1,299
Views
12
CrossRef citations to date
0
Altmetric
Review

Crosswalk of participation self-report measures for aphasia to the ICF: what content is being measured?

, , &
Pages 1113-1124 | Received 06 Feb 2014, Accepted 12 Aug 2014, Published online: 28 Aug 2014

References

  • World Health Organization. International Classification of Functioning, Disability and Health (ICF). Geneva: World Health Organization; 2001
  • Dijkers MP. Issues in the conceptualization and measurement of participation: an overview. Arch Phys Med Rehabil 2010;91:S5–16
  • Eadie TL, Yorkston KM, Klasner ER, et al. Measuring communicative participation: a review of self-report instruments in speech-language pathology. Am J Speech Lang Pathol 2006;15:307–20
  • Simmons-Mackie N, Kagan A. Application of the ICF in aphasia. Semin Speech Lang 2007;28:244–53
  • Howe T, Worrall L, Hickson L. What barriers and facilitators influence the community participation of people with aphasia? Brain Imp 2006;7:266–87
  • Worrall L, Sherratt S, Rogers P, et al. What people with aphasia want: their goals according to the ICF. Aphasiology 2011;25:309–22
  • Cruice M, Worrall L, Hickson L, Murison R. Finding a focus for quality of life with aphasia: social and emotional health, and psychological well-being. Aphasiology 2003;17:333–53
  • Threats T, Worrall L. Classifying communication disability using the ICF. Int J Speech Lang Pathol 2004;6:53–62
  • Schulz S. Application and use of the international classification of functioning, disability and health (ICF) in rehabilitation practice and research – an updated literature review [Internet]. Arhus, Denmark; 2008. Available from: http://old.marselisborgcentret.dk/fileadmin/filer/Publikationer/Rapport_2008.pdf [last accessed 21 Aug 2014]
  • Schiariti V, Fayed N, Cieza A, et al. Content comparison of health-related quality of life measures for cerebral palsy based on the International Classification of Functioning. Disabil Rehabil 2011;33:1330–9
  • Tschiesner U, Rogers SN, Harréus U, et al. Content comparison of quality of life questionnaires used in head and neck cancer based on the international classification of functioning, disability and health: a systematic review. Eur Arch Otorhinolaryngol 2008;265:627–37
  • Geyh S, Cieza A, Kollerits B, et al. Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): a systematic review. Qual Life Res 2007;16:833–51
  • van der Mei S, Dijkers MJM, Heerkens Y. Participation as an outcome measure in psychosocial oncology: content of cancer-specific health-related quality of life instruments. Qual Life Res 2011;20:1617–27
  • Eyssen IC, Steultjens MP, Dekker J, Terwee CB. A systematic review of instruments assessing participation: challenges in defining participation. Arch Phys Med Rehabil 2011;92:983–97
  • Resnik L, Plow MA. Measuring participation as defined by the International Classification of Functioning, Disability and Health: an evaluation of existing measures. Arch Phys Med Rehabil 2009;90:856–66
  • Noonan V, Kopec J, Noreau L, et al. Comparing the content of participation instruments using the International Classification of Functioning, Disability and Health. Health Qual Life Outcomes 2009;7:93–105
  • Whiteneck G, Dijkers MP. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil 2009;90:S22–35
  • Ayis S, Arden N, Doherty M, et al. Applying the impairment, activity limitation, and participation restriction constructs of the ICF model to osteoarthritis and low back pain trials: a reanalysis. J Rheumatol 2010;37:1923–31
  • Jette AM, Haley SM, Kooyoomjian JT. Are the ICF activity and participation dimensions distinct? J Rehabil Med 2003;35:145–9
  • Pollard B, Johnston M, Dieppe P. Exploring the relationships between International Classification of Functioning, Disability and Health (ICF) constructs of impairment, activity limitation and participation restriction in people with osteoarthritis prior to joint replacement. BMC Musculoskelet Disord 2011;12:97
  • Magasi S, Post MW. A comparative review of contemporary participation measures' psychometric properties and content coverage. Arch Phys Med Rehabil 2010;91:S17–28
  • Nordenfelt L. Action theory, disability and ICF. Disabil Rehabil 2003;25:1075–9
