Supporting children with disabilities at school: implications for the advocate role in professional practice and education

References

• Ng SL, Fernandez V, Buckrell B, Gregory K. Report on a school board's interprofessional approach to managing the provision of Hearing Assistance Technology for Auditory Processing Disorders. J Educ Audiol 2010;16:73–85
   Google Scholar
• Rodman J, Weill K, Driscoll M, et al. A nationwide survey of financing health-related services for special education students. J School Health 1999;69:133–9
   PubMed Web of Science ®Google Scholar
• Gionfriddo P. How I helped create a flawed mental health system that's failed millions--and my son. Health Aff (Millwood) 2012;31:2138–42
   PubMed Web of Science ®Google Scholar
• Mu K, Royeen CB. Facilitating participation of students with severe disabilities: aligning school based occupational therapy practice with best practices in severe disabilities. Phys Occup Ther Pediatr 2004;24:5–21
   PubMedGoogle Scholar
• Jirikowic T, Stika-Monson R, Knight A, et al. Contemporary trends and practice strategies in pediatric occupational and physical therapy. Phys Occup Ther Pediatr 2001;20:45–62
   PubMedGoogle Scholar
• Rens L, Joosten A. Investigating the experiences in a school-based occupational therapy program to inform community-based paediatric occupational therapy practice. Aust Occup Ther J 2014;61:148–58
   PubMed Web of Science ®Google Scholar
• McConnellogue S. Professional roles and responsibilities in meeting the needs of children with speech, language and communication needs: joint working between educational psychologists and speech and language therapists. Educ Psychol Pract 2011;27:53–64
   Google Scholar
• Villeneuve MA, Shulha LM. Learning together for effective collaboration in school-based occupational therapy practice. Can J Occup Ther 2012;79:293–302
   PubMed Web of Science ®Google Scholar
• Roberts G, Price A, Oberklaid F. Paediatrician's role in caring for children with learning difficulties. J Paediatr Child Health 2012;48:1086–90
   PubMed Web of Science ®Google Scholar
• Mukherjee S, Lightfoot J, Sloper P. Communicating about pupils in mainstream school with special health needs: the NHS perspective. Child Care Health Dev 2002;28:21–7
   PubMed Web of Science ®Google Scholar
• Kendall M, Bolack L. Occupational therapy knowledge base applied in a school liaison role. Occupat Thera Now 2009;11:19–20
   Google Scholar
• Gallagher J, Desimone L. Lessons learned from implementation of the IEP: applications to the IFSP. Top Early Childhood Spec Educ 1995;15:353–78
   Web of Science ®Google Scholar
• American Academy of Pediatrics Council on Children with Disabilities. Care coordination in the medical home: integrating health and related systems of care for children with special health care needs. Pediatrics 2005;116:1238–44
   PubMed Web of Science ®Google Scholar
• Maslin-Prothero SE, Bennion AE. Integrated team working: a literature review. Int J Integr Care 2010;10:e043
   PubMedGoogle Scholar
• Mur-Veeman I, van Raak A, Paulus A. Comparing integrated care policy in Europe: does policy matter? Health Pol 2008;85:172–83
   PubMed Web of Science ®Google Scholar
• Hollenweger J. Developing applications of the ICF in education systems: addressing issues of knowledge creation, management and transfer. Disabil Rehabil 2013;35:1087–91
   PubMed Web of Science ®Google Scholar
• Mortier K, Desimpel L, De Schauwer E, Van Hove G. “I want support, not comments”: children's perspectives on supports in their life. Disabil Soc 2011;26:207–21
   Web of Science ®Google Scholar
• Tétreault S, Freeman A, Carrière M, et al. Understanding the parents of children with special needs: collaboration between health, social and education networks. Child Care Health Dev 2014;40:825–32
   PubMed Web of Science ®Google Scholar
• Deloitte, Touche LLP. Review of school health support services final report; 2010. Available from: http://www.health.gov.on.ca/en/public/contact/ccac/docs/deloitte_shss_review_report.pdf [last accessed 4 Feb 2015]
   Google Scholar
• Ng SL, Stooke R, Regan S, et al. An institutional ethnography inquiry of health care work in special education: a research protocol. Int J Integr Care 2013;13:e033
   Google Scholar
• Kohen D, Uppal S, Khan S, Visentin L. Access and barriers to educational services for Canadian children with disabilities; 2010. Available from: http://www.ccl-cca.ca/pdfs/OtherReports/201009KohenUppalKhanVisentinFullReport.pdf [last accessed 4 Feb 2015]
