Review of the literature on the use of social media by people with traumatic brain injury (TBI)

References

• *Indicates included studies
   Google Scholar
• Australian Communications and Media Authority. 2013 Like, post, share: Young Australians' experience of social media. Quantitative research report. Australian Communications and Media Authority. Available from: http://www.acma.gov.au/theACMA/Library/researchacma/Research-reports/young-australians-and-social-media [last accessed 18 May 2014]
   Google Scholar
• Duggan M, Smith A. 2014 Social Media Update 2013. Pew Research Center. Available from: http://pewinternet.org/Reports/2013/Social-Media-Update.aspx [last accessed 5 Dec 2014]
   Google Scholar
• Social Media News. 2014 10/04/2014. Social Media Statistics Australia, March 2014. Available from: http://www.socialmedianews.com.au [last accessed 10 Apr 2014]
   Google Scholar
• Statista. 2013 Twitter Skews Young, LinkedIn Skews Old. Available from: http://www.statista.com/topics/1164/social-networks/chart/1684/age-structure-of-social-network-audiences/ [last accessed 24 Dec 2013]
   Google Scholar
• Nef T, Ganea RL, Müri RM, Mosimann UP. Social networking sites and older users – a systematic review. Int Psychogeriatr 2013;25:1041–53
   PubMed Web of Science ®Google Scholar
• Langmia K, Tyree T, O'Brien P, Sturgis I. Social media: pedagogy and practice. Maryland: University Press of America; 2013
   Google Scholar
• Media Access Australia. Sociability: Social media for people with a disability; 2012. Available from: http://www.mediaaccess.org.au/sites/default/files/files/MAA2657-%20Report-OnlineVersion.pdf [last accessed 19 May 2014]
   Google Scholar
• Bruns A, Moe H. Structural layers of communication on Twitter. In: Weller K, Bruns A, Burgess J, et al. eds. Twitter and society. New York: Peter Lang; 2013:15–28
   Google Scholar
• Rose J, Morstyn L. ‘What makes you tweet?’ Young people's perspectives on the use of social media as an engagement tool. Youth Affairs Council of Victoria (YACVic); 2013. Available from: http://www.yacvic.org.au/component/docman/doc_download/336-report-what-makes-you-tweet-young-people-s-perspectives-on-the-use-of-social-media-as-an-engagement-tool?Itemid [last accessed 5 Dec 2014]
   Google Scholar
• Kaplan AM, Haenlein M. Users of the world, unite! The challenges and opportunities of Social Media. Business Horizons 2010;53:59–68
   Web of Science ®Google Scholar
• Deloitte. Department of Health and Ageing national e-health conference report. Australian Government; 2011. Available from http://www.yourhealth.gov.au/internet/yourhealth/publishing.nsf/Content/nat-ehealth-conf-report/$File/eHealth%20Conference%20and%20Stakeholder%20Report.pdf [last accessed 10 Apr 2014]
   Google Scholar
• *Tsaousides T, Matsuzawa Y, Lebowitz M. Familiarity and prevalence of Facebook use for social networking among individuals with traumatic brain injury. Brain Injury 2011;25:1155–62
   PubMed Web of Science ®Google Scholar
• McDonald S, Togher L, Code C. Social and communication disorders following traumatic brain injury. East Sussex: Psychology Press; 2013
   Google Scholar
• Coelho CA, Youse KM, Le KN. Conversational discourse in closed-head-injured and non-brain-injured adults. Aphasiology 2002;16:659–72
   Google Scholar
• Dahlberg C, Hawley L, Morey C, et al. Social communication skills in persons with post-acute traumatic brain injury: three perspectives. Brain Injury 2006;20:425–35
   PubMed Web of Science ®Google Scholar
• Douglas JM. Relation of executive functioning to pragmatic outcome following severe traumatic brain injury. J Speech Lang Hear Res 2010;53:365–82
   PubMed Web of Science ®Google Scholar
• Millar K, Nicoll JAR, Thornhill S, et al. Long term neuropsychological outcome after head injury: relation to APOE genotype. J NeurolNeurosurg Psychiatry 2003;74:1047–52
   PubMed Web of Science ®Google Scholar
• Shorland J, Douglas JM. Understanding the role of communication in maintaining and forming friendships following traumatic brain injury. Brain Injury 2010;24:569–80
   PubMed Web of Science ®Google Scholar
