Parents’ experiences of participation in physical activities for children with cerebral palsy – protecting and pushing towards independence

References

• Carlon S, Taylor N, Dodd K, et al. Differences in habitual physical activity levels of young people with cerebral palsy and their typically developing peers: a systematic review. Disabil Rehabil. 2013;35:647–655.
   PubMed Web of Science ®Google Scholar
• Bania T, Dodd KJ, Taylor N. Habitual physical activity can be increased in people with cerebral palsy: a systematic review. Clin Rehabil. 2011;25:303–315.
   PubMed Web of Science ®Google Scholar
• Dalvand H, Dehghan L, Reza Hadian M, et al. Relationship between gross motor and intellectual function in children with cerebral palsy: a cross-sectional study. Arch Phys Med Rehabil. 2012;93:480–484.
   PubMed Web of Science ®Google Scholar
• Lauruschkus K, Westbom L, Hallström I, et al. Physical activity in a total population of children and adolescents with cerebral palsy. Res Dev Disabil. 2013;34:157–167.
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy, April 2006. Dev Med Child Neurol. 2007;49:8–14.
   Web of Science ®Google Scholar
• Novak I, Hines M, Goldsmith S, et al. Clinical prognostic massages from a systematic review on cerebral palsy. Pediatrics. 2012;130:1–28.
   Web of Science ®Google Scholar
• Claassen AA, Gorter JW, Stewart D, et al. Becoming and staying physically active in adolescents with cerebral palsy: protocol of a qualitative study of facilitators and barriers to physical activity. BMC Pediatr. 2011;11:1.
   PubMed Web of Science ®Google Scholar
• Fowler EG, Kolobe THA, Damiano DL, et al. Promotion of physical fitness and prevention of secondary conditions for children with cerebral palsy: section on pediatrics research summit proceedings. Phys Ther. 2007;87:1495–1510.
   PubMed Web of Science ®Google Scholar
• World Health Organization, ed. Disability and health. Fact Sheet No 352; 2010. Available from: http://www.who.int/mediacentre/factsheets/fs352/en/index.html (accessed 13/07/14).
   Google Scholar
• Verschuren O, Darrah J, Novak I, et al. Health-enhancing physical activity in children with cerebral palsy: more of the same is not enough. Phys Ther. 2014;94:297–305.
   PubMed Web of Science ®Google Scholar
• Hamilton M, Healy G, Dunstan D, et al. Too little exercise and too much sitting: inactivity physiology and the need for new recommendations on sedentary behavior. Curr Cardiovasc Risk Rep. 2008;2:292–298.
   PubMedGoogle Scholar
• Trembley M. Letter to the editor: standardized use of the terms sedentary and sedentary behaviours. Appl Physiol Nutr Metab. 2012;37:540–542.
   PubMed Web of Science ®Google Scholar
• Innes J, Darrah J. Sedentary behavior: implications for children with cerebral behaviour: implications for children with cerebral palsy. Pediatr Phys Ther. 2013;25:402–408.
   PubMed Web of Science ®Google Scholar
• Murphy N, Carbone P. Promoting the participation of children with disabilities in sports, recreation, and physical activities. Pediatrics. 2008;121:1057–1061.
   PubMed Web of Science ®Google Scholar
• Verschuren O, Wiart L, Hermans D, et al. Identification of facilitators and barriers to physical activity in children and adolescents with cerebral palsy. J Pediatr. 2012;161:488–494.
   PubMed Web of Science ®Google Scholar
• Verschuren O, Wiart L, Ketelaar M. Stages of change in physical activity behavior in children and adolescents with cerebral palsy. Disabil Rehabil. 2013;35:1630–1635.
   PubMed Web of Science ®Google Scholar
• Shimmell L, Gorter J, Jackson D, et al. “It's the participation that motivates him”: physical activity experiences of youth with cerebral palsy and their parents. Phys Occup Ther Pediatr. 2013;33:405–420.
   PubMed Web of Science ®Google Scholar
• Vogts N, Mackey AH, Ameratunga S, et al. Parent-perceived barriers to participation in children and adolescents with cerebral palsy. J Paediatr Child Health. 2010;46:680–685.
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Gorter JW. The ‘F-words’ in childhood disability: I swear this is how we should think. Child Care Health Dev. 2011;38:457–463.
   PubMed Web of Science ®Google Scholar
• World Health Organization, ed. International Classification of Functioning, Disability and Health (ICF). Geneva, Switzerland; 2001. Available from: http://www.who.int/classifications/icf/en/(accessed 23/07/14).
