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Perspectives in Rehabilitation

Young adults with intellectual disability transitioning from school to post-school: A literature review framed within the ICF

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Pages 1747-1764 | Received 14 Sep 2011, Accepted 20 Jan 2012, Published online: 03 Apr 2012

References

  • May D. Transition and Change in the Lives of People with Intellectual Disabilities. London: Jessica Kingsley; 2000.
  • Hudson B. From adolescence to young adulthood: the partnership challenge for learning disability services in England. Disabil Soc 2003;18:259–276.
  • Michaels C, Lopez E. Collaboration and consultation in transition planning. J Educ Psychol Cons. 2005;16:255–261.
  • Caton S, Kagan C. Tracking post-school destinations of young people with mild intellectual disabilities: the problem of attrition. J Appl Res Intellect Disabil 2006;19:143–152.
  • Clegg J, Sheard C, Cahill J, Osbeck L. Severe intellectual disability and transition to adulthood. Br J Med Psychol 2001;74:151–166.
  • World Health Organization. ICF: International Classification of Functioning, Disability and Health. 1st ed. Geneva: World Health Organization; 2001.
  • World Health Organization. ICF-CY: International Classification of Functioning, Disability and Health Children and Youth Version. Geneva: World Health Organization; 2007.
  • Stucki G. International Classification of Functioning, Disability, and Health (ICF): a promising framework and classification for rehabilitation medicine. Am J Phys Med Rehabil 2005;84:733–740.
  • National Health and Medical Research Council. In: NHMRC levels of evidence and grades for recommendations for developers of guidelines. 2009 Australian Government.
  • Schalock RL, Luckasson RA, Shogren KA, Borhwick-Duffy S, Bradley V, Buntix WHE. The renaming of mental retardation: Understanding the change to the term intellectual disability. Intellect Dev Disabil 2007;45:116–124.
  • Wen X. The definition and prevalence of intellectual disability in Australia. Canberra: Australian Institute of Health and Welfare; January 1997. Report No.: AIHW Catalogue Number DIS 2.
  • Schalock RL, Borthwick-Duffy A, Bradley V, Buntinx WHE, Coulter DL, Craig EM, et al. Intellectual Disability: Definition, Classification, and Systems of Supports. 11th ed. Washington, DC: AAIDD; 2010.
  • Van Naarden Braun K, Yeargin-Allsopp M, Lollar D. A multi-dimensional approach to the transition of children with developmental disabilities into young adulthood: the acquisition of adult social roles. Disabil Rehabil 2006;28:915–928.
  • Leonard H, Petterson B, Bower C, Sanders R. Prevalence of intellectual disability in Western Australia. Paediatr Perinat Epidemiol 2003;17:58–67.
  • Leonard H, Petterson B, Bourke J, Morgan V, Glasson EJ, Bower C. Inaugural Report of the IDEA Database- Intellectual Disability in Western Australia. Perth, WA: Telethon Institute for Child Health Research; 2004.
  • Developmental Disability Steering Group. Management Guidelines: Developmental Disability Version 2. North Melbourne, Victoria: Therapeutic Guidelines Ltd; 2005.
  • Emerson E. Prevalence of psychiatric disorders in children and adults with and without intellectual disability. J Intellect Disabil Res 2003;47:51–58.
  • Blacher J. Transition to adulthood: mental retardation, families, and culture. Am J Ment Retard 2001;106:173–188.
  • Dyke P, Leonard H, Bourke J, Bebbington A, Bower C. Down syndrome Needs Opinion Wishes Study Report. Perth, WA: Telethon Institute for Child Health Research; 2007.
  • Van Naarden Braun K, Yeargin-Allsopp M, Lollar D. Activity limitations among young adults with developmental disabilities: A population-based follow-up study. Res Dev Disabil 2009;30:179–191.
  • Eagar K, Green J, Gordon R, Owen A, Masso M, Williams K. Functional assessment to predict capacity for work in a population of school-leavers with disabilities. International Journal of Disability, Development and Education 2006;53:331–349.
  • Williams R, Dattilo J. Effects of leisure education on self-determination, social interaction, and positive affect of young adults with mental retardation. Ther Recreat J 1997;31:244–258.
  • Cory L, Dattilo J, Williams R. Effects of a leisure education program on social knowledge and skills of youth with cognitive disabilities. Ther Recreat J 2006;40:144–164.
  • Devine MA, Dattilo J. Social acceptance and leisure lifestyles of people with disabilities. Ther Recreat J 2000;34:306–322.
