“Better but not best”: a qualitative exploration of the experiences of occupational gain for people with inflammatory arthritis receiving anti-TNFα treatment

References

• McArthur M, Birt L, Goodacre L. A narrative literature review of the impact of anti-TNFα treatment on the occupational performance of people with rheumatoid arthritis or ankylosing spondylitis. Br J Occ Ther 2013;76:456–69
   Web of Science ®Google Scholar
• Young A, Dixey J, Cox N. How does functional disability in early rheumatoid arthritis (RA) affect patients and their lives? Results of follow-up in 732 patients from the Early RA Study (ERAS). Rheumatology 2000;39:603–11
   PubMed Web of Science ®Google Scholar
• Backman CL. Psychosocial aspects in the management of arthritis pain. Arthritis Res Ther 2006;8:221–7
   PubMed Web of Science ®Google Scholar
• Hammond A, Kidao R, Young A. Hand impairment and function in early rheumatoid arthritis. Arthritis Rheum 2000;43(9 Suppl):S285
   Web of Science ®Google Scholar
• Hewlett S, Chalder T, Choy E, et al. Fatigue in rheumatoid arthritis; time for a conceptual model. Rheumatology 2011;50:1004–6
   PubMed Web of Science ®Google Scholar
• Katz P. The impact of rheumatoid arthritis on life activities. Arthritis Care Res 1995;8:272–80
   PubMedGoogle Scholar
• Becofsky K, Baruth M, Wilcox S. Physical functioning, perceived disability and depressive symptoms in adults with arthritis. Arthritis 2013;2013:525761
   Google Scholar
• Ward MM. Quality of life in patients with ankylosing spondylitis. Rheum Dis Clin North Am 1998;24:815–27
   PubMed Web of Science ®Google Scholar
• Ozgul A, Peker F, Taskaynatan MA, et al. Effects of ankylosing spondylitis on health-related quality and different aspects of social life in young patients. Clin Rheumatol 2006;25:168–74
   PubMed Web of Science ®Google Scholar
• Arthritis Research Campaign [Internet]. The big picture. Arthritis Research UK; 2002. Available from: http://www.ipsosmori.com/Assets/Docs/Archive/Polls/arthritis.pdf [last accessed 1 Mar 2011]
   Google Scholar
• Zink A, Braun J, Listing J, Wollenhaupt J. Disability and handicap in rheumatoid arthritis and ankylosing spondylitis: results from the German rheumatological database. German Collaborative Arthritis Centres. J Rheumatol 2000;27:613–22
   PubMed Web of Science ®Google Scholar
• Baraliakos X, Brandt J, Listing J. Outcome of patients with active ankylosing spondylitis after two years of therapy with etanercept: clinical and magnetic resonance imaging data. Arthritis Rheum 2005;53:856–63
   PubMed Web of Science ®Google Scholar
• Marzo-Ortega H, McGonagle D, Jarrett S, et al. Infliximab in combination with methotrexate in active ankylosing spondylitis: a clinical and imaging study. Ann Rheum Dis 2005;64:1568–75
   PubMed Web of Science ®Google Scholar
• National Institute for health and Clinical Excellence (NICE). Guidance on the use of etanercept and infliximab for the treatment of rheumatoid arthritis. Technology appraisal guidance 36; 2002 Available from: http://www.nice.org.uk/nicemedia/live/11867/37914/37914.pdf [last accessed 2 Mar 2011]
   Google Scholar
• National Institute for Health and Clinical Excellence (NICE). Adalimumab, etanercept and infliximab for ankylosing spondylitis. Technology appraisal guidance 143; 2008. Available from: http://www.nice.org.uk/nicemedia/pdf/TA143Guidance.pdf [last accessed 2 Mar 2011]
   Google Scholar
• Chen YF, Jobanputra P, Barton P, et al. A systematic review of the effectiveness of adalimumab, etanercept and infliximab for the treatment of rheumatoid arthritis in adults and an economic evaluation of their effectiveness. Health Technol Assess 2006;10:1–229
   Web of Science ®Google Scholar
• Jacobi CE, Rupp I, Boshuizen HC, et al. Unmet needs for health care among patients with rheumatoid arthritis: indications for underuse? Arthritis Rheum 2004;51:440–6
   PubMed Web of Science ®Google Scholar
• Hewlett S. Patients and clinicians have different perspective on outcomes in arthritis. J Rheumatol 2003;30:877–9
   PubMed Web of Science ®Google Scholar
• McArthur M. Understanding rheumatic diseases: the occupational therapy perspective. In: Goodacre L, McArthur M, eds. Rheumatology practice in occupational therapy. Promoting lifestyle management. West Sussex: Wiley Blackwell; 2013:29–46