   Google Scholar
• Lauruschkus K, Nordmark E, Hallström I. ”It's fun, but …” children with cerebral palsy and their experiences of participation in physical activities. Disabil Rehabil. 2015;37:283–289.
   PubMed Web of Science ®Google Scholar
• Krueger RA, Casey MA. Focus groups: a practical guide for applied research. 4th ed. Thousand Oaks (CA): Sage Publications: 2009.
   Google Scholar
• Kvale S, Brinkmann S. Interviews: learning the craft of qualitative research interviewing. 2nd ed. Thousand Oaks (CA): Sage Publications; 2009.
   Google Scholar
• SFS 2010:387. Lagen om stöd och service till vissa funktionshindrade (LSS) [Act on support and service to certain disabled individuals]. Stockholm: Socialdepartementet [Ministry of Health and Social Affairs].
   Google Scholar
• SFS 2010:110. Socialförsäkringsbalk [Social insurance code]. Stockholm: Socialdepartementet [Ministry of Health and Social Affairs].
   Google Scholar
• WMA Declaration of Helsinki - Ethical principles for medical research involving human subjects. 2008. Available from: http://www.wma.net/en/30publications/10policies/b3/index.htm (accessed 19/06/14).
   Google Scholar
• Downe-Wamboldt B. Content analysis: method, applications, and issues. Health Care Women Int. 1992;13:313–321.
   PubMedGoogle Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24:105–112.
   PubMed Web of Science ®Google Scholar
• Migrationsinfo; [cited 2014 Aug 09]. Available from: http://www.migrationsinfo.se/migration/sverige.
   Google Scholar
• Pergert P, Ekblad S, Björk O, et al. Protecting family interests: an interview study with foreign-born parents struggling on in childhood cancer care. Int J Ped. 2012;2012:681301. doi:10.1155/2012/681301.
   PubMedGoogle Scholar
• Pergert P, Ekblad S, Enskär K, et al. Obstacles to transcultural caring relationships: experiences of health care staff in pediatric oncology. J Pediatr Oncol Nurs. 2007;24:314–328.
   PubMed Web of Science ®Google Scholar
• Rawlins E, Baker G, Maynard M, et al. Perceptions of healthy eating and physical activity in an ethnically diverse sample of young children and their parents: the DEAL prevention of obesity study. J Hum Nutr Diet. 2013;26:132–144.
   PubMed Web of Science ®Google Scholar
• Callanan M, Waxman S. Commentary on special section: deficit or difference? Interpreting diverse developmental paths. Dev Psychol. 2013;49:80–83.
   PubMed Web of Science ®Google Scholar
• Carlone H, Johnson A. Unpacking ‘culture’ in cultural studies of science education: cultural difference versus cultural production. E&E. 2012;7:151–173.
   Google Scholar
• Pickl G. Communication intervention in children with severe disabilities and multilingual backgrounds: perceptions of pedagogues and parents. Augment Altern Commun. 2011;27:229–244.
   PubMed Web of Science ®Google Scholar
• Buffart L, Westendorp T, van den Berg-Emonds R, et al. Perceived barriers to and facilitators of physical activity in young adults with childhood-onset physical disabilities. J Rehabil Med. 2009;41:881–885.
   PubMed Web of Science ®Google Scholar
• Shields N, Synnot A, Barr M. Perceived barriers and facilitators to physical activity for children with disability: a systematic review. Br J Sports Med. 2012;46:989–997.
   PubMed Web of Science ®Google Scholar
• Ramstad K, Jahnsen R, Skeldal O, et al. Parent-reported participation in children with cerebral palsy: the contribution of recurrent musculoskeletal pain and child mental health problems. Dev Med Child Neurol. 2012;54:829–835.
   PubMed Web of Science ®Google Scholar
• Gibson B, Teachman G, Wright V, et al. Children’s and parents’ beliefs regarding the value of walking: Rehabilitation implications for children with cerebral palsy. Child Care Health Dev. 2011;38:61–69.
   PubMed Web of Science ®Google Scholar
• Palisano R, Rosenbaum P, Bartlett D, et al. Content validity of the expanded and revised gross motor function classification system. Dev Med Child Neurol. 2008;50:744–750.
   PubMed Web of Science ®Google Scholar
• World Health Organization (Ed.) (2010): International Classification of Diseases (ICD). Available from: http://www.who.int/classifications/icd/en/(accessed 10/10/12).
   Google Scholar