Selecting outcome measures in mental health: the views of service users

References

• Allott, P. (2005). Recovery. Research and Development in Mental Health: Theory, Framework and ModelsIn D. Sallah & M. Clarke (Eds.), Oxford: Elsevier Science
   Google Scholar
• American Psychiatric Association. (2005). Handbook of Psychiatric MeasuresWashington, DC: APA
   Google Scholar
• Becker, M., Diamond, R., & Sainfort, F. (1993). A new patient focused index for measuring quality of life in persons with severe and persistent mental illness. Quality of Life Research, 2, 239–251.
   PubMed Web of Science ®Google Scholar
• Blount, C., Evans C., Birch, S., Warren, F., & Norton K. (2002). The properties of self-report research measures: Beyond psychometrics. Psychology and Psychotherapy: Therapy, Research and Practice, 75, 151–164.
   PubMed Web of Science ®Google Scholar
• Cay, E.L., Small, W.P., Neilson, J., & Henderson, A. (1975). Patients assessment of the result of surgery for peptic ulcer. Lancet, 1, 29–31.
   PubMed Web of Science ®Google Scholar
• Crawford, M.J., Price, K., Rutter, D., Moran, P., Tyrer, P., Bateman, A., (2008). Dedicated community-based services for adults with personality disorder: Delphi study. British Journal of Psychiatry, 193, 342–343.
   PubMed Web of Science ®Google Scholar
• Department of Health. (2002). Reforming NHS Financial Flows: Introducing Payment by ResultsLondon: DoH
   Google Scholar
• Entwistle, V.A., Renfrew, M.J., Yearley, S., Forrester, J., & Lamont, T. (1998). Lay perspectives: Advantages for health research. British Medical Journal, 316, 463–466.
   PubMed Web of Science ®Google Scholar
• Evans, C., Connell, J., Barkham, M., Margison, F., McGrath, G., Mellor-Clark, J., & Audin, K. (2002). Towards a standardised brief outcome measure: Psychometric properties and utility of the CORE-OM. British Journal of Psychiatry, 180, 51–60.
   PubMed Web of Science ®Google Scholar
• Fairbairn, A. (2007). Payment by results in mental health: The current state of play in England. Advances in Psychiatric Treatment, 13, 3–6.
   Google Scholar
• Faulkner, A., & Thomas, P. (2002). User-led research and evidence-based medicine. British Journal of Psychiatry, 180, 1–3.
   PubMed Web of Science ®Google Scholar
• Fischer, E.P., Shumway, M., & Owen, R.R. (2002). Priorities of consumers, providers, and family members in the treatment of schizophrenia. Psychiatric Services, 53, 724–729.
   PubMed Web of Science ®Google Scholar
• Gilbody, S.M., House, A.O., & Sheldon, T.A. (2002). Psychiatrists in the UK do not use outcomes measures. National survey. British Journal of Psychiatry, 180, 101–103.
   PubMed Web of Science ®Google Scholar
• Goldberg, D., & Williams, P. (1991). A User's Guide to the General Health QuestionnaireWindsor: NFER-Nelson
   Google Scholar
• Groth-Marnat, G. (2003). Handbook of Psychological AssessmentHoboken, NJ: John Wiley & Sons
   Google Scholar
• Ham, C., Hunter, D.J., & Robinson, R. (1995). Evidence based policymaking. British Medical Journal, 310, 71–72.
   PubMed Web of Science ®Google Scholar
• Hanley, B., Truesdale, A., King, A., Elbourne, D., & Chalmers, I. (2001). Involving consumers in designing, conducting, and interpreting randomised controlled trials: Questionnaire survey. British Medical Journal, 322, 519–523.
   PubMed Web of Science ®Google Scholar
• Jones, J., & Hunter, D. (1995). Consensus methods for medical and health services research. British Medical Journal, 311, 380.
   Google Scholar
• Lee, T.T., Ziegler, J.K., Sommi, R., Sugar, C., Mahmoud, R., & Lenert, L.A. (2000). Comparison of preferences for health outcomes in schizophrenia among stakeholder groups. Journal of Psychiatric Research, 34, 201–210.