  • Perenboom RJ, Chorus AM. Measuring participation according to the International Classification of Functioning, Disability and Health (ICF). Disabil Rehabil 2003;25:577–87
  • Patrick F. The Quebec classification: disability creation process. Quebec: International Network on the Handicap Creation Process; 1998
  • Dalemans R, de Witte LP, Lemmens J, et al. Measures for rating social participation in people with aphasia: a systematic review. Clin Rehabil 2008;22:542–55
  • Brady MC, Kelly H, Godwin J, Enderby P. Speech and language therapy for aphasia following stroke. Cochrane Database Syst Rev 2012;5:CD000425
  • Cieza A, Geyh S, Chatterji S, et al. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005;37:212–18
  • Bagraith KS, Hayes J, Strong J. Mapping patient goals to the International Classification of Functioning, Disability and Health (ICF): examining the content validity of the low back pain core sets. J Rehabil Med 2013;45:481–7
  • Bagraith KS, Strong J. The International Classification of Functioning, Disability and Health (ICF) can be used to describe multidisciplinary clinical assessments of people with chronic musculoskeletal conditions. Clin Rheumatol 2013;32:383–9
  • Cohen J. A coefficient of agreement for nominal scales. Educ Psychol Measure 1960;20:37–46
  • Li T, Wells G, Westhovens R, Tugwell P. Validation of a simple activity participation measure for rheumatoid arthritis clinical trials. Rheumatology (Oxford) 2009;48:170–5
  • Clark MS, Bond MJ. The Adelaide Activities Profile: a measure of the life-style activities of elderly people. Aging (Milano) 1995;7:174–84
  • Bradburn NM. The structure of psychological well-being. Chicago (IL): Aldine; 1969
  • Gardiner MD, Faux S, Jones LE. Inter-observer reliability of clinical outcome measures in a lower limb amputee population. Disabil Rehabil 2002;24:219–25
  • Noreau L, Fougeyrollas P, Vincent C. The LIFE-H: assessment of the quality of social participation. Technol Disabil 2002;14:113–18
  • Hawthorne G, Richardson J, Osborne R. The Assessment of Quality of Life (AQoL) instrument: a psychometric measure of health-related quality of life. Qual Life Res 1999;8:209–24
  • Berry HL, Rodgers B, Dear KBG. Preliminary development and validation of an Australian community participation questionnaire: types of participation and associations with distress in a coastal community. Soc Sci Med 2007;64:1719–37
  • Granger CV, Dewis LS, Peters NC, et al. Stroke rehabilitation: analysis of repeated Barthel index measures. Arch Phys Med Rehabil 1979;60:14–17
  • Alfano CM, McGregor BA, Kuniyuki A, et al. Psychometric evaluation of the Brief Cancer Impact Assessment among breast cancer survivors. Oncology 2006;70:190–202
  • Doyle PJ, McNeil MR, Mikolic JM, et al. The Burden of Stroke Scale (BOSS) provides valid and reliable score estimates of functioning and well-being in stroke survivors with and without communication disorders. J Clin Epidemiol 2004;57:997–1007
  • Mumford C, Compston A. Problems with rating scales for multiple sclerosis: a novel approach: the CAMBS score. J Neurol 1993;240:209–15
  • Long A, Hesketh A, Paszek G, et al. Development of a reliable self-report outcome measure for pragmatic trials of communication therapy following stroke: the Communication Outcome after Stroke (COAST) scale. Clin Rehabil 2008;22:1083–94
  • Demorest ME, Erdman SA. Development of the communication profile for the hearing impaired. J Speech Hear Disord 1987;52:129–43
  • Pulvermüller F, Neininger B, Elbert T, et al. Constraint-induced therapy of chronic aphasia after stroke. Stroke 2001;32:1621–6
  • Lomas J, Pickard L, Bester S, et al. The Communicative Effectiveness Index: development and psychometric evaluation of a functional communication measure for adult aphasia. J Speech Hear Disord 1989;54:113–24
  • McColl MA, Davies D, Carlson P, et al. The Community Integration Measure: development and preliminary validation. Arch Phys Med Rehabil 2001;82:429–34
  • Sander AM, Fuchs KL, High WM, et al. The Community Integration Questionnaire revisited: an assessment of factor structure and validity. Arch Phys Med Rehabil 1999;80:1303–8