   Google Scholar
• Doyle J. Barriers and facilitators of multidisciplinary team working: a review. Paediatr Nurs 2008;20:26–9
   Google Scholar
• Kainz K. Barriers and enhancements to physician-psychologist collaboration. Prof Psychol: Res Pract 2002;33:169–75
   Web of Science ®Google Scholar
• Sloper P. Facilitators and barriers for co-ordinated multi-agency services. Child Care Health Dev 2004;30:571–80
   PubMed Web of Science ®Google Scholar
• Stewart A, Petch A, Curtice L. Moving towards integrated working in health and social care in Scotland: from maze to matrix. J Interprof Care 2003;17:335–50
   PubMedGoogle Scholar
• McConkey R. Multi-agency working in support of people with intellectual disabilities. J Intellect Disabil 2005;9:193–207
   PubMedGoogle Scholar
• Glasby J, Dickinson H, Miller R. Partnership working in England-where we are now and where we've come from. Int J Integr Care 2011;11:e002
   Google Scholar
• Cameron A, Lart R. Factors promoting and obstacles hindering joint working: a systematic review of the research evidence. J Integr Care 2003;11:9–17
   Google Scholar
• Manthorpe J, Iliffe S. Professional predictions: June Huntington's perspectives on joint working, 20 years on. J Interprof Care 2003;17:85–94; discussion 95–6
   PubMedGoogle Scholar
• O'Dowd A. Joint working in health and social care remains patchy despite years of effort. BMJ 2011;343:d7844
   PubMed Web of Science ®Google Scholar
• Clune LA. When the injured nurse returns to work : an institutional ethnography [PhD thesis]. Toronto: University of Toronto; 2011, Aug 23, 227 p. Available from https://tspace.library.utoronto.ca/handle/1807/29519 [last accessed 4 Feb 2015]
   Google Scholar
• Townsend E, Langille L, Ripley D. Professional tensions in client-centered practice: using institutional ethnography to generate understanding and transformation. Am J Occup Ther 1998;57:17–28
   Google Scholar
• Gerrard J, Farrell L. “Peopling” curriculum policy production: researching educational governance through institutional ethnography and Bourdieuian field analysis. J Educ Pol 2012;28:1–20
   Web of Science ®Google Scholar
• Quinlan E. The “actualities” of knowledge work: an institutional ethnography of multi-disciplinary primary health care teams. Soc Health Illn 2009;31:625–41
   PubMed Web of Science ®Google Scholar
• Webster F. The social organization of best practice for acute stroke: an institutional ethnography [PhD thesis]. Toronto: University of Toronto; 2010 Feb 25, 163 p. Available from: https://tspace.library.utoronto.ca/handle/1807/19167 [last accessed 4 Feb 2015]
   Google Scholar
• Townsend EA. Institutional ethnography: explicating the social organization of professional health practices intending client empowerment. Can J Publ Health 1992;83:S58–61
   PubMed Web of Science ®Google Scholar
• National Physiotherapy Advisory Group. Essential competency profile for physiotherapists in Canada October 2009; 2009. Available from: http://www.physiotherapy.ca/Practice-Resources/Practice-Management/Resources/Essential-Competencies-Profile-for-Physiotherapist?lang=en-ca [last accessed 4 Feb 2015]
   Google Scholar
• Canadian Association of Occupational Therapists. Profile of Practice of Occupational Therapists in Canada; 2012. Available from: http://www.caot.ca/default.asp?pageid=36 [last accessed 4 Feb 2015]
   Google Scholar
• Finlayson ML. Muriel Driver Memorial Lecture 2013: embracing our role as change agents. Can J Occup Ther 2013;80:205–14
   PubMedGoogle Scholar
• Accreditation Council for Graduate Medical Education (ACGME). Program Director Guide to the Common Program Requirements; 2012. Available from: http://dconnect.acgme.org/acgmeweb/Portals/0/PDFs/commonguide/CompleteGuide_v2.pdf [last accessed 4 Feb 2015]
   Google Scholar
• Dobson S, Voyer S, Regehr G. Agency and activism: rethinking health advocacy in the medical profession. Acad Med 2012;87:1161–4
   PubMed Web of Science ®Google Scholar
• Ringsted C, Hansen TL, Davis D, Scherpbier A. Are some of the challenging aspects of the CanMEDS roles valid outside Canada? Med Educ 2006;40:807–15
   PubMed Web of Science ®Google Scholar
• Stafford S, Sedlak T, Fok MC, Wong RY. Evaluation of resident attitudes and self-reported competencies in health advocacy. BMC Med Educ 2010;10:82
