2,334
Views
65
CrossRef citations to date
0
Altmetric
Research Article

Associations between social participation and subjective quality of life for adults with moderate to severe traumatic brain injury

, , &
Pages 1409-1418 | Received 17 Mar 2013, Accepted 12 Aug 2013, Published online: 23 Sep 2013

References

  • Colantonio A, Ratcliff G, Chase S, et al. Long-term outcomes after moderate to severe traumatic brain injury. Disabil Rehabil 2004;26:253–61
  • Greenwald BD, Burnett DM, Miller MA. Congenital and acquired brain injury. 1. Brain injury: epidemiology and pathophysiology. Archiv Phys Med Rehabil 2003;84:S3--7
  • Seel RT, Kreutzer JS, Rosenthal M, et al. Depression after traumatic brain injury: a national institute on disability and rehabilitation research model systems multicenter investigation. Archiv Phys Med Rehabil 2003;84:177–84
  • Zaloshnja E, Miller T, Langlois JA, Selassie AW. Prevalence of long-term disability from traumatic brain injury in the civilian population of the United States, 2005. J Head Trauma Rehabil 2008;23:394–400
  • ICF Introduction [Internet]; c2001. Available from: http://www.disabilitaincifre.it/documenti/ICF_18.pdf [last accessed 13 Dec 2012].
  • Eriksson G, Tham K, Borg J. Occupational gaps in everyday life 1–4 years after acquired brain injury. J Rehabil Med 2006;38:159–65
  • Winkler D, Unsworth C, Sloan S. Factors that lead to successful community integration following severe traumatic brain injury. J Head Trauma Rehabil 2006;21:8–21
  • Watanabe TK, Miller MA, McElligott JM. Congenital and acquired brain injury. 5. Outcomes after acquired brain injury. Archiv Phys Med Rehabil 2003;84:S23--7
  • Dijkers MP. Quality of life after traumatic brain injury: a review of research approaches and findings. Archiv Phys Med Rehabil 2004;85:S21–35
  • Kalpakjian CZ, Lam CS, Toussaint LL, Merbitz N. Describing quality of life and psychosocial outcomes after traumatic brain injury. Am J Phys Med Rehabil 2004;83:255–65
  • Cicerone KD. Participation as an outcome of traumatic brain injury rehabilitation. J Head Trauma Rehabil 2004;19:494–501
  • Devitt R, Colantonio A, Dawson D, et al. Prediction of long-term occupational performance outcomes for adults after moderate to severe traumatic brain injury. Disabil Rehabil 2006;28:547–59
  • Martelli MF, Zasler ND, Tiernan, P. Community based rehabilitation: special issues. NeuroRehabilitation 2012;31:3–18
  • Willer B, Ottenbacher KJ, Coad ML. The community integration questionnaire: a comparative examination. Am J Phys Med Rehabil 1994;73:103–11
  • McColl MA. Postacute programming for community integration: a scoping review. Brain Impairment 2007;8:238–50
  • Geurtsen GJ, van Heugten CM, Martina JD, Geurts ACH. Comprehensive rehabilitation programmes in the chronic phase after severe brain injury: a systematic review. J Rehabil Med 2010;42:97–110
  • Brown M, Gordon WA, Spielman L. Participation in social and recreational activity in the community by individuals with traumatic brain injury. Rehabil Psychol 2003;48:266–74
  • Rochette A, Korner-Bitensky N, Levasseur M. “Optimal” participation: a reflective look. Disabil Rehabil 2006;28:1231–5
  • Willer B, Rosenthal M, Kreutzer JS, et al. Assessment of community integration following rehabilitation for traumatic brain injury. J Head Trauma Rehabil 1993;8:75–87
  • Law M. Participation in the occupations of everyday life. Am J Occup Ther 2002;56:640–9
  • Minnes P, Buell K, Nolte ML, et al. Defining community integration of persons with brain injuries as acculturation: a Canadian perspective. NeuroRehabilitation 2001;16:3–10
  • Harker WF, Dawson DR, Boschen KA, Stuss DT. A comparison of independent living outcomes following traumatic brain injury and spinal cord injury. Int J Rehabil Res 2002;25:93–102
  • McColl MA, Carlson P, Johnston J, et al. The definition of community integration: perspectives of people with brain injuries. Brain Inj 1998;12:15–30
  • Minnes P, Carlson P, McColl MA, et al. Community integration: a useful construct, but what does it really mean? Brain Inj 2003;17:149–59
  • Bier N, Dutil E, Couture M. Factors affecting leisure participation after a traumatic brain injury: an exploratory study. J Head Trauma Rehabil 2009;24:187–94
  • Tomberg T, Toomela A, Ennok M, Tikk A. Changes in coping strategies, social support, optimism and health-related quality of life following traumatic brain injury: a longitudinal study. Brain Inj 2007;21:479–88
