447
Views
12
CrossRef citations to date
0
Altmetric
ORIGINAL ARTICLES

Health service experiences to address mobility decline in ambulant adults ageing with cerebral palsyFootnote

, &

References

  • Australian Government. (1992). Disability Discrimination Act 1992. Retrieved from http://www.comlaw.gov.au/Details/C2013C00022
  • Bakheit, A. M. O., Easton, S., Edwards, K., Katchburian, L., Lin, J.-P., Paterson, M., Parnell, R., & Shrubb, V. (2009). Young people with cerebral palsy in transition from paediatric to adult health services: Best practice recommendations. Advances in Clinical Neuroscience and Rehabilitation, 8, 20–21.
  • Bent, N., Tennant, A., Swift, T., Posnett, J., Scuffham, P., & Chamberlain, M. A. (2002). Team approach versus ad hoc services for young people with physical disabilities: A retrospective cohort study. The Lancet, 360, 1280–1286. doi:10.1016/S0140-6736(02)11316-X
  • Binks, J. A., Barden, W. S., Burke, T. A., & Young, N. L. (2007). What do we really know about the transition to adult-centred health care? A focus on cerebral palsy and spina bifida. Archives of Physical Medicine and Rehabilitation, 88, 1064–1073. doi:10.1016/j.apmr.2007.04.018
  • Bringolf, J. (2010). Calling a spade a shovel: Universal, accessible, adaptable, disabled – aren't they all the same? In B. Randolph, T. Burke, K. Hulse, & V. Milligan (Eds.), Refereed papers presented at the 4th Australasian Housing Researchers Conference, Sydney, 5–7 August 2009. Sydney, Australia: City Futures Research Centre, University of New South Wales. Retrieved from http://www.be.unsw.edu.au/research-centres-and-clusters/city-futures/2009-apnhrahrc
  • Collis, F., Finger, E., Okerstrom, E., & Owens, K. (2008). Review of transition of young adults clinics: Final report of findings: Attachments. Melbourne, Australia: Department of Human Services. Retrieved from http://health.vic.gov.au/subacute/clinic-final-report-attach.pdf
  • Field, B., Scheinberg, A., & Cruickshank, A. (2010). Health care services for adults with cerebral palsy. Australian Family Physician, 39, 165–167.
  • Furukawa, A., Iwatsuki, H., Nishiyama, M., Nii, E., & Uchida, A. (2001). A study on the subjective well-being of adult patients with cerebral palsy. Journal of Physical Therapy Science, 13, 31–35. doi:10.1589/jpts.13.31
  • Goodwin, D. L., & Compton, S. G. (2004). Physical activity experiences of women aging with disabilities. Adapted Physical Activity Quarterly, 21, 122–138.
  • Horsman, M., Suto, M., Dudgeon, B., & Harris, S. R. (2010). Growing older with cerebral palsy: Insiders’ perspectives. Pediatric Physical Therapy, 22, 296–303. doi:10.1097/PEP.0b013e3181eabc0f
  • Hsieh, K., Heller, T., & Miller, A. B. (2001). Risk factors for injuries and falls among adults with developmental disabilities. Journal of Intellectual Disability Research, 45, 76–82.
  • Iacono, T., Lewis, B., Tracy, J., Hicks, S., Morgan, P., Récoché, K., & McDonald, R. (2011). DVD-based stories of people with developmental disabilities as resources for inter-professional education. Disability and Rehabilitation, 33, 1010–1021. doi:10.3109/09638288.2010.520802
  • Jahnsen, R., Villien, L., Stanghelle, J. K., & Holm, I. (2002). Coping potential and disability—Sense of coherence in adults with cerebral palsy. Disability and Rehabilitation, 24, 511–518. doi:10.1080/09638280110108805
  • Morgan, P. E., & Lo, K. (2013). Enhancing positive attitudes towards disability: Evaluation of an integrated physiotherapy program. Disability and Rehabilitation, 35, 300–305. doi:10.3109/09638288.2012.691941
  • Morgan, P., & McGinley, J. (2013). Performance of adults with cerebral palsy related to falls, balance and function: A preliminary report. Developmental Neurorehabilitation, 16, 113–120. doi:10.3109/17518423.2012.725107
  • Morgan, P., & McGinley, J. (2014). Gait function and decline in adults with cerebral palsy: A systematic review. Disability and Rehabilitation, 36, 1–9. doi:10.3109/09638288.2013.775359
  • Mosqueda, L. (2004). Maintaining health and function. In B. J. Kemp & L. Mosqueda (Eds.), Aging with a disability: What the clinician needs to know (pp. 35–47). Baltimore, MD: John Hopkins University Press.
  • Ng, S. Y., Dinesh, S. K., Tay, S. K. H., & Lee, E. H. (2003). Decreased access to health care and social isolation among young adults with cerebral palsy after leaving school. Journal of Orthopaedic Surgery, 11, 80–89.
  • Nieuwenhuijsen, C., Van Der Laar, Y., Donkervoort, M., Nieuwstraten, W., Roebroeck, M. E., & Stam, H. J. (2008). Unmet needs and health care utilization in young adults with cerebral palsy. Disability and Rehabilitation, 30, 1254–1262. doi:10.1080/09638280701622929
  • Opheim, A., Jahnsen, R., Olsson, E., & Stanghelle, J. K. (2012). Balance in relation to walking deterioration in adults with spastic bilateral cerebral palsy. Physical Therapy, 92, 279–288. doi:10.2522/ptj.20100432
  • Palisano, R., Rosenbaum, P., Bartlett, D., & Livingston, M. (2007). Gross Motor Function Classification System – Expanded and Revised. Hamilton, Canada: CanChild Centre for Childhood Disability Research. Retrieved from http://motorgrowth.canchild.ca/en/GMFCS/resources/GMFCS-ER.pdf
  • Peterson, M. D., Gordon, P. M., & Hurvitz, E. A. (2013). Chronic disease risk among adults with cerebral palsy: The role of premature sarcopoenia, obesity and sedentary behaviour. Obesity Reviews, 14, 171–182. doi:10.1111/j.1467-789X.2012.01052.x
  • Pope, C., Ziebland, S., & Mays, N. (2000). Analysing qualitative data. British Medical Journal, 320, 114–116. doi:10.1136/bmj.320.7227.114
  • Reddihough, D. S., Jiang, B., Lanigan, A., Reid, S. M., Walstab, J. E., & Davis, E. (2013). Social outcomes of young adults with cerebral palsy. Journal of Intellectual & Developmental Disability, 38, 215–222. doi:10.3109/13668250.2013.788690
  • Sandström, K. (2007). The lived body — Experiences from adults with cerebral palsy. Clinical Rehabilitation, 21, 432–441. doi:10.1177/0269215507073489
  • Strauss, D., Ojdana, K., Shavelle, R., & Rosenbloom, L. (2004). Decline in function and life expectancy of older persons with cerebral palsy. NeuroRehabilitation, 19, 69–78.
  • Svien, L. R., Berg, P., & Stephenson, C. (2008). Issues in aging with cerebral palsy. Topics in Geriatric Rehabilitation, 24, 26–40.doi: 10.1097/01.TGR.0000311404.24426.45
  • Tracy, J., & Graves, P. (1996). Medical students and people with disabilities: A teaching unit for medical students exploring the impact of disability on the individual and the family. Medical Teacher, 18, 119–124. doi:10.3109/01421599609034145

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.