  • Duvdevany I, Arar E. Leisure activities, friendships, and quality of life of persons with intellectual disability: foster homes vs community residential settings. Int J Rehabil Res 2004;27:289–296.
  • Oates A, Bebbington A, Bourke J, Girdler S, Leonard H. Leisure participation for school-aged children with Down syndrome. Disabil Rehabil 2009:1–10.
  • McVilly KR, Stancliffe RJ, Parmenter TR, Burton-Smith RM. “I get by with a little help from my friends”: adults with intellectual disability discuss loneliness. J Appl Res Intellect Disabil 2006;19:191–203.
  • Hughes C. Transition to adulthood: supporting young adults to access social, employment, and civic pursuits. Ment Retard Dev Disabil Res Rev 2001;7:84–90.
  • Ryan RM, Deci EL. Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. Am Psychol 2000;55:68–78.
  • Van Cleve SN, Cannon S, Cohen WI. Part II: clinical practice guidelines for adolescents and young adults with Down syndrome: 12 to 21 years. J Pediatr Health Care 2006;20:198–205.
  • Shaddock AJ, Bond M, Bowen I, Hales K. “Walking the Talk” about self-determination. In: Intellectual Disability and the Law: Contemporary Australian Issues. Newcastle: Australian Society for the Study of Intellectual Disability; 2000.
  • Laragy C. Self-determination within Australian school transition programmes for students with a disability. Disabil Soc 2004;19:519–530.
  • Halpern A Transition: is it time for another re-bottling. 1999 Annual OSEP Project Directors’ Meeting 1999; Washington, D.C.; June 1999.
  • Halloran WD. Transition services requirement: issues, implication, challenges. In: Eaves RC, McLaughlin PJ, editors. Recent Advances in Special Education and Rehabilitation. Boston: Andover Medical Publishers; 1993. pp. 210–224.
  • Wehmen P. Transition from school to adult-hood for young people with disabilities: critical issues and policies. In: Eaves RC, McLaughlin PJ, editors. Recent Advances in Special Education and Rehabilitation. Boston: Andover Medical Publishers; 1993. pp. 178–192.
  • Lachapelle Y, Wehmeyer ML, Haelewyck MC, Courbois Y, Keith KD, Schalock R, Verdugo MA, Walsh PN. The relationship between quality of life and self-determination: an international study. J Intellect Disabil Res 2005;49:740–744.
  • Agran M, Blanchard C, Wehmeyer ML. Promoting transition goals and self-determination through student self-directed learning: The self-determined learning model of instruction. Educ Train Ment Retard Dev Disabil 2000;35:351–364.
  • Wehmeyer ML, Schwartz M. The relationship between self-determination, quality of life, and life satisfaction for adults with mental retardation. Educ Train Ment Retard Dev Disabil 1998;33:3–12.
  • Wehmeyer ML, Garner NW. The impact of personal characteristics of people with intellectual and developmental disability on self-determination and autonomous functioning. J Appl Res Intellect Disabil 2003;16:255–265.
  • Wehmeyer ML, Palmer SB. Adult outcomes for students with cognitive disabilities three-years after high-school: the impact of self-determination. Educ Train Ment Retard Dev Disabil 2003;38:131–144.
  • Stancliffe RJ, Abery BH, Springborg H, Elkin S. Substitute decision-making and personal control: implications for self-determination. Ment Retard 2000;38:407–421.
  • Grigal M, Neubert DA, Moon SM, Graham S. Self-determination for students with disabilities: Views of parents and teachers. Except Children 2003;70:97–112.
  • Wehmeyer ML, Schwartz M. Self-determination and positive adult outcomes: A follow-up study of youth with mental retardation or learning disabilities. Except Children 1997;63:245–255.
  • Wehmeyer ML, Bolding N. Enhanced self-determination of adults with intellectual disability as an outcome of moving to community-based work or living environments. J Intellect Disabil Res 2001;45:371–383.
  • Gil LA. Bridging the transition gap from high-school to college: preparing students with disabilities and their families. Teaching Exceptional Children 2007;40:12–15.
  • Duvdevany I, Ben-Zur H, Ambar A. Self-determination and mental retardation: is there an association with living arrangement and lifestyle satisfaction? Ment Retard 2002;40:379–389.
  • Sandys J. Work and employment for people with developmental disabilities. In: Brown I, Percy M, editors. Developmental Disabilities in Ontario. Torronto: Ontario Association on Developmental Disabilities; 2003. p. 613–638.
  • Gosling V, Cotteril L. An employment project as a route to social inclusion for people with learning difficulties. Disabil Soc 2000;15:1001–1018.
