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Research Paper

Family caregiving of individuals with traumatic brain injury in Botswana

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Pages 559-567 | Received 28 Jul 2015, Accepted 07 Feb 2016, Published online: 13 Mar 2016

References

  • Bruns J, Hauser WA. The epidemiology of traumatic brain injury: a review. Epilepsia. 2003;44:2–10.
  • Nell V, Brown DSO. Epidemiology of traumatic brain injury in Johannesburg – II. Morbidity, mortality and etiology. Soc Sci Med. 1991;33:289–296.
  • Hyder AA, Wunderlich CA, Puvanachandra P, et al. The impact of traumatic brain injuries: a global perspective. Neurorehabilitation. 2007;22:341–353.
  • Wrona RM. Disability and return to work outcomes after traumatic brain injury: results from the Washington State Industrial Insurance Fund. Disabil Rehabil. 2010;32:650–655.
  • Rivera P, Elliott TR, Berry JW, et al. Predictors of caregiver depression among community-residing families living with traumatic brain injury. Neurorehabilitation. 2007;22:3–8.
  • Lefebvre H, Cloutier G, Josee Levert M. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Inj. 2008;22:535–543.
  • Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: a review of the literature. J Clin Nurs. 2005;14:1004–1012.
  • Gulin SL, Perrin PB, Stevens LF, et al. Health-related quality of life and mental health outcomes in Mexican TBI caregivers. Families Syst Health. 2014;32:53–66.
  • Machamer J, Temkin N, Dikmen S. Significant other burden and factors related to it in traumatic brain injury. J Clin Exp Neuropsychol. 2002;24:420–433.
  • Kreutzer J, Marwitz J, Hsu N, et al. Marital stability after brain injury: an investigation and analysis. Neurorehabilitation. 2007;22:53–59.
  • Testa JA, Malec JF, Moessner AM, et al. Predicting family functioning after TBI: impact of neurobehavioral factors. J Head Trauma Rehabil. 2006;21:236–247.
  • Ponsford J, Olver J, Ponsford M, et al. Long-term adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided. Brain Inj. 2003;17: 453–468.
  • Ponsford J, Schoenberger M. Family functioning and emotional state two and five years after traumatic brain injury. J Int Neuropsychol Soc. 2010;16:306–317.
  • Nonterah CW, Jensen BJ, Perrin PB, et al. The influence of TBI impairments on family caregiver mental health in Mexico. Brain Inj. 2013;27:1287–1293.
  • Anderson MI, Parmenter TR, Mok M. The relationship between neurobehavioural problems of severe traumatic brain injury (TBI), family functioning and the psychological well-being of the spouse/caregiver: path model analysis. Brain Inj. 2002;16:743–757.
  • Douglas JM, Spellacy FJ. Correlates of depression in adults with severe traumatic brain injury and their carers. Brain Inj. 2000;14:71–88.
  • Kolakowsky-Hayner SA, Kishore R. Caregiver functioning after traumatic injury. Neurorehabilitation. 1999;13:27–33.
  • Marsh NV, Kersel DA, Havill JH, et al. Caregiver burden during the year following severe traumatic brain injury. J Clin Exp Neuropsychol. 2002;24:434–447.
  • Minnes P, Graffi S, Nolte ML, et al. Coping and stress in Canadian family caregivers of persons with traumatic brain injuries. Brain Inj. 2000;14:737–748.
  • Gervasio A, Kreutzer J. Kinship and family members' psychological distress after traumatic brain injury: a large sample study. J Head Trauma Rehabil. 1997;12:14–26.
  • Kreutzer J, Gervasio A, Camplair P. Primary caregivers' psychological status and family functioning after traumatic brain injury. Brain Inj. 1994;8:197–210.
  • Anderson MI, Simpson GK, Morey PJ, et al. Differential pathways of psychological distress in spouses vs. parents of people with severe traumatic brain injury (TBI): Multi-group analysis. Brain Inj. 2009;23:931–943.
  • Kreutzer J, Rapport L, Marwitz J, et al. Caregivers' well-being after traumatic brain injury: a multicenter prospective investigation. Arch Phys Med Rehabil. 2009;90:939–946.
  • Stebbins P, Pakenham KI. Irrational schematic beliefs and psychological distress in caregivers of people with traumatic brain injury. Rehabil Psychol. 2001;46:178–194.
  • Wells R, Dywan J, Dumas J. Life satisfaction and distress in family caregivers as related to specific behavioural changes after traumatic brain injury. Brain Inj. 2005;19:1105–1115.
  • Rajaraman D, Earle A, Heymann SJ. Working HIV care-givers in Botswana: spill-over effects on work and family well-being. Commun Work Family. 2008;11:1–17.
  • Phaladze NA. The plight of family caregivers in home based care in Botswana. Botswana Notes Records. 2001;33:73–81.
  • Maundeni T, Malinga-Musamba T. The role of informal caregivers in the well-being of orphans in Botswana: a literature review. Child Fam Soc Work. 2013;18:107–116.
  • Ndaba-Mbata RD, Seloilwe ES. Home-based care of the terminally ill in Botswana: knowledge and perceptions. Int Nurs Rev. 2000;47:218–223.
