469-8749.2008.03089.x.
   PubMed Web of Science ®Google Scholar
• QSR International Pty Ltd. (2010). NVivo qualitative data analysis software. Version 9.2.81.0.
   Google Scholar
• Rimmer, J. H., Riley, B., Wang, E., Rauworth, A., & Jurkowski, J. (2004). Physical activity participation among persons with disabilities: Barriers and facilitators. American Jounral of Preventive Medicine, 26(5), 419–425. doi: 10.1016/j.amepre.2004.02.002.
   PubMed Web of Science ®Google Scholar
• Rosenbaum, P., & Gorter, J. W. (2012). The ‘F-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457–63.
   PubMed Web of Science ®Google Scholar
• Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., (2007). A report: the definition and classification of cerebral palsy April 2006. Developmental Medicine and Child Neurology, 109(Suppl.), 8–14. Erratum in: Developmental Medicine and Child Neurology, 6(49), 480.
   Google Scholar
• Slaman, J., Roebroeck, M. E., van Meeteren, J., van der Slot, W. M., Reinders-Messelink, H. A., Lindeman, E., Stam, H. J., & van den Berg-Emons, R. J. (2010). Learn 2 Move 16-24: effectiveness of an intervention to stimulate physical activity and improve physical fitness of adolescents and young adults with spastic cerebral palsy; a randomized controlled trial. BMC Pediatr., 10(79). doi: 10.1186/1471-2431-10-79.
   PubMedGoogle Scholar
• Stewart, D. A., Lawless, J. J., Shimmell, L. J., Palisano, R. J., Freeman, M., Rosenbaum, P. L., Russell, D. J. (2012). Social participation of adolescents with cerebral palsy: trade-offs and choices. Phys Occup Ther Pediatr., 32(2), 167–79.
   PubMed Web of Science ®Google Scholar
• van Brussel, M., van der Net, J., Hulzebos, E., Helders, P. J., & Takken, T. (2011). The Utrecht approach to exercise in chronic childhood conditions: The decade in review. Pediatric Physical Therapy, 23(1), 2–14. doi: 10.1097/PEP.0b013e318208cb22.
   PubMed Web of Science ®Google Scholar
• van Eck, M., Dallmeijer, A. J., Beckerman, H., van den Hoven, P. A., Voorman, J. M., & Becher, J. G. (2008). Physical activity level and related factors in adolescents with cerebral palsy. Pediatric Exercise Science, 20(1), 95–106.
   PubMed Web of Science ®Google Scholar
• Van Wely, L., Becher, J. G., Reinders-Messelink, H. A., Lindeman, E., Verschuren, O., Verheijden, J., & Dallmeijer, A. J. (2010). LEARN 2 Move 7–12 years: a randomized controlled trial on the effects of a physical activity stimulation program in children with cerebral palsy. BMC Pediatr., 10(77). doi: 10.1186/1471-2431-10-77.
   PubMedGoogle Scholar
• Verschuren, O., Ketelaar, M., Gorter, J. W., Helders, P. J., Uiterwaal, C. S., & Takken, T. (2007). Exercise training program in children and adolescents with cerebral palsy: a randomized controlled trial. Archives of Pediatrics & Adolescent Medicine, 161(11), 1075–1081. doi: 10.1001/archpedi.161.4.356.
   PubMedGoogle Scholar
• Verschuren, O., Wiart, L., Hermans, D., & Ketelaar, M. (2012) Identification of facilitators and barriers to physical activity in children and adolescents with cerebral palsy. J Pediatr., 161(3), 488–94. doi: 10.1016/j.jpeds.2012.02.042.
   Google Scholar
• Wilding, C., & Whiteford, G. (2005). Phenomenological research: An exploration of conceptual, theoretical, and practical issues. OTJR: Occupation, Participation and Health, 25(3), 98–104.
   Web of Science ®Google Scholar
• World Health Organization. (2001). International classification of functioning, disability and health: ICF. Geneva: World Health Organization.
   Google Scholar