A systematic review of qualitative studies on adjusting after stroke: lessons for the study of resilience

References

• Garmezy N, Streitman S. Children at risk: the serach for the antecedents of schizophrenia. Schizophrenia Bull 1974;8:14–90
   PubMedGoogle Scholar
• Rutter M. Resilience in the face of adversity: protective factors and resistance to psychiatric disorder. Brit J Psychiat 1985;147:598–611
   PubMed Web of Science ®Google Scholar
• Hildon Z, Montgomery S, Blane D, et al. Examining resilience of quality of life in the face of health-related and psychosocial adversity at older ages: what is “right” about the way we age? Gerontologist 2009;50:36–47
   PubMed Web of Science ®Google Scholar
• Hildon Z, Smith G, Netuveli G, Blane D. Understanding adversity and resilience at older ages. Sociology Health Illness 2008;30:726–40
   PubMed Web of Science ®Google Scholar
• Netuveli G, Wiggins R, Montgomery S, et al. Mental health and resilience at older ages: bouncing back after adversity in the British Household Panel Survey. J Epidemiol Community Health 2008;62:987–91
   PubMed Web of Science ®Google Scholar
• Wiles J, Wild K, Kerse N, Allen R. Resilience from the point of view of older people: ‘There's still life beyond a funny knee’. Social Sci Med 2012;74:416–24
   PubMed Web of Science ®Google Scholar
• Windle G, Markland D, Woods R. Examination of a theoretical model of psychological resilience in older age. Aging Mental Health 2008;12:285–92
   PubMed Web of Science ®Google Scholar
• Windle G, Woods R, Markland D. Living with Ill-health in older age: the role of a resilient personality. J Happiness Studies 2010;11:763–77
   Web of Science ®Google Scholar
• Blane D, Wiggins R, Montgomery S, et al. Resilience at older ages: the importance of social relations and implications for policy. ICLS Occassional Paper. Vol. 3. London: International Centre for Lifecourse Studies; 2011
   Google Scholar
• King G, Cathers T, Brown E, et al. Turning points and protective processes in the lives of people with chronic disabilities. Qual Health Res 2003;13:184–206
   PubMed Web of Science ®Google Scholar
• Albrecht GL, Devlieger P. The disability paradox: high quality of life against all odds. Social Sci Med 1999;48:977–88
   PubMed Web of Science ®Google Scholar
• Braudy Harris P. Another wrinkle in the debate about successful aging: the undervalued concept of resilience and the lived experience of dementia. Int J Aging Human Develop 2008;67:43–61
   PubMed Web of Science ®Google Scholar
• Young J, McNicoll P. Against all odds: positive life experiences of people with advanced amyotropic lateral sclerosis. Health Social Work 1998;23:35–43
   PubMed Web of Science ®Google Scholar
• Nakashima M, Canda E. Positive dying and resiliency in later life: a qualitative study. J Aging Studies 2005;19:109–25
   Web of Science ®Google Scholar
• Schoon I. Temporal and contextual dimensions to individual positive development: a developmental-contextual systems model of resilience. In: Ungar M, ed. The social ecology of resilience: a handbook of theory and practice. New York: Springer; 2011:143--56
   Google Scholar
• Ungar M. The social ecology of resilience: addressing contextual and cultural ambiguity of a nascent construct. Am J Orthopsychiatry 2011;81:1–17
   PubMed Web of Science ®Google Scholar
• Johnston S, Mendis S, Mathers C. Global variation in stroke burden and mortality: estimates from monitoring, surveillance, and modelling. Lancet Neurol 2009;8:345–54
   PubMed Web of Science ®Google Scholar
• Stroke Association. Stroke Statistics: resource sheet 11. London: Stroke Association; 2013
   Google Scholar
• Wolfe CDA, Crichton SL, Heuschmann PU, et al. Estimates of outcomes up to ten years after stroke: analysis from the prospective south london stroke register. PLoS Med 2011;8:e1001033
   PubMed Web of Science ®Google Scholar
