Usability and Feasibility of an mHealth Intervention for Monitoring and Managing Pain Symptoms in Sickle Cell Disease: The Sickle Cell Disease Mobile Application to Record Symptoms via Technology (SMART)

References

• Field JJ, Knight-Perry JE, Debaun MR. Acute pain in children and adults with sickle cell disease: Managment in the absence of evidence-based guidelines. Curr Opin Hematol. 2009;16(3):173–178
   PubMed Web of Science ®Google Scholar
• Jacob E, Stinson J, Duran J, et al. Usability testing of a Smartphone for accessing a web-based e-diary for self-monitoring of pain and symptoms in sickle cell disease. J Pediatr Hematol Oncol. 2012;34(5):326–335
   PubMed Web of Science ®Google Scholar
• Jacob E, Duran J, Stinson J, et al. Remote monitoring of pain and symptoms using wireless technology in children and adolescents with sickle cell disease. J Am Assoc Nurse Pract. 2013;25(1):42–54
   Google Scholar
• McClellan CB, Schatz JC, Puffer E, et al. Use of handheld wireless technology for a home-based sickle cell pain management protocol. J Pediatr Psychol. 2009;34(5):564–573
   Google Scholar
• Shah N, Jonassaint J, De Castro L. Patients welcome the Sickle Cell Disease Mobile Application to Record Symptoms via Technology (SMART). Hemoglobin. 2014;38(2):99–103
   Web of Science ®Google Scholar
• Rende J. Native vs. HTML5 – Looked at objectively, the debate is over. http://www.appcelerator.com/blog/2013/04/native-vs-html5-looked-objectively-the-debate-is-over-2/ (published 12 April 2013; accessed 22 November 2014)
   Google Scholar
• Moth D. 85% of consumers favour apps over mobile websites. http-://e-consultancy.com/blog/62326-85-of-consumers-favour-apps-over-mobile-websites/ (published 12 March 2012; accessed 22 November 2014)
   Google Scholar
• Portenoy RK, Kanner RM, Eds. Pain Management: Theory and Practice. Philadelphia, PA: Oxford University Press, 1996
   Google Scholar
• Bijur PE, Silver W, Gallagher EJ. Reliability of the visual analog scale for measurement of acute pain. Acad Emerg Med. 2001;8(12):1153–1157
   PubMed Web of Science ®Google Scholar
• Coons SJ, Gwaltney CJ, Hays RD, et al. Recommendations on evidence needed to support measurement equivalence between electronic and paper-based patient-reported outcome (PRO) measures: ISPOR ePRO Good Research Practices Task Force report. Value Health. 2009;12(4):419–429
   PubMed Web of Science ®Google Scholar
• Anhoj J, Moldrup C. Feasibility of collecting diary data from asthma patients through mobile phones and SMS (short message service): Response rate analysis and focus group evaluation from a pilot study. J Med Internet Res. 2004;6(4):e42. doi: 10.2196/jmir.6.4.e42
   PubMed Web of Science ®Google Scholar
• Wei J, Hollin I, Kachnowski S. A review of the use of mobile phone text messaging in clinical and healthy behaviour interventions. J Telemed Telecare. 2011;17(1):41–48
   PubMed Web of Science ®Google Scholar
• Stone AA, Shiffman S, Schwartz JE, et al. Patient compliance with paper and electronic diaries. Control Clin Trials. 2003;24(2):182–199
   PubMedGoogle Scholar
• Palermo T, Valenzuela D, Stork P. A randomized trial of electronic versus paper pain diaries in children: Impact on compliance, accuracy, and acceptability. Pain. 2004;107(3):213–219
   PubMed Web of Science ®Google Scholar
• Smith WR, Penberthy LT, Bovbjerg VE, et al. Daily assessment of pain in adults with sickle cell disease. Ann Intern Med. 2008;148(2):94–101
   PubMed Web of Science ®Google Scholar
• Coye MJ, Haselkorn A, DeMello S. Remote patient management: Technology-enabled innovation and evolving business models for chronic disease care. Health Aff (Millwood). 2009;28(1):126–135
   Web of Science ®Google Scholar
• Morris CR, Kuypers FA, Lavrisha L, et al. A randomized, placebo-controlled trial of arginine therapy for the treatment of children with sickle cell disease hospitalized with vaso-occlusive pain episodes. Haematologica. 2013;98(9):1375–1382
   PubMed Web of Science ®Google Scholar
• Dampier CD, Smith WR, Wager CG, et al. IMPROVE trial: A randomized controlled trial of patient-controlled analgesia for sickle cell painful episodes: Rationale, design challenges, initial experience, and recommendations for future studies. Clin Trials. 2013;10(2):319–331
   PubMed Web of Science ®Google Scholar
• Stinson JN, Jibb LA, Nguyen C, et al. Development and testing of a multidimensional iPhone pain assessment application for adolescents with cancer. J Med Internet Res. 2013;15(3):e51. doi: 10.2196/jmir.2350
   PubMed Web of Science ®Google Scholar
• Creary SE, Gladwin MT, Byrne M, et al. A pilot study of electronic directly observed therapy to improve hydroxyurea adherence in pediatric patients with sickle-cell disease. Pediatr Blood Cancer. 2014;61(6):1068–1073
   PubMed Web of Science ®Google Scholar