Dispersed or clustered housing for adults with intellectual disability: A systematic review

References

• Ahmed, Z., Fraser, W., Kerr, M. P Kiernan, C., Emerson, E., Robertson, J., et al. 2000. Reducing antipsychotic medication in people with a learning disability. British Journal of Psychiatry, 176, 42–46.
   PubMed Web of Science ®Google Scholar
• Allard, M. A. (1996) Supported living policies and programmes in the USA. Deinstitutionalization and community living: Intellectual disability services in Britain, Scandinavia and the USA, Mansell, J. & Ericsson, K. (Eds.), London: Chapman & Hall. pp. 97–116.
   Google Scholar
• Brylewski, J., Duggan, L. ( 2004). Antipsychotic medication for challenging behaviour in people with learning disability. . Cochrane Database of Systematic Reviews, (3), Art. No. CD000377.
   Google Scholar
• Cambridge, P., Carpenter, J., Beecham, J., Hallam, A., Knapp, M., Forrester-Jones, R., et al. (2001). Twelve years on: The outcomes and costs of community care for people with learning disabilities and mental health problems, Canterbury: Tizard Centre, University of Kent at Canterbury.
   Google Scholar
• Campaign for the Mentally Handicapped. (1972). Even better services for the mentally handicapped, London: Author.
   Google Scholar
• Cox, C., Pearson, M. (1995). Made to care: The case for residential and village communities for people with a mental handicap, London: Rannoch Trust.
   Google Scholar
• Department of Health. (2007). Opening the door to a new life for people with learning disabilities [Press statement], London: Author.
   Google Scholar
• Dockrell, J. E., Gaskell, G. D., Normand, C., Rehman, H. (1995). An economic analysis of the resettlement of people with mild learning disabilities and challenging behaviour. Social Science & Medicine, 40, 895–901.
   PubMed Web of Science ®Google Scholar
• Emerson, E. (2004). Cluster housing for adults with intellectual disabilities. . Journal of Intellectual & Developmental Disability, 29, 187–197.
   Web of Science ®Google Scholar
• Emerson, E., Hatton, C. (1994). Moving out: Relocation from hospital to community, London: Her Majesty's Stationery Office.
   Google Scholar
• Emerson, E., Robertson, J., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., Hillery, J. (2000). Treatment and management of challenging behaviours in residential settings. Journal of Applied Research in Intellectual Disabilities, 13, 197–215.
   Web of Science ®Google Scholar
• Emerson, E., Robertson, J., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., Knapp, M., et al. (2000). Quality and costs of community-based residential supports, village communities, and residential campuses in the United Kingdom. American Journal on Mental Retardation, 105, 81–102.
   PubMedGoogle Scholar
• Emerson, E., Robertson, J., Gregory, N., Kessissoglou, S., Hatton, C., Hallam, A., et al. (2000). The quality and costs of community-based residential supports and residential campuses for people with severe and complex disabilities. Journal of Intellectual & Developmental Disability, 25, 263–279.
   Web of Science ®Google Scholar
• Epstein-Frisch, B., van Dam, T., Chenoweth, L. (2006). Presenting the evidence: Accommodation and support for people with disability, Epping, Australia: Institute for Family Advocacy and Leadership Development.
   Google Scholar
• Felce, D., Emerson, E. (2001). Living with support in a home in the community: Predictors of behavioral development and household and community activity. Mental Retardation and Developmental Disabilities Research Reviews, 7, 75–83.
   PubMed Web of Science ®Google Scholar
• Felce, D., Perry, J., Romeo, R., Robertson, J., Meek, A., Emerson, E. et al. (2008). Outcomes and costs of community living: Semi-independent living and fully staffed group homes. American Journal on Mental Retardation, 113, 87–101.
   PubMedGoogle Scholar
• Felce, D., Repp, A. C., Thomas, M., Ager, A., Blunden, R. (1991). The relationship of staff:client ratios, interactions, and residential placement. Research in Developmental Disabilities, 12, 315–331.
   PubMed Web of Science ®Google Scholar
• Felce, D., Toogood, S. (1988). Close to home: A local housing service and its impact on the lives of nine adults with severe and profound mental handicaps, Kidderminster, UK: British Institute of Mental Handicap.
   Google Scholar
• Gregory, N., Robertson, J., Kessissoglou, S., Emerson, E., Hatton, C. (2001). Factors associated with expressed satisfaction among people with intellectual disability receiving residential supports. Journal of Intellectual Disability Research, 45, 279–291.
