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Review Article

Participation and quality of life in children and adolescents with congenital limb deficiencies: A narrative review

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Pages 351-361 | Published online: 13 Aug 2010

References

  • Ephraim PL, Dillingham TR, Sector M, Pezzin LE, MacKenzie EJ. Epidemiology of limb loss and congenital limb deficiency: A review of the literature. Arch Phys Med Rehabil 2003;84(5):747–761.
  • Setoguchi Y, Rosenfelder R. The limb deficient child, Springfield, IL:Thomas; 1982.
  • Kuyper MA, Breedijk M, Mulders AH, Post MW, Prevo AJ. Prosthetic management of children in The Netherlands with upper limb deficiencies. Prosthet Orthot Int 2001;25(3):228–234.
  • Colver A. What are we trying to do for disabled children? Current Paediatrics 2006;16:501–505.
  • World Health Organization. International classification of functioning, disability and health. Geneva, Switzerland: WHO; 2001.
  • Law M. Participation in the occupations of everyday life. Am J Occup Ther 2002;56(6):640–649.
  • Brown M, Gordon WA. Impact of impairment on activity patterns of children. Arch Phys Med Rehabil 1987;68(12):828–832.
  • Forsyth R, Jarvis S. Participation in childhood. Child Care Health Dev 2002;28(4):277–279.
  • King G, Law M, King S, Rosenbaum P, Kertoy MK, Young NL. A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Phys Occup Ther Pediatr 2003;23(1):63–90.
  • Law M, Finkelman S, Hurley P, Rosenbaum P, King S, King G, Participation of children with physical disabilities: Relationship with diagnosis, physical function, and demographic variables. Scand J Occup Ther 2004;11(4):156–162.
  • Harding L. Children's Quality of Life assessments: A review of generic and health related quality of life measures completed by children and adolescents. Clin Psychol Psychother 2001;8:79–96.
  • Edwards TC, Patrick DL, Topolski TD. Quality of life of adolescents with perceived disabilities. J Pediatr Psychol 2003;28(4):233–241.
  • Lavigne JV, Faier-Routman J. Psychological adjustment to pediatric physical disorders: A meta-analytic review. J Pediatr Psychol 1992;17(2):133–157.
  • Wallander JL, Varni JW. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 1998;39(1):29–46.
  • McManus V, Corcoran P, Perry IJ. Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West Ireland. BMC Pediatr 2008;8:50.
  • Koot HM, Wallander JL. QoL in child and adolescent illness: Concepts, methods and findings. 1st ed. East Sussex: Brunner-Routledge; 2001.
  • Tyc VL. Psychosocial adaptation of children and adolescents with limb deficiencies: A review. Clin Psychol Rev 1992;12(3):275–291.
  • Webster JB, Levy CE, Bryant PR, Prusakowski PE. Sports and recreation for persons with limb deficiency. Arch Phys Med Rehabil 2001;82(3 Suppl. 1):S38–44.
  • Varni JW, Setoguchi Y. Psychosocial factors in the management of children with limb deficiencies. Phys Med Rehabil Clini N Am 1991;(2):395–404.
  • Sheriff JL. Children's perception of quality of life: Congenital physical disabilities vs. acquired physical disabilities. Dissert Abstracts Int Sect A: Humanities Soc Sci 2004;64(7-A):2448.
  • Birch JG, Walsh SJ, Small JM, Morton A, Koch KD, Smith C, Syme amputation for the treatment of fibular deficiency. An evaluation of long-term physical and psychological functional status. J Bone Jt Surg Ser A 1999;81(11):1511–1518.
  • Shindi J. Emotional adjustment of physically handicapped children: A comparison of children with congenital and acquired orthopaedic disabilities. Int J Soc Psychiatry 1983;29(4):292–298.
  • James MA, Bagley AM, Brasington K, Lutz C, McConnell S, Molitor F. Impact of prostheses on function and quality of life for children with unilateral congenital below-the-elbow deficiency. J Bone Jt Surg Ser A 2006;88(11):2356–2365.
  • Herring JA, Barnhill B, Gaffney C. Syme amputation. An evaluation of the physical and psychological function in young patients. J Bone Jt Surg Ser A 1986;68(4):573–578.
  • Vannah WM, Davids JR, Drvaric DM, Setoguchi Y, Oxley BJ. A survey of function in children with lower limb deficiencies. Prosthet Orthot Int . 1999;23(3):239–244.
