Family needs in the chronic phase after severe brain injury in Denmark

References

• Finset A, Krogstad JM. Head injury-a public health problem. Oslo: J.W. Cappelens Forlag; 2002. p 14
   Google Scholar
• De Silva MJ, Roberts I, Perel P, Edwards P, Kenward MG, Fernandes J, Shakur H, Patel V. Patient outcome after traumatic brain injury in high-, middle- and low-income countries: Analysis of data on 8927 patients in 46 countries. International Journal of Epidemiology 2008;38:452–458
   PubMed Web of Science ®Google Scholar
• Bruns J, Hauser WA. The epidemiology of traumatic brain injury: A review. Epilepsia 2003;44(Suppl 1):2–10
   PubMedGoogle Scholar
• Greenwald B, Burnett D, Miller M. Congenital and acquired brain injury: Epidemiology and pathophysiology. Archives of Physical Medicine & Rehabilitation 2003;84:3–7
   PubMed Web of Science ®Google Scholar
• Benedictus MR, Spikman JM, van der Naalt J. Cognitive and behavioral impairment in traumatic brain injury related to outcome and return to work. Archives of Physical Medicine and Rehabilitation 2010;91:1436–14341
   PubMed Web of Science ®Google Scholar
• Arango-Lasprilla JC, Quijano MC, Aponte M, Cuervo MT, Nicholls E, Rogers HL, Kreutzer J. Family needs in caregivers of individuals with traumatic brain injury from Colombia, South America. Brain Injury 2010;24:1017–1026
   PubMed Web of Science ®Google Scholar
• Draper K, Ponsford J, Schönberger M. Psychosocial and emotional outcomes 10 years following traumatic brain injury. The Journal of Head Trauma Rehabilitation 2007;22:278–287
   PubMed Web of Science ®Google Scholar
• Langlois J, Rutland-Brown W, Wald MM. The epidemiology and impact of traumatic brain injury: A brief overview. The Journal of Head Trauma Rehabilitation 2006;21:375–378
   PubMed Web of Science ®Google Scholar
• Safaz I, Alaca R, Yasar E, Tok F, Yilmaz B. Medical complications, physical function and communication skills in patients with traumatic brain injury: A single centre 5-year experience. Brain Injury 2008;22:733–739
   PubMed Web of Science ®Google Scholar
• Greenspan AI, Wrigley JM, Kresnow M, Branche-Dorsey CM, Fine PR. Factors influencing failure to return to work due to traumatic brain injury. Brain Injury 1996;10:207–218
   PubMed Web of Science ®Google Scholar
• McAllister TW. Neurobehavioral sequelae of traumatic brain injury: Evaluation and management. World Psychiatry: Official Journal of the World Psychiatric Association (WPA) 2008;7:3–10
   PubMed Web of Science ®Google Scholar
• Stålnacke B. Community integration, social support and life satisfaction in relation to symptoms 3 years after mild traumatic brain injury. Brain Injury 2007;21:933–942
   PubMed Web of Science ®Google Scholar
• Anson K, Ponsford J. Evaluation of a coping skills group following traumatic brain injury. Brain Injury 2006;20:167–178
   PubMed Web of Science ®Google Scholar
• Shames J, Treger I, Ring H, Giaquinto S. Return to work following traumatic brain injury: Trends and challenges. Disability and Rehabilitation 2007;29:1387–1395
   PubMed Web of Science ®Google Scholar
• Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: A review of the literature. Journal of Clinical Nursing 2005;14:1004–1012
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Serio CD, Bergquist CS. Family needs after brain injury: A quantitative analysis. Head Trauma Rehabilitation 1994;9:104–115
   Web of Science ®Google Scholar
• Watanabe Y, Shiel A, McLellan DL, Kurihara M, Hayashi K. The impact of traumatic brain injury on family members living with patients: A preliminary study in Japan and the UK. Disability and Rehabilitation 2001;23:370–378
   PubMed Web of Science ®Google Scholar
• Riley GA. Stress and depression in family carers following traumatic brain injury: The influence of beliefs about difficult behaviours. Clinical Rehabilitation 2007;21:82–88
   PubMed Web of Science ®Google Scholar
• Moules S, Chandler BJ. A study of the health and social needs of carers of traumatically brain injured individuals served by one community rehabilitation team. Brain Injury 1999;13:983–993
   PubMed Web of Science ®Google Scholar
• Kolakowsky-Hayner SA, Miner KD, Kreutzer JS. Long-term life quality and family needs after traumatic brain injury. Journal of Head Trauma Rehabilitation 2001;16:374–385
