2,670
Views
127
CrossRef citations to date
0
Altmetric
Perspectives in Rehabilitation

Engaging stakeholders in rehabilitation research: a scoping review of strategies used in partnerships and evaluation of impacts

, , , , , , & show all
Pages 1390-1400 | Received 07 Apr 2014, Accepted 05 Sep 2014, Published online: 22 Sep 2014

References

  • Straus SE, Tetroe J, Graham I. Defining knowledge translation. Can Med Assoc J 2009;181:165–8
  • Menon A, Korner-Bitensky N, Kastner M, et al. Strategies for rehabilitation professionals to move evidence-based knowledge into practice: a systematic review. J Rehabil Med 2009;41:1024–32
  • Grimshaw JM, Eccles MP, Lavis JN, et al. Knowledge translation of research findings. Implement Sci 2012;7:50
  • Bowen SJ, Graham ID. From knowledge translation to engaged scholarship: promoting research relevance and utilization. Arch Phys Med Rehabil 2012;94:S3–8
  • Morris C, Shilling V, McHugh C, Wyatt K. Why it is crucial to involve families in all stages of childhood disability research. Devel Med Child Neurol 2011;53:769–71
  • Rosenbaum P. Family-centred research: what does it mean and can we do it? Devel Med Child Neurol 2011;53:99–100
  • Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol 2005;8:19–32
  • Levac D, Colquhoun H, O’Brien KK. Scoping studies: advancing the methodology. Implement Sci 2010;5:1–9
  • Canadian Institutes of Health Research. Guide to knowledge translation planning at CIHR: integrated and end-of-grant approaches. Ottawa: CIHR; 2012
  • Amtmann D, Cook KF, Johnson KL, Cella D. The PROMIS initiative: involvement of rehabilitation stakeholders in development and examples of applications in rehabilitation research. Arch Phys Med Rehabil 2011;92:S12–19
  • Bigby C, Frawley P. Reflections on doing inclusive research in the “Making life good in the community” study. J Intellect Dev Disabil 2010;35:53–61
  • Buettgen A, Richardson J, Beckham K, et al. We did it together: a participatory action research study on poverty and disability. Disabil Soc 2012;27:603–16
  • Cotterell P. Exploring the value of service user involvement in data analysis: ‘our interpretation is about what lies below the surface’. Educ Action Res 2008;16:5–17
  • Ehde DM, Wegener ST, Williams RM, et al. Developing, testing, and sustaining rehabilitation interventions via participatory action research. Arch Phys Med Rehabil 2013;94:S30–42
  • Gillard S, Simons L, Turner K, et al. Patient and public involvement in the coproduction of knowledge reflection on the analysis of qualitative data in a mental health study. Qual Health Res 2012;22:1126–37
  • Hutton E, Coxon K. Involving parents as service users in an interprofessional research project. J Interprof Care 2008;22:661–3
  • Johns T, Miller P, Kopp K, et al. Tracey John’s research policy and planning equal lives? Disabled people evaluate an independent living strategy for essex social services. J Pol Plan 2004;22:51–8
  • Langston AL, Mccallum M, Campbell MK, et al. An integrated approach to consumer representation and involvement in a multicentre randomized controlled trial. Clin Trials 2005;2:80–7
  • McGrath PJ, Lingley-Pottie P, Emberly DJ, et al. Integrated knowledge translation in mental health: family help as an example. J Can Acad Child Adolesc Psychiatr 2009;18:30–7
  • Ottmann G, Laragy C, Damonze G. Consumer participation in designing community based consumer-directed disability care: lessons from a participatory action research-inspired project. Systemic Pract Action Res 2009;22:31–44
  • Sax P. Finding common ground: parents speak out about family-centered practices. J Syst Therap 2007;26:72–90
  • Suarez-Balcazar Y, Martinez LI, Casas-Byots C. A participatory action research approach for identifying health service needs of hispanic immigrants: implications for occupational therapy. Occup Ther Health Care 2005;19:145–63
  • Suarez-Balcazar Y. Empowerment and participatory evaluation of a community health intervention: implications for occupational therapy. OTJR 2005;25:133–42
  • Taylor RR, Braveman B, Hammel J. Developing and evaluating community-based services through participatory action research: two case examples. Am J Occup Ther 2004;58:73–82
