“How to conquer a mountain with multiple sclerosis”. How a climbing expedition to Machu Picchu affects the way people with multiple sclerosis experience their body and identity: a phenomenological analysis

References

• Solaro C, Tanganelli P, Messmer Uccelli M. Pharmacological treatment of pain in multiple sclerosis. Expert Rev Neurother 2007;7:1165–74
   PubMedGoogle Scholar
• Söderberg S, Lundman B, Norberg A. The meaning of fatigue and tiredness as narrated by women with fibromyalgia and healty women. J Clin Nurs 2002;11:247–55
   PubMed Web of Science ®Google Scholar
• Grytten N, Maseide P. What is expressed is not always what is felt: coping with stigma and the embodiment of perceived illegitimacy of multiple sclerosis. Chronic Illness 2005;1:231–43
   PubMedGoogle Scholar
• Snook EM, Motl RW. Effect of exercise training on walking mobility in multiple sclerosis: a meta-analysis. Neurorehabil Neural Repair 2009;23:108–16
   PubMed Web of Science ®Google Scholar
• Motl RW, Gosney JL. Effect of exercise training on quality of life in multiple sclerosis: a meta-analysis. Mult Scler 2008;14:129–35
   PubMed Web of Science ®Google Scholar
• McCullagh R. Long-term benefits of exercising on quality of life and fatigue in multiple sclerosis patients with mild disability: a pilot study. Clin Rehabil 2008;22:206–14
   PubMed Web of Science ®Google Scholar
• Dalgas U, Stenager E, Ingemann-Hansen T. Multiple sclerosis and physical exercise: recommendations for the application of resistance-, endurance- and combined training. Mult Scler 2008;14:35–53
   PubMed Web of Science ®Google Scholar
• Dalgas U, Stenager E, Jakobsen J, et al. Resistance training improves muscle strength and functional capacity in multiple sclerosis. Neurology 2009;73:1478–84
   PubMed Web of Science ®Google Scholar
• Dalgas U, Stenager E, Jakobsen J, et al. Fatigue, mood and quality of life improve in MS patients after progressive resistance training. Mult Scler 2010;16:480–90
   PubMed Web of Science ®Google Scholar
• Broekmans T, Roelants M, Feys P, et al. Effects of long-term resistance training and simultaneous electro-stimulation on muscle strength and functional mobility in multiple sclerosis. Mult Scler 2011;17:468–77
   PubMed Web of Science ®Google Scholar
• Stroud NM, Minahan CL. The impact of regular physical activity on fatigue, depression and quality of life in persons with multiple sclerosis. Health Qual Life Outcomes 2009;7:68
   PubMed Web of Science ®Google Scholar
• Stroud N, Minahan C, Sabapathy S. The perceived benefits and barriers to exercise participation in persons with multiple sclerosis. Disabil Rehabil 2009;31:2216–22
   Google Scholar
• Tallner A, Waschbisch A, Wenny I, et al. Multiple sclerosis relapses are not associated with exercise. Mult Scler 2012;18:232–5
   PubMed Web of Science ®Google Scholar
• Smith C, Olson K, Hale LA, et al. How does fatigue influence community-based exercise participation in people with multiple sclerosis? Disabil Rehabil 2011;33:2362–71
   PubMed Web of Science ®Google Scholar
• Smith C, Hale L, Olson K, Schneiders AG. How does exercise influence fatigue in people with multiple sclerosis? Disabil Rehabil 2009;31:685–92
   PubMed Web of Science ®Google Scholar
• Hale LA, Smith C, Mulligan H, Treharne GJ. Tell me what you want, what you really really want…: asking people with multiple sclerosis about enhancing their participation in physical activity. Disabil Rehabil 2012;34:1887–93
   PubMed Web of Science ®Google Scholar
• Motl RW, McAuley E, Snook EM. Physical activity and multiple sclerosis: a meta-analysis. Mult Scler 2005;11:459–63
   PubMed Web of Science ®Google Scholar
• Williams Reade J, White MB, White CP, Russell CS. What would you say? Expressing the difficulties of living with MS. J Neurosci Nurs 2012;44:54–63
   PubMed Web of Science ®Google Scholar