• de Guzman A, Tan EL, Tan EF, et al. Self-concept, disposition, and resilience of poststroke filipino elderly with residual paralysis. EducationGerontol 2012;38:429–42
   Google Scholar
• Greenwood N, Mackenzie A, Cloud G, Wilson N. Informal primary carers of stroke survivors living at home – challenges, satisfactions and coping: a systematic review of qualitative studies. Disabil Rehabil 2009;31:337–51
   PubMed Web of Science ®Google Scholar
• Lamb M, Buchanan D, Godfrey C, et al. The psychosocial spiritual experience of elderly individuals recovering from stroke: a systematic review. Int J Evidence-Based Healthcare 2008;6:173–205
   PubMedGoogle Scholar
• McKevitt C, Redfern J, Mold F, Wolfe C. Qualitative studies of stroke – a systematic review. Stroke 2004;35:1499–505
   PubMed Web of Science ®Google Scholar
• Murray J, Ashworth R, Forster A, Young J. Developing a primary care-based stroke service: a review of the qualitative literature. Brit J General Pract 2003;53:137–42
   PubMed Web of Science ®Google Scholar
• Peoples H, Satink T, Steultjens E. Stroke survivors' experiences of rehabilitation: a systematic review of qualitative studies. Scand J Occupat Ther 2011;18:163–71
   PubMed Web of Science ®Google Scholar
• Salter K, Hellings C, Foley N, Teasell R. The experience of living with stroke: a qualitative meta-synthesis. J Rehabil Med 2008;40:595–602
   PubMed Web of Science ®Google Scholar
• Wiles R, Cott C, Gibson B. Hope, expectations and recovery from illness: a narrative synthesis of qualitative research. J Advanced Nursing 2008;64:564–73
   PubMed Web of Science ®Google Scholar
• Bury M. The sociology of chronic illness: a review of research and prospects. Sociology Health Illness 1991;13:451–68
   Web of Science ®Google Scholar
• Pound P, Gompertz P, Ebrahim S. Social and practical strategies described by people living at home with stroke. Health Social Care Commun 1999;7:120–8
   PubMed Web of Science ®Google Scholar
• Young, J, McNicoll P. Against all odds: positive life experiences of people with advanced amyotropic lateral sclerosis. Health Social Work 1998;23:35–43
   PubMed Web of Science ®Google Scholar
• Dixon-Woods M, Shaw R, Agarwal S, Smith J. The problem of appraising qualitative research. Qual Saf Health Care 2004;13:223–5
   PubMed Web of Science ®Google Scholar
• Becker G. Continuity after a stroke: implications of life-course disruption in old age. Gerontologist 1993;33:148–58
   PubMed Web of Science ®Google Scholar
• Burton C. Living with stroke: a phenomenological study. J Advanced Nursing 2000;32:301–9
   PubMed Web of Science ®Google Scholar
• Dowswell G, Lawler J, Dowswell T, et al. Investigating recovery from stroke: a qualitative study. J Clini Nursing 2000;9:507–15
   PubMed Web of Science ®Google Scholar
• Ellis-Hill C, Payne S, Ward C. Self-body split: issues of identity in physical recovery following a stroke. Disabil Rehabil 2000;22:725–33
   PubMed Web of Science ®Google Scholar
• Hilton EL. The meaning of stroke in elderly women: a phenomenological investigation. J Gerontolog Nursing 2002;28:19–26
   PubMedGoogle Scholar
• Koch L, Egbert N, Coeling H, Ayers D. Returning to work after the onset of illness: experiences of right hemisphere stroke survivors. Rehabil Counseling Bull 2005;48:209–18
   Web of Science ®Google Scholar
• Rudman D, Hebert D, Reid D. Living in a restricted occupational world: the occupational experiences of stroke survivors who are wheelchair users and their caregivers. Can J Occup Ther – Revue Canadienne d Ergotherapie 2006;73:141–52
   PubMedGoogle Scholar
• Bays CL. Older adults' descriptions of hope after a stroke. Rehabil Nursing 2001;26:18--27
   PubMedGoogle Scholar
• Brown K, Worrall L, Davidson B, Howe T. Snapshots of success: an insider perspective on living successfully with aphasia. Aphasiology 2010;24:1267–95
   Web of Science ®Google Scholar
• Eilertsen G, Kirkevold M, Bjork IT. Recovering from a stroke: a longitudinal, qualitative study of older Norwegian women. J Clin Nursing 2010;19:2004–13