  • Magasi S, Hammel J, Heinemann A, et al. Participation: a comparative analysis of multiple rehabilitation stakeholders' perspectives. J Rehabil Med 2009;41:936–44
  • Segal ME, Schall RR. Assessing handicap of stroke survivors. A validation study of the Craig Handicap Assessment and Reporting Technique. Am J Phys Med Rehabil 1995;74:276–86
  • Jester A, Harth A, Wind G, et al. Disabilities of the arm, shoulder and hand (DASH) questionnaire: determining functional activity profiles in patients with upper extremity disorders. J Hand Surg Br 2005;30:23–8
  • Hall K, Cope DN, Rappaport M. Glasgow Outcome Scale and Disability Rating Scale: comparative usefulness in following recovery in traumatic head injury. Arch Phys Med Rehabil 1985;66:35–7
  • Taylor W, Myers J, McNaughton H, McPherson K. Evidence for inadequate construct validity of the Disease Repercussions Profile in people with rheumatoid arthritis. Rheumatology 2001;40:757–62
  • Stewart G, Kidd D, Thompson A. The assessment of handicap: an evaluation of the Environmental Status Scale. Disabil Rehabil 1995;17:312–16
  • Rabin R, de Charro F. EQ-5D: a measure of health status from the EuroQol Group. Ann Med 2001;33:337–43
  • Schuling J, de Haan R, Limburg M, Groenier KH. The Frenchay Activities Index: assessment of functional status in stroke patients. Stroke 1993;24:1173–7
  • Herbert R, Carrier R, Bilodeau A. The Functional Autonomy Measurement System (SMAF): description and validation of an instrument for the measurement of handicaps. Age Ageing 1988;17:293–302
  • McPherson KM, Pentland B, Cudmore SF, Prescott RJ. An inter-rater reliability study of the Functional Assessment Measure (FIM + FAM). Disabil Rehabil 1996;18:341–7
  • Jette AM, Davies AR, Cleary PD, et al. The Functional Status Questionnaire: reliability and validity when used in primary care. J Gen Intern Med 1986;1:143–9
  • Rosa AR, Sanchez-Moreno J, Martinez-Aran A, et al. Validity and reliability of the Functioning Asessment Short Test (FAST) in bipolar disorder. Clin Pract Epidemiol Ment Health 2007;5–13
  • Tait RJ, French DJ, Hulse GK. Validity and psychometric properties of the General Health Questionnaire-12 in young Australian adolescents. Aust NZ J Psychiatr 2003;37:374–81
  • Hilsenroth MJ, Ackerman SJ, Blagys MD, et al. Reliability and validity of DSM-IV Axis V. Am J Psychiatry 2000;157:1858–63
  • Bruce B, Fries JF. The Stanford Health Assessment Questionnaire: a review of its history, issues, progress, and documentation. J Rheumatol 2003;30:167–78
  • Gigantesco A, Picardi A, de Girolamo G, Morosini P. Discriminant ability and criterion validity of the HoNOS in Italian psychiatric residential facilities. Psychopathology 2007;40:111–15
  • Ventry IM, Weinstein BE. The hearing handicap inventory for the elderly: a new tool. Ear Hear 1982;3:128–34
  • Hawthorne G, Hogan A, Hawthorne G. Measuring disability-specific patient benefit in cochlear implant programs: developing a short form of the Glasgow Health Status Inventory, the Hearing Participation Scale. Int J Audiol 2002;41:535–44
  • Vidrine DJ, Amick Iii BC, Gritz ER, Arduino RC. Validity of the household and leisure time activities questionnaire (HLTA) in a multiethnic HIV-positive population. AIDS Care 2004;16:187–97
  • Post MW, de Witte LP, Reichrath E, et al. Development and validation of IMPACT-S, an ICF-based questionnaire to measure activities and participation. J Rehabil Med 2008;40:620–7
  • Devins GM. Using the Illness Intrusiveness Ratings Scale to understand health-related quality of life in chronic disease. J Psychosom Res 2010;68:591–602
  • Hassell JB, Weih LM, Keeffe JE. A measure of handicap for low vision rehabilitation: the impact of vision impairment profile. Clin Exp Ophthalmol 2000;28:156–61
  • Cardol M, de Haan RJ, de Jong BA, et al. Psychometric properties of the Impact on Participation and Autonomy Questionnaire. Arch Phys Med Rehabil 2001;82:210–16
  • Wallace CJ, Liberman RP, Tauber R, Wallace J. The independent living skills survey: a comprehensive measure of the community functioning of severely and persistently mentally ill individuals. Schizophr Bull 2000;26:631–58
  • Ostir GV, Granger CV, Black T, et al. Preliminary results for the PAR-PRO: a measure of home and community participation. Arch Phys Med Rehabil 2006;87:1043–51