  • Doig E, Fleming J, Tooth L. Patterns of community integration 2–5 years post-discharge from brain injury rehabilitation. Brain Inj 2001;15:747–62
  • Jumisko E, Lexell J, Söderberg S. The meaning of living with traumatic brain injury in people with moderate or severe traumatic brain injury. J Neurosci Nurs 2005;37:42–50
  • Ponsford JL, Olver JH, Curran C. A profile of outcome: 2 years after traumatic brain injury. Brain Inj 1995;9:1–10
  • Kersel DA, Marsh NV, Havill JH, Sleigh JW. Psychosocial functioning during the year following severe traumatic brain injury. Brain Inj 2001;15:683–96
  • Mailhan L, Azouvi P, Dazord A. Life satisfaction and disability after severe traumatic brain injury. Brain Inj 2005;19:227–38
  • Hoofien D, Gilboa A, Vakil E, Donovick PJ. Traumatic brain injury (TBI) 10–20 years later: a comprehensive outcome study of psychiatric symptomatology, cognitive abilities and psychosocial functioning. Brain Inj 2001;15:189–209
  • Huebner RA, Johnson K, Bennett CM, Schneck C. Community participation and quality of life outcomes after adult traumatic brain injury. Am J Occup Ther 2003;57:177–85
  • The World Health Organization Quality of Life Assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 1995;41:1403–9
  • Camfield L, Skevington SM. On subjective well-being and quality of life. J Health Psychol 2008;13:764–75
  • Johnston MV, Goverover Y, Dijkers M. Community activities and individuals’ satisfaction with them: quality of life in the first year after traumatic brain injury. Archiv Phys Med Rehabil 2005;86:735–45
  • Diener E, Suh EM, Lucas RE, Smith HL. Subjective well-being: three decades of progress. Psychol Bull 1999;125:276–302
  • Steadman-Pare D, Colantonio A, Ratcliff G, et al. Factors associated with perceived quality of life many years after traumatic brain injury. J Head Trauma Rehabil 2001;16:330–42
  • Pavot W, Diener E. The affective and cognitive context of self-reported measures of subjective well-being. Soc Indicators Res 1993;28:1–20
  • Diener E. Guidelines for national indicators of subjective well-being and ill-being. Appl Res Qual Life 2006;1:151–7
  • Brown M, Vandergoot D. Quality of life for individuals with traumatic brain injury: comparison with others living in the community. J Head Trauma Rehabil 1998;13:1–23
  • Corrigan JD, Bogner JA, Mysiw WJ, et al. Life satisfaction after traumatic brain injury. J Head Trauma Rehabil 2001;16:543–55
  • Braden CA, Cuthbert JP, Brenner L, et al. Health and wellness characteristics of persons with traumatic brain injury. Brain Inj 2012;26:1315–27
  • Willemse-van Son A, Ribbers GM, Verhagen AP, Stam HJ. Prognostic factors of long-term functioning and productivity after traumatic brain injury: a systematic review of prospective cohort studies. Clin Rehabil 2007;21:1024–37
  • von Steinbuchel N, Wilson L, Gibbons H, et al. Quality of Life after Brain Injury (QOLIBRI): scale validity and correlates of quality of life. J Neurotrauma 2010;27:1157–65
  • Brown M, Gordon WA, Haddad L. Models for predicting subjective quality of life in individuals with traumatic brain injury. Brain Inj 2000;14:5–19
  • Thomas MD, Skilbeck CE, Slatyer M. Pre-injury estimates of subjective quality of life following traumatic brain injury … motor accident insurance board (Tasmania, Australia). Brain Inj 2009;23:516–27
  • Pierce CA, Hanks RA. Life satisfaction after traumatic brain injury and the World Health Organization model of disability. Am J Phys Med Rehabil 2006;85:889–98
  • Teasell R, Cullen N, Marshall S, et al. Chapter 1: Introduction and methodology. Evidence-based review of moderate to severe acquired brain injury. 8th ed.; 2012. Available from: http://www.abiebr.com/module/1-introduction-and-methodology [last accessed 11 Jun 2013]
  • Classification of Coma, Concussion and Traumatic Brain Injury [Internet]. Available from: http://cpancf.com/headinjuryclassification.asp [last accessed 26 Oct 2008]
  • American Psychiatric Association. Diagnostic and statistical manual of mental disorders. 4th ed. text revision (DSM-IV-TR). Washington, DC: American Psychiatric Association; 2000
  • McLean AM, Jarus T, Hubley AM, Jongbloed L. Differences in social participation between individuals who do and do not attend brain injury drop-in centres: a preliminary study. Brain Inj 2012;26:83–94
  • Ware JE, Sherbourne CD. The MOS 36-item short form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992;30:473–83