   Google Scholar
• Carr A, Thompson P. Towards a measure of patient-perceived handicap in rheumatoid arthritis. Br J Rheumatol 1994;33:378–82
   PubMedGoogle Scholar
• Edwards J. An exploration of patients’ experiences of anti-TNF therapy. Musculoskeletal Care 2004;2:40–50
   PubMedGoogle Scholar
• Stockdale J, Goodacre L. ‘It’s magic stuff’: the experiences of patients with ankylosing spondylitis taking anti-TNF-alpha medication. Musculoskeletal Care 2008;7:162–77
   Google Scholar
• Linden C, Bjorklund A. Living with rheumatoid arthritis and experiencing everyday life with TNF-α blockers. Scand J Occup Ther 2010;17:326–34
   PubMed Web of Science ®Google Scholar
• Van Vollenhoven RF, Cifaldi MA, Ray S, et al. Improvement in work place and household productivity for patients with early rheumatoid arthritis treated with adalimumab plus methotrexate: work outcomes and their correlations with clinical and radiographic measures from a randomized controlled trial companion study. Arthritis Care Res 2010;62:226–34
   Web of Science ®Google Scholar
• Davis JC, Revicki D, Van Der Heijde DMF, et al. Health-related quality of life outcomes in patients with active ankylosing spondylitis treated with adalimumab: results from a randomized controlled study. Arthritis Rheum 2007;57:1050–7
   PubMed Web of Science ®Google Scholar
• Gobelet C, Luthi F, Al-Khodairy AT, Chamberlain MA. Work in inflammatory and degenerative joint diseases. Disabil Rehabil 2007;29:1331–9
   PubMed Web of Science ®Google Scholar
• Ramos-Remus C, Hernandez-Rois G, Duran-Barragan S, et al. Fifteen-year trends of long-term disability and sick leaves in ankylosing spondylitis. Clin Rheumatol 2011;30:361–7
   PubMed Web of Science ®Google Scholar
• Van Der Meer M, Hoving JL, Vermeulen MIM, et al. Experiences and needs for work participation in employees with rheumatoid arthritis treated with anti-tumour necrosis factor therapy. Disabil Rehabil 2011;33:2587–95
   PubMed Web of Science ®Google Scholar
• Wolfe F, Allaire S, Michaud K. The prevalence and incidence of work disability in rheumatoid arthritis, and the effect of anti-tumor necrosis factor in work disability. J Rheumatol 2007;34:2211–17
   PubMed Web of Science ®Google Scholar
• Chauffier K, Salliot C, Berenbaum F, Sellam J. Effect of biotherapies on fatigue in rheumatoid arthritis: a systematic review of the literature and meta-analysis. Rheumatology 2012;51:60–8
   PubMed Web of Science ®Google Scholar
• Richards SCM, Westlake SL. Fatigue in RA: looking beyond the formulary. Rheumatology 2012;5:1–2
   Web of Science ®Google Scholar
• McArthur M, Goodacre L. Living with rheumatic diseases: the theoretical perspective. In: Goodacre L, McArthur M, eds. Rheumatology practice in occupational therapy. Promoting lifestyle management. West Sussex: Wiley Blackwell; 2013:13–28
   Google Scholar
• Wilcock AA. An occupational perspective of health. New Jersey: Slack; 1998
   Google Scholar
• Park LA, Kinsella EA. Phenomenology and the study of human occupation. J Occ Sci 2011;18:195–209
   Google Scholar
• Stake RE. Qualitative case studies. In: Denzin NK, Lincoln YS, eds. The Sage handbook of qualitative research. 3rd ed. Thousand Oaks (CA): Sage Publications; 2005:443–66
   Google Scholar
• Ritchie J, Lewis J, Elam G. Designing and selecting samples. In: Ritchie J, Lewis J, eds. Qualitative research practice: a guide for social science students and researchers. London: Sage Publications Limited; 2003:77–108
   Google Scholar
• Parsons S, Ingram M, Clarek-Cornwell AM, Symmons DPM. A heavy burden: the occurrence and impact of musculoskeletal conditions in the United Kingdom today. University of Manchester; 2011. Available from: http://www.medicine.manchester.ac.uk/musculoskeletal/aboutus/publications/heavyburden.pdf [last accessed 20 Feb 2012]
   Google Scholar
• Kvale S, Brinkmann S. InterViews. Learning the craft of qualitative research interviewing. London: Sage Publications Limited; 2009
   Google Scholar
• Smith J, Osborn M. Interpretative phenomenological analysis. In: Smith JA, ed. Qualitative psychology: a practical guide to research methods. London: Sage Publications; 2003:51–80
   Google Scholar
• Lincoln Y, Guba E. Naturalistic inquiry. London: Sage Publications Limited; 1985
   Google Scholar