  • Thomas-Hawkins C. Assessing role activities of individuals receiving long-term hemodialysis: psychometric testing of the revised Inventory of Functional Status-Dialysis (IFS-Dialysis). Int J Nurs Stud 2005;42:687–94
  • Akai M, Doi T, Fujino K, et al. An outcome measure for Japanese people with knee osteoarthritis. J Rheumatol 2005;32:1524–32
  • Wilkie R, Peat G, Thomas E, et al. The Keele Assessment of Participation: a new instrument to measure participation restriction in population studies. Combined qualitative and quantitative examination of its psychometric properties. Qual Life Res 2005;14:1889–99
  • Oliver JP, Huxley PJ, Priebe S, Kaiser W. Measuring the quality of life of severely mentally ill people using the Lancashire Quality of Life Profile. Soc Psychiatry Psychiatr Epidemiol 1997;32:76–83
  • Stevens AB, Coon D, Wisniewski S, et al. Measurement of leisure time satisfaction in family caregivers. Aging Ment Health 2004;8:450–9
  • Altshuler L, Mintz J, Leight K. The Life Functioning Questionnaire (LFQ): a brief, gender-neutral scale assessing functional outcome. Psychiatry Res 2002;112:161–82
  • Hartelius L, Elmberg M, Holm R, et al. Living with dysarthria: evaluation of a self-report questionnaire. Folia Phoniatr Logop 2008;60:11–19
  • Harwood RH, Rogers A, Dickinson E, Ebrahim S. Measuring handicap: the London Handicap Scale, a new outcome measure for chronic disease. Qual Health Care 1994;3:11–16
  • Malec JF. The Mayo-Portland participation index: a brief and psychometrically sound measure of brain injury outcome. Arch Phys Med Rehabil 2004;85:1989–96
  • Rai GS, Kiniorns M, Burns W. New handicap scale for elderly in hospital. Arch Gerontol Geriatr 1999;28:99–104
  • Wu CY, Chuang LL, Lin KC, et al. Responsiveness, minimal detectable change, and minimal clinically important difference of the Nottingham Extended Activities of Daily Living Scale in patients with improved performance after stroke rehabilitation. Arch Phys Med Rehabil 2011;92:1281–7
  • Wiklund I. The Nottingham Health Profile: a measure of health-related quality of life. Scand J Prim Health Care Suppl 1990;1:15–18
  • Wellwood I, Dennis MS, Warlow CP. A comparison of the Barthel Index and the OPCS disability instrument used to measure outcome after acute stroke. Age Ageing 1995;24:54–7
  • Awad M, Al-Shamrany M, Locker D, et al. Effect of reducing the number of items of the Oral Health Impact Profile on responsiveness, validity and reliability in edentulous populations. Community Dent Oral Epidemiol 2008;36:12–20
  • Bogner J, Bellon K, Kolakowsky-Hayner SA, Whiteneck G. Participation assessment with recombined tools-objective (PART-O). J Head Trauma Rehabil 2013;28:337–9
  • Gandek B, Sinclair SJ, Jette AM, Ware JEJ. Development and initial psychometric evaluation of the Participation Measure for Post-Acute Care (PM-PAC). Am J Phys Med Rehabil 2007;86:57–71
  • Brown M, Dijkers M, Gordon WA, et al. Participation objective, participation subjective: a measure of participation combining outsider and insider perspectives. J Head Trauma Rehabil 2004;19:459–81
  • Gray DB, Hollingsworth HH, Stark SL, Morgan KA. Participation survey/mobility: psychometric properties of a measure of participation for people with mobility impairments and limitations. Arch Phys Med Rehabil 2006;87:189–97
  • Pallant JF, Misajon R, Bennett E, Manderson L. Measuring the impact and distress of health problems from the individual's perspective: development of the Perceived Impact of Problem Profile (PIPP). Health Qual Life Outcomes 2006;4:36–49
  • Grossi E, Groth N, Mosconi P, et al. Development and validation of the short version of the Psychological General Well-Being Index (PGWB-S). Health Qual Life Outcomes 2006;4:88–96
  • Paul DR, Frattali CM, Holland AL, et al. The American Speech-Language-Hearing Association Quality of Communication Life Scale (QCL): manual. Rockville (MD): American Speech-Language-Hearing Association; 2004
  • Burckhardt C, Anderson K. The Quality of Life Scale (QOLS): reliability, validity, and utilization. Health Qual Life Outcomes 2003;1:60–7
  • Sandström M, Lundin-Olsson L. Development and evaluation of a new questionnaire for rating perceived participation. Clin Rehabil 2007;21:833–45
