Diagnostic status, functional status and complexity among Canadian children with neurodevelopmental disorders and disabilities: a population-based study

References

• Stein RE, Silver EJ. Operationalizing a conceptually based noncategorical definition: a first look at US children with chronic conditions. Arch Pediatr Adolesc Med 1999;153:68–74.
   PubMed Web of Science ®Google Scholar
• Stein RE, Silver EJ. Comparing different definitions of chronic conditions in a national data set. Ambul Pediatr 2002;2:63–70.
   PubMedGoogle Scholar
• World Health Organization. International classification of functioning, disability and health. Geneva: World Health Organization; 2001.
   Google Scholar
• Raghavendra P, Virgo R, Olsson C, Connell T, Lane AE. Activity participation of children with complex communication needs, physical disabilities and typically-developing peers. Dev Neurorehabil 2011;14:145–155.
   PubMed Web of Science ®Google Scholar
• Clarke MT, Newton C, Griffiths T, Price K, Lysley A, Petrides KV. Factors associated with the participation of children with complex communication needs. Res Dev Disabil 2011;32:774–780.
   PubMed Web of Science ®Google Scholar
• Longmuir PE, Bar-Or O. Factors influencing the physical activity levels of youths with physical and sensory disabilities. Adapt Phys Activ Q 2000;17:40–53.
   Web of Science ®Google Scholar
• Shimoni M, Engel-Yeger B, Tirosh E. Participation in leisure activities among boys with attention deficit hyperactivity disorder. Res Dev Disabil 2010;31:1234–1239.
   PubMed Web of Science ®Google Scholar
• Law M, King G, King S, Kertoy M, Hurley P, Rosenbaum P, Young N, Hanna S. Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Dev Med Child Neurol 2006;48:337–342.
   PubMed Web of Science ®Google Scholar
• Imms C. Children with cerebral palsy participate: a review of the literature. Disabil Rehabil 2008;30:1867–1884.
   PubMed Web of Science ®Google Scholar
• Imms C, Reilly S, Carlin J, Dodd K. Diversity of participation in children with cerebral palsy. Dev Med Child Neurol 2008;50:363–369.
   PubMed Web of Science ®Google Scholar
• Fauconnier J, Dickinson HO, Beckung E, Marcelli M, McManus V, Michelsen SI, Parkes J, et al. Participation in life situations of 8–12 year old children with cerebral palsy: cross sectional European study. BMJ 2009;338:b1458.
   PubMed Web of Science ®Google Scholar
• Developmental Disabilities Services [Internet]. Ottawa, Ontario: Accreditation Canada [cited 2012 May 22]. Available from: http://www.accreditation.ca/accreditation-programs/qmentum/standards/developmental-disabilities/.
   Google Scholar
• Developmental Disability Services [Internet]. Salem, OR: State of Oregon [cited 2012 May 22]. Available from: http://egov.oregon.gov/DHS/dd/children/family_supports.shtml.
   Google Scholar
• Shaffer DR, Wood E, Willoughby T. Developmental psychology: childhood and adolescence. 1st Canadian ed. Scarborough, ON: Thomson Nelson; 2002.
   Google Scholar
• Bishop D, Rutter M. Neurodevelopmental disorders: Conceptual issues. In: Rutter M, Bishop DVM, Pine DS, Scott S, Stevenson J, Taylor E, Thapar A, editors. Rutter’s child and adolescent psychiatry. 5th ed. Oxford, UK: Blackwell Publishing Ltd; 2009. pp 32–41.
   Google Scholar
• Accardo J, Shapiro BK. Neurodevelopmental disabilities: beyond the diagnosis. Semin Pediatr Neurol 2005;12:242–249.
   PubMedGoogle Scholar
• Chen CY, Liu CY, Su WC, Huang SL, Lin KM. Factors associated with the diagnosis of neurodevelopmental disorders: a population-based longitudinal study. Pediatrics 2007;119:e435–e443.
   PubMed Web of Science ®Google Scholar
• Hogan DP, Msall ME, Rogers ML, Avery RC. Improved disability population estimates of functional limitation among American children aged 5-17. Matern Child Health J 1997;1:203–216.