  • Lemon C, Lemon J. Community based cooperative ventures for adults with intellectual disabilities. The Canadian Geographer 2003;47:414–428.
  • Wehman P, Revell W. Transition into supported employment for young adults with severe disabilities: Current practices and future directions. Journal of Vocational Rehabilitation 1997;8:65–74.
  • Mank D, Cioffi A, Yovanoff P. Supported employment outcomes across a decade: is there evidence of improvement in the quality of implementation? Ment Retard 2003;41:188–197.
  • Mank D. Natural support in employment for people with disabilities: what do we know and when did we know it? Journal of the Association for Persons with Severe Handicaps 1996;21:174–177.
  • Hyde M. Sheltered and supported employment in the 1990s. Disabil Soc 1998;13:199–215.
  • Stephens DL, Collins MD, Dodder RA. A longitudinal study of employment and skill acquisition among individuals with developmental disabilities. Res Dev Disabil 2005;26:469–486.
  • Wistow R, Schneider J. Users views of supported employment and social inclusion: a qualitative study of 30 people in work. Br J Learn Disabil 2003;31:166–173.
  • Jahoda A, Kemp J, Riddell S, Banks P. Feelings about work: A review of the socio-emotional impact of supported employment on people with intellectual disabilities. J Appl Res Intellect Disabil 2008;21:1–18.
  • Banks P, Jahoda A, Dagnan D, Kemp J, Williams V. Supported employment for people with intellectual disability: the effects of job breakdown on psychological well-being. J Appl Res Intellect Disabil 2010;23:344–354.
  • Roulstone A, Barnes C. Working futures: disabled people, policy and social inclusion. Bristol, UK: The Policy Press; 2005.
  • Winn S, Hay I. Transition from school for youth with a disability: issues and challenges. Disabil Soc 2009;24:103–115.
  • Davies MD, Beamish W. Transitions from school for young adults with intellectual disability: parental perspectives on ‘life as an adjustment’. J Intellect Dev Disabil 2009;34:248–257.
  • Kraemer BR, Blacher J. Transition for young adults with severe mental retardation: school preparation, parent expectations, and family involvement. Ment Retard 2001;39:423–435.
  • Brown L, Shiraga B, Kessler K. The quest for ordinary lives: the integrated post-school vocational functioning of 50 workers with significant disabilities. Research and Practise for Persons with Severe Disabilities 2006;31:93–121.
  • Williams R, Dattilo J. Effects of leisure education on self-determination, social interaction, and positive affect of young adults with mental retardation. Ther Recreat J 1997;33:244–258.
  • Hoge G, Dattilo J. Recreation participation patterns of adults with and without mental retardation. Educ Train Ment Retard Dev Disabil 1995;30:283–298.
  • Dattilo J, Schlein SJ. Understanding leisure services for individuals with mental retardation. Ment Retard 1994;32:53–59.
  • Mactavish JB, Schleien SJ. Re-injecting spontaneity and balance in family life: parents’ perspectives on recreation in families that include children with developmental disability. J Intellect Disabil Res 2004;48:123–141.
  • Van Naarden Braun K, Yeargin-Allsopp M, Lollar D. Factors associated with leisure activity among young adults with developmental disabilities. Res Dev Disabil 2006;27:567–583.
  • Weiss PL, Bialik P, Kizony R. Virtual reality provides leisure time opportunities for young adults with physical and intellectual disabilities. Cyberpsychol Behav 2003;6:335–342.
  • Li EP, Liu YM, Lok NC, Lee VW. Successful experience of people with Down syndrome. J Intellect Disabil 2006;10:143–154.
  • Buttimer J, Tierney E. Patterns of leisure participation among adolescents with a mild intellectual disability. J Intellect Disabil 2005;9:25–42.
  • Specht J, King G, Brown E, Foris C. The importance of leisure in the lives of persons with congenital physical disabilities. Am J Occup Ther 2002;56:436–445.
  • Harmon RJ, Bender BG, Linden MG, Robinson A. Transition from adolescence to early adulthood: adaptation and psychiatric status of women with 47,XXX. J Am Acad Child Adolesc Psychiatry 1998;37:286–291.
  • Australian Institute of Health and Welfare. Disability rates among Aboriginal and Torres Strait Islander people: updating the Indigenous factor in disability services performance indicator denominators. AIHW; 2006.
  • Esbensen AJ, Seltzer MM, Greenberg JS. Factors predicting mortality in midlife adults with and without Down syndrome living with family. J Intellect Disabil Res 2007;51:1039–1050.
  • Kobe FH, Hammer D. Parenting stress and depression in children with mental retardation and developmental disabilities. Res Dev Disabil 1994;15:209–221.
