2,723
Views
63
CrossRef citations to date
0
Altmetric
Research Article

Family–professional collaboration in pediatric rehabilitation: a practice model

&
Pages 434-440 | Received 30 Aug 2012, Accepted 16 Apr 2013, Published online: 29 May 2013

References

  • Bailey DB Jr, Buysse V, Edmondson R, Smith TM. Creating family-centered services in early intervention: perceptions of professionals in four states. Except Child 1992;58:298–309
  • King S, Teplicky R, King G, Rosenbaum P. Family-centered service for children with cerebral palsy and their families: a review of the literature. Semin Pediatr Neurol 2004;11:78–86
  • Blue-Banning M, Summers J, Frankland H, et al. Dimensions of family and professional partnerships: constructive guidelines for collaboration. Except Child 2004;70:167–85
  • Keen D. Parents, families, and partnerships: issues and considerations. Int J Disabil, Dev Educ 2007;54:339–49
  • Summers J, Hoffman L, Marquis J, et al. Measuring the quality of family--professional partnerships in special education services. Except Child 2005;72:65–80
  • Law M, Darrah J, Pollock N, et al. Family-centred functional therapy for children with cerebral palsy. Phys Occup Ther Pediatr 1998;18:83–102
  • Rosenbaum P, King S, Law M, et al. Family-centred service: a conceptual framework and research review. Phys Occup Ther Pediatr 1998;18:1–20
  • Braga L, Da Paz Junior A, Ylvisaker M. Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial. Brain Inj 2005;19:819–31
  • Dempsey I, Keen D, Pennell D, et al. Parent stress, parenting competence and family-centered support to young children with an intellectual or developmental disability. Res Dev Disabil 2009;30:558–66
  • Novak I, Cusik A, Lannin N. Occupational therapy home programs for cerebral palsy: a double blind, randomized controlled trial. Pediatrics 2009;124:e606–14
  • ØstensjØ S, Øien I, Fallang B. Goal-oriented rehabilitation of preschoolers with cerebral palsy -- a multi-case study of combined use of the Canadian Occupational Performance Measure (COPM) and the Goal Attainment Scaling (GAS). Dev Neurorehabil 2008;11:252–9
  • Van Riper M. Maternal perceptions of family-provider relationships and well-being in families of children with Down syndrome. Res Nurs Health 1999;22:357–68
  • Bamm E, Rosenbaum P. Family-centered theory: origins, development, barriers, and supports to implementation in rehabilitation medicine. Arch Phys Med Rehabil 2008;89:1618–24
  • Hinojosa J, Sproat C, Mankhetwit S, Anderson J. Shifts in parent-therapist partnerships: twelve years of change. Am J Occup Ther 2002;56:556–63
  • Dickens K, Matthews L, Thompson J. Parent and service providers' perceptions regarding the delivery of family centred paediatric rehabilitation services in a children's hospital. Child Care Health Dev 2011;37:64–73
  • Dyke P, Buttigieg P, Blackmore AM, Ghose A. Use of the measure of process of care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child Care Health Dev 2006;32:167–76
  • King G, Law M, King S, Rosenbaum P. Parents' and service providers' perceptions of the family-centredness of children's rehabilitation services. Phys Occup Ther Pediatr 1998;18:21–40
  • Litchfield R, MacDougall C. Professional issues for physiotherapists in family-centred and community-based settings. Aust J Physiother 2002;48:105–12
  • Darrah J, Law MC, Pollock N, et al. Context therapy: a new intervention approach for children with cerebral palsy. Dev Med Child Neurol 2011;53:615–20
  • King G. A relational goal-oriented model of optimal service delivery to children and families. Phys Occup Ther Pediatr 2009;29:384–408
  • Novak I, Cusick A. Home programmes in paediatric occupational therapy for children with cerebral palsy: where to start? Aust Occup Ther J 2006;53:251–64
  • Dunst CJ, Boyd K, Trivette CM, Hamby DW. Family-oriented program models and professional helpgiving practices. Family Relations 2002;51:221–9
  • Caro P, Derevensky JL. Family-focused intervention model: implementation and research findings. Topics Early Child Spec Educ 1991;11:66–80
  • Øien I, Fallang B, ØstensjØ S. Goal setting in paediatric rehabilitation: perceptions of parents and professional. Child Care Health Dev 2010;36:558–65
  • Viscardis L. The family-centred approach to providing services: a parent perspective. Phys Occup Ther Pediatr 1998;18:41–53
  • Wiart L, Ray L, Darrah J, Magill-Evans J. Parents' perspectives on occupational therapy and physical therapy goals for children with cerebral palsy. Disabil Rehabil 2010;32:248–58
  • MacKean G, Thurston W, Scott C. Bridging the divide between families and health professionals perspectives on family centred care. Health Expect 2005;8:74–85
  • Dunst CJ, Tivette CM, Hamby DW. Measuring the helpgiving practices of human services program practitioners. Hum Relat 1996;49:815–35