• McArthur M, Mason R. Biting the bullet: a model to address the theoretical and practical perspectives of CPD among health and social care professionals. South West London: Strategic Health Authority; 2004
   Google Scholar
• McArthur MA, Crompton B. The EFFORT project: a qualitative case study examining the lived experience of service users and service providers of rheumatological foot orthoses and footwear provision. J Rheumatol Occ Ther 2009;24:5–7
   Google Scholar
• McArthur MA, Birt L, Goodacre L. An investigation into the experiences of occupational gain in people with inflammatory arthritis receiving AntiTNFα treatment; 2012. Available from: http://www.cot.co.uk/sites/default/files/grant_recipients/public/UEA-Exec-Summary.pdf [last accessed 1 May 2014]
   Google Scholar
• Marshall NJ, Wilson G, Lapworth K, Kay LJ. Patients’ perceptions of treatment with anti-TNF therapy for rheumatoid arthritis: a qualitative study. Rheumatology 2004;43:1034–8
   PubMed Web of Science ®Google Scholar
• Goodacre L, McArthur M, eds. Rheumatology practice in occupational therapy. Promoting lifestyle management. West Sussex: Wiley Blackwell; 2013
   Google Scholar
• Hoogerdijk B, Runge U, Haugboelle J. The adaptation process after traumatic brain injury an individual and ongoing occupational struggle to gain a new identity. Scand J Occup Ther 2011;18:122–32
   PubMed Web of Science ®Google Scholar
• Redman P. The narrative formation of identity revisited: narrative construction, agency and the unconscious. Narrat Inq 2005;15:25–44
   Web of Science ®Google Scholar
• Garro LC, Mattingly C. Narrative as construct and construction. In: Mattingly C, Garro LC, eds. Narrative and the cultural construction of illness and healing. Los Angeles (CA): University of California Press; 2000:443–66
   Google Scholar
• Alsaker S, Josephsson S. Negotiating occupational identities while living with chronic rheumatic disease. Scan J Occup Ther 2003;10:167–76
   Google Scholar
• Christiansen C. Occupations and identity: becoming who we are through what we do. In: Christiansen C, Townsend EA, eds. Introduction to occupation: the art and science of living. New Jersey: Pearson Education Inc.; 2004:121–39
   Google Scholar
• Reeve L, Harkess J. Vocational rehabilitation. In: Goodacre L, McArthur M, eds. Rheumatology practice in occupational therapy. Promoting lifestyle management. West Sussex: Wiley Blackwell; 2013:171–87
   Google Scholar
• Macedo AM, Oakley SP, Panayi GS, et al. Functional and work outcomes improve in patients who receive targeted, comprehensive occupational therapy. Arthritis Care Res 2009;61:1522–30
   Web of Science ®Google Scholar
• Stamm T, Lovelock L, Stew G, et al. I have a disease but I am not ill: a narrative study of occupational balance in people with rheumatoid arthritis. OTJR 2009;29:32–9
   Web of Science ®Google Scholar
• Charmaz K. Good days, bad days: the self in chronic illness and time. New Jersey: Rutgers University Press; 1991
   Google Scholar
• Law RJ, Markland DA, Jones JG, et al. Perceptions of issues relating to exercise and joint health in rheumatoid arthritis: a UK-based questionnaire study. Musculoskeletal Care 2013;11:147–58
   PubMedGoogle Scholar
• Drake S. Approaches to promoting behaviour change. In: Goodacre L, McArthur M, eds. Rheumatology practice in occupational therapy. Promoting lifestyle management. West Sussex: Wiley Blackwell; 2013:95–109
   Google Scholar
• Goodacre L, McArthur M. Living with a rheumatic disease: the personal perspective. In: Goodacre L, McArthur M, eds. Rheumatology practice in occupational therapy. Promoting lifestyle management. West Sussex: Wiley Blackwell; 2013:1–12
   Google Scholar
• Knittle KP, de Gucht V, Hurkmans EJ, et al. Effect of self-efficacy and physical activity goal achievement on arthritis pain and quality of life in patients with rheumatoid arthritis. Arthritis Care Res 2011;63:1613–19
   Web of Science ®Google Scholar
• Han C, Robinson DW, Hacket MV. Cardiovascular disease and risk factors in patients with rheumatoid arthritis, psoriatric arthritis and ankylosing spondylitis. J Rheumatol 2006;33:2167–72
   PubMed Web of Science ®Google Scholar
• Department of Health. High quality care for all NHS next stage review; final report. The Stationery Office; 2008. Available from: www.tsoshop.co.uk
   Google Scholar