Living with brain injury in the community: Outcomes from a community-based self-management support (CB-SMS) programme in Australia

References

• Mazaux J, Masson F, Levin H, Alaoui P, Marette P, Barat M. Long term neuropsychological outcome and loss of social autonomy after traumatic brain injury. Archives of Physical Medicine and Rehabilitation 1997; 78: 1316–1320
   PubMed Web of Science ®Google Scholar
• Muenchberger H, Kendall E, Neal R. Identity change following brain injury: A dynamic process of contraction, expansion and balance. Brain Injury 2008; 22: 979–992
   PubMed Web of Science ®Google Scholar
• Rauch R, Ferry S. Social networks as support interventions following traumatic brain injury. NeuroRehabilitation 2001; 16: 11–16
   PubMed Web of Science ®Google Scholar
• Steadman-Pare D, Colantonio A, Ratcliff G, Chase S, Lee V. Factors associated with perceived quality of life many years after traumatic brain injury. Journal of Head Trauma Rehabilitation 2001; 16: 330–342
   PubMed Web of Science ®Google Scholar
• Sloan S, Winkler D, Callaway L. Community integration following severe traumatic brain injury: Outcomes and best practice. Brain Impairment 2004; 5: 12–29
   Google Scholar
• Ergh TC, Rappaport LJ, Coleman RD, Hanks RA. Predictors of caregiver and family functioning following traumatic brain injury: Social support moderates caregiver distress. Journal of Head Trauma Rehabilitation 2002; 17: 155–174
   PubMed Web of Science ®Google Scholar
• Hobfoll SE. Conservation of resources: A new attempt at conceptualizing stress. American Psychologist 1989; 44: 513–524
   PubMed Web of Science ®Google Scholar
• Kreutzer J, Marwitz J, Walker W, Sander A, Sherer M, Bogner J, Fraser R, Bushnik T. Moderating factors in return to work and job stability after traumatic brain injury. Journal of Head Trauma Rehabilitation 2003; 18: 128–138
   PubMed Web of Science ®Google Scholar
• Webb C, Wrigley M, Yoels W, Fine P. Explaining quality of life for persons with traumatic brain injuries 2 years after injury. Archives of Physical Medicine and Rehabilitation 1995; 76: 1113–1119
   PubMed Web of Science ®Google Scholar
• Jorge RE, Robinson RG, Moser D, Tateno A, Crespo-Facorro B, Arndt S. Major depression following traumatic brain injury. Archives General Psychiatry 2004; 61: 42–50
   PubMed Web of Science ®Google Scholar
• Ownsworth T, Oei T. Depression after traumatic brain injury: Conceptualisation and treatment considerations. Brain Injury 1995; 12: 735–751
   Google Scholar
• Rao V, Lyketsos C. Neuropsychiatric sequelae of traumatic brain injury. Psychosomatics 2000; 41: 95–103
   PubMed Web of Science ®Google Scholar
• Schalock RL, Bonham G. Measuring outcomes and managing results. Evaluation and Program Planning 2003; 26: 229–235
   Web of Science ®Google Scholar
• Hobfoll SE. The influence of culture, community and the nested-self in the stress process: Advancing conservation of resources theory. Journal of Applied Psychology 2001; 50: 337–396
   Web of Science ®Google Scholar
• Lazarus RS, Folkman S. Stress, appraisal, and coping. Springer, New York 1984
   Google Scholar
• Anson K, Ponsford J. Coping and emotional adjustment following traumatic brain injury. Journal of Head Trauma Rehabilitation 2006; 21: 248–259
   PubMed Web of Science ®Google Scholar
• Lorig K. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalisation. Medical Care 1999; 37: 5–14
   PubMed Web of Science ®Google Scholar
• Turner-Stokes L. Goal attainment scaling (GAS) in rehabilitation: A practical guide. Clinical Rehabilitation 2009; 23: 362–370
   PubMed Web of Science ®Google Scholar
• Kohut H. The restoration of the self. International Universities Press, New York 1977
   Google Scholar