   PubMed Web of Science ®Google Scholar
• Hallam, A., Knapp, M., Järbrink, K., Netten, A., Emerson, E., Robertson, J., et al. (2002). Costs of village community, residential campus and dispersed housing provision for people with intellectual disability. Journal of Intellectual Disability Research, 46, 394–404.
   Google Scholar
• Hatton, C., Emerson, E., Robertson, J., Henderson, D., Cooper, J. (1995). The quality and costs of residential services for adults with multiple disabilities: A comparative evaluation. Research in Developmental Disabilities, 16, 439–460.
   PubMedGoogle Scholar
• Hatton, C., Emerson, E., Robertson, J., Henderson, D., Cooper, J. (1996). Factors associated with staff support and resident lifestyle in services for people with multiple disabilities: A path analytic approach. Journal of Intellectual Disability Research, 40, 466–477.
   PubMed Web of Science ®Google Scholar
• Healthcare Commission. (2007a). Investigation into the service for people with learning disabilities provided by Sutton and Merton Primary Care Trust, London: Author.
   Google Scholar
• Healthcare Commission . (2007b). A life like no other: A national audit of specialist inpatient healthcare services for people with learning difficulties in England, London: Author.
   Google Scholar
• Healthcare Commission, & Commission for Social Care Inspection. (2006). Joint investigation into the provision of services for people with learning disabilities at Cornwall Partnership NHS Trust, London: Healthcare Commission.
   Google Scholar
• Horner, R. H., Close, D. W., Fredericks, H. D. B., O'Neill, R. E., Albin, R. W., Sprague, J. R., et al. (1996). Supported living for people with profound disabilities and severe problem behaviors. People with disabilities who challenge the system, Lehr, D. H, Brown, F. (Eds.), Baltimore: Paul H. Brookes, 209–240.
   Google Scholar
• Janssen, C. G. C., Vreeke, G. J., Resnick, S., Stolk, J. (1999). Quality of life of people with mental retardation - Residential versus community living. British Journal of Developmental Disabilities, 45, 3–15.
   Web of Science ®Google Scholar
• Johnson, K., Traustadóttir, R. (2005). Deinstitutionalization and people with intellectual disabilities: In and out of institutions, London: Jessica Kingsley.
   Google Scholar
• Khan, K. S., ter Riet, G., Glanville, J., Sowden, A. J., Kleijnen, J. (2001). Undertaking systematic reviews of research on effectiveness: CRD's guidance for those carrying out or commissioning reviews, CRD report number 4, 2nd ed. York, UK: NHS Centre for Reviews and Dissemination, University of York.
   Google Scholar
• Kim, S., Larson, S. A., Lakin, K. C. (2001). Behavioural outcomes of deinstitutionalisation for people with intellectual disability: A review of US studies conducted between 1980 and 1999. Journal of Intellectual & Developmental Disability, 26, 35–50.
   Web of Science ®Google Scholar
• Kinsella, P. (1993). Supported living: A new paradigm, Manchester, UK: National Development Team.
   Google Scholar
• Kozma, A., Mansell, J., Beadle-Brown, J. (2009). Outcomes in different residential settings for people with intellectual disability: A systematic review. American Journal on Intellectual and Developmental Disabilities, 114, 193–222.
   PubMedGoogle Scholar
• Lowe, K., de Paiva, S. (1991). NIMROD: An overview. A summary report of a 5-year research study of community-based service provision for people with learning difficulties, London: Her Majesty's Stationery Office.
   Google Scholar
• Mansell, J. (2006). Deinstitutionalisation and community living: Progress, problems and priorities. Journal of Intellectual & Developmental Disability, 31, 65–76.
   PubMed Web of Science ®Google Scholar
• Mansell, J. (2008). Economies and diseconomies of scale in residential services for people with ID [Abstract]. Journal of Intellectual Disability Research, 52, 755.
   Google Scholar
• Mansell, J., Beasley, F. (1993). Small staffed houses for people with a severe mental handicap and challenging behaviour. British Journal of Social Work, 23, 329–344.
   Web of Science ®Google Scholar
• Mansell, J., Felce, D., Jenkins, J., de Kock, U. (1982). Increasing staff ratios in an activity with severely mentally handicapped people. British Journal of Mental Subnormality, 28, 97–99.
   Web of Science ®Google Scholar
• Mansell, J., Felce, D., Jenkins, J., de Kock, U., Toogood, A. (1987). Developing staffed housing for people with mental handicaps, Tunbridge Wells: Costello.
   Google Scholar
• Mansell, J., Knapp, M., Beadle-Brown, J., Beecham, J. (2007). Deinstitutionalisation and community living – outcomes and costs: Report of a European Study. Volume 2: Main Report, Canterbury: Tizard Centre, University of Kent.