   PubMedGoogle Scholar
• Boulet SL, Boyle CA, Schieve LA. Health care use and health and functional impact of developmental disabilities among US children, 1997-2005. Arch Pediatr Adolesc Med 2009;163:19–26.
   PubMed Web of Science ®Google Scholar
• Bax M, Gillberg C. Introduction. In: Bax M, Gillberg C, editors. Comorbidities in developmental disorders. London, UK: Mac Keith Press; 2010.
   Google Scholar
• Cohen E, Kuo DZ, Agrawal R, Berry JG, Bhagat SK, Simon TD, Srivastava R. Children with medical complexity: an emerging population for clinical and research initiatives. Pediatrics 2011;127:529–538.
   PubMed Web of Science ®Google Scholar
• Statistics Canada, Social and Aboriginal Statistics Division. Participation and activity limitation survey 2006: Technical and methodological report. Ottawa, ON: Ministry of Industry; 2007. Report nr Catalogue no. 89–628-XIE.
   Google Scholar
• World Health Organization. International statistical classification of diseases and related health problems, tenth revision (ICD-10). Geneva: World Health Organization; 1992.
   Google Scholar
• Best JR, Miller PH. A developmental perspective on executive function. Child Dev 2010;81:1641–1660.
   PubMed Web of Science ®Google Scholar
• Bramlett MD, Read D, Bethell C, Blumberg SJ. Differentiating subgroups of children with special health care needs by health status and complexity of health care needs. Matern Child Health J 2009;13:151–163.
   PubMed Web of Science ®Google Scholar
• King G, Tucker MA, Baldwin P, Lowry K, LaPorta J, Martens L. A life needs model of pediatric service delivery: services to support community participation and quality of life for children and youth with disabilities. Phys Occup Ther Pediatr 2002;22:53–77.
   PubMedGoogle Scholar
• Boyle CA, Boulet S, Schieve LA, Cohen RA, Blumberg SJ, Yeargin-Allsopp M, Visser S, Kogan MD. Trends in the prevalence of developmental disabilities in US children, 1997-2008. Pediatrics 2011;127:1034–1042.
   PubMed Web of Science ®Google Scholar
• McLeod S, McKinnon DH. Prevalence of communication disorders compared with other learning needs in 14,500 primary and secondary school students. Int J Lang Commun Disord 2007;42 Suppl 1:37–59.
   PubMed Web of Science ®Google Scholar
• Blackburn CM, Spencer NJ, Read JM. Prevalence of childhood disability and the characteristics and circumstances of disabled children in the UK: secondary analysis of the Family Resources Survey. BMC Pediatr 2010;10:21.
   PubMed Web of Science ®Google Scholar
• Houtrow AJ, Okumura MJ, Hilton JF, Rehm RS. Profiling health and health-related services for children with special health care needs with and without disabilities. Acad Pediatr 2011;11:508–516.
   PubMed Web of Science ®Google Scholar
• Hutchison T, Gordon D. Ascertaining the prevalence of childhood disability. Child Care Health Dev 2005;31:99–107.
   PubMed Web of Science ®Google Scholar
• Simpson GA, Colpe L, Greenspan S. Measuring functional developmental delay in infants and young children: prevalence rates from the NHIS-D. Paediatr Perinat Epidemiol 2003;17:68–80.
   PubMed Web of Science ®Google Scholar
• Read J, Blackburn C, Spencer N. Disabled children in the UK: a quality assessment of quantitative data sources. Child Care Health Dev 2010;36:130–141.
   PubMed Web of Science ®Google Scholar
• Madden R, Gilroy J, Madden R, Bundy A, Glozier N, Manga R, Clemson L, et al. Productivity commission on disability care and support. Australia; 2011. [cited 2012 May 22]. Available from: http://www.pc.gov.au/__data/assets/pdf_file/0008/109916/subdr0942.pdf.
   Google Scholar
• Representative for Children and Youth. Update: System of services for children and youth with special needs - November 26, 2008. Victoria, BC: Representative for Children and Youth; 2008. [cited 2012 May 22]. Available from: http://www.rcybc.ca/Images/PDFs/Reports/Special%20Needs%20Update08%20FINAL.pdf.
   Google Scholar