  • Walmsley J, Mannan H. Parents as co-researchers: a participatory action research initiative involving parents of people with intellectual disabilities in Ireland. Br J Learn Disabil 2009;37:271–6
  • Walmsley J. Involving users with learning difficulties in health improvement: lessons from inclusive learning disability research. Nurs Inq 2004;11:54–64
  • Williams V, Simons K. More researching together: the role of nondisabled researchers in working with people first members1. Br J Learn Disabil 2005;33:6–14
  • Wood M. Disability, participation and welfare to work in staffordshire. Int J Integr Care 2003;11:43–8
  • Bamm EL, Rosenbaum P. Family-centered theory: origins, development, barriers, and supports to implementation in rehabilitation medicine. Arch Phys Med Rehabil 2008;89:1618–24
  • Fudge N, Wolfe CD, McKevitt C. Assessing the promise of user involvement in health service development: ethnographic study. BMJ 2008;336:313–17
  • Kielhofner G. A scholarship of practice: creating discourse between theory, research and practice. Occup Ther Health Care 2005;19:7–16
  • McIntyre S, Novak I, Cusick A. Consensus research priorities for cerebral palsy: a Delphi survey of consumers, researchers, and clinicians. Dev Med Child Neurol 2010;52:270–5
  • Smits PA, Denis J. How research funding agencies support science integration into policy and practice: an international overview. Implementation Sci 2014;9:28
  • Graham ID, Logan J, Harrison MB, et al. Lost in knowledge translation: time for a map? J Contin Educ Health Prof 2006;26:13–24
  • Armstrong R, Waters E, Dobbins M, et al. Knowledge translation strategies to improve the use of evidence in public health decision making in local government: intervention design and implementation plan. Implement Sci 2013;8:121
  • Turner K. Involve: briefing notes for researchers: public involvement in NHS, public health and social care research. UK: Involve; 2012
  • Ketelaar M, Russell DJ, Gorter JW. The challenge of moving evidence-based measures into clinical practice: lessons in knowledge translation. Phys Occup Ther Pediatr 2008;28:191–206
  • Zidarov D, Thomas A, Poissant L. Knowledge translation in physical therapy: from theory to practice. Disabil Rehabil 2013;35:1571–7
  • Chaudoir SR, Dugan AG, Barr CH. Measuring factors affecting implementation of health innovations: a systematic review of structural, organizational, provider, patient, and innovation level measures. Implementation Sci 2013;8:22
  • Beresford P. The role of service user research in generating knowledge-based health and social care: from conflict to contribution. Evid Policy 2007;3:329–41
  • Menon A, Cafaro T, Loncaric D, et al. Creation and validation of the PERFECT: a critical incident tool for evaluating change in the practices of health professionals. J Eval Clin Pract 2010;16:1170–5
  • Lavis JN, Oxman AD, Moynihan R, Paulsen EJ. Evidence-informed health policy 1–synthesis of findings from a multi-method study of organizations that support the use of research evidence. Implementation Sci 2008;3:7
  • Lavis JN, Wilson MG, Grimshaw JM, et al. Effects of an evidence service on health-system policy makers’ use of research evidence: a protocol for a randomised controlled trial. Implement Sci 2011;6:51
  • Russell DJ, Rivard LM, Walter SD, et al. Using knowledge brokers to facilitate the uptake of pediatric measurement tools into clinical practice: a before-after intervention study. Implementation Sci 2010;5:92
  • McKibbon KA, Lokker C, Wilczynski NL, et al. A cross-sectional study of the number and frequency of terms used to refer to knowledge translation in a body of health literature in 2006: a tower of babel. Implement Sci 2010;5:16
  • Grindrod K, Forgione A, Tsuyuki RT, et al. Pharmacy 2.0: a scoping review of social media use in pharmacy. Res Social Adm Pharm 2014;10:256–70
  • Hamm MP, Chisholm A, Shulhan J, et al. Social media use among patients and caregivers: a scoping review. Br Med J Open 2013;3:5
  • Miller ET. How social media affects our practice. Rehabil Nurs 2013;38:273–4

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.