• Guskiewicz KM, Weaver NL, Padua DA, Garrett WE. Epidemiology of concussion in collegiate and high school football players. Am J Sports Med 2000;28:643–50
   PubMed Web of Science ®Google Scholar
• Putukian M. The acute symptoms of sport-related concussion: diagnosis and on-field management. Clin Sports Med 2011;30:49–61
   PubMed Web of Science ®Google Scholar
• Draper K, Ponsford J. Cognitive functioning ten years following traumatic brain injury and rehabilitation. Neuropsychology 2008;22:618–25
   PubMed Web of Science ®Google Scholar
• Senathi-Raja D, Ponsford J, Schönberger M. Impact of age on long-term cognitive function after traumatic brain injury. Neuropsychology 2010;24:336–44
   PubMed Web of Science ®Google Scholar
• Douglas JM. Conceptualizing self and maintaining social connection following severe traumatic brain injury. Brain Injury 2013;27:60–74
   PubMed Web of Science ®Google Scholar
• Freeman A, Adams M, Ashworth F. An exploration of the experience of self in the social world for men following traumatic brain injury. Neuropsychol Rehabil 2015;25:189–215
   PubMed Web of Science ®Google Scholar
• Paterson J, Stewart J. Adults with acquired brain injury: perceptions of their social world. Rehabil Nurs 2002;27:13–18
   Google Scholar
• Togher L, Hand L, Code C. Analysing discourse in the traumatic brain injury population: telephone interactions with different communication partners. Brain Injury 1997;11:169–89
   PubMed Web of Science ®Google Scholar
• Togher L, Power E, Tate R, et al. Measuring the social interactions of people with traumatic brain injury and their communication partners: the adapted Kagan scales. Aphasiology 2010;24:914–27
   Web of Science ®Google Scholar
• Wedcliffe T, Ross E. The psychological effects of traumatic brain injury on the quality of life of a group of spouses/partners. S Afr J Commun Disord 2001;48:77–99
   PubMedGoogle Scholar
• Levack WMM, Kayes NM, Fadyl JK. Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research. Disabil Rehabil 2010;32:986–99
   PubMed Web of Science ®Google Scholar
• *Kilov AM, Togher L, Power E, Turkstra L. Can teenagers with traumatic brain injury use Internet chatrooms? A systematic review of the literature and the Internet. Brain Injury 2010;24:1135–72
   PubMed Web of Science ®Google Scholar
• MacDonald S, Wiseman-Hakes C. Knowledge translation in ABI rehabilitation: a model for consolidating and applying the evidence for cognitive-communication interventions. Brain Injury 2010;24:486–508
   PubMed Web of Science ®Google Scholar
• Rietdijk R, Togher L, Power E. Supporting family members of people with traumatic brain injury using telehealth: a systematic review. J Rehabil Med 2012;44:913–21
   PubMed Web of Science ®Google Scholar
• Simmons-Mackie N, Raymer A, Armstrong E, et al. Communication partner training in aphasia: a systematic review. Arch Phys Med Rehabil 2010;91:1814–37
   PubMed Web of Science ®Google Scholar
• Welch-West P, Ferri C, Aubut J, et al. Module 7. Cognitive-communication treatments post acquired brain injury. In evidence-based review of moderate to severe acquired brain injury. ABIEBR; 2013. Available from: http://www.abiebr.com/module/7-communication-deficits-following-acquired-brain-injury-intervention-treatments [last accessed 3 Mar 2015]
   Google Scholar
• Ylvisaker M, Turkstra LS, Coelho C. Behavioral and social interventions for individuals with traumatic brain injury: a summary of the research with clinical implications. Semin Speech Lang 2005;26:256–67
   PubMedGoogle Scholar
• Ylvisaker M, Turkstra L, Coehlo C, et al. Behavioural interventions for children and adults with behaviour disorders after TBI: a systematic review of the evidence. Brain Injury 2007;21:769–805
   PubMed Web of Science ®Google Scholar
• Togher L, Wiseman-Hakes C, Douglas J, et al. INCOG recommendations for management of cognition following traumatic brain injury, Part IV: Cognitive communication. J Head Trauma Rehabil 2014;29:353–68
   PubMed Web of Science ®Google Scholar
• Behn N, Togher L, Power E, Heard R. Evaluating communication training for paid carers of people with traumatic brain injury. Brain Injury 2012;26:1702–15