   Google Scholar
• McConkey, R., Abbott, S., Walsh, P. N., Linehan, C., Emerson, E. (2007). Variations in the social inclusion of people with intellectual disabilities in supported living schemes and residential settings. Journal of Intellectual Disability Research, 51, 207–217.
   PubMed Web of Science ®Google Scholar
• McConkey, R., Walsh-Gallagher, D., Sinclair, M. (2005). Social inclusion of people with intellectual disabilities: The impact of place of residence. Irish Journal of Psychological Medicine, 22, 10–14.
   Google Scholar
• Nirje, B. (1976). The normalization principle. Changing patterns in residential services for the mentally retarded, Kugel, R., Shearer, A. (Eds.), Washington, DC: President's Committee on Mental Retardation, 231–240.
   Google Scholar
• Owen, K., Hubert, J., Hollins, S. (2008). Moving home: The experiences of women with severe intellectual disabilities in transition from a locked ward. British Journal of Learning Disabilities, 36, 220–226.
   Google Scholar
• Robertson, J., Emerson, E., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A. (2000). Receipt of psychotropic medication by people with intellectual disability in residential settings. Journal of Intellectual Disability Research, 44, 666–676.
   PubMed Web of Science ®Google Scholar
• Robertson, J., Emerson, E., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., et al. (2001). Social networks of people with mental retardation in residential settings. Mental Retardation, 39, 201–214.
   PubMedGoogle Scholar
• Robertson, J., Emerson, E., Gregory, N., Hatton, C., Turner, S., Kessissoglou, S., et al. (2000). Lifestyle related risk factors for poor health in residential settings for people with intellectual disabilities. Research in Developmental Disabilities, 21, 469–486.
   PubMed Web of Science ®Google Scholar
• Ryan, J., Thomas, F. (1987). The politics of mental handicap Rev. ed., London: Free Association Books.
   Google Scholar
• Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., et al. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40, 457–470.
   PubMedGoogle Scholar
• Segal, S. S. (1990). The place of special villages and residential communities: The provision of care for people with severe, profound and multiple disabilities, Bicester, UK: AB Academic.
   Google Scholar
• Stancliffe, R. J. (2004). Semi-independent living and group homes in Australia. Costs and outcomes of community services for people with intellectual disabilities, Stancliffe, R. J., Lakin, K. C. (Eds.), Baltimore: Paul H Brookes, 129–150.
   Google Scholar
• Stancliffe, R. J., Keane, S. (2000). Outcomes and costs of community living: A matched comparison of group homes and semi-independent living. Journal of Intellectual & Developmental Disability, 25, 281–305.
   Web of Science ®Google Scholar
• Stancliffe, R. J., Lakin, K. C., (2005). Costs and outcomes of community services for people with intellectual disabilities, Baltimore: Paul H. Brookes.
   Google Scholar
• Thomas, D., Firth, H., Kendall, A. (1978). Encor - A way ahead: CMH enquiry paper 6, London: Campaign for the Mentally Handicapped.
   Google Scholar
• Vizel, I. (2008). Individualised funding in the context of scarce resources and inaccessible housing markets. Achieving their own lives: The implementation of individualised funding for people with intellectual disability, Bigby, C. Fyffe, C. (Eds.), Bundoora, Australia: La Trobe University, 33–39.
   Google Scholar
• Walsh, P. N., Emerson, E., Bradley, V., Schalock, R. L., Moseley, C. (2007). Supported accommodation services for people with intellectual disabilities, Dublin: National Disability Authority.
   Google Scholar
• Walsh, P. N. Linehan, C., Hillery, J., Durkan, J., Emerson, E., Hatton, C., et al. (2001). Family views of the quality of residential supports. Journal of Applied Research in Intellectual Disabilities, 14, 292–309.
   Web of Science ®Google Scholar
• Wolfensberger, W. (1972). Normalization: The principle of normalization in human services, Toronto: National Institute on Mental Retardation/Leonardo Crainford.
   Google Scholar
• Wolfensberger, W. (1975). The origin and nature of our institutional models, Syracuse, NY: Human Policy Press.
   Google Scholar
• Young, L. (2006). Community and cluster centre residential services for adults with intellectual disability: Long-term results from an Australian-matched sample. Journal of Intellectual Disability Research, 50, 419–431.
   PubMed Web of Science ®Google Scholar
• Young, L., Sigafoos, J., Suttie, J., Ashman, A., Grevell, P. (1998). Deinstitutionalisation of persons with intellectual disabilities: A review of Australian studies. Journal of Intellectual & Developmental Disability, 23, 155–170.
   Web of Science ®Google Scholar