   PubMed Web of Science ®Google Scholar
• Rotondi AJ, Sinkule J, Balzer K, Harris J. A qualitative needs assessment of persons who have experienced TBI and their primary family caregivers. Journal of Head Trauma Rehabilitation 2007;22:14–25
   PubMed Web of Science ®Google Scholar
• Bond AE, Rae C, Draeger L, Mandleco B, Donnelly M. Needs of family members of patients with severe traumatic brain injury: Implications for evidence-based practice. Critical Care Nurse 2003;23:63–72
   PubMedGoogle Scholar
• Witol AD, Sander AM, Kreutzer JS. A longitudinal analysis of family needs following traumatic brain injury. NeuroRehabilitation 1996;7:175–187
   PubMed Web of Science ®Google Scholar
• Leith KH, Phillips L, Sample PL. Exploring the service needs and experiences of persons with TBI and their families: The South Carolina experience. Brain Injury 2004;18:1191–1208
   PubMed Web of Science ®Google Scholar
• Serio CD, Kreutzer JS, Witol AD. Family needs after traumatic brain injury: A factor analytic study of the Family Needs Questionaire. Brain Injury 1997;11:1–9
   PubMed Web of Science ®Google Scholar
• Serio DC, Kreutzer JS, Gervasio A. Predicting family needs after brain injury: Implications for intervention. Head Trauma Rehabilitation 1995;10:32–45
   Web of Science ®Google Scholar
• Junqué C, Bruna O, Mataro M. Information needs of the traumatic brain injury patient’s family members regarding the consequences of the injury and associated perception of physical, cognitive, emotional and quality of life changes. Brain Injury 1997;11:251–258
   PubMed Web of Science ®Google Scholar
• Irvine B, Clarke E, Bidgood E. Healthcare Systems: The USA. London CIVITAS; 2013
   Google Scholar
• Davis K. The Danish health system through an American lens. Health Policy (Amsterdam, Netherlands) 2002;59:119–132
   PubMed Web of Science ®Google Scholar
• Norup A, Snipes DJ, Siert L, Mortensen EL, Perrin PB, Arango-Lasprilla JC. Longitudinal trajectories of health related quality of life in Danish family members of individuals with severe brain injury. Australian Journal of Rehabilitation Counselling 2013;19:71–83
   Google Scholar
• Norup A, Welling K-L, Qvist J, Siert L, Mortensen EL. Depression, anxiety and quality-of-life among relatives of patients with severe brain injury: The acute phase. Brain Injury 2012;26:1192–1200
   PubMed Web of Science ®Google Scholar
• Wilson JT, Teasdale GM, Hadley DM, Wiedmann KD, Lang D. Post-traumatic amnesia: Still a valuable yardstick. Journal of Neurology, Neurosurgery, and Psychiatry 1993;57:198–201
   Google Scholar
• Kreutzer JS, Marwitz J, West D. Family needs questionnaire, administration and scoring manual. PM&R Neuropsychology 1998
   Google Scholar
• Marwitz J. The family needs questionnaire. The Center for Outcome Measurement in Brain Injury [Internet]; 2010. Available online at: http://www.tbims.org/combi/fnq, accessed 30 October 2013
   Google Scholar
• Beaton D, Bombardier C, Guillemin F, Ferraz MB. Recommendations for the cross-cultural adaptation of health status measures. Richmond 1998. Available online at: http://med.umn.edu/ortho/prod/groups/med/@pub/@med/@ortho/documents/asset/med_asset_360072.pdf, accessed 30 October 2013
   Google Scholar
• Levin HS, O’Donnel VM, Grossman RG. The Galveston Orientation and Amnesia Test: A practical scale to assess cognition after head injury. The Journal of Nervous and Mental Disease 1979;167:675–684
   PubMed Web of Science ®Google Scholar
• Grant JS, Bean CA. Self-identified needs of informal caregivers of head injured adults. Family and Community Health 1992;15:49–58
   Google Scholar
• Doyle ST, Perrin PB, Díaz Sosa DM, Espinosa Jove IG, Lee GK, Arango-Lasprilla JC. Connecting family needs and TBI caregiver mental health in Mexico City, Mexico. Brain Injury 2013;9052:1–9
   Google Scholar
• Corrigan JD, Harrison-Felix C, Bogner J, Dijkers M, Terrill MS, Whiteneck G. Systematic bias in traumatic brain injury outcome studies because of loss to follow-up. Archives of Physical Medicine and Rehabilitation 2003;84:153–160
   PubMed Web of Science ®Google Scholar
• National Board of health Denmark. Disease management program for acquired brain injury. Copenhagen 2011
   Google Scholar