   PubMed Web of Science ®Google Scholar
• Togher L, McDonald S, Code C, Grant S. Training communication partners of people with traumatic brain injury: a randomised controlled trial. Aphasiology 2004;18:313–35
   Web of Science ®Google Scholar
• Togher L, Power E, Rietdijk R, et al. An exploration of participant experience of a communication training program for people with traumatic brain injury and their communication partners. Disabil Rehabil 2012;34:1562–74
   PubMed Web of Science ®Google Scholar
• Jeejeebhoy S. Social media: the brain injury friendly way to socialize. OBIA Review 2014:21–23. Available from: http://obia.ca/wp-content/uploads/2014/03/OBIA-Review-_21-1online.pdf [last accessed 11 May 2014]
   Google Scholar
• Radman D. Social media – a modern platform with benefits for the entire ABI community. OBIA Review 2014:12–14. Available from: http://obia.ca/wp-content/uploads/2014/03/OBIA-Review-_21-1online.pdf [last accessed 11 May 2014]
   Google Scholar
• Upton C. Survivor stories: brain injury + social media = community. OBIA Review 2014:16–19. Available from: http://obia.ca/wp-content/uploads/2014/03/OBIA-Review-_21-1online.pdf [last accessed 11 May 2014]
   Google Scholar
• Rosenthal S, McKeown K. Age prediction in blogs: a study of style, content, and online behavior in pre-and post-social media generations. 2011. Proceedings of the 49th Annual Meeting of the Association for Computational Linguistics: Human Language Technologies. Association for Computational Linguistics 2011;1:763–72
   Google Scholar
• Lanchantin T, Simoës-Perlant A, Largy P. The case of digital writing in instant messaging: when cyber written productions are closer to the oral code than the written code. PsychNology J 2012;10:187–214
   Google Scholar
• Grace E, Raghavendra P, Newman L, et al. Learning to use the Internet and online social media: what is the effectiveness of home-based intervention for youth with complex communication needs? Child Lang Teach Ther 2014;30:141–57
   Web of Science ®Google Scholar
• Hynan A. How I use the internet and online social media: experiences of young people who use Augmentative and Alternative Communication (AAC) [Thesis]. Manchester: Manchester Metropolitan University; 2013: 310 p. Available from: Manchester Metropolitan University http://hdl.handle.net/2173/323593
   Google Scholar
• Hynan A, Murray J, Goldbart J. ‘Happy and excited’: perceptions of using digital technology and social media by young people who use augmentative and alternative communication. Child Lang Teach Ther 2014;30:175–86
   Web of Science ®Google Scholar
• Raghavendra P, Wood D, Newman L, Lawry J. Why aren't you on Facebook?: patterns and experiences of using the Internet among young people with physical disabilities. Technol Disabil 2012;24:149–62
   Google Scholar
• Raghavendra P, Grace E, Newman L, et al. ‘They think I’m really cool and nice’: the impact of Internet support on the social networks and loneliness of young people with disabilities. Telecommun J Aust 2013;63:Article 414
   Google Scholar
• Raghavendra P, Newman L, Grace E, Wood D. ‘I could never do that before’: effectiveness of a tailored Internet support intervention to increase the social participation of youth with disabilities. Child Care Health Dev 2013;39:552–61
   PubMed Web of Science ®Google Scholar
• Hemsley B, Palmer S, Balandin S. Tweet reach: a research protocol for using Twitter to increase information exchange in people with communication disabilities. Dev Neurorehabil 2014;17:84–9
   PubMed Web of Science ®Google Scholar
• *Ahmed OH, Sullivan SJ, Schneiders AG, et al. Exploring the opinions and perspectives of general practitioners towards the use of social networking sites for concussion management. J Prim Health Care 2013;5:36–42
   PubMedGoogle Scholar
• *Ahmed OH. The development of a facebook concussion management intervention for young persons with a sports concussion [Thesis]. Otago: University of Otago; 2013. 466p. Available from: University of Otago http://hdl.handle.net/10523/4357
   Google Scholar