  • Findler M, Cantor J, Haddad L, et al. The reliability and validity of the SF-36 health survey questionnaire for use with individuals with traumatic brain injury. Brain Inj 2001;15:715–23
  • Nasreddine ZS, Phillips NA, Bédirian V, et al. The Montreal Cognitive Assessment, MoCA: a brief screening tool for mild cognitive impairment. J Am Geriatr Soc 2005;53:695–9
  • Aggarwal A, Kean E. Comparison of the Folstein Mini Mental State Examination (MMSE) to the Montreal Cognitive Assessment (MoCA) as a cognitive screening tool in an inpatient rehabilitation setting. Neurosci Med 2010;1:39–42
  • Grace M, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz (FL): Psychological Assessment Resources Inc.; 2001
  • Malloy P, Grace J. A review of rating scales for measuring behavior change due to frontal systems damage. Cogn Behav Neurol 2005;18:18–27
  • Zung WW. Factors influencing the self-rating depression scale. Archiv Gen Psychiatry 1967;16:543–7
  • Fischer J, Corcoran K. Measures for clinical practice and research: a sourcebook. 4th ed. New York: Oxford University Press; 2007
  • Malec JF, Kragness M, Evans RW, et al. Further psychometric evaluation and revision of the Mayo-Portland Adaptability Inventory in a national sample. J Head Trauma Rehabil 2003;18:479–92
  • Malec JF. Comparability of Mayo-Portland Adaptability Inventory ratings by staff, significant others and people with acquired brain injury. Brain Inj 2004;18:563–75
  • Corrigan JD, Deming R. Psychometric characteristics of the community integration questionnaire: replication and extension. J Head Trauma Rehabil 1995;10:41–53
  • Sander AM, Fuchs KL, High W Jr, et al. The community integration questionnaire revisited: an assessment of factor structure and validity. Archiv Phys Med Rehabil 1999;80:1303–8
  • Zhang L, Abreu BC, Gonzales V, et al. Comparison of the Community Integration Questionnaire, the Craig Handicap Assessment and Reporting Technique, and the Disability Rating Scale in traumatic brain injury. J Head Trauma Rehabil 2002;17:497–508
  • Cutrona CE, Russell DW. The provisions of social relationships and adaptation to stress. Adv Pers Relationships 1987;1:37–67
  • Jarus T, Barnea R, Wasserlauf N, et al. The Israeli Assessment of Participation for Adults [Hebrew]. Israeli J Occup Ther 2006;15:H93–111
  • Hadorn DC, Sorensen J, Holte J. Large-scale health outcomes evaluation: how should quality of life be measured? Part II – questionnaire validation in a cohort of patients with advanced cancer. J Clin Epidemiol 1995;48:619–29
  • DePalma JA. Measuring quality of life of patients of traumatic brain injury. Crit Care Nurs Q 2001;23:42–51
  • Abdel-Khalek AM. Measuring happiness with a single-item scale. Soc Behav Pers 2006;34:139–50
  • Russell D, Peplau LA, Ferguson ML. Developing a measure of loneliness. J Pers Assess 1978;42:290–4
  • UCLA Loneliness Scale [Internet]. Available from: http://www3.shastacollege.edu/lvalvatne/psych15/ucla_loneliness_scale.htm [last accessed 18 Nov 2008]
  • Shrive FM, Stuart H, Quan H, Ghali WA. Dealing with missing data in a multi-question depression scale: a comparison of imputation methods. BMC Med Res Methodol 2006;6:57–66
  • Cohen JW. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale, (NJ): Lawrence Erlbaum Associates; 1988. As cited in: Pallant J. SPSS Survival manual. 3rd ed. New York: Open University Press; 2007
  • Cameron CM, Purdie DM, Kliewer EV, McClure RJ. Ten-year outcomes following traumatic brain injury: a population-based cohort. Brain Inj 2008;22:437–49
  • Statistics Canada. Low income cut-offs for 2007 and low income measures for 2006. Ottawa (ON): Minister of Industry; 2008
  • Burleigh SA, Farber RS, Gillard M. Community integration and life satisfaction after traumatic brain injury: long-term findings … presented at the 1997 American Occupational Therapy Association annual conference and exposition, Orlando, Florida. Am J Occup Ther 1998;52:45–52
  • Dolbier CL, Steinhardt MA. The development and validation of the sense of support scale. Behav Med 2000;25:169--79
  • Dawson DR, Levine B, Schwartz M, Stuss DT. Quality of life following traumatic brain injury: a prospective study. Brain Cogn 2000;44:35–9
  • Kreuter M, Sullivan M, Dahllof AG, Siosteen A. Partner relationships, functioning, mood and global quality of life in persons with spinal cord injury and traumatic brain injury. Spinal Cord 1998;36:252–61
  • Seibert PS, Reedy DP, Hash J, et al. Brain injury: quality of life’s greatest challenge. Brain Inj 2002;16:837–48