• Lorig KR, Holman HR. Self-management education: History, definition, outcomes, and mechanisms. Annals of Behavioural Medicine 2003; 26: 1–7
   PubMed Web of Science ®Google Scholar
• Kendall E, Catalano T, Kuipers P, Posner N, Buys N, Charker J. Recovery following stroke: The role of self-management education. Social Science & Medicine 2007; 64: 735–746
   PubMed Web of Science ®Google Scholar
• Mitchell Funnell M. Peer-based behavioural strategies to improve chronic disease self-management and clinical outcomes: Evidence, logistics, evaluation considerations, and needs for future research. Family Practice 2010; 27(Suppl 1)i17–i22
   PubMed Web of Science ®Google Scholar
• Enderby P, Wade D. Community rehabilitation in the United Kingdom. Clinical Rehabilitation 2001; 15: 577–581, DOI: 10.1191/0269215501cr450oa PrimaryMainFeatures/3307.0.55.001)
   PubMed Web of Science ®Google Scholar
• Newsome R, Kendall E. Expansion rehabilitation: An empowering conceptual framework for rehabilitation following acquired disability. Australian Journal of Rehabilitation Counselling 1996; 2: 71–85
   Google Scholar
• Turner-Stokes L, Disler PB, Nair A, Wade DT. Multi-disciplinary rehabilitation for acquired brain injury in adults of working age. Cochrane Database Systematic Review 2005; 20: CD004170
   Google Scholar
• Tate R. Assessing support needs for people with traumatic brain injury: The care and needs scale (CANS). Brain Injury 2004; 18: 445–446, DOI 10.1080/02699050310001641183
   PubMed Web of Science ®Google Scholar
• Ellis G. Prevention, promotion or just survival? A consumer's perspective. Australasian Psychiatry 2003; 11: S65–S69
   Google Scholar
• Chesnut RM, Carney N, Maynard G, Mann NC. Summary report: Evidence for the effectiveness of rehabilitation for persons. Journal of Head Trauma Rehabilitation 1999; 14: 176–188
   PubMed Web of Science ®Google Scholar
• Farace E, Alves WM. Do women fare worse: A metaanalysis of gender differences in traumatic brain injury outcome. Journal of Neurosurgery 2000; 93: 539–545
   PubMed Web of Science ®Google Scholar
• Grosswasser Z. Gender and traumatic brain injury. Journal of Neurosurgery 2001; 94: 862–863
   PubMed Web of Science ®Google Scholar
• Kristman V, Manno M, Cote P. Loss to follow up in cohort studies: How much is too much?. European Journal of Epidemiology 2004; 19: 751–760
   PubMed Web of Science ®Google Scholar
• Cadsky OH, Crawford M, Lalonde C. Attrition from a male batterer treatment program: Client-treatment congruence and lifestyle instability. Violence and Victims 1996; 11: 51–64
   PubMedGoogle Scholar
• Lovibond SH, Lovibond PF. Manual for the depression anxiety stress scales, 2nd. Psychology Foundation, Sydney 1995
   Google Scholar
• Henry JD, Crawford JR. The short-form version of the depression anxiety stress scales (DASS): Construct validity and normative data in a large non-clinical sample. British Journal of Clinical Psychology 2005; 44: 227–239
   PubMed Web of Science ®Google Scholar
• Klein H, Weaver N. The effectiveness of an organisational level orientation training program in the socialisation of new hires. Personnel Psychology 2000; 53: 47–67
   Web of Science ®Google Scholar
• Klein H, Wesson M, Hollenbeck J, Wright P, Deshon R. The assessment of goal attainment: A measurement model meta-analysis. Organisational Behaviour and Human Decision Processes 2001; 85: 32–55
   PubMed Web of Science ®Google Scholar
• Hollenbeck J, Williams C, Klein H. An empirical examination of the antecedents of commitment to difficult goals. Journal of Applied Psychology 1989; 74: 18–23
   Web of Science ®Google Scholar
• Ware JE, Sherbourne CD. The MOS 36-item Short-Form Health Survey (SF-36): 1. Conceptual framework and item selection. Medical Care 1992; 30: 473–483
