Revisioning, reconnecting and revisiting: the psychosocial transition of returning home from hospital following a stroke

References

• Green T, King K. The trajectory of minor stroke recovery for men and their female spousal caregivers: literature review. J Adv Nurs 2007;58:517–31
   PubMed Web of Science ®Google Scholar
• Adamson J, Beswick A, Ebrahim S. Is stroke the most common cause of disability? J Stroke Cerebrovasc Dis 2004;13:171–7
   PubMedGoogle Scholar
• Mackay J, Mensah G. Atlas of heart disease and stroke. Geneva: World Health Organisation; 2004
   Google Scholar
• The Scottish Government. Better heart disease and stroke care action plan. Edinburgh: The Scottish Government; 2009
   Google Scholar
• Lindley R, Sandercock P, Dennis M, et al. What are the current “grey areas” of uncertainty for thrombolysis for acute ischaemic stroke in the UK? Evidence from the third international stroke trial (IST-3). Age Ageing: J Br Geriatr Society 2010;39:i45
   Google Scholar
• Department of Health. National stroke strategy. London: HMSO; 2007
   Google Scholar
• Department of Health. Ready to go? Planning the discharge and transfer of patients from hospital and intermediate care. London: HMSO; 2010
   Google Scholar
• Saha K, Luk H, Abdelkareem M, et al. Monitoring the outcome of stroke patients after discharge in the community (Mosaic Study). Age Ageing: J Br Geriatr Society 2010;39:i45
   Google Scholar
• Anderson R. The aftermath of stroke: the experience of patients and their families. Cambridge: Cambridge University Press; 1992
   Google Scholar
• Becker G. Continuity after stroke: implications of life-course disruption in old age. Gerontol 1993;33:148–58
   Google Scholar
• Pringle J, Hendry C, McLafferty E. A review of the discharge experiences of stroke survivors and their carers. J Clin Nurs 2008;17:2384–97
   PubMed Web of Science ®Google Scholar
• Bury M. Chronic illness as biographical disruption. Sociol Health Ill 1982;4:167–82
   PubMedGoogle Scholar
• Parkes CM. Psycho-social transitions: a field of study. Social Sci Med 1971;5:101–15
   PubMed Web of Science ®Google Scholar
• Wohlin Wottrich A, Åström K, Löfgren M. On parallel tracks: newly home from hospital – people with stroke describe their expectations. Disabil Rehabil 2012;34:1218–24
   PubMed Web of Science ®Google Scholar
• Jones A. A condensed history of the phenomenology: the first and second phases from Franz Brentano to Hans-Georg Gadamer. Nurse Res 2001;8:65–75
   Google Scholar
• Smith JA. Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology. Qual Res Psychol 2004;1:39–54
   Web of Science ®Google Scholar
• Smith JA, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method and research. London: Sage; 2009
   Google Scholar
• Pringle J, Drummond J, McLafferty E, Hendry C. Interpretative phenomenological analysis: a discussion and critique. Nurse Res 2011;18:20–4
   PubMedGoogle Scholar
• Smith JA. Hermeneutics, human sciences and health: linking theory and practice. Int J Qual Stud Health Well-being 2007;2:3–11
   Google Scholar
• Finlay L, Ballinger C. Glossary. In: Finlay L, Ballinger C, eds. Qualitative research for allied health professionals: challenging choices. Chichester: Wiley; 2006:257–63
   Google Scholar
• Rochette A, Desrosiers J, Bravo G, et al. Changes in participation after a mild stroke: quantitative and qualitative perspectives. Top Stroke Rehabil 2007;14:59–68
   PubMed Web of Science ®Google Scholar
• Morse JM. Editorial: What’s your favorite color? Qual Health Res 2008;18:299–300
   PubMed Web of Science ®Google Scholar
• Barbour R. Checklists for improving rigour in qualitative research: a case of the tail wagging the dog? Br Med J 2001;322:1115–17
   PubMed Web of Science ®Google Scholar
• Casey D, Murphy K. Issues in using methodological triangulation in research. Nurse Res 2009;16:40–55
   PubMedGoogle Scholar
• Hall K, Hamilton B, Gordon W, Zasler N. Characteristics and comparisons of functional assessment indices: disability rating scale, functional independence measure and functional assessment measure. J Head Trauma Rehabil 1993;8:60–74
   Google Scholar
• Hawley C, Taylor R, Hellawell D, Pentland B. Use of the functional assessment measure (FIM + FAM) in head injury rehabilitation: a psychometric analysis. J Neurol, Neurosurg Psychiatry 1999;67:749–54
   PubMed Web of Science ®Google Scholar
• Pringle J, Hendry C, McLafferty E, Nicholson L. Including people with aphasia in stroke research. Bull: J R College Speech Lang Ther December 2009:12–13
   Google Scholar
• Pringle J, Hendry C, McLafferty E, Drummond J. Stroke survivors with aphasia: personal experiences of coming home. Br J Community Nurs 2010;15:241–7
   PubMedGoogle Scholar
• Connect. Including people with communication disability in stroke research and consultation: a guide for researchers and service providers. London: Connect; 2007