  • Ward L, Heslop P, Mallett R, Simons K. Transition: the experiences of young people with learning disabilities and their families in England. Tizard Learning Disability Review 2003;8:19–28.
  • Blackorby J, Wagner M. Longitudinal postschool outcomes of youth with disabilities: Findings from the National Longitudinal Transition Study. Except Children 1996;62:399–413.
  • Kraemer BR, McIntyre LL, Blacher J. Quality of life for young adults with mental retardation during transition. Ment Retard 2003;41:250–262.
  • Huber JG, Sillick J, Skarakis-Doyle E. Personal perception and personal factors: incorporating health-related quality of life into the International Classification of Functioning, Disability and Health. Disabil Rehabil 2010;32:1955–1965.
  • Kober R, Eggleton IR. The effect of different types of employment on quality of life. J Intellect Disabil Res 2005;49:756–760.
  • Seltzer MM, Krauss MW. Quality of life of adults with mental retardation/developmental disabilities who live with family. Ment Retard Dev Disabil Res Rev 2001;7:105–114.
  • McIntyre LL, Kraemer BR, Blacher J, Simmerman S. Quality of life for young adults with severe intellectual disability: mothers’ thoughts and reflections. J Intellect Develop Disabil 2004;29:131–146.
  • Hanley-Maxwell C, Whitney-Thomas J, Pogoloff S. The second shock: a qualitative study of parents perspectives and needs during their child’s transition from school to adult life. J Assoc Per Sev Handicaps 1995;20:3–15.
  • Read J. Disability, the Family and Society: Listening to Mothers Buckingham, PA: Open University Press; 2000.
  • Kohler PD, Field S. Transition-focused education: foundations for the future. J Spec Educ 2003;37:134–183.
  • Knox M, Parmenter TR, Atkinson N, Yazbeck M. Family control: The views of families who have a child with an intellectual disability. J Appl Res Intellect Disabil 2000;13:17–28.
  • Timmons JC, Whitney-Thomas J, McIntyre JP, Butterworth J, Allen D. Managing service delivery systems and the role of parents during their children’s transitions. J Rehabil 2004;70:19–26.
  • Schneider J, Wedgewood N, Llewellyn G, McConnell D. Families challenged by and accommodating to the adolescent years. J Intellect Disabil Res 2006;50:926–936.
  • Hendey N, Pascall G. Disability and transition to adulthood: achieving independent living. York, United Kingdom: Joseph Rowntree Foundation 2002.
  • Pownceby J, Ratcliffe D, Abbott J, Kent P. The Coming of Age Project: A Study of the Transition from Pediatric to Adult Care and Treatment Adherence amongst Young People with Cystic Fibrosis. Bromley, United Kingdom: Cystic Fibrosis Trust; 1997.
  • Morris J. Moving into Adulthood: Young People Moving into Adulthood. York, United Kingdom: Joseph Rowntree Foundation; 2002.
  • Roizen NJ. Down syndrome. In: Batshaw ML, Pellegrino L, Roizen NJ editors Children with Disabilities. Baltimore: Paul H. Brookes; 2007.
  • Thomson GOB, Ward KM, Wishart JG. The transition to adulthood for children with Down syndrome. Disabil Soc 1995;10:325–340.
  • Pascall G, Hendey N. Disability and transition to adulthood: the politics of parenting. Critical Social Policy 2004;24:165–186.
  • Mill A, Mayes R, McConnell D. Negotiating autonomy within the family: The experiences of young adults with intellectual disabilities. Br J Learn Disabil 2009;38:194–200.
  • Carr J. Annotation: Long-term-outcome for people with Down’s syndrome. J Child Psychol Psychiatry 1994;35:425–439.
  • Redmond B. Listening to parents: the aspirations, expectations and anxieties of parents about their teenager with learning disabilities. Dublin: Family Studies Centre—UCD; 1996.
  • Smyth M, McConkey R. Future aspirations of students with severe learning disabilities and of their parents on leaving special schooling. Br J Learn Disabil 2003;31:54–59.
  • McConkey R, Smyth M. Parental perceptions of risks with older teenagers who have severe learning difficulties contrasted with the young people’s views and experiences. Child Soc 2002;17:18–31.
  • Gillan D, Coughlan B. Transition from special education into postschool services for young adults with intellectual disability: Irish parents’ experience. Pol Pract Intellect Disabil 2010;7:196–203.
  • Heslop P, Mallett R, Simons K, Ward L. Bridging the Divide at Transition: What Happens for Young People with Learning Difficulties and their Families? Plymbridge, United Kingdom: British Institute of Learning Disabilities; 2002.