   PubMed Web of Science ®Google Scholar
• Jones F, Mandy A, Partridge C. Reasons for recovery after stroke: a perspective based on personal experience. Disabil Rehabil 2008;30:507–16
   PubMed Web of Science ®Google Scholar
• Kirkevold M. The unfolding illness trajectory of stroke. Disabil Rehabil 2002;24:887–98
   PubMed Web of Science ®Google Scholar
• Kouwenhoven SE, Kirkevold M, Engedal K, et al. The lived experience of stroke survivors with early depressive symptoms: a longitudinal perspective. Int J Qual Studies Health Well-Being 2011;6:1--13
   Web of Science ®Google Scholar
• Lynch EB, Butt Z, Heinemann A, et al. A qualitative study of quality of life after stroke: the importance of social relationships. J Rehabil Med 2008;40:518–23
   PubMed Web of Science ®Google Scholar
• Murray CD, Harrison B. The meaning and experience of being a stroke survivor: an interpretative phenomenological analysis. Disabil Rehabil 2004;26:808–16
   PubMed Web of Science ®Google Scholar
• Northcott S, Hilari K. Why do people lose their friends after a stroke? Int J Language Commun Disorders 2011;46:524–34
   PubMed Web of Science ®Google Scholar
• Thompson HS, Ryan A. The impact of stroke consequences on spousal relationships from the perspective of the person with stroke. J Clin Nursing 2009;18:1803–11
   PubMed Web of Science ®Google Scholar
• Wood JP, Connelly DM, Maly MR. ‘Getting back to real living': a qualitative study of the process of community reintegration after stroke. Clin Rehabil 2010;24:1045–56
   PubMed Web of Science ®Google Scholar
• Pearl G, Sage K, Young A. Involvement in volunteering: an exploration of the personal experience of people with aphasia. Disabil Rehabil 2011;33:1805–21
   PubMed Web of Science ®Google Scholar
• Hartke R, Trierweiler R, Bode R. Critical factors related to return to work after stroke: a qualitative study. Topics Stroke Rehabil 2011;18:341–51
   PubMed Web of Science ®Google Scholar
• Lobeck M, Thompson AR, Shankland MC. The experience of stroke for men in retirement transition. Qual Health Res 2005;15:1022–36
   PubMed Web of Science ®Google Scholar
• Lock S, Jordan L, Bryan K, Maxim J. Work after stroke: focusing on barriers and enablers. Disabil Soc 2005;20:33–47
   Web of Science ®Google Scholar
• Carlsson, GE, Moller A, Blomstrand C. Managing an everyday life of uncertainty – a qualitative study of coping in persons with mild stroke. Disabil Rehabil 2009;31:773–82
   PubMed Web of Science ®Google Scholar
• Clarke, P, Black S. Quality of life following stroke: negotiating disability, identity, and resources. J Appl Gerontol 2005;24:319–36
   Web of Science ®Google Scholar
• Green, TL King KM. The trajectory of minor stroke recovery for men and their female spousal caregivers: literature review. J Advanced Nursing 2007;58:517–31
   PubMed Web of Science ®Google Scholar
• Erikson A, Park M, Tham K. Belonging: a qualitative, longitudinal study of what matters for persons after stroke during one year of rehabilitation. J Rehabil Med 2010;42:831–8
   PubMed Web of Science ®Google Scholar
• Green TL, King KM. Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: a descriptive qualitative study. Int J Nursing Stud 2009;46:1194–200
   PubMed Web of Science ®Google Scholar
• Roman M. The process of recovery: a tale of two men. Issues Ment Health Nurs 2006;27:537–57
   PubMedGoogle Scholar
• Kvigne K, Kirkevold M, Gjengedal E. Fighting back: struggling to continue life and preserve the self following a stroke. Health Care Women Int 2004;25:370–87
   PubMedGoogle Scholar
• White JH, Mackenzie L, Magin P, Pollock M. The occupational experience of stroke survivors in a community setting. Otjr-Occup Participation Health 2008;28:160–7
   Web of Science ®Google Scholar
• Secrest J, Thomas S. Continuity and discontinuity: the quality of life following stroke. Rehabil Nursing 1999;24:240–6
   PubMedGoogle Scholar