  • van Bennekom CAM, Jelles F, Lankhorst GJ. Rehabilitation Activities Profile: the ICIDH as a framework for a problem-oriented assessment method in rehabilitation medicine. Disabil Rehabil 1995;17:169–75
  • Wood-Dauphinee S, Opzoomer M, Williams J, et al. Assessment of global function: The Reintegration to Normal Living Index. Arch Phys Med Rehabil 1988;69:583–90
  • Merkies IS, Schmitz PI, van der Meché FG, van Doorn PA. Psychometric evaluation of a new sensory scale in immunemediated polyneuropathies. Neurology 2000;54:943–9
  • Jenkinson C, Wright L, Coulter A. Criterion validity and reliability of the SF-36 in a population sample. Qual Life Res 1994;3:7–12
  • Birchwood M, Smith J, Cochrane R, et al. The Social Functioning Scale: the development and validation of a new scale of social adjustment for use in family intervention programmes with schizophrenic patients. Br J Psychiatr 1990;157:853–9
  • Gignac MAM, Backman CL, Davis AM, et al. Understanding social role participation: what matters to people with arthritis? J Rheumatol 2008;35:1655–63
  • Gatehouse S, Noble W. The Speech, Spatial and Qualities of Hearing Scale (SSQ). Int J Audiol 2004;43:85–99
  • Hilari K, Byng S, Lamping DL, Smith SC. Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39): evaluation of acceptability, reliability, and validity. Stroke 2003;34:1944–50
  • Duncan PW, Wallace D, Lai SM, et al. The Stroke Impact Scale version 2.0: evaluation of reliability, validity, and sensitivity to change. Stroke 1999;30:2131–40
  • van Straten A, de Haan RJ, Limburg M, et al. A stroke-adapted 30-item version of the Sickness Impact Profile to assess quality of life (SA-SIP30). Stroke 1997;28:2155–61
  • O'Donoghue MF, Duncan JS, Sander JW. The subjective handicap of epilepsy: a new approach to measuring treatment outcome. Brain 1998;121:317–43
  • Kersten P, George S, Low J, et al. The Subjective Index of Physical and Social Outcome: its usefulness in a younger stroke population. Int J Rehabil Res 2004;27:59–63
  • Tate R, Simpson G, Lane-Brown A, et al. Sydney Psychosocial Reintegration Scale (SPRS-2): meeting the challenge of measuring participation in neurological conditions. Austra Psychol 2012;47:20–32
  • Van Brakel WH, Anderson AM. The Participation Scale: measuring a key concept in public health. Disabil Rehabil 2006;28:193–203
  • Kuk FK, Tyler RS, Russell D, Jordan H. The psychometric properties of a tinnitus handicap questionnaire. Ear Hear 1990;11:434–45
  • Post MW, van der zee CH, Hennink J, et al. Validity of the Utrecht scale for evaluation of rehabilitation-participation. Disabil Rehabil 2012;34:478–85
  • Cohen HS, Kimball KT. Development of the vestibular disorders activities of daily living scale. Arch Otolaryngol Head Neck Surg 2000;126:881–7
  • Ma EP, Yiu EM. Voice activity and participation profile: assessing the impact of voice disorders on daily activities. J Speech Lang Hear Res 2001;44:511–24
  • Jacobson BH, Johnson A, Grywalski C, et al. The Voice Handicap Index (VHI): development and validation. Am J Speech Lang Pathos 1997;6:66–70
  • Deary IJ, Wilson JA, Carding PN, MacKenzie K. VoiSS: a patient-derived Voice Symptom Scale. J Psychosom Res 2003;54:483–9
  • Hogikyan ND, Sethuraman G. Validation of an instrument to measure voice-related quality of life (V-RQOL). J Voice 1999;13:557–69
  • Perry J, Garrett M, Gronley JK, Mulroy SJ. Classification of walking handicap in the stroke population. Stroke 1995;26:982–9
  • Chisolm TH, Abrams HB, McArdle R, et al. The WHO-DAS II: psychometric properties in the measurement of functional health status in adults with acquired hearing loss. Trends Amplif 2005;9:111–26
  • Power M, Bullinger M, Harper A. The World Health Organization WHOQOL-100: tests of the universality of quality of life in 15 different cultural groups worldwide. Health Psychol 1999;18:495–505
  • Mundt JC, Marks IM, Shear MK, Griest JM. The Work and Social Adjustment Scale: a simple measure of impairment in functioning. Br J Psychiatr 2002;180:461–4
  • Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977;33:159–74

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.