   PubMed Web of Science ®Google Scholar
• MacKeith, J., & Burns, S. (2008). Mental Health Recovery StarLondon: Mental Health Providers Forum
   Google Scholar
• National Institute for Clinical Excellence. (2002). Clinical Guideline 1. Schizophrenia: Core Interventions in the Treatment and Management of Schizophrenia in Primary and Secondary CareLondon: NICE
   Google Scholar
• National Institute for Clinical Excellence. (2004). Depression: Management of Depression in Primary and Secondary CareLondon: NICE
   Google Scholar
• National Institute for Mental Health. (2008). Mental Health Outcomes CompendiumLondon: NIMHE
   Google Scholar
• Partridge, N., & Scadding, J. (2004). The James Lind Alliance: Patients and clinicians should jointly identify their priorities for clinical trials. Lancet, 364, 1923–1924.
   PubMed Web of Science ®Google Scholar
• Perry, A., & Gilbody, S. (2009). User-defined outcomes in mental health: A qualitative study and consensus development exercise. Journal of Mental Health, 18, 415–423.
   Web of Science ®Google Scholar
• Prusoff, B.A., Klerman G.L., & Paykel, E.S. (1972). Concordance between clinical assessments and patients' self-report in depression. Archives of General Psychiatry, 2, 546–552.
   Google Scholar
• Rose, D., Sweeney, A., Leese, M., Clement, S., Jones, I.R., Burns, T., (2009). Developing a user-generated measure of continuity of care: Brief report. Acta Psychiatrica Scandinavica, 119, 320–324.
   PubMed Web of Science ®Google Scholar
• Rose, D., Wykes, T., Farrier, D., Doran, A.-M., Sporle, T., & Bogner, D. (2008). What do clients think of cognitive remediation therapy? A consumer-led investigation of satisfaction and side effects. American Journal of Psychiatric Rehabilitation, 11, 181–204.
   Google Scholar
• Rothwell, P.M., McDowell, Z., Wong, C.K., & Dorman, P.J. (1997). Doctors and patients don't agree: Cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis. British Medical Journal, 314, 1580–1583.
   PubMed Web of Science ®Google Scholar
• Sajatovic, M., & Ramirez L.F. (2003). Rating Scales in Mental Health (2nd Ed.)Hudson, Ohio: Lexi-Comp
   Google Scholar
• Shumway, M., Saunders, T., Shern, D., Pines, E., Downs, A., Burbine, T., (2003). Preferences for schizophrenia treatment outcomes among public policy makers, consumers, families, and providers. Psychiatric Services, 54, 1124–1128.
   PubMed Web of Science ®Google Scholar
• Tennant, R., Hiller, L., Fishwick, R., Platt, S., Joseph, S., Weich, S., (2007). The Warwick-Edinburgh Mental Well-being Scale (WEMWBS): Development and UK validation. Health and Quality of Life Outcomes, 5, 63.
   PubMed Web of Science ®Google Scholar
• The James Lind Alliance. (2007). The research cycle. Retrieved from http://www.lindalliance.org/
   Google Scholar
• The Stationery Office. (2008a). High Quality Care for All: NHS Next Stage Review Final ReportLondon: The Stationery Office
   Google Scholar
• The Stationery Office. (2008b). House of Commons Health Committee: National Institute for Health and Clinical Excellence. First Report of Session 2007–08London: The Stationery Office
   Google Scholar
• Thornley, B., & Adams, C. (1998). Content and quality of 2000 controlled trials in schizophrenia over 50 years. British Medical Journal, 317, 1181–1184.
   PubMed Web of Science ®Google Scholar
• Trauer, T., & Callaly, T. (2002). Concordance between mentally ill patients and their case managers using the Health of the Nation Outcome Scales (HoNOS). Australasian Psychiatry, 10, 24–28.
   Google Scholar
• Trauer, T., Callaly, T., & Herrman, H. (2009). Attitudes of mental health staff to routine outcome measurement. Journal of Mental Health, 18, 288–297.
   Web of Science ®Google Scholar
• Trivedi, P., & Wykes, T. (2002). From passive subjects to equal partners: Qualitative review of user involvement in research. British Journal of Psychiatry, 181, 468–472.
   PubMed Web of Science ®Google Scholar
• Williams, J.B.W. (2005). Mental health status, functioning and disabilities measures. Handbook of Psychiatric Measures. In American Psychiatric Association. (Ed.), (pp. 93–115). Washington, DC: American Psychiatric Association
   Google Scholar