• Cross A, Schneider M. A preliminary qualitative analysis of the impact of hope on stroke recovery in women. Topics Stroke Rehabil 2010;17:484–95
   PubMed Web of Science ®Google Scholar
• Faircloth CA, Boylstein C, Rittman M, et al. Sudden illness and biographical flow in narratives of stroke recovery. Sociology Health Illness 2004;26:242–61
   PubMed Web of Science ®Google Scholar
• Faircloth CA, Rittman M, Boylstein C, et al. Energizing the ordinary: biographical work and the future in stroke recovery narratives. J Aging Studies 2004;18:399–13
   Web of Science ®Google Scholar
• Pound P, Gompertz P, Ebrahim S. Illness in the context of older age: the case of stroke. Sociology Health Illness 1998;20:489–506
   Web of Science ®Google Scholar
• Wyller TB, Kirkevold M. How does a cerebral stroke affect quality of life? Towards an adequate theoretical account. Disabil Rehabil 1999;21:152–61
   PubMed Web of Science ®Google Scholar
• Clarke P. Towards a greater understanding of the experience of stroke: integrating quantitative and qualitative methods. J Aging Studies 2003;17:171–87
   Web of Science ®Google Scholar
• Widar M, Ek A, Ahlstrom G. Coping with long-term pain after a stroke. J Pain Symptom Manage 2004;27:215–25
   PubMed Web of Science ®Google Scholar
• Ekstam L, Tham K, Borell L. Couples' approaches to changes in everyday life during the first year after stroke. Scand J Occup Ther 2011;18:49–58
   PubMed Web of Science ®Google Scholar
• Ch'ng AM, French D, McLean N. Coping with the challenges of recovery from stroke long term perspectives of stroke support group members. J Health Psychol 2008;13:1136–46
   PubMed Web of Science ®Google Scholar
• Folkman S, Lazarus RS. An analysis of coping in a middle-aged community sample. J Health Social Behav 1980;21:219–39
   PubMed Web of Science ®Google Scholar
• Hart E. System induced setbacks in stroke recovery. Sociology Health Illness 2001;23:101–23
   Web of Science ®Google Scholar
• Jacelon C. The trait and process or resilience. J Advanced Nursing 1997;25:123–9
   PubMed Web of Science ®Google Scholar
• Luthar S, Ciccetti D, Becker B. The construct of resilience: a critical evaluation and guidelines for future work. Child Develop 2000;71:543–62
   PubMed Web of Science ®Google Scholar
• Wild K, Wiles J, Allen R. Resilience: thoughts on the value of the concept for critical gerontology. Ageing Soc 2013;33:137–58
   Google Scholar
• Rutter M. Implications of resilience concepts for scientific understanding. Annals New York Acad Sci 2006;1094:1–12
   PubMed Web of Science ®Google Scholar
• Windle G. What is resilience? A review and concept analysis. Rev Crit Gerontol 2011;21:152–69
   Google Scholar
• Aranda K, Zeeman L, Scholes J, Morales AS. The resilient subject: exploring subjectivity, identity and the body in narratives of resilience. Health 2012;16:548–63
   PubMed Web of Science ®Google Scholar
• Masten A. Ordinary magic: resilience processes in development. Am Psychologist 2001;56:227–38
   PubMed Web of Science ®Google Scholar
• Gattuso S. Becoming a wise old woman: resilience and wellness in later life. Health Sociology Rev 2003;12:171–7
   Google Scholar
• McCubbin M, Balling K, Possin P, et al. Family resiliency in childhood cancer. Family Relations 2002;51:103–11
   Web of Science ®Google Scholar
• Tak Y, McCubbin M. Family stress, perceived social support and coping following the diagnosis of a child’s congenital heart disease. J Advanced Nursing 2002;39:190–8
   PubMed Web of Science ®Google Scholar
• Richardson G. The meta-theory of resilience and resiliency. J Clin Psychol 2002; 58:307–21
   PubMed Web of Science ®Google Scholar
• Luthar S, Brown P. Maximizing resilience through diverse levels of inquiry: prevailing paradigms, possibilities, and priorities for the future. Develop Psychopathol 2007;19:931–55
   PubMed Web of Science ®Google Scholar
• McKevitt CJ, Redfern FM, Wolfe C. Qualitative studies of stroke – a systematic review. Stroke 2004;35:1499–505
   PubMed Web of Science ®Google Scholar