  • Haynes RJ, Sullivan E. The Pediatric Orthopaedic Society of North America pediatric orthopaedic functional health questionnaire: An analysis of normals. J Pediatr Orthop 2001;21(5):619–621.
  • Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability and validity. Ambul Pediatr 2003;3:329–341.
  • Rubenfeld LA, Varni JW, Talbot D, Setoguchi Y. Variables influencing self esteem in children with congenital or acquired limb deficiencies. J Assoc Children's Prosthet-Orthot Clin 1988;23(4):85–86.
  • Varni JW, Rubenfeld LA, Talbot D, Setoguchi Y. Stress, social support, and depressive symptomatology in children with congenital/acquired limb deficiencies. J Pediatr Psychol 1989;14(4):515–553.
  • Varni JW, Rubenfeld LA, Talbot D, Setoguchi Y. Family functioning, temperament, and psychologic adaptation in children with congenital or acquired limb deficiencies. Pediatrics 1989;84(2):323–330.
  • Varni JW, Rubenfeld LA, Talbot D, Setoguchi Y. Determinants of self-esteem in children with congenital/acquired limb deficiencies. J Dev Behav Pediatr 1989;10(1):13–16.
  • Varni JW, Setoguchi Y, Rappaport LR, Talbot D. Effects of stress, social support, and self-esteem on depression in children with limb deficiencies. Arch Phys Med Rehabil 1991;72(13):1053–1058.
  • Varni JW, Setoguchi Y. Correlates of perceived physical appearance in children with congenital/acquired limb deficiencies. J Dev Behav Pediatr 1991;12(3):171–176.
  • Varni JW, Setoguchi Y. Self-perceived physical appearance in children with congenital/acquired limb deficiencies. J Assoc Children's Prosthet-Orthot Clin 1991;26(2):56–59.
  • Varni JW, Setoguchi Y, Rappaport LR, Talbot D. Psychological adjustment and perceived social support in children with congenital/acquired limb deficiencies. J Behav Med 1992;15(1):31–44.
  • Varni JW, Setoguchi Y. Screening for behavioral and emotional problems in children and adolescents with congenital or acquired limb deficiencies. Am J Dis Child 1992;146(1):103–107.
  • Varni JW, Setoguchi Y. Effects of parental adjustment on the adaptation of children with congenital or acquired limb deficiencies. J Dev Behav Pediatr 1993;14(1):13–20.
  • Varni JW, Setoguchi Y. Perceived physical appearance and adjustment of adolescents with congenital/acquired limb deficiencies: A path-analytic model. J Clin Child Psychol 1996;25(2):201–208.
  • Hermansson L, Eliasson AC, Engstrom I. Psychosocial adjustment in Swedish children with upper-limb reduction deficiency and a myoelectric prosthetic hand. Acta Paediatr Int J Paediatr 2005;94(4):479–488.
  • McConachie H, Colver AF, Forsyth RJ, Jarvis SN, Parkinson KN. Participation of disabled children: How should it be characterised and measured? Disabil Rehabil 2006;28(18):1157–1164.
  • Centraal Bureau voor de Statistiek (CBS). www.cbs.nl .
  • Anderson TF. Aspects of sports and recreation for the child with a limb deficiency. In: Herring JA, Birch JG, editors. The child with a limb deficiency. Rosemont, IL: American Orthopaedic Surgeons; 1998. pp 345–352.
  • Walker JL, Coburn TR, Cottle W, Burke C, Talwalkar VR. Recreational terminal devices for children with upper extremity amputations. J Pediatr Orthop 2008;28(2):271–273.
  • van Staa AL, van der Stege HA, Jedeloo S, Nas WSC. Op Eigen Benen Verder. Competenties, preferenties en kwaliteit van leven: jongeren met chronische aandoeningen in beeld. Rotterdam; 2008.
  • Bisegger C, Cloetta B, von Rueden U, Abel T, Ravens-Sieberer U, Duer W, Health-related quality of life: Gender differences in childhood and adolescence. Soz - Praventivmed 2005;50(5):281–291.
  • Vingilis E, Wade TJ, Adlaf E. What factors predict student self-rated physical health? J Adolesc 1998;21(1):83–97.
  • Demet K, Martinet N, Guillemin F, Paysant J, Andre JM. Health related quality of life and related factors in 539 persons with amputation of upper and lower limb. Disabil Rehabil 2003;25(9):480–486.
  • Murray CE, Kelley-Soderholm EL, Murray TL. Strengths, challenges, and relational processes in families of children with congenital upper limb differences. Families, Syst Health 2007;25(3):276–292.
  • Portney LG, Watkins MP. Foundations of clinical research. 2nd ed. Upper Saddle River, New Jersey: Prentice-Hall, Inc; 2000.

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