   Google Scholar
• Murphy J, Tester S, Hubbard G, et al. Enabling frail older people with a communication difficulty to express their views: the use of Talking Mats™ as an interview tool. Health Soc Care Community 2005;13:95–107
   PubMed Web of Science ®Google Scholar
• Prosser J, Schwartz D. Photographs within the sociological research process. In: Prosser J, ed. Image-based research: a sourcebook for qualitative researchers. London: Routledge Falmer; 1998:101–15
   Google Scholar
• Yardley L. Dilemmas in qualitative health research. Psychol Health 2000;15:215–28
   Web of Science ®Google Scholar
• Sandelowski M. Rigor or rigor mortis: the problem in qualitative research revisited. Adv Nurs Sci 1993;16:1–8
   PubMed Web of Science ®Google Scholar
• Thorne S. Data analysis in qualitative research. Evid Based Nurs 2000;3:68–70
   Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006;3:77–101
   Google Scholar
• Buzan T, Buzan B. The mind map book – radiant thinking. London: BBC Books; 1993
   Google Scholar
• Tattersall CL, Watts AL, Vernon SA. Mind-mapping as a tool in qualitative research. Nurs Times 2007;103:32–3
   Google Scholar
• Tattersall C, Powell J, Stroud J, Pringle J. Mind mapping in qualitative research. Nurs Times 2011;107:20–2
   PubMedGoogle Scholar
• Ellis-Hill C, Payne S, Ward C. Self-body split: issues of identity in physical recovery following a stroke. Disabil Rehabil 2000;22:725–33
   PubMed Web of Science ®Google Scholar
• Watson C. Unreliable narrators? “Inconsistency” [and some inconstancy] in interviews. Qual Res 2006;6:367–84
   Google Scholar
• Kaufman S. Towards a phenomenology of boundaries in medicine: chronic illness experience in the case of stroke. Med Anthropol Q 1988;2:338–54
   Google Scholar
• Luker J, Grimmer-Somers L. The relationship between staff compliance with implementing discharge planning guidelines, and stroke patients’ experiences post-discharge. Int J Allied Health Sci Pract 2009;7:1–15
   Google Scholar
• Mauk K, Boss B. Nursing interventions within the Mauk model of poststroke recovery/commentary. Rehabil Nurs 2006;31:257–65
   PubMed Web of Science ®Google Scholar
• Rolland JS. Chronic illness and the family life cycle. In: Carter B, McGoldrick M, eds. The changing family life cycle. London: Allyn & Bacon; 1989:433–56
   Google Scholar
• Buschenfeld K, Morris R, Lockwood S. The experience of partners of young stroke survivors. Disabil Rehabil 2009;31:1643–51
   PubMed Web of Science ®Google Scholar
• Ussher J, Kirsten L, Butow P, Sandoval M. What do cancer support groups provide which other supportive relationships don’t? The experiences of peer support groups for people with cancer. Social Sci Med 2006;62:2565–76
   PubMed Web of Science ®Google Scholar
• Kralik D, Visentin K. Transition: a literature review. J Adv Nurs 2006;55:320–9
   PubMed Web of Science ®Google Scholar
• Vickers M. Expectations of consistency in organizational life: stories of inconsistency from people with unseen chronic illness. Employ Responsib Rights J 2003;15:85–98
   Google Scholar
• Caldwell G. Theory with a Capital ‘T’: Exploring the various roles of theory within the IPA research process; 2008. Available from: http://groups.yahoo.com/group/ipanalysis/files [last accessed 3 Feb 2009]
   Google Scholar
• Brazil K, Roberts J, Hode M, Vanderbent S. Managing the transition from hospital to home for family caregivers of stroke survivors. Natl Acad Pract Forum 2000;2:259–66
   Google Scholar
• Sit J, Wong T, Clinton M, et al. Stroke care in the home: the impact of social support on the general health of family caregivers. J Clin Nurs 2004;13:816–24
   PubMed Web of Science ®Google Scholar
• Dewar B, Mackay R, Smith S, et al. Use of emotional touchpoints as a method of tapping into the experience of receiving compassionate care in a hospital setting. J Res Nurs 2010;15:29–41
   Google Scholar
• McKevitt C, Redfern J, Mold F, Wolfe C. Qualitative studies of stroke: a systematic review. Stroke 2004;35:1499–505
   PubMed Web of Science ®Google Scholar
• Gibbon B. Stroke nursing care and management in the community: a survey of district nurses’ perceived contribution in one health district in England. J Adv Nurs 1994;20:469–76
   PubMed Web of Science ®Google Scholar
• Department of Health. Long term conditions, five outcomes. London: HMSO; 2008
   Google Scholar
• Hafsteinsdottir T, Grypdonck M. Being a stroke patient: a review of the literature. J Adv Nurs 1997;26:580–8
   PubMed Web of Science ®Google Scholar
• Jopp D, Schmitt M. Dealing with negative life events: differential effects of personal resources, coping strategies, and control beliefs. Eur J Ageing 2010;7:167–80
   Web of Science ®Google Scholar
• Starks H, Trinidad S. Choose your method: a comparison of phenomenology, discourse analysis, and grounded theory. Qual Health Res 2007;17:1372–80
   PubMed Web of Science ®Google Scholar