The pearl in the middle: A case study of social interactions in an individual with a severe intellectual disability

References

• Antonucci, T. C. (1985). Personal characteristics, social support and social behavior. In R. H. Binstock, E. Shanas, G. L. Maddox, G. C. Myers, J. H. Schulz ( Eds.), Handbook of aging and the social sciences (2nd ed., pp. 94–128). New York, NY: Van Nostrand Reinhold.
   Google Scholar
• Arvio, M., Sillanpää, M. (2003). Prevalence, aetiology and comorbidity of severe and profound intellectual disability in Finland. Journal of Intellectual Disability Research, 47, 108–112. doi:10.1046/j.1365-2788.2003.00447.x
   PubMed Web of Science ®Google Scholar
• Australian Government(2009). Social inclusion principles. Retrieved 4 November 2009 from http://www.socialinclusion.gov.au/SIAgenda/Principles/Pages/default.aspx
   Google Scholar
• Australian Institute of Health and Welfare(2003). Data briefs: People with an intellectual or early onset disability in Australia. Journal of Intellectual & Developmental Disability, 28, 79–83. doi:10.1080/1366825031000086911
   Web of Science ®Google Scholar
• Bigby, C. (2008). Known well by no-one. Trends in the informal social networks of middle-aged and older people with intellectual disability five years after moving to the community. Journal of Intellectual & Developmental Disability, 33, 148–157. doi:10.1080/13668250802094141
   PubMed Web of Science ®Google Scholar
• Bloom, L. (1993). The transition from infancy to language: Acquiring the power of expression. Cambridge, England: Cambridge University Press.
   Google Scholar
• Bloomberg, K., West, D. (1999). The triple C: Checklist of communication competencies. Melbourne, Australia: Communication Resource Centre, Scope.
   Google Scholar
• Bogdan, R., Taylor, S. (1998). The social construction of humanness: Relationships with people with severe retardation. In S. J. Taylor, R. Bogdan ( Eds.), Introduction to qualitative research methods: A guidebook and resource (3rd ed., pp. 242–258). New York, NY: Wiley.
   Google Scholar
• Charmaz, K. (2005). Grounded theory in the 21st century: Applications for advancing social justice studies. In N. K. Denzin, Y. S. Lincoln ( Eds.), The Sage handbook of qualitative research (3rd ed., pp. 507–535). Thousand Oaks, CA: Sage.
   Google Scholar
• Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. London, UK: Sage.
   Google Scholar
• Clement, T., Bigby, C. (2010). Group homes for people with intellectual disabilities: Encouraging inclusion and participation. London, UK: Jessica Kingsley.
   Google Scholar
• Dennis, R. (2002). Nonverbal narratives: Listening to people with severe intellectual disability. Research and Practice for Persons with Severe Disabilities, 27, 239–249. doi:10.2511/rpsd.27.4.239
   Web of Science ®Google Scholar
• Department of Health(2001). Valuing people: A new strategy for learning disability for the 21st century. Retrieved 16 July 2008 from http://www.archive.official-documents.co.uk/document/cm50/5086/5086.htm
   Google Scholar
• Department of Human Services(2002). Victorian State Disability Plan 2002–2012. Melbourne, Australia: Disability Services Division, Victorian Government Department of Human Services.
   Google Scholar
• Falvey, M. A., Forest, M., Pearpoint, J., Rosenberg, R. L. (1994). All my life's a circle: Using the tools: Circles, MAPS & PATHS. Toronto, Canada: Inclusion Press.
   Google Scholar
• Finlay, W. M. L., Antaki, C., Walton, C., Stribling, P. (2008). The dilemma for staff in ‘playing a game’ with a person with profound intellectual disabilities: Empowerment, inclusion and competence in interactional practice. Sociology of Health & Illness, 30, 531–549. doi:10.1111/j.1467-9566.2007.01080.x
   PubMed Web of Science ®Google Scholar
• Forrester-Jones, R., Jones, S., Heason, S., Di'Terlizzi, M. (2004). Supported employment: A route to social networks. Journal of Applied Research in Intellectual Disabilities, 17, 199–208. doi:10.1111/j.1468-3148.2004.00199.x
   Web of Science ®Google Scholar
• Forster, S., Iacono, T. (2008). Disability support workers' experience of interaction with a person with profound disability. Journal of Intellectual & Developmental Disability, 33, 137–147. doi:10.1080/13668250802094216
   PubMed Web of Science ®Google Scholar
• Hammersley, M., Atkinson, P. (1995). Ethnography: Principles in practice (2nd ed.). London, UK: Routledge.