   PubMed Web of Science ®Google Scholar
• Verma S, Flynn L, Seguin R. Faculty's and residents' perceptions of teaching and evaluating the role of health advocate: a study at one Canadian university. Acad Med 2005;80:103–8
   PubMed Web of Science ®Google Scholar
• Dharamsi S, Ho A, Spadafora SM, Woollard R. The physician as health advocate: translating the quest for social responsibility into medical education and practice. Acad Med 2011;86:1108–13
   PubMed Web of Science ®Google Scholar
• Leveridge M, Beiko D, Wilson JWL, Siemens DR. Health advocacy training in urology: a Canadian survey on attitudes and experience in residency. Can Urol Assoc J 2007;1:363–9
   PubMed Web of Science ®Google Scholar
• Ladouceur R. Health advocate: what do we expect of family physicians? Can Fam Physician 2011;57:1239–40
   PubMed Web of Science ®Google Scholar
• Starr S, Perrin EC. Teaching about schools during pediatric residency. Ambul Pediatr 2005;5:178–84
   PubMedGoogle Scholar
• Tannous C. Therapists as advocates for their clients with disabilities: a conflict of roles? Aust Occup Ther J 2000;47:41–6
   Google Scholar
• Verma S, Broers T, Paterson M, et al. Core competencies: the next generation. Comparison of a common framework for multiple professions. J Allied Health 2009;38:47–53
   PubMedGoogle Scholar
• Rudolf M. Advocacy training for pediatricians: the experience of running a course in Leeds, United Kingdom. Pediatrics 2003;112:749–51
   PubMed Web of Science ®Google Scholar
• Lozano P, Biggs VM, Sibley BJ, et al. Advocacy training during pediatric residency. Pediatrics 1994;94:532–6
   PubMed Web of Science ®Google Scholar
• Shipley LJ, Stelzner SM, Zenni EA, et al. Teaching community pediatrics to pediatric residents: strategic approaches and successful models for education in community health and child advocacy. Pediatrics 2005;115:1150–7
   PubMed Web of Science ®Google Scholar
• Tompkins RF. Understanding children's advocacy in the health sector. Pediatrics 1980;65:172–9
   PubMed Web of Science ®Google Scholar
• Snadden D. Teaching advocacy – balancing the individual and society? Med Teach 2013;35:341–2
   PubMed Web of Science ®Google Scholar
• Wright CJ, Katcher ML, Blatt SD, et al. Toward the development of advocacy training curricula for pediatric residents: a national Delphi study. Ambul Pediatr 2005;5:165–71
   PubMedGoogle Scholar
• Dhillon SK, Wilkins S, Law MC, et al. Advocacy in occupational therapy: exploring clinicians' reasons and experiences of advocacy. Can J Occup Ther 2010;77:241–8
   PubMedGoogle Scholar
• Phelan SK. Constructions of disability: a call for critical reflexivity in occupational therapy. Can J Occup Ther 2011;78:164–72
   PubMed Web of Science ®Google Scholar
• Kumagai AK, Wear D. “Making Strange”: a role for the humanities in medical education. Acad Med 2014;89:973–7
   PubMed Web of Science ®Google Scholar
• Almasri NA, O'Neil M, Palisano RJ. Predictors of needs for families of children with cerebral palsy. Disabil Rehabil 2014;36:210–19
   PubMed Web of Science ®Google Scholar
• McDougall J, King G, de Wit DJ, et al. Chronic physical health conditions and disability among Canadian school-aged children: a national profile. Disabil Rehabil 2004;26:35–45
   PubMed Web of Science ®Google Scholar
• Sices L, Harman JS, Kelleher KJ. Health-care use and expenditures for children in special education with special health-care needs: is dual classification a marker for high use? Public Health Rep 2007;122:531–40
   PubMed Web of Science ®Google Scholar
• American Academy of Pediatrics Committee on Children With Disabilities. The pediatrician's role in development and implementation of an individual education plan (IEP) and/or an individual family service plan (IFSP). Pediatrics 1999;104:124–7
   PubMed Web of Science ®Google Scholar
• Reindal SM. A social relational model of disability: a theoretical framework for special needs education? Eur J Spec Needs Educ 2008;23:135–46
   Google Scholar
• Ontario Ministry of Education. The Individual Education Plan (IEP): a resource guide; 2004. Available from: http://www.edu.gov.on.ca/eng/general/elemsec/speced/guide/resource/iepresguid.pdf [last accessed 5 Feb 2015]
   Google Scholar
• Andrews D, Mahoney WJ. Children with school problems: a physician's manual, 2nd ed. New York (NY): Wiley; 2012
   Google Scholar