• Ahmed OH, Sullivan SJ, Schneiders AG, McCrory PR. Concussion information online: evaluation of information quality, content and readability of concussion-related websites. Br J Sports Med 2012;46:675–83
   PubMed Web of Science ®Google Scholar
• *Ahmed OH, Sullivan S, Schneiders AG, Mccrory P. iSupport: do social networking sites have a role to play in concussion awareness? Disabil Rehabil 2010;32:1877–83
   PubMed Web of Science ®Google Scholar
• Ahmed OH, Pulman AJ. Concussion information on the move: the role of mobile technology in concussion management. J Commun Inform 2012;9
   Google Scholar
• *Ahmed OH, Sullivan SJ, Schneiders AG, et al. Ethical considerations in using facebook for health care support: a case study using concussion management. PM R 2013;5:328–34
   PubMedGoogle Scholar
• *Sullivan SJ, Schneiders AG, Cheang CW, et al. ‘What's happening?’ A content analysis of concussion-related traffic on Twitter. Br J Sports Med 2012;46:258–63
   PubMed Web of Science ®Google Scholar
• *Williams D, Sullivan SJ, Schneiders AG, et al. Big hits on the small screen: an evaluation of concussion-related videos on YouTube. Br J Sports Med 2014;48:107–11
   PubMed Web of Science ®Google Scholar
• Fraas M, Balz MA. Expressive electronic journal writing: freedom of communication for survivors of acquired brain injury. J Psycholinguist Res 2008;37:115–24
   PubMed Web of Science ®Google Scholar
• Newby G, Coetzer R. The use of emails and texts in psychological therapy after acquired brain injury. In: Newby G, Coetzer R, Daisley A, Weatherhead S, eds. Practical neuropsychological rehabilitation in acquired brain injury: a guide for working clinicians. London: Karnac Books; 2013:255
   Google Scholar
• Sohlberg MM, Ehlhardt LA, Fickas S, Sutcliffe A. A pilot study exploring electronic (or e-mail) mail in users with acquired cognitive-linguistic impairments. Brain Injury 2003;17:609–29
   PubMed Web of Science ®Google Scholar
• Todis B, Sohlberg MM, Hood D, Fickas S. Making electronic mail accessible: perspectives of people with acquired cognitive impairments, caregivers and professionals. Brain Injury 2005;19:389–401
   PubMed Web of Science ®Google Scholar
• Tam SF, Man WK, Hui-Chan CWY, et al. Evaluating the efficacy of tele-cognitive rehabilitation for functional performance in three case studies. Occup Ther Int 2003;10:20–38
   PubMedGoogle Scholar
• Duffield G, Douglas J, O'Halloran R. Factors influencing the use of electronic technology for persons following traumatic brain injury. 2013. 36th Brain Impairment Conference; Hobart, TAS Australia. Brain Impairment 2013;14:166
   Google Scholar
• Egan J, Worrall L, Oxenham D. An Internet training intervention for people with traumatic brain injury: barriers and outcomes. Brain Injury 2005;19:555–68
   PubMed Web of Science ®Google Scholar
• Vaccaro M, Hart T, Whyte J, Buchhofer R. Internet use and interest among individuals with traumatic brain injury: a consumer survey. Disabil Rehabil Assist Technol 2007;2:85–95
   PubMedGoogle Scholar
• Verburg G, Borthwick B, Bennett B, Rumney P. Online support to facilitate the reintegration of students with brain injury: trials and errors. NeuroRehabilitation 2003;18:113–23
   PubMed Web of Science ®Google Scholar
• Wade SL, Walz NC, Carey JC, Williams KM. Brief report: description of feasibility and satisfaction findings from an innovative online family problem-solving intervention for adolescents following traumatic brain injury. J Pediatr Psychol 2009;34:517–22
   PubMed Web of Science ®Google Scholar
• *Becker F. Tweeting with TBI-aspects of new media use in relation to brain injury rehabilitation. International Brain Injury Association's Ninth World Congress on Brain Injury; 2012 Mar 21–25; Edinburgh, Scotland. Brain Injury 2012;26:658–9
   Google Scholar
• *Conway J, Flamini T, Harton S, Gower L. Staying connected through social media: connections for compassionate caring. 10th Annual Conference on Brain Injury of the North American Brain Injury Society's, NABIS; 2012 September 12–15; Miami, FL, United States. J Head Trauma Rehabil 2012;27:E14–15
   Google Scholar