  • Eriksson G, Kottorp A, Borg J, Tham K. Relationship between occupational gaps in everyday life, depressive mood and life satisfaction after acquired brain injury. J Rehabil Med 2009;41:187–94
  • Levasseur M, Desrosiers J, Noreau L. Is social participation associated with quality of life of older adults with physical disabilities? Disabil Rehabil 2004;26:1206–13
  • Vella-Brodrick DA, Park N, Peterson C. Three ways to be happy: pleasure, engagement, and meaning – findings from Australian and US samples. Soc Indicators Res 2009;90:165–79
  • Dunn DS, Brody C. Defining the good life following acquired physical disability. Rehabil Psychol 2008;53:413–25
  • Diener E, Seligman ME. Very happy people. Psychol Sci 2002;13:81–4
  • Reyes-García V, Godoy RA, Vadez V, et al. The pay-offs to sociability: do solitary and social leisure relate to happiness? Human Nat 2009;20:431–46
  • Heinrich LM, Gullone E. The clinical significance of loneliness: a literature review. Clin Psychol 2006;26:695–718
  • Leith KH, Phillips L, Sample PL. Exploring the service needs and experiences of persons with TBI and their families: the South Carolina experience. Brain Inj 2004;18:1191–208
  • Olver JH, Ponsford JL, Curran CA. Outcome following traumatic brain injury: a comparison between 2 and 5 years after injury. Brain Inj 1996;10:841–8
  • Bekhet AK, Zauszniewski JA, Nakhla WE. Loneliness: a concept analysis. Nurs Forum 2008;43:207–13
  • Russell DW. UCLA loneliness scale (version 3): reliability, validity, and factor structure. J Pers Assess 1996;66:20–40
  • Mellor D, Stokes M, Firth L, et al. Need for belonging, relationship satisfaction, loneliness, and life satisfaction. Pers Indiv Diff 2008;45:213–18
  • Jacobsson LJ, Westerberg M, Söderberg S, Lexell J. Functioning and disability 6–15 years after traumatic brain injuries in northern Sweden. Acta Neurol Scand 2009;120:389–95
  • Johnson K, Davis PK. A supported relationships intervention to increase the social integration of persons with traumatic brain injuries. Behav Modif 1998;22:502–28
  • Ownsworth T, McFarland K. Investigation of psychological and neuropsychological factors associated with clinical outcome following a group rehabilitation programme. Neuropsychol Rehabil 2004;14:535–62
  • Hanks RA, Rapport LJ, Wertheimer J, Koviak C. Randomized control trial of peer mentoring for individuals with traumatic brain injury and their significant others. Archiv Phys Med Rehabil 2012;93:1297–304
  • Kuipers P, Kennedy A, Smith S. Networks of support: adapting the ‘circles’ approach to formal community based acquired brain injury rehabilitation. J Cogn Rehabil 1999;17:6–9
  • Douglas JM, Dyson M, Foreman P. Increasing leisure activity following severe traumatic brain injury: does it make a difference? Brain Impairment 2006;7:107–18
  • Fraas M, Balz M, DeGrauw W. Meeting the long-term needs of adults with acquired brain injury through community-based programming. Brain Inj 2007;21:1267–81
  • Blake H, Batson M. Exercise intervention in brain injury: a pilot randomized study of tai chi qigong. Clin Rehabil 2009;23:589–98
  • Häggström A, Lund ML. The complexity of participation in daily life: a qualitative study of the experiences of persons with acquired brain injury. J Rehabil Med 2008;40:89–95
  • Fraas MR, Calvert M. The use of narratives to identify characteristics leading to a productive life following acquired brain injury. Am J Speech Lang Pathol 2009;18:315–28
  • Ring L, Hofer S, McGee H, et al. Individual quality of life: can it be accounted for by psychological or subjective well-being? Soc Indicators Res 2007;82:443–61
  • Hemmingsson H, Jonsson H. The issue is an occupational perspective on the concept of participation in the International Classification of Functioning, Disability and Health – some critical remarks. Am J Occup Ther 2005;59:569–76
  • Ylvisaker M, Feeney TJ. Collaborative brain injury intervention: positive everyday routines. San Diego (CA): Singular Publishing Group; 1998
  • Ylvisaker M, Feeney T. What I really want is a girlfriend: meaningful social interaction after traumatic brain injury. Brain Inj Source 2001;5:12–17
  • Dolan P, Peasgood T, White M. Do we really know what makes us happy? A review of the economic literature on the factors associated with subjective well-being. J Econ Psychol 2008;29:94–122
  • Johnston MV, Shawaryn MA, Malec J, et al. The structure of functional and community outcomes following traumatic brain injury. Brain Inj 2006;20:391–407

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.