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Research Papers

The psychosocial well-being of parents of children with cerebral palsy: a comparison study

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Pages 1673-1677 | Accepted 01 Jan 2010, Published online: 23 Feb 2010

References

  • Scope. What is Cerebral Palsy? Internet. 2006. Eletronic Citation. http://www.scope.org.uk/helpline/cp.shtml. Last accessed January 2006.
  • Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol 2007;49:8–14.
  • Williams PD, Williams AR, Graff JC, Hanson S, Stanton A, Hafeman C, Liebergen A, Leuenberg K, Setter RK, Ridder L, Curry H, Barnard M, Sanders S. Interrelationships among variables affecting well siblings and mothers in families of children with a chronic illness or disability. J Behav Med 2002;25:411–424.
  • Sayre JM, Pianta RC, Marvin RS, Saft EW. Mothers’ representations of relationships with their children: relations with mother characteristics and feeding sensitivity. J Pediatr Psychol 2001;26:375–384.
  • Edworthy A. Managing stress for carers. Carmarthenshire: Cerebra; 2005.
  • Grossman, FK, Eichler LS, Winickoff SA, Anzalone MK, Gofseyeff MH, Sargent SP. Pregnancy, birth, and parenthood. San Francisco: Jossey-Bass; 1980.
  • Barclay L, Everitt L, Rogan F, Schmied V, Wyllie A. Becoming a mother – an analysis of women's experience of early motherhood. J Adv Nurs 1997;25:719–728.
  • Breslau N, Staruch KS, Mortimer EA Jr. Psychological distress in mothers of disabled children. Am J Dis Child 1982;136:682–686.
  • Eker L, Tuzun EH. An evaluation of quality of life of mothers of children with cerebral palsy. Disabil Rehabil 2004;26:1354–1359.
  • Ones K, Yilmaz E, Cetinkaya B. Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers). Neurorehabil Neural Repair 2005;19:232–237.
  • Ong LC, Afifah I, Sofiah A, Lye MS. Parenting stress among mothers of Malaysian children with cerebral palsy: predictors of child- and parent-related stress. Ann Trop Paediatri 1998;18:301–307.
  • Wang HY, Jong YJ. Parental stress and related factors in parents of children with cerebral palsy. Kaohsiung J Med Sci 2004;20:334–340.
  • Su Y. Investigation on mental health status of children with cerebral palsy and their parents. Chinese Nurs Res 2002;16:257–258.
  • Pimm PL. Some of the implications of caring for a child or adult with cerebral palsy. Br J Occup Ther 1996;59:335–340.
  • Barlow JH, Cullen LA, Cheshire A. Psychological well-being of mothers of children with cerebral palsy. Early Child Dev Care 2006;176:421–428.
  • Eisenhower AS, Baker BL, Blacher J. Preschool children with intellectual disability: syndrome specificity, behaviour problems, and maternal well-being. J Intellect Disabil Res 2005;49:657–671.
  • Mugno D, Ruta L, D'Arrigo VG, Mazzone L. Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health Qual Life Outcomes 2007;5:22.
  • Brehaut JC, Kohen DE, Raina P, Walter SD, Russell DJ, Swinton M, O'Donnell M, Rosenbaum P. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Paediatrics 2004;114:e182–e191.
  • Seligman MEP. Positive psychology: fundamental assumptions. Psychologist 2003;16:126–127.
  • Hastings RP. Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. J Intellect Disabil Res 2003;47:231–237.
  • Williams HL, Cullen LA, Barlow JH. The psychological well-being and self-efficacy of carers of children with disabilities following attendance on a simple massage training and support programme: a 12-month comparison study of adherers and non-adherers. Complement Ther Med 2005;13:107–114.
  • Bjelland I, Dahl AA, Haug TT, Neckelmann D. The validity of the Hospital Anxiety and Depression Scale. An updated literature review. J Psychosom Res 2002;52:69–77.
  • Diener E, Emmons R, Larsen R, Griffin S. The satisfaction with life scale. J Pers Assess 1985;49:71–75.
  • Martinez MSJC, Martinez MR, Garcia JC, Cortes MSIO, Ferrer AR, Herrero BT. Reliability and validity of the satisfaction with life scale of Diener in pregnant and puerperium women/Fiabilidad y validez de la Escala de Satisfaccion con la Vida de Diener en una muestra de mujeres embarazadas y puerperas. Psicothema 2004;16:448–455.
  • Pavot WG, Diener E, Colvin C, Sandvik E. Further validation of the Satisfaction With Life Scale: evidence for the cross-method convergence of well-being measures. J Pers Assess 1991;57:149–161.
  • Shevlin M, Brunsden V, Miles JNV. Satisfaction With Life Scale: analysis of factorial invariance, mean structures and reliability. Pers Individ Dif 1998;25:911–916.
  • Vitaliano PP, Russo J, Young HM, Becker J, Maiuro RD. The screen for caregiver burden. Gerontologist 1991;31:76–83.
  • SPSS. Statistics Package for Social Scientists for Windows 16 [computer software]. SPSS Inc: Chicago; 2007.
  • Crawford JR, Henry JD, Crombie C, Taylor EP. Normative data for the HADS from a large non-clinical sample. Br J Clin Psychol 2001;40:429–434.
  • Florian V, Findler L. Mental health and marital adaptation among mothers of children with cerebral palsy. Am J Orthopsychiatry 2001;71:358–367.
  • Goldberg S, Morris P, Simmons RJ, Fowler RS. Chronic illness in infancy and parenting stress: a comparison of three groups of parents. J Pediatr Psychol 1990;15:347–358.
  • Spaulding BR, Morgan SB. Spina bifida children and their parents: a population prone to family dysfunction? J Pediatr Psychol 1986;11:359–374.
  • Roach MA, Orsmond GI, Barratt MS. Mothers and fathers of children with Down syndrome: parental stress and involvement in childcare. Am J Ment Retard 1999;104:422–436.
  • Manuel JC. Risk and resistance factors in the adaptation in mothers of children with juvenile rheumatoid arthritis. J Pediatr Psychol 2001;26:237–246.
  • Holroyd J, Guthrie D. Family stress with chronic childhood illness: cystic fibrosis, neuromuscular disease, and renal disease. J Clin Psychol 1986;42:552–561.
  • Pisula E. Stress in mothers of children with developmental disabilities. Polish Psychol Bull 1998;29:305–311.
  • Hirose T, Ueda R. Long-term follow-up study of cerebral palsy children and coping behaviour of parents. J Adv Nurs 1990;15:762–770.

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