• *Mason M. The twittered brain: how survivors are using social networking as a support system. International Brain Injury Association's Eighth World Congress on Brain Injury; 2010 Mar 10–14; Washington, DC. Brain Injury 2010;24:134–5
   Google Scholar
• *Provvidenza C, Engebretsen L, Tator C, et al. From consensus to action: knowledge transfer, education and influencing policy on sports concussion. Br J Sports Med 2013;47:332–8
   PubMed Web of Science ®Google Scholar
• *Scott T. Analysis of traumatic brain injury coverage in print and social media. 2013 National Conference on Health Communication, Marketing, and Media. 2013 Aug 20–22; Atlanta, GA
   Google Scholar
• *Smith P. Social media, employment, and brain injury. Santa Clara Valley Brain Injury Conference. 2011 Feb 26; San Jose, CA
   Google Scholar
• *Youcha V. Education and outreach in the 21st century: using friends, tweets, and peeps to build an online community. International Brain Injury Association's Eighth World Congress on Brain Injury. Volume 24. 2010 Mar 10–14; Washington, DC: Brain Injury; 2010:391–2
   Google Scholar
• *Youcha V. Traumatic brain injury and social media: translating scientific research and clinical practices for the end user. National Neurotrauma Symposium; 2011 July 10–13; Miami, FL. Available from: http://www.slideshare.net/neurotrauma/youcha-vicki [last accessed 11 Aug 2014]
   Google Scholar
• Coleman B. Rehab continuum thru social media. Brain Injury. The Challenge of Change; 2013 October 11; West Orange, NJ. Available from: http://www.slideshare.net/becole/traumatic-brain-injury-social-media [last accessed 11 Aug 2014]
   Google Scholar
• Mason M. 2009 Is Facebook the Newest Brain Therapy? In www.brainline.org. Available from: http://www.brainline.org/content/2009/11/is-facebook-the-newest-brain-therapy.html [last accessed 11 Aug 2014]
   Google Scholar
• Abogunrin S, Martin A. Can the use of social media and mobile apps improve patient know ledge of disease and health outcomes? A systematic review. Value Health 2013;16:A326
   Web of Science ®Google Scholar
• Alvarez-Jimenez M, Alcazar-Corcoles MA, Gonzalez-Blanch C, et al. Online, social media and mobile technologies for psychosis treatment: a systematic review on novel user-led interventions. Schizophr Res 2014;156:96–106
   PubMed Web of Science ®Google Scholar
• Best P, Manktelow R, Taylor B. Online communication, social media and adolescent wellbeing: a systematic narrative review. Child Youth Serv Rev 2014;41:27–36
   Web of Science ®Google Scholar
• Capurro D, Cole K, Echavarria MI, et al. The use of social networking sites for public health practice and research: a systematic review. J Med Internet Res 2014;16:e79
   PubMed Web of Science ®Google Scholar
• Hamm MP, Chisholm A, Shulhan J, et al. Social media use among patients and caregivers: a scoping review. BMJ Open 2013;3:e002819
   PubMed Web of Science ®Google Scholar
• Hamm MP, Shulhan J, Williams G, et al. A systematic review of the use and effectiveness of social media in child health. BMC Pediatr 2014;14:138
   PubMed Web of Science ®Google Scholar
• Maher CA, Lewis LK, Ferrar K, et al. Are health behavior change interventions that use online social networks effective? A systematic review. J Med Internet Res 2014;16:e40
   PubMed Web of Science ®Google Scholar
• Moorhead SA, Hazlett DE, Harrison L, et al. A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. J Med Internet Res 2013;15:118–33
   Web of Science ®Google Scholar
• Williams G, Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:16
   Web of Science ®Google Scholar
• Tate R, Kennedy M, Ponsford J, et al. INCOG recommendations for management of cognition following traumatic brain injury, Part III: executive function and self-awareness. J Head Trauma Rehabil 2014;29:338–52
   PubMed Web of Science ®Google Scholar
• Wiseman-Hakes C, MacDonald S, Keightley M. Perspectives on evidence based practice in ABI rehabilitation. “Relevant Research”: Who decides? NeuroRehabilitation 2010;26:355–68
   PubMed Web of Science ®Google Scholar
• Menon DK, Schwab K, Wright DW, Maas AI. Position statement: definition of traumatic brain injury. Arch Phys Med Rehabil 2010;91:1637–40
   PubMed Web of Science ®Google Scholar