   Google Scholar
• Hatton, C., Rose, J., Rose, D. (2004). Researching staff. In E. Emerson, C. Hatton, T. Thompson, T. R. Parmenter ( Eds.), The international handbook of applied research in intellectual disabilities. Chichester, England: Wiley.581–605.
   Google Scholar
• Johnson, H., Douglas, J., Bigby, C., Iacono, T. (2009). Maximizing community inclusion through mainstream communication services for adults with severe disabilities. International Journal of Speech-Language Pathology, 11, 180–190. doi:10.1080/17549500902825265
   Web of Science ®Google Scholar
• Kennedy, C. H., Horner, R. H., Newton, S. (1990). The social networks and activity patterns of adults with severe disabilities: A correlational analysis. Journal of the Association for Persons with Severe Handicaps, 15, 86–90.
   Google Scholar
• Krauss, M. W., Erickson, M. (1988). Informal support networks among aging persons with mental retardation: A pilot study. Mental Retardation, 26, 197–201.
   PubMedGoogle Scholar
• Krauss, M. W., Seltzer, M. M., Goodman, S. J. (1992). Social support networks of adults with mental retardation who live at home. American Journal on Mental Retardation, 96, 432–441.
   PubMedGoogle Scholar
• Lecompt, J., Mercier, C. (2007). The Montreal Declaration on Intellectual Disabilities of 2004: An important first step. Journal of Policy and Practice in Intellectual Disabilities, 4, 66–69. doi:10.1111/j.1741-1130.2006.00098.x
   Google Scholar
• Light, J. (1988). Interaction involving individuals using augmentative and alternative communication systems: State of the art and future directions. Augmentative and Alternative Communication, 4, 66–82. doi:10.1080/07434618812331274657
   Google Scholar
• Matson, J. L., Shoemaker, M. (2009). Intellectual disability and its relationship to autism spectrum disorders. Research in Developmental Disabilities, 30, 1107–1114. doi:10.1016/j.ridd.2009.06.003
   PubMed Web of Science ®Google Scholar
• McConkey, R., Morris, I., Purcell, M. (1999). Communications between staff and adults with intellectual disabilities in naturally occurring settings. Journal of Intellectual Disability Research, 43, 194–205. doi:10.1046/j.1365-2788.1999.00191.x
   PubMed Web of Science ®Google Scholar
• McLean, L. K., Brady, N. C., McLean, J. E. (1996). Reported communication abilities of individuals with severe mental retardation. American Journal on Mental Retardation, 100, 580–591.
   PubMedGoogle Scholar
• Morse, J. M., Richards, L. (2004). Readme first for a user's guide to qualitative methods. Thousand Oaks, CA: Sage.
   Google Scholar
• National People with Disabilities and Carer Council(2009). SHUT OUT: The experience of people with disabilities and their families in Australia. National disability strategy consultation report. Canberra: Commonwealth of Australia.
   Google Scholar
• Newton, J. S., Olson, D., Horner, R. H. (1995). Factors contributing to the stability of social relationships between individuals with intellectual disabilities and other community members. Mental Retardation, 33, 383–393.
   PubMedGoogle Scholar
• O'Brien, C. L., O'Brien, J., Mount, B. (1997). Person-centred planning has arrived … or has it? Mental Retardation, 35, 480–484.
   PubMedGoogle Scholar
• O'Brien, J. (1989). What's worth working for? Leadership for better quality human services. Retrieved November 18, 2008, from http://thechp.syr.edu/whatsw.pdf
   Google Scholar
• O'Brien, J., Lyle, C. (1987). Framework for accomplishment. Decatur, GA: Responsive Systems Associates.
   Google Scholar
• Purcell, M., Morris, I., McConkey, R. (1999). Staff perceptions of the communicative competence of adult persons with intellectual disabilities. British Journal of Developmental Disabilities, 45, 16–25.
   Web of Science ®Google Scholar
• Robertson, J., Emerson, E., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., Linehan, C. (2001). Social networks of people with mental retardation in residential settings. Mental Retardation, 39, 201–214. doi:10.1352/0047-6765(2001)039<0201:SNOPWM>2.0.CO;2
   PubMedGoogle Scholar
• Strauss, A., Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
   Google Scholar
• Taylor, S. J., Bogdan, R. (1989). On accepting relationships between people with mental retardation and non-disabled people: Towards an understanding of acceptance. Disability, Handicap & Society, 4, 21–36. doi:10.1080/02674648966780021
   Google Scholar
• Wellman, B. (1981). Applying network analysis to the study of support. In B. H. Gottleib ( Ed.), Social networks and social support. ( pp. 171–200). Beverly Hills, CA: Sage.
   Google Scholar
• Wen, X. (1997). Definition and prevalence of intellectual disability in Australia. Canberra, ACT: Australian Institute of Health and Welfare.
   Google Scholar