  • Dunst CJ, Trivette CM, Davis M, Cornwell J. Enabling and empowering families of children with health impairments. Child Health Care 1988;17:71–81
  • Dunst CJ, Trivette CM, Hamby DW. Meta-analysis of family-centered helpgiving practices research. Ment Retard Dev Disabil Res Rev 2007;13:370–8
  • Dunst CJ, Trivette CM, LaPointe N. Toward clarification of the meaning and key elements of empowerment. Family Sci Rev 1992;5:111–30
  • Leiter V. Dilemmas in sharing care: maternal provision of professionally driven therapy for children with disabilities. Soc Sci Med 2004;58:837–49
  • Law M, Baptiste S, McColl M, et al. Canadian Occupational Performance Measure (COPM) manual, 3rd ed. Toronto, ON, Canada: CAOT Publications ACE; 1998
  • Lethem J. Brief solution focused therapy. Child Adolesc Ment Health 2002;7:189–92
  • Stoddart K, McDonnell J, Temple V, Mustata A. Is brief better? A modified brief solution-focused therapy approach for adults with a developmental delay. J Syst Therapies 2001;20:24–40
  • De Shazer S, Berg IK, Lipchik E, et al. Brief therapy: focused solution development. Family Process 1986;25:207–21
  • De Jong P, Miller S. How to interview for client strengths. Social Work 1995;40:729–36
  • Bowles N, Mackintosh C, Torn A. Nurses's communication skills: an evaluation of the impact of solution focused communication training. J Adv Nurs 2001;36:347–54
  • Graham F, Rodger S, Ziviani J. Enabling occupational performance of children through coaching parents: three case reports. Phys Occup Ther Pediatr 2010;30:4–15
  • Lloyd H, Dallos R. Solution-focused brief therapy with families who have a child with intellectual disabilities: a description of the content of initial sessions and the processes. Clin Child Psychol Psychiatry 2006;11:367–86
  • Lloyd H, Dallos R. First session solution focused brief therapy with families who have a child with severe intellectual disabilities: mothers' experiences and views. J Fam Ther 2008;30:5–28
  • Haynes RB, Devereaux P, Guyatt GH. Physicians' and patients' choices in evidence based practice. Br Med J 2002;324:1350
  • Palisano RJ, Campbell SK, Harris SR. Evidence-based decision making in pediatric physical therapy. In: Campbell SK, Palisano R, Orlin MN, eds. Physical therapy for children. St. Louis (MO): Elsevier; 2011:1–2
  • Palisano RJ, Chiarello LA, King GA, et al. Participation-based therapy for children with physical disabilities. Disabil Rehabil 2012;34:1041–52
  • Fleming J. Solution-focused brief therapy: one answer to managed mental health care. Fam J Alex Va 1998;6:286–94
  • Rainforth B, Salisbury CL. Functional home programs: a model for therapists. Topics Early Child Spec Educ 1988;7:33–45
  • Brinckerhoff JL, Vincent LJ. Increasing parental decision-making at the individualized educational program meeting. J Early Interv 1986;11:46–58
  • Schreiber JM, Effgen SK, Palisano RJ. Effectiveness of parental collaboration on compliance with a home exercise program. Pediatr Phys Ther 1995;7:59–64
  • Schmidt RA, Wrisberg CA. Motor learning and performance, 3rd ed. Champaign (IL): Human Kinetics; 2004:194
  • Koren PE, DeChillo N, Friesen BJ. Measuring empowerment in families whose children have emotional disabilities: a brief questionnaire. Rehabil Psychol 1992;37:305–21
  • Fragala M, O'Neil M, Russo K, Dumas H. Impairment, disability, and satisfaction outcomes after lower-extremity botulinum toxin A injections for children with cerebral palsy. Pediatr Phys Ther 2002;14:132–44
  • Lowe K, Novak I, Cusick A. Repeat injection of botulinum toxin A is safe and effective for upper limb movement and function in children with cerebral palsy. Dev Med Child Neurol 2007;49:823–9
  • Rigby PJ, Ryan SE, Campbell KA. Effect of adaptive seating devices on the activity performance of children with cerebral palsy. Arch Phys Med Rehabil 2009;90:1389–95
  • King G, McDougall J, Palisano RJ, et al. Goal attainment scaling: its use in evaluating pediatric therapy programs. Phys Occup Ther Pediatr 1999;19:31–52
  • Löwing K, Bexelius A, Carlberg EB. Activity focused and goal directed therapy for children with cerebral palsy -- Do goals make a difference? Disabil Rehabil 2009;31:1808–16
  • Wallen M, O'Flaherty S, Waugh M. Functional outcomes of intramuscular botulinum toxin type a and occupational therapy in the upper limbs of children with cerebral palsy: a randomized controlled trial. Arch Phys Med Rehabil 2007;88:1–10
  • Carswell A, McColl M, Baptiste S, et al. The Canadian occupational performance measure: a research and clinical literature review. Can J Occup Ther 2004;71:210–22
  • King G, Kertoy M, King S, et al. A measure of parents' and service providers' beliefs about participation in family-centered services. Children's Health Care 2003;32:191–214

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.