   PubMed Web of Science ®Google Scholar
• Lorig K, Chastain RL, Ung E, Shoor S, Holman HR. Development and evaluation of a scale to measure perceived self-efficacy in people with arthritis. Arthritis & Rheumatism 1989; 32: 37–45
   PubMed Web of Science ®Google Scholar
• Terry DJ. Stress, coping and adaptation to new parenthood. Journal of Social and Personal Relationships 1991; 8: 527–547
   Web of Science ®Google Scholar
• Kendall E, Terry D. Understanding the adjustment following traumatic brain injury: Is the goodness of fit coping hypothesis useful?. Social Science and Medicine 2008; 67: 1217–1224
   PubMed Web of Science ®Google Scholar
• Zimet GD, Dahlem NW, Zimet SG, Farley GK. The multidimensional scale of perceived social support. Journal of Personality Assessment 1988; 52: 30–41
   Web of Science ®Google Scholar
• Somerset M, Peters TJ, Sharp DJ, Campbell R. Factors that contribute to quality of life outcomes prioritised by people with multiple sclerosis. Quality of Life Research 2003; 12: 21–29
   PubMed Web of Science ®Google Scholar
• Bagiella E, Sloan R, Heitjan D. Mixed-effects models in psychophysiology. Psychophysiology (The International Journal of the Society for Psychophysiological Research) 2000; 37: 13–20
   PubMed Web of Science ®Google Scholar
• Hanneman R. Linear models: Repeated-measures analysis. Available online at: http://faculty.ucr.edu/~hanneman/linear_models/c8.html. 2004, accessed 4 November 2004.
   Google Scholar
• Saarinen F. Using mixed models in a cross-over study with repeated measurements within periods. Stockholm, Sweden: Stockholm University; 2004. Available online at: http://www.math.su.se/matstat/reports/serieb/2004/rep22/report.pdf, accessed 8 February 2005.
   Google Scholar
• Littell R, Stroup W, Freund R. SAS for linear models, 4th. Wiley, New York 2002
   Google Scholar
• Osborne R, Hawkins M, Sprangers M. Change of perspective: A measurable and desired outcome of chronic disease self management intervention programs that violates the premise of preintervention/postintervention assessment. Arthritis & Rheumatism 2006; 55: 458–465
   PubMed Web of Science ®Google Scholar
• Ladwig K, Martin-Mittag B, Formanek B, Dammann G. Gender differences of symptom reporting and medical health care utilization in the German population. European Journal of Epidemiology 2000; 16: 511–518
   PubMed Web of Science ®Google Scholar
• Kolakowsky-Hayner SA, Miner KD, Kreutzer JS. Long-term life quality and family needs after traumatic brain injury. Journal of Head Trauma Rehabilitation 2001; 16: 374–385
   PubMed Web of Science ®Google Scholar
• Carron AV, Prapavessis H. Self-presentation and group influence. Small Group Research 1997; 28: 500–516
   Web of Science ®Google Scholar
• Bradley V, Knoll J. Shifting paradigms in services to people with disabilities. Community rehabilitation services for people with disabilities, OC Karan, S Greenspan. Butterworth-Heinemann, Boston, MA 1995
   Google Scholar
• Rowlands A. Understanding social support and friendship: Implications for intervention after acquired brain injury. Brain Impairment 2003; 1: 151–164
   Google Scholar
• Gallant M. The influence of social support on chronic illness self-management: A review and directions for research. Health Education and Behaviour 2003; 30: 170
   PubMed Web of Science ®Google Scholar
• Kaplan HP, Liu X. Social movements as collective coping with spoiled personal identities: Intimations from a panel study of changes in the life course between adolescence and adulthood. Self, identity, and social movements, S Stryker, TJ Owens, RW White. University of Minnesota Press, Minneapolis, MN 2000; 215–238
   Google Scholar