  • Cameron L, Murphy J. Enabling young people with a learning disability to make choices at a time of transition. Br J Learn Disabil 2002;30:105–112.
  • Tarleton B, Ward L. Changes and choices: finding out what information young people with learning disabilities, their parents and supporters need at transition. Br J Learn Disabil 2005;33:70–76.
  • Mank D, Cioffi A, Yovanoff P. Employment outcomes for people with severe disabilities: opportunities for improvement. Ment Retard 1998;36:205–216.
  • Betz CL. Facilitating the transition of adolescents with developmental disabilities: nursing practice issues and care. J Pediatr Nurs 2007;22:103–115.
  • Morris J. ‘Hurtling into a Void’: Transition to adulthood for young people with complex health and support needs. York, United Kingdom: Joseph Rowntree Foundation; 1999.
  • US Department of Education. In: Assistant to States for the Education of Children with Disabilities and Preschool Grants for Children with Disabilities. Issue 156, 2006 National Archives and Records Administration.
  • Keogh BK, Bernheimer LP, Guthrie D. Children with developmental delays twenty years later: where are they? how are they? Am J Ment Retard 2004;109:219–230.
  • Gallivan-Fenlon A. “Their senior year”: family and service provider perspectives on the transition from school to adult life for young adults with disabilities. J Assoc Per Sev Handicaps 1994;19:11–23.
  • Murray S. Families’ care work during the transition from school to post-school for children with severe disabilities. Family Matters 2007;76:24–29.
  • Burrows M, Ford J, Bottroff V. The post school outcomes of young adults with autism spectrum disorder. Australas J Spec Educ 2001;25:34–48.
  • Smart M. Transition planning and the needs of young people and their carers: the alumni project. Br J Spec Educ 2004;31:128–137.
  • Hudson B. Making and missing connections: learning disability services and the transition from adolescence to adulthood. Disabil Soc 2006;21:47–60.
  • Parmenter T, Riches V. Transition education: a pilot program for students with disabilities in transition in the NSW Department of School Education. Aus Disabil Rev 1991;1:1–9.
  • Pilnick A, Clegg J, Murphy E, Almack K. ‘Just being selfish for my own sake...’ balancing the views of young adults with intellectual disabilities and their carers in transition planning. The Sociological Review 2011;59:303–323.
  • Rapley M. The Social Construction of Intellectual Disability. Cambridge: Cambridge University Press; 2004.
  • Geyh S, Cieza A, Kollerits B, Grimby G, Stucki G. Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): a systematic review. Qual Life Res 2007;16:833–851.
  • Sakzewski L, Boyd R, Ziviani J. Clinimetric properties of participation measures for 5- to 13-year-old children with cerebral palsy: a systematic review. Dev Med Child Neurol 2007;49:232–240.
  • Swanson G, Carrothers L, Mulhorn KA. Comparing disability survey questions in five countries: a study using the ICF to guide comparisons. Disabil Rehabil 2003;25:665–675.
  • Kennedy C. In: Federal activities related to the World Health Organization’s international classification of functioning, disability and health (ICF). 2002.
  • Madden R, Choi C, Sykes C. The ICF as a framework for national data: The introduction of ICF into Australian data dictionaries. Disabil Rehabil 2003;25:676–682.
  • Mbogoni M. On the application of the ICIDH and ICF in developing countries: Evidence from the United Nations Disability Statistics Database (DISTAT). Disabil Rehabil 2003;25:644–658.
  • Arthanat S, Nochajski SM, Stone J. The international classification of functioning, disability and health and its application to cognitive disorders. Disabil Rehabil 2004;26:235–245.
  • Battaglia M, RussoE, Bolla A, Chiuuso A, Bertelli S, Pellegri A, Borri G, Martinuzzi A. International classification of functioning, disability and health in a cohort of children with cognitive, motor, and complex disabilities. Dev Med Child Neurol 2004;46:98–106.
  • Rosenbaum P, Stewart D. The World Health Organization international classification of functioning, disability, and health: a model to guide clinical thinking, practise and research in the field of cerebral palsy. Semin Pediatr Neurol 2004;11:5–10.
  • Butcher S, Wilton R. Stuck in transition? Exploring the spaces of employment training for youth with intellectual disability. Geoforum 2008;39:1079–1092.
  • Beresford B. On the road to nowhere? Young disabled people and transition. Child Care Health Dev 2004;30:581–587.
  • King G, Currie M, Smith L, Servais M, McDougall J. A framework of operating models for interdisciplinary research programs in clinical service organisations. Eval Program Plann 2008;31:160–173.

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