• De Haan S. Fenomenologie van de lichaamservaring. In: Denys D, Meynen G, eds. Handboek Psychiatrie en Filosofie. Utrecht: De Tijdstroom; 2012:214–27
   Google Scholar
• Mehling WE, Wrubel J, Daubenmier JJ, et al. Body awareness: a phenomenological inquiry into the common ground of mind-body therapies. Philos Ethics Humanit Med 2011;6:6. doi:10.1186/1747-5341-6-6
   PubMedGoogle Scholar
• Mehling WE, Gopisetty V, Daubenmier J, et al. Body awareness: construct and self-report measures. PLoS One 2009;4:e5614. doi:10.1371/journal.pone.0005614
   PubMed Web of Science ®Google Scholar
• Fogel A. Embodied awareness: neither implicit nor explicit and not necessarily nonverbal. Child Dev Perspect 2011;5.3:183–6
   Web of Science ®Google Scholar
• Fogel A. The psychophysiology of self-awareness. New York (NY): W.W. Norton; 2009
   Google Scholar
• Price MJ. Exploration of body listening: health and physical self-awareness in chronic illness. Adv Nurs Sci 1993;15:37–52
   PubMed Web of Science ®Google Scholar
• Stanghellini G. Embodiment and schizophrenia. World Psych 2009;8:56–9
   PubMed Web of Science ®Google Scholar
• Zeiler K. A phenomenological analysis of bodily self-awareness in the experience of pain and pleasure: on dys-appearance and eu-appearance. Med Health Care Philos 2010;13:333–42
   PubMed Web of Science ®Google Scholar
• Bullington J. Embodiment and chronic pain: implications for rehabilitation practice. Health Care Anal 2009;17.2:100–9
   Web of Science ®Google Scholar
• Fuchs T, Schlimme JE. Embodiment and psychopathology: a phenomenological perspective. Curr Opinion Psychiatr 2009;22.6:570–5
   Web of Science ®Google Scholar
• Gyllensten AL, Skär L, Miller M, Gard G. Embodied identity a deeper understanding of body awareness. Physiother Theory Pract 2010;26.7:439–46
   Google Scholar
• Gard G. Body awareness therapy for patients with fibromyalgia and chronic pain. Disabil Rehabil 2005;27:725–8
   PubMed Web of Science ®Google Scholar
• Taylor C. Merleau-Ponty. London/New-York: Routledge Philosophers; 2008
   Google Scholar
• Gendlin ET. Focusing. Psychothera: Theor Res Pract 1969;6:4–15. Available from: http://www.focusing.org/gendlin/docs/gol_2048.html [last accessed April 2014]
   Google Scholar
• Gendlin ET. Three assertions about the body. Folio 1993;12:21–33. Available from: http://www.focusing.org/gendlin/docs/gol_2064.html [last accessed April 2014]
   Google Scholar
• Blaskeslee S, Blakeslee M. The body has a mind of its own. New York, United States: The Random House Trade Paperbacks; 2007
   Google Scholar
• Lakoff G, Johnson M. Methaphors we live by. Chicago (IL): University of Chicago Press; 2003
   Google Scholar
• Jirak D, Menz MM, Buccino G, et al. Grasping language. A short story on embodiment. Consc Cogn 2010;19:711–20
   PubMed Web of Science ®Google Scholar
• Damasio A. The feeling of what happens. Body and emotion in the making of consciousness. Orlando (FL): Hartcourt Books; 1999
   Google Scholar
• Damasio A. Looking for Spinoza. Joy, sorrow and the feeling brain. Orlando (FL): Hartcourt Books; 2003
   Google Scholar
• Craig AD. Significance of the insula for the evolution of human awareness of feelings from the body. Ann NY Acad Sci 2011;1225:72–82
   PubMed Web of Science ®Google Scholar
• Herbert BM, Pollatos O. The body in the mind: on the relationship between interoception and embodiment. Top Cogn Sci 2012;4:692–704
   PubMed Web of Science ®Google Scholar
• Van Asch P, de Groote TKL, O. Eijnde B, Feys P. “MovetoSport” in Belgium: an organizational model to facilitate skilled guidance of persons with multile sclerosis during exercise and sport in the community. Neurol Rehabil 2013;19:56–60
   Google Scholar
• D'hooghe MB, Feys P, Deltour S, et al. Impact of a 5-day expedition to Machu Picchu on persons with multiple sclerosis. Multiple Scl Int 2014;2014:761210
   Google Scholar
• Howitt D. Introduction to qualitative methods in psychology. London: Pearson; 2013
   Google Scholar