• Bussing R, Belin TR. Children in special education programs: attention deficit hyperactivity disorder, use of services, and unmet needs. Am J Public Health 1998;88:880–6
   PubMed Web of Science ®Google Scholar
• Daniel Y. The textual construction of high needs for funding special education in Ontario. Can J Educ 2005;28:763–83
   Google Scholar
• Giangreco MF, Dennis RE, Edelman SW, Cloninger CJ. Dressing your IEPs for the general education climate: analysis of IEP goals and objectives for students with multiple disabilities. Rem Spec Educ 1994;15:288–96
   Web of Science ®Google Scholar
• Golden SL, Nageswaran S. Caregiver voices: coordinating care for children with complex chronic conditions. Clin Pediatr (Phila) 2012;51:723–9
   PubMed Web of Science ®Google Scholar
• Smith SW. Individualized education programs (IEPs) in special education -- from intent to acquiescence. Except Children 1990;57:6–14
   Web of Science ®Google Scholar
• Blum LM. Mother-blame in the Prozac nation: raising kids with invisible disabilities. Gender Soc 2012;21:202–26
   Web of Science ®Google Scholar
• Rix J, Matthews A. Viewing the child as a participant within context. Disabil Soc 2014;29:1428–42
   Web of Science ®Google Scholar
• Nespor J, Hicks D. Wizards and witches: parent advocates and contention in special education in the USA. J Educ Pol 2010;25:309–34
   Web of Science ®Google Scholar
• Isaksson J, Lindqvist R, Bergström E. School problems or individual shortcomings? A study of individual educational plans in Sweden. Eur J Spec Needs Educ 2006;22:75–9
   Google Scholar
• Porter GL, AuCoin A. Strengthening inclusion, strengthening schools: report of the inclusive education programs and practices in new brunswick schools. An Action Plan for Growth. Fredericton, NB: Ministry of Education and Early Child Development; 2012 Jun, 237 p. Available from: http://www.gnb.ca/0000/publications/comm/Inclusion.pdf [last accessed 4 Feb 2015]
   Google Scholar
• King GA, Baldwin PJ, Currie M, Evans J. Planning successful transitions from school to adult roles for youth with disabilities. Children's Health Care 2005;34:193–216
   Web of Science ®Google Scholar
• American Academy of Pediatrics Committee on Children With Disabilities. The role of the pediatrician in transitioning children and adolescents with developmental disabilities and chronic illnesses from school to work or college. Pediatrics 2000;106:854–6
   PubMed Web of Science ®Google Scholar
• Rehm RS, Fisher LT, Fuentes-Afflick E, Chesla CA. Parental advocacy styles for special education students during the transition to adulthood. Qual Health Res 2013;23:1377–87
   PubMed Web of Science ®Google Scholar
• Carter EW, Brock ME, Trainor AA. Transition assessment and planning for youth with severe intellectual and developmental disabilities. J Spec Educ 2012;47:245–55
   Web of Science ®Google Scholar
• Sawicki GS, Whitworth R, Gunn L, et al. Receipt of health care transition counseling in the national survey of adult transition and health. Pediatrics 2011;128:e521–9
   PubMed Web of Science ®Google Scholar
• Westwood ATR, Henley LD, Willcox P. Transition from paediatric to adult care for persons with cystic fibrosis: Patient and parent perspectives. J Paediatr Child Health 1999;35:442–5
   PubMed Web of Science ®Google Scholar
• Callahan ST, Winitzer RF, Keenan P. Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Curr Opin Pediatr 2001;13:310–16
   PubMed Web of Science ®Google Scholar
• Reiss JG, Gibson RW, Walker LR. Health care transition: youth, family, and provider perspectives. Pediatrics 2005;115:112–20
   PubMed Web of Science ®Google Scholar
• Bisaillon L. An analytic glossary to social inquiry using institutional and political activist ethnography. Int J Qualit Meth 2012;11:607–27
   Web of Science ®Google Scholar
• Smith DE. Institutional ethnography as practice. Lanham (MD): Rowman & Littlefield Publishers, Inc.; 2006
   Google Scholar
• Smith D. Consciousness, meaning, and ruling relations: from women's standpoint. In: Abu-Lughod JL, ed. Millenial milestone. The Heritage and Future of Sociology in the North American Region. Toronto, Canada: Proceedings of the ISA Regional Conference for North America; 1997:37–50. Available from: http://www.isa-sociology.org/colmemb/national-associations/en/meetings/reports/North America/Chapter2.pdf [last accessed 4 Feb 2015]
   Google Scholar