• NHMRC. NHMRC additional levels of evidence and grades for recommendations for developers of guidelines. National Health and Medical Research Council (NHMRC) of Australia; 2009. Available from: https://www.nhmrc.gov.au/_files_nhmrc/file/guidelines/developers/nhmrc_levels_grades_evidence_120423.pdf [last accessed 27 Sept 2014]
   Google Scholar
• Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. BMJ 2009;339:b2535
   PubMed Web of Science ®Google Scholar
• World Health Organization (WHO). International classification of functioning, disability and health. World Health Organization; 2001. Available from http://www.who.int/classifications/icf/en/ [last accessed 27 Nov 2014]
   Google Scholar
• Shin DH. The effects of trust, security and privacy in social networking: a security-based approach to understand the pattern of adoption. Interact Comput 2010;22:428–38
   Web of Science ®Google Scholar
• Khan GF, Swar B, Lee SK. Social media risks and benefits: a public sector perspective. Soc Sci Comput Rev 2014;32:606–27
   Web of Science ®Google Scholar
• O'Keeffe GS, Clarke-Pearson K, Council on Communications Media. The impact of social media on children, adolescents, and families. Pediatrics 2011;127:800–4
   PubMed Web of Science ®Google Scholar
• Clifton A, Goodall D, Ban S, Birks E. New perspectives on the contribution of digital technology and social media use to improve the mental wellbeing of children and young people: a state-of-the art review. Neonatal Paediatr Child Health Nurs 2013;16:19–26
   Google Scholar
• McCartney PR. Social networking safety for children and adolescents. MCN Am J Matern Child Nurs 2012;37:65
   PubMed Web of Science ®Google Scholar
• Duncan-Daston R, Hunter-Sloan M, Fullmer E. Considering the ethical implications of social media in social work education. Ethics Inform Technol 2013;15:35–43
   Web of Science ®Google Scholar
• Chretien KC, Greysen S, Chretien J, Kind T. Online posting of unprofessional content by medical students. JAMA 2009;302:1309–15
   PubMed Web of Science ®Google Scholar
• Junco R. The relationship between frequency of Facebook use, participation in Facebook activities, and student engagement. Comput Educ 2012;58:162–71
   Web of Science ®Google Scholar
• Junco R. Too much face and not enough books: the relationship between multiple indices of Facebook use and academic performance. Comput Hum Behav 2012;28:187–98
   Web of Science ®Google Scholar
• Junco R, Elavsky CM, Heiberger G. Putting twitter to the test: assessing outcomes for student collaboration, engagement and success. Br J Educ Technol 2013;44:273–87
   Web of Science ®Google Scholar
• Cheston CC, Flickinger TE, Chisolm MS. Social media use in medical education: a systematic review. Acad Med 2013;88:893–901
   PubMed Web of Science ®Google Scholar
• George DR, Dellasega C. Use of social media in graduate-level medical humanities education: two pilot studies from Penn State College of Medicine. Med Teach 2011;33:e429–34
   PubMed Web of Science ®Google Scholar
• Gholami-Kordkheili F, Wild V, Strech D. The impact of social media on medical professionalism: a systematic qualitative review of challenges and opportunities. J Med Internet Res 2013;15:e184
   PubMed Web of Science ®Google Scholar
• Greysen SR, Kind T, Chretien KC. Online professionalism and the mirror of social media. J Gen Intern Med 2010;25:1227–9
   PubMed Web of Science ®Google Scholar
• McKee R. Ethical issues in using social media for health and health care research. Health Policy 2013;110:298–301
   PubMed Web of Science ®Google Scholar
• Schulz P, Auvinen AM, Crotty B, et al. A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. J Med Internet Res 2013;15:e85
   PubMed Web of Science ®Google Scholar
• Madan G, Stadler ME, Uhrich K, et al. Adolescents with tracheostomies – communications in cyberspace. Int J Pediatr Otorhinolaryngol 2011;75:678–80
   PubMed Web of Science ®Google Scholar
• Rains SA, Brunner SR. What can we learn about social network sites by studying Facebook? A call and recommendations for research on social network sites. New Media Soc 2015;17:114–31
   Web of Science ®Google Scholar