  • Seloilwe ES. Experiences and demands of families with mentally ill people at home in Botswana. J Nurs Scholarsh. 2006;38:262–268.
  • Rajaraman D, Russell S, Heymann J. HIV/AIDS, income loss and economic survival in Botswana. AIDS Care. 2006;18: 656–662.
  • Heymann J, Earle A, Rajaraman D, et al. Extended family caring for children orphaned by AIDS: balancing essential work and caregiving in a high HIV prevalence nations. AIDS Care. 2007;19:337–345.
  • World Health Organization. The world health report: 2006: working together for health. Geneva: WHO; 2006.
  • Central Statistics Office (now Statistics Botswana) [Internet]. Botswana–Household Income and Expenditure Survey 2002–2003 [dataset]. Version 1. Garborone; [cited 2016 Feb 27]. Available from: http://botswana.microdatahub.com/index.php/catalog/3.
  • Ingstad B. Mpho ya Modimo-a gift from God: perspectives on “attitudes” toward disabled persons. In: Ingstad B, Whyte S, editors. Disability and culture. Los Angeles (CA): University of California press; 1995 p. 246–264.
  • Tashakkori A, Teddlie C. Sage handbook of mixed methods in social & behavioral research. Thousand Oaks (CA): Sage; 2010.
  • Creswell JW, Plano Clark VL. Designing and conducting mixed methods research. 2nd ed. Thousand Oaks (CA): Sage; 2011.
  • Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67:361–370.
  • Ponsford J, Olver JH, Curran C. A profile of outcome: 2 years after traumatic brain injury. Brain Inj. 1995;9:1–10.
  • Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment with data saturation and variability. Field Methods. 2006;18:59–82.
  • Strauss A, Corbin J. Basics of qualitative research: grounded theory procedures and techniques. Newbury Park (CA): Sage Publications, Inc.; 1990.
  • Benedictus MR, Spikman JM, van der Naalt J. Cognitive and behavioral impairment in traumatic brain injury related to outcome and return to work. Arch Phys Med Rehabil. 2010;91:1436–1441.
  • Mavundla TR, Toth F, Mphelane ML. Caregiver experience in mental illness: a perspective from a rural community in South Africa. Int J Mental Health Nurs. 2009;18:357–367.
  • Mokhosi MT, Grieve KW. African families' perceptions of traumatic brain injury. South Afr J Psychol. 2004;34:301–317.
  • Kreutzer J, Gervasio A, Camplair P. Patient correlates of caregivers' distress and family functioning after traumatic brain injury. Brain Inj. 1994;8:211–230.
  • Marsh NV, Kersel DA, Havill JH, et al. Caregiver burden at 1 year following severe traumatic brain injury. Brain Inj. 1998;12:1045–1059.
  • Ergh TC, Rapport LJ, Coleman RD, et al. Predictors of caregiver and family functioning following traumatic brain injury: social support moderates caregiver distress. J Head Trauma Rehabil. 2002;17:155–174.
  • Chan J. Carers' perspective on respite for persons with acquired brain injury. Int J Rehabil Res. 2007;30:137–146.
  • African Union of the Blind, Kenya Union of the Blind, Centre for Disability Rights Education and Advocacy. 2007 June. State of Disabled Peoples' Rights in Kenya; [Cited June 2015]. Available from: drpi.research.yorku.ca.
  • Kang’ethe S. Challenges impacting on the quality of care to persons living with HIV/AIDS and other terminal illnesses with reference to Kanye community home-based care programme. SAHARA J. 2009;6:24–32.
  • Paget A, Mallewa M, Chinguo D, et al. “It means you are grounded” – caregivers’ perspectives on the rehabilitation of children with neurodisability in Malawi. Disabil Rehabil. 2016;38:223–234.
  • Geere J, Gona J, Omondi F, et al. Caring for children with physical disability in Kenya: potential links between caregiving and carers' physical health. Child Care Health Dev. 2013;39:381–392.
  • JoÃo Figueiras M, Weinman J. Do similar patient and spouse perceptions of myocardial infarction predict recovery? Psychol Health. 2003;18:201–216.
  • Whitney J, Haigh R, Weinman J, et al. Caring for people with eating disorders: factors associated with psychological distress and negative caregiving appraisals in carers of people with eating disorders. Br J Clin Psychol. 2007;46: 413–428.
  • Serio C, Kreutzer J, Gervasio A. Predicting family needs after brain injury: implications for intervention. J Head Trauma Rehabil. 1995;10:32–45.
  • Rotondi AJ, Sinkule J, Balzer K, et al. A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary family caregivers. J Head Trauma Rehabil. 2007;22:14–25.
  • Raina P, O'Donnell M, Rosenbaum P, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115:e626–e636.
  • Calvete E, de Arroyabe EL. Depression and grief in Spanish family caregivers of people with traumatic brain injury: the roles of social support and coping. Brain Inj. 2012;26: 834–843.

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