• Ontario Ministry of Education. Special education funding guidelines: special incident portion (SIP). Toronto, ON: Ontario Ministry of Education; 2011
   Google Scholar
• Morse J. Sampling in grounded theory. In: Bryant A, Charmaz K, eds. The SAGE handbook of grounded theory. Thousand Oaks (CA): SAGE; 2007:229–44
   Google Scholar
• Turner SM. Mapping institutions as work and texts. In: Smith D, ed. Institutional ethnography as practice. Lanham (MD): Rowman & Littlefield Publishers Inc.; 2006:139–61
   Google Scholar
• Hammersley M, Atkinson P. Ethnography. New York (NY): Routledge; 2007
   Google Scholar
• Ng S, Lingard L, Kennedy T. Qualitative research in medical education: methodologies and methods. In: Swanwick T, ed. Understanding medical education: evidence, theory and practice, 2nd ed. Oxford, UK: John Wiley & Sons, Ltd; 2013:371–84
   Google Scholar
• Mills CW. The sociological imagination. Oxford, UK: Oxford University Press; 2000
   Google Scholar
• Campbell M, Gregor F. Mapping social relations: a primer in doing institutional ethnography. Aurora, ON: Garamond Press; 2002
   Google Scholar
• Wang SS. The long battle to rethink mental illness in children. Wall Street J 2012;(A1). Available from: http://online.wsj.com/articles/SB10000872396390444273704577633412579112188 [last accessed 10 Feb 2015]
   Google Scholar
• Campbell WN, Missiuna CA, Rivard LM, Pollock NA. “Support for everyone”: experiences of occupational therapists delivering a new model of school-based service. Can J Occup Ther 2012;79:51–9
   PubMed Web of Science ®Google Scholar
• Hess RS, Molina AM, Kozleski EB. Until somebody hears me: parent voice and advocacy in special educational decision making. Br J Spec Educ 2006;33:148–57
   Google Scholar
• Lingard L. What we see and don't see when we look at “competence”: notes on a god term. Adv Health Sci Educ Theory Pract 2009;14:625–8
   PubMed Web of Science ®Google Scholar
• Phelan SK, Ng S. A case review: reframing school-based practices using a critical perspective. Phys Occup Ther Pediatr 2014; epub ahead of print. Available from: http://informahealthcare.com/doi/abs/10.3109/01942638.2014.978933 [last accessed 10 Feb 2015]
   Google Scholar
• Ng S, Friesen F, Maclagan E, et al. A critical theory response to empirical challenges in report-writing: considerations for clinical educators and lifelong learners. J Educ Audiol 2014;20:1–11
   Google Scholar
• Connors C, Stalker K. Children's experiences of disability: pointers to a social model of childhood disability. Disabil Soc 2007;22:19–33
   Web of Science ®Google Scholar
• Bekken W. “I want them to see that I feel normal”: three children's experiences from attending consultations in paediatric rehabilitation. Disab Soc 2014;29:778–91
   Web of Science ®Google Scholar
• Moll LR, Cott CA. The paradox of normalization through rehabilitation: growing up and growing older with cerebral palsy. Disabil Rehabil 2013;35:1276–83
   PubMed Web of Science ®Google Scholar
• Gibson BE, Darrah J, Cameron D, et al. Revisiting therapy assumptions in children's rehabilitation: clinical and research implications. Disabil Rehabil 2009;31:1446–53
   PubMed Web of Science ®Google Scholar
• Phelan SK, Kinsella EA. Occupation and identity: perspectives of children with disabilities and their parents. J Occupat Sci 2013;21:334–56
   Google Scholar
• Fine M, Glendinning C. Dependence, independence or inter-dependence? Revisiting the concepts of “care” and “dependency”. Age Soc 2005;25:601–21
   Web of Science ®Google Scholar
• Crow L. Including all of our lives: renewing the social model of disability. In: Morris J, ed. Encounters with strangers: feminism and disability. London: The Women's Press; 1996:206–26
   Google Scholar
• Stooke R. Investigating the textually-mediated work of institutions: Dorothy E. Smith's sociology for people. In: Leckie G, Given L JB, eds. Critical theory for library and information science: exploring the social from across the disciplines. Westport (CT): Libraries Unlimited; 2010:283–94
   Google Scholar
• Missiuna CA, Pollock NA, Levac DE, et al. Partnering for change: an innovative school-based occupational therapy service delivery model for children with developmental coordination disorder. Can J Occup Ther 2012;79:41–50
   PubMed Web of Science ®Google Scholar
• Hodges B, Kuper A, Reeves S. Qualitative research: discourse analysis. BMJ 2008;337:570